October 30th
2008
1:49 PM
Similar problems. A-fib @ 37. Unknown etiology with no conclusive cause. Possible due to taking prescription allergy meds with sudafed for 15+ years.
Anyway, tried to go off of Toprol XL 25mg once a day several times. The first time I felt horrible, weak and lethargic, chest discomfort. Lasted for a few weeks. Went back on and in one day symptoms disappeared.
I tried this week to wean off by taking a half a pill a day. Made it one day! I was feeling great so I decided what the heck and tried. What a mistake.
I have tried several different ways of coming off (weaning) with no success.
My cardiologist would like me to try to go off... We need to come up with a better solution.
Things that I have found that "work" for me taking this drug is:
1. I take it after lunch. It is the only time of day taking it that I don't feel bad.
2. The generics made me feel bad. Tried several different manufacturers.
3. If I miss the normal time I take it as soon as possible. Usually by dinner time.
Good luck trying to come off or maintain with Toprol XL. Please post if anyone has success.
Toprol XL seems like a necessary evil at this point for me.
-- By donte | Reply | Private Message me
October 30th
2008
8:58 AM
Well.....ain't this drug wonderful!! Glad I came here first. I am currently on Diovan 80mg. basically doing very well on it, but I started to loose some hair, and do have some sinus issues, so talked w/Doctor he gave me a prescript. for Toprol XL yesterday, got it filled (my proper prescription for 3mos. supply mail in is written for the Brand Name) the prescrip. I filled yesterday locally (he gave me 2mos to fill locally before sending in my mail in prescrip.) My God! When I read the patient info, scared the living crap out of me! See if I TAKE that medication - NOT! I will stick with the devil I know, Diovan and hope that the hair loss thing will resolve itself. I suffer from anxiety, so can push my BP up at will, and it's been up since I started stressing on the hair loss - I have made up my mind to just try and chill about it, but Diovan appears to be one of the least "evil" of the BP meds I'v taken so far. Lisinopril was a nightmare, Diltiazem wasn't too bad, but thought my teeth were going to fall out! I swear, the anxiety about these meds. does nothing to help ones BP but I definitely am not taking this poison, probably would make me stress worrying, I'd give myself a stroke. I am making a copy of the patient info. and sending it to my Dr. (whom I love by the way) and ask him "what the hell were you thinking Doctor?" Good luck everyone
-- By camberwell | Reply | (1) replies | Private Message me
October 13th
2008
8:51 PM
I have been on Toprol XR generic brand metoprolol since February 2008. No side effects originally. My blood pressure wasn't extremely high but enough that I needed something. Just recently, my BP has sky rocketed. Dr. upped med from 25 mg per day to 50 mg per day. In the last month, I have put on 18 pounds. I am lethargic, not sleeping well at all. Mostly 2 hours a night. I don't have nightmares, just can't sleep. I want off this drug. It isn't controlling my bp anyway. I have a doctor's appt. in a few days. I don't look forward to the withdrawals but it has to be better than the alternative and staying on it. I am afraid of CHF. My legs, hands and face are swollen from fluid retention. I have pitting edema in my legs. I am not having trouble breathing but I don't want that to happen before I decide to go off of it. The website has helped me to realize it is the meds and not me. Thanks for the support.
-- By rrcopleyrn | Reply | Private Message me
September 27th
2008
9:46 AM
Back in July I was experiencing rapid heart beats and shortness of breath. I'm a 43 white female with a high stress job. I went to the doctor expecting him to prescribe a sedative. He hooked me up to an EKG which showed I had a left bundle branch block. He then ordered blood work, chest x-rays, an ultra sound, and a nuclear stress test. All test came back fine, but my stress test showed a heart attack, which apparently is common with the left bundle block. I then wore a 24 hour Holter moniter which indicated tachycardia. That's when the doctor prescribed 50 mg Metoprolol. My BP and heart rate are now almost normal and the shortness of breath has gone away. I still experience a mild heaviness in my chest, but that is only when I allow my self to be stressed. I have gained over 5 pounds in less than 2 months and my dreams are more vivid than usual. One side effect that was listed on my drug info sheet that I haven't read about on this site described a cough, which I have had for over a month. I mentioned the cough to my doctor and he said it was prob post nasal drip so he prescribed 180 mg Fexofenadine and told me to cut the Metoprolol in half so I would be taking 25 mg. The Fexofenadine has helped with sneezing that I have always experienced, but the cough is still there. The cough is not always severe, but it has interrupted my sleep twice and my job once. The last bad coughing episode lasted 90 mins during the night. Has anyone else experienced the coughing side effect of Metoprolol?
