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150 Side Effects posted for Singulair

December 29th
2008
4:45 PM

I am totally upset by reading the posts here. my son is just now 8 months old. he was put on singulair when he was just 6 months old. at first it seemed to be working...for maybe 2 weeks...then everything went crazy. he was started out on it when his pediatrician stated that he had asthma and apparently was on a very high dosage of it. they started him on 10 mg of the oral granules. before taking it he was a very happy baby, even with him being so young i never had any problems with him crying excessively or being massively irritated. since he started on the medication he has had massive irritability spells, constant fussing and crying and cant seem to fall asleep at night let alone stay asleep very long. i had taken him to the emergency room on christmas eve because a new problem showed up. he now was having a massive hard time breathing, he had a persistant cough, congestion in his chest and was almost always gasping for air. the staff at the hospital were in disbelief when they were informed that his pediatrician had put him on singulair at such a young age and at such a high dosage. i am now in the process of obtaining a lawyer and filing a lawsuit against the pediatrician for medical malpractice. this drug is very dangerous for anyone especially children. i would suggest anyone else having these problems with their child and this drug do the same. it can apparently cause long term lung damage, pulmonary disorders and even death. my son has been off of the medication since christmas eve and has already done a massive turn around. he sleeps well and through the night again, his breathing has improved and his cough is almost gone. they did say in the E.R that he has congestion in his chest due to the singulair but it should clear up over time with the help of zyrtec. please help make a stand and protect our children from the dangers our own pediatricians present to them.

-- By tristinsmomma422 | Reply | (5) replies | Private Message me

December 13th
2008
9:24 PM

My 4 year old son started taking singulair when he was two. I don't think I picked up on his behavior change right away b/c I thought that he was just entering the "terrible two's". But over time, his allergist added on Nasonex (I know the docs say that it doesn't cause side-effects b/c it's a nasal spray, but I don't buy that...it's a steroid, plain and simple) and more recently zyrtec was added on for his hives. Well, the zyrtec was the straw that broke the camel's back. I mean, he has been a real "handful" since the singulair, but after zyrtec was added 5 months ago - let's just say he was completely out of my control. His meltdowns were so bad that I couldn't go ANYWHERE with him. I either got a sitter or just didn't go anywhere. He became aggressive, defiant, emotional, unhappy. And to top it off he started to have serious "autistic-like" self-stimulatory behaviors (grinding teeth, squinting eyes shut, flapping his hands, punching himself...). At this point my life had become a complete nightmare, and my poor 10 month old son was getting NO attention b/c my 4 year old was so out of control and aggressive. I was afraid for the baby's safety...oh, I could go on all night. This medication has impacted my marriage, my finances, my sanity. Shortly after he started Singulair I had to go on an antidepressant b/c it too so much out of me just to be his mommy. Anyway, a week ago I had him scheduled for a psych evaluation (thought for sure we were going to walk away with either autism or bipolar diagnosis), but two days before I decided to look up the meds he is on and BINGO! All of these posts sound like what we have been going through. I stopped all of his meds that night, cold-turkey, and he has been the most pleasant little boy I have ever met!! My husband and I have fallen in love with him over the past week - we had no idea he was such a sweet child.

Now, while I'm ecstatic that we have found the answer to our nightmare, I also feel SO STINKIN' ANGRY! We lost out on 2 years with our sweet boy, there were times when we raised our voices at him when he just couldn't help himself - he was suffering inside!! When I went to talk to the allergist about my findings this past week, he said, "well, maybe he just had a good day. I'd like to see what happens if he goes off all his meds for a week". Well, there you have it, he has been off for one week and he's an absolute angel. He has an amazing heart and is so caring!!!

Singulair is awful (and so is zyrtec). Please don't give this drug to your children. Research other alternatives (I am giving my son Nordic Naturals Fish Oil, Culturelle probiotics, vitamin c, and am changing his diet - increased magnesium and decreased dairy. I came up with this after hours of research...).

There is a woman on this site whose daughter committed suicide after 3 years on Singulair. This is no joke and the FDA needs to get with it.

BTW, I used to date a Singulair rep (I knew there was something I didn't like about that guy:)

-- By nomeds2 | Reply | (4) replies | Private Message me

December 10th
2008
11:57 PM

i had posted back a few weeks about my daughters situation on singulair well she has been off of the medication now for 3 and 1/2 weeks now and just starting last night she seemed to be a different child she has been on the med for about 14 months she is doing better in school not wanting to fight me on everything. now she is eating great which is scary when your child goes 3 weeks not eating due to being afraid.she was sent to mental health and the doctor said he had never heard of a reaction to singulair and she could go back on it we said it was not going to happen they said it was her being bull headed which we knew different.we were almost to the point where the doctor wanted to admit her to a physic unit . we had her off the med and within 1 week she started eating little by little we just about have her back to where she was.we video taped her having her fits and showed the dr. he just stated she is a handful. we let her see the tapes the other night she started to cry and asked what was wrong with her and we explained nothing baby it was the medicine that was making you do that and now everything is going to be ok .this is the 3rd time she has quit eating in 1 yr and we could not pin point it well now we think we know it was the medicine.they put her on zyrtec we only give it to her as needed not on a daily basis.

-- By jodyehlers | Reply | (2) replies | Private Message me

December 9th
2008
8:52 AM

I have an 8y.o. daughter that has been on Singulair for about 3 years now. Since she started taking singulair she has been absolutely miserable! She cries at everything, is very moody, has leg pains, wont leave my side and is tired ALL the time. She has circle under her eyes, she looks like she hasn't slept a wink in days! She has been off her Singulair for about 5 days now and she is a totally different person. She has been "happy-go-lucky" and full of herself, she has even woke up happy (which hasn't happened in I dont know how long). She was put on Singulair by our Doctor b/c she had Pnemonia two times in a row. She has Allergies and Asthma and for the past 3 years has been on: Singulair (4mg), albuterol, flovent, Zyrtec, and Flonase. That is just too much for a little girl to be on. She hardly eats at all, gets headaches. I just see such a difference when she is not on it but, what will she take in place of this? My husband also takes Singulair (he is miserable all the time), he doesnt sleep at night and is always tired. Anyone have alternative to this drug?