-- By kpb | Reply | (3) replies | Private Message me
September 19th
2008
8:53 PM
Hi- I was on Lopressor 50mgs. twice a day for my slightly elevated BP, MVP, SVT, palpitations, and anxiety attacks. Started having some intermittent chest pain (not bad, just annoying). Dr. switched me to Toprol XL 100 mg/day. Of course, insurance made me get Metoprolol ER 100 mg/day (the generic) but I haven't had a problem with it!! I love taking just 1 pill a day instead of having to juggle the two pills and remembering if and when I took them. I take the pill every morning with breakfast (which is usually an apple and a small bowl of cereal and a glass of water). I have gained some weight since being on the Lopressor, but I started the Dash Diet and have lost about 8 lbs. in about 4 months, not too good but I'm not following the diet as well as I should be! I also get tired and occasionally have problems with hearburn and gas, but anytime you take any kind of medication you will have side effects. Wish I didn't have to take any meds but am not willing to subject myself to the effects of high blood pressure, I would rather have the side effects from the meds. My BP is usually 110/75 now and my heart rate is around 70-75. I'm 47 years old and feeling like I might make it into my 90's now!!
-- By suzzyquzzy101 | Reply | (1) replies | Private Message me
September 7th
2008
3:16 AM
I HAVE BEEN ON TOPROL-XL FOR 2 YEARS. 25 MG. IN AM AND BLOOD PRESSURE WOULD FLUCTUATE UP TO 170/116 AND GO BACK DOWN TO 140/85. THEN WAS ALSO PUT ON NORVASC 25MG. IN PM. I ALSO AM HYPOTHYROID WITH HASHIMOTOS. MY SIDE AFFECTS HAVE BEEN EXTREME. SWEATING, HAVE TO CARRY A PAPER TOWEL OR SCARF TO WIPE SWEAT OFF, SPACED OUT, TIRED, FORGETFULNESS, RACING HEART, LEGS ANKLES SWOLLEN, THEY FEEL SO HEAVY, WEIGHT GAIN, EYES WATER, NOSE WILL HAVE NASAL DRIP, CONSTIPATED, SORE NECK, HEADACHES, THE LIST GOES ON. THIS SUMMER I WENT TO THERAPY FOR MY NECK, HAD ECHO AND WORE 24 HR. HEART HALTER, WHICH I HAVE FOUR EXTRA BEATS, WENT TO ENDRICONE DOCTOR WHO RAN TESTS FOR EVERYTHING, 24 HR. URINE, TESTS CAME BACK WITH TSH HIGH, EVERYTHING ELSE WAS NORMAL BUT FOR MY HEART EXTRA BEATS ENDR. AND FAMILY DOCTOR TOOK ME OFF NORVASC AND PUT ME ON TOPROL-XL 25MG IN PM ALSO AM. WELL FEELING LIKE I WAS READY TO GIVE IT ALL UP, LIKE I WAS DYING, I QUIT TAKING IT LAST NIGHT AND HAVE THOUGHT ABOUT THIS ALL YEAR, TRYING PEPTACE AND CELERY SEED EXTRACT. I FELT SO BAD THAT I KNOW IT COULD BE DANGEROUS TO QUIT THE TOPROL-XL LIKE THAT BUT I FELT LIKE MY HEART WAS GONNA BURST AND IT WAS GANNA TAKE ME OUT ANYWAY, AND DOCS. WOULDN'T LISTEN AND I HAVE BEEN IN TO THEM A LOT WITH ALL MY ISSUES. I AM 56 AND HAVE ALWAYS BEEN ACTIVE, OUTDOORS TYPE PERSON. I WALK 2 MILES ON TREADMILL EVERYDAY AND 30 MIN. OF TAE-BO EXERCISE. I WORK 5 DAYS A WEEK AND HAVE LOTS TO DO AT HOME. THEY TRIED TO PUT ME ON CYMBALTA, LEXAPRO, ELIVOIR FOR THEY SAID WHEN YOU FEEL THAT BAD YOU CAN GET DEPRESSED, I TOLD THEM NO, I AM NOT ADDING ANY MEDS. KNOWING I WOULD GET WORSE. PEOPLE AT WORK, MY FAMILY WILL SAY YOU DON'T LOOK LIKE YOU FEEL GOOD OR IS SOMETHING WRONG, HOW COMPLICATED IT WOULD BE TO EXPLAIN. SO I AM LISTENING TO MY BODY CAUSE FEELING THAT BAD ISN'T RIGHT SO I HOPE THIS WORKS. I COULN'T FEEL ANY WORSE ANYWAY. SO GOOD LUCK TO YOU ALL AND ALL OF US ARE UNIQUE TO FIND WHAT MIGHT WORK FOR US, AND MOST THOSE PRESCRIPTIONS ARE FOR ONE THING AND THEN TRIGGER OFF OTHER THINGS THEN YOU GOTTA TAKE ANOTHER MED. FOR THAT. I AM GLAD TO FIND THIS SITE.
-- By debbie56 | Reply | (2) replies | Private Message me
August 22th
2008
10:48 PM
I suddenly had high blood pressure. I was put on a heart monitor for 21 days because I was experiencing frequent palpitations. I was given 25 mg Metoprolol ER the genic for Toprol XL on June 6, 2008. I had the usual symptoms extreme fatigue, headache, constipation,swelling, weight gain for the first month. I am 59 yrs. old.
The second month I started to have horrible nightmares, and headaches that would not go away. On Aug.12 while driving home I started to hear voices, had blurred vision and hallucinations. I was driving fast and screaming to make the voices stop.. I ended up in a parking lot. I was crying and for a minute I had a bit of reality. I called the cardiologist office and told the nurse what was going on. She said to immediately stop the meds because I was having a rare serious side effect. I sat crying for awhile and was able to call a friend to pick me up. I stayed at home for 4 days. The entire time my hands shook and my headache was horrible. It was one week before I was able to function properly.
I called my pharmacist and she told me that this drug affects the central nervous system. 2 % of 100,000 people have this side effect. I told her that it was not written on my paper with the prescription. She said that because it is so rare they do not have put it on. She printed out the side effects for me from her web site. A site that is only accessible to pharmacists or Dr.'s. My Dr. wants me to try Cardizeim now and I do not want to because I am afraid. I told him that the BP was down to normal but he still wanted to because of the palpitations. I was given the option of the Cardiziem or seeing and Electrical Man at the Cardiology office. As of yet I have not taken the Cardiziem. This is the first time I have read this web site and I hope that this information may help someone. I finally feel good again except for the rapid heart beat and glad to be alive.
July 26th
2008
9:50 AM
I am a 39 year old white male that had aortic valve replacement surgery five years ago. About three months after the surgery (which went off without a hitch) I had a tremendous spike in my BP that went on for a few days (200/100 - enough so I could see my heartbeat in my eyes!). My Dr started me on Toprol XL 75 and while it brought my BP down some, it didn't bring it down a lot. He moved me to 200 mg a day and now my BP is around 105/55 with a resting pulse around 50.
While I experienced many of the side effects listed here (feeling groggy, confused, etc) they only lasted a few months. I must admit that I did pack on about 20 lbs over six months. However, unlike so many who choose to blame drugs (or lack thereof) for their problems, I took it upon myself to start exercising and guess what?!? The weight comes off! I now weigh less than when I graduated high school, I am in better shape than any time in my life and I believe that exercise helps me sleep better at night. All of this even though I still take 200mg a day. Given that some of you say that you're practically dead at taking 25, I should be 6 feet under or weigh 400 lbs.
I guess what I want to say is that perhaps instead of jumping on the bandwagon here that Toprol causes all of your problems, perhaps you want to take your own health into your hands and begin to eat a little better and exercise (and don't give me "but my ankles are swollen!" excuse - there is something called water aerobics). I don't deny that it can cause some side effects, but it can work wonders with your BP. You just have to DO SOMETHING to help keep the weight off (which then help with the sleep problems, mental clarity, etc).
-- By thom228 | Reply | (4) replies | Private Message me
July 20th
2008
6:41 AM
Hello all,
I'm a 45-yr old Air Force Major (Male) recently diagnosed with asymptomatic chronic Atrial Fibrillation (As in I have it and was walking around not knowing it). When I went to see the cardiologist, my B.P. was only 120 / 74 (Which, until they changed the rules, used to be normal)and he puts me on Diovan 80mg once a day plus Coumadin 5mg. Well the Diovan almost made me faint and I had numbness in both arms, plus a funky rash, kind of like chicken pox showing up on my arms and thighs.
I went online and read horror stories of Diovan so I stopped taking it immediately (I had only taken four doses and never had any horrible symptoms until after I took the meds!). Then the Dr. put me on an Event Monitor and it showed I was indeed in A-fib all the time, plus at night, my heart was racing briefly to 200 a minute while I was sound asleep. So he puts me on Toprol XL 100mg once a day.
Immediately I had trouble sleeping (Which I never had before, ever!) with crazy dreams and tossing/turning. My B.P. dropped to 88/65 and my fibrillating heart rate was 64!!! I was so mad because I actually felt better before the meds. I found this site and saw what everyone was posting and immediately took myself off the Toprol XL.
The day after stopping the Toprol I had slight chest pains (Like angina or gas bubble) but they went away on their own. I slept fine the next night.
I'm having an Electro-Cardiversion done on the 21st July to see if I can stop the A-fib and get in normal rhythm. I know the Dr. is going to be mad at me for stopping the Diovan and Toprol, but I'm sorry, I'm convinced there is a better way to beat all this (Namely exercise and eating right). Being in the service means you have to be Mr. Physical and Mental "perfect" all the time. I cannot afford to be diagnosed with depression in my line of work! Thanks to all on this website and I wish you the best.
PS. for those who think I'm being ignorant of my medication, I have a nice fat insurance policy and Power of attorney for my wife and kid in the event I keel over!!! I may be medication intolerant but at least I took care of my family.
July 18th
2008
12:25 PM
I am a woman in her early 60's. I have slightly elevated BP abd it does tend to spike first thing in the morning, after waking and is much lower (normal) at night. I have tried several different BP meds and had side effects of all of them. The Doctor recently put me on Toprol XL 25mg. After about three weeks, I really did not feel well - extreme fatigue, severe leg and joint pain, depression. I just could not function. I know I am extremely sensitive to medication. I decided to come off the Toprol, after only three weeks and go back to Lisinopril 2.5MG. Now, after only two days of not taking Toprol, I truly feel very weird. Far less tired, but extreme dizziness and a kind of spaced out feeling. Is this just the withdrawal from Toprol...and after only three weeks of taking it? Plus, my BP seems to be very low - the lowest I have ever recorded it. 112/55 last night. Does coming off Toprol actually have a reverse effect and plummit your BP until it is out of your system. If so, why has my doctor told me to triple upon the Lisinopril now I am back on that. Dealing with even slightly elevated BP has become such a major issue for me.
-- By joans0123 | Reply | (2) replies | Private Message me
July 7th
2008
5:41 PM
My doctor took me off metopolol (genericToprol), and my last dosage was a week ago. I suffered weight gain, tiredness, and muscle fatigue during my 18 months on the drug.
I have 2 questions - how long will the drug remain in my system, and has anyone who experienced weight gain while on Toprol or the generic, lost any weight after stopping it?
Thanks, Tony
-- By tonypicc | Reply | (4) replies | Private Message me
June 25th
2008
4:18 PM
Started Toprol XL 75 mg in December 2007. I had been having gastrointestinal issues and after much searching, I decreased the Toprol to 50 mg. and the symptoms went away. Before I figured it out, I had difficulty having bowel movements and unirating.
-- By sunshine1945 | Reply | (1) replies | Private Message me
June 24th
2008
2:21 PM
I'm a 30 yr old healthy male. I went to the ER, and then the Dr., about 4 weeks ago after waking up with intense pain in the veins of my right arm and having pounding palps. I had just been told some extremely stressful news the night before, so I was pretty sure this was blood pressure & stress related. ... EKG showed Wolf-Parkinson-White syndrome, so that's what the Dr's assumed was the problem. I never knew what it was called, but I've had my heart race due to WPW many times since I was a young child .. this did not seem to be related. This was just pounding.
The cardiologist put me on 50mg of Toprol XL daily to control the WPW - even though that wasn't acting up. I left confused. Pharmacy issued generic Metoprolol Succinate mfg. by Sandoz.
I didn't want to be on meds, so I didn't take it for the first few days, hoping that I would return to normal. After all, I just woke up with this all of the sudden.. I had been fine the day before. Palps continued, though, so eventually I relented and started taking the meds.
The first two or three weeks were filled with ups and downs. Exhaustion, palpitations and anxiety would come and go.
This past weekend things got really bad. I began having anxiety attacks -- I think that's what it was, I'd never had one before -- and my vision was totally screwed up. I couldn't focus on anything and was sensitive to some lighting. Black text on a bright white screen (lcd monitor) was especially hard to read. I was completely in a dazed & confused state. Loud noises and crowds were bothering me... which was awful, considering it was my best friend's wedding. Also had headaches, lightheadedness & loss of appetite. These side effects came and went on Friday & Saturday and were pretty constant on Sunday & Monday.
I decided to quit Toprol cold-turkey on Sunday. I have been 2 days without. I have used L-Theamine to reduce stress and keep my blood pressure steady. It seems to be working. I also began taking CoQ10 today after reading some good things about it here.
My vision & mental focus is beginning to improve after 3 days of disabilitating problems. Anxiety has also improved. I even attempted to "get back to normal" at work today, but had to leave after only an hour of strenuous exercise in the heat. Vision problems returned, anxiety set in. It's like riding a really freaking scary roller coaster, except with a legitimate fear that this thing might kill you.
I will update this as time goes by, to let you all know how things worked out for me. I'm really hoping to be mostly back to normal in another day or two, since I haven't been on for very long. Hopefully this will be of help to someone in the future. Damn, I Wish I had never gotten on this stuff.
-- By bnm | Reply | (4) replies | Private Message me
June 23th
2008
8:44 PM
I started taking Toprol 4 months after having my baby. I never had High Blood Pressure until I was 2 months pregnant and It continued throughout my pregnancy. Four months after giving birth my BP kept creeping up so I went to my doctor and she prescribed 25mg of Toprol. I have been taking Toprol for a year and a half, I have gained over 20 pounds, I have felt like I have been walking in a fog, loss of concentration, been diagnosed with depression, I have slept at night but not feeling rested. I went off the meds for an allergy test and immediately realized that I was sleeping better and feeling rested, so I was monitoring my BP and It has been okay so I have stayed off the meds. I never realized that my problems could have been linked to this med until I went off the Toprol. My question is how long before the weight will come off. I was working out 5 days a week and watching what I ate for over 2 months while on the Toprol and no change. I am hoping that since I am off of Toprol I will start dropping a few pounds soon.
-- By ash15 | Reply | Private Message me
May 30th
2008
9:35 AM
I am 36 and take 100 mg of generic Toprol a day. I was put on it due to many ( I mean 30 to 40) palps a day. I had been on Atenolol for about 5 years and the doctors told me it had simply quit working. I had an echo and a 24 hour holtor monitor and both came back negative, yet I felt like I was dying daily. My palps have diminished with the medicine, with a change in diet and running 5 or 6 days a week for about 3 miles. Caffeine and alcholol have almost been excluded. I do have cold hands and feet and have had much trouble losing weight. Stomach cramps and an upper right side cramps have been an issue. After reading your posts I think we need to get off this stuff
-- By chadjenfrey | Reply | (3) replies | Private Message me
January 12th
2008
10:45 PM
Shortness of breath, foggy headed, joint pain, weight gain, stiff neck, clicking sounds, loss or flexibility of joints, tired. Felt old! Went on Toprol-xl for maintenance only. Never had high b/p. Talked with a friend, then found this web sight. Guess I'm not alone. Guess it's not me! Changed doctor now, one that will listen. She urged me to go off it and monitor my b/p. Took about 2 weeks, been off for a total of 3 weeks now. Feel great. Most symptoms are gone. No more inhaler and feel better. Clear headed again. Blood pressure is now high though. Don't know if it's me or the drug. Don't know if drug has done any damage. Had an ekg done. Dr. said heart is working to hard now. Wants to do a complete stress test. My wife and I are worried if its the Toprol-xl wearing off, or not. Anyone else had an ekg done. Does Toprol-xl damage your heart? Need answers. Looking for feed back. I'm only 53. Never had health problems before. Thought I was just growing old!
-- By pdumont | Reply | (2) replies | Private Message me
May 16th
2007
7:56 AM
I have been on Toprol 25 mg for almost a year for heart palpitations. I has worked for the palpitations, but the side effects have been a challenge. I have gained about 20 pounds, have the vivid nightmares, lack of energy, etc. One thing that I have noticed recently is the increased severity of allergies and difficulty breathing. Anyone else experiencing this?
-- By drfnc | Reply | (7) replies | Private Message me
November 28th
2008
4:22 PM
I have been on Toprol XL for 8 years. I began taking it when I was 19 after a "attack" where my heart rate was close to 200 bpm for a couple of hours. I was put on Toprol 50 mg for my SVT. This appeared to help but in the beginning I definitely had a slight difficulty with breathing which was exacerbated by stress. It took me a couple of months to get use to the drug especially since my heart rate didn't necessary adapt to the drug right away. I have been trying for a while to get off the medication without the ablation surgery. My cardiologist(s) never thought I should have the procedure since I was so young. It has been a challenge to get off the medication because my heart rate is so high. I was told that my body is so use to the medication that I need to ween myself off. I went down to 25mg for the last year and just in the last week went off of it completely. While I can feel my heart rate (very rarely) every once and a while, it's not enough to get me to go back on the meds. The one side effect that I have had that my doctors have told me about is stomach trouble. Toprol can weaken the muscles in the esophagus (the flap) and cause pain/burning/nausea. My doctors are not 100% certain that this is what is causing my stomach issues but they feel that my prolonged use of the drug has lead to a weakening of my muscle.
-- By mmmccabe | Reply | Private Message me