-- By chevpa1 | Reply | (4) replies | Private Message me

November 20th
2008
1:57 PM

are claritin and Zyrtec the same

-- By jodyehlers | Reply | (1) replies | Private Message me

November 20th
2008
8:33 AM

could anyone tell me if claritin is the same as singulair or what i could give my child that would help with the allergies/stuffy nose she was on singulair and was taken off

-- By jodyehlers | Reply | (4) replies | Private Message me

October 13th
2008
6:41 PM

Singular has been recommended to my 3 1/2 year old son. I didn't feel good about it, so I declined and decided to look up possible side effects. Wow! I will NOT be giving it to him!
I have always been cautious on giving him antihistamines because prior bad side effects (which I never heard anyone else complain about).
When he was a few months old, he had cold like symptoms (runny nose, congestion, etc.) and was really suffering. I gave him the over-counter Pediacare and he could breathe better but he became something out of a horror film. He screamed constantly for over 48 hours and did NOT sleep a wink! Like a "crack baby" or something. (I assure you I am not exaggerating). I too became sleep deprived and crazed by his constant screaming, it took me some time to realize it was the meds. When I quit giving it to him, he became normal again. I decided I had to deal with the symptoms and not give him meds.
A year later, different medicine, I tried again. Same results.
When he was 2 1/2 we took a road trip from KY to KS. I thought I would try Benedryl, he had 2 older syblings that it benefited. NOT for him. He became "crazy" and screamed to the top of his lungs for the entire 12 hour drive. I vowed never again (for him or his family).
I have had success with Claritin in less than normal dosing. With no side effects. I have been assured, however, that Singular would work better for the symptoms. No thanks.
I feel really bad everyone this has effected negatively. I understand the side effects first hand.
I too have heard of the "antihistamine blocker" but don't know if it works.
I plan on trying a "nettie pot" (natural alternative) and have heard great allergy success stories. You can get them for about $5 at Walmart.
Hang in there parents! Do what you have to do for your child. Trust your instinks even over the Peditrician. I love Docs but YOU know your child. :)

-- By ccompt | Reply | (4) replies | Private Message me

October 12th
2008
12:10 AM

My 8 yr old has been on singulair since May. I never put two and two together until reading these posts. He has been having anxiety at night..crying and looking terrified saying he can't stop the scary thoughts in his head. Tonight I felt so bad for him...because I can't make it go away. I am hoping with tonight being the last night on singulair he will not have such a hard time at night. He also says it's very hard to get to sleep at night. Poor kid. I also know he's a sensitive kid but it seems a bit overboard in the last few months....like getting upset and just not knowing how to handle his emotions so he just shuts down. Please message me if you've had similar experiences. I'm calling his dr. on Monday to figure out some other options if there is any. My son started with a cough in March and finally took him to see the dr. in May and she heard wheezing and started him on singulair and then added zyrtec. I know they control his coughing (wheezing...slight asthma) because if we miss a dose he coughs all day the next day. I'm a bit scared to go off it...but hope it stops the anxiety and moodiness. He had his first asthma attack last week too...and I wasn't prepared as we never have had to use the inhaler...so I didn't have it with us. Anyway, hoping he doesn't get too bad taking him off...and I hope he is able to control the scary thoughts by going off of it too.

-- By caredock | Reply | (7) replies | Private Message me

October 10th
2008
9:11 AM

My daughter is 5 years old and has been on Singulair for about 2 years now. I was at a loss concerning her behavior for the past 2 years. The anger, aggression, tics in her eyes and legs feeling tingling, unable to express herself, and truly not liking herself and thinking we don't like or love her. All this brought us to take her to therapy. And then all this information regarding side effects of Singulair come out. I brought this to her allergist and he like many others brushed it off. I think it is time the medical community looks very close at this drug concerning side effects with children. How many more parents have to come forward with all the same side effects for these educated doctors to realize there is a hugh psychological and neurological connection with this drug for some children. It has been two days now that my daughter stopped Singulair. Her nose is already starting to drip and her cough is back, but I would much rather deal with these side effects of allergies than watching her go though this mental anguish any longer. I have not seen any changes yet, but it had only been two days.

-- By jen1234 | Reply | (3) replies | Private Message me

October 6th
2008
11:28 PM

My son is now 31/2 years old and has been on Singulair since he was about 1 Yr. old. His pediatrician recommended this due to his allergies and runny nose. He has had fluid on his ears since age 1, at least that we had confirmed, and she thought that the Singulair combined with another type of antihistamine could dry up the dripping nose and clear up the ears. It did not clear up the ears, but it does stop the drip. He had tubes placed in his ears a year ago in May of 2007 and is looking now at his second set coming up in Mid-October of 2008. He has been taking this medication all but one summer of his short life. My husband and I have both had children, he a boy and I a girl, both 14 years old now. In comparison to the other two, our little one has been so completely different to raise. I've always seen children of "other parents" that have discipline problems with their children and wondered what might cause that type of action in such a small child. Now we have this beautiful little boy, but all we've ever known is how difficult he is to handle and how is anger, temper tantrums and stubborness have always put a damper on outings and even casual days at home. Due to the fluid on his ears, his speach was delayed and he has now really began to speak like a normal 3 year old. I have noticed within the last 2 weeks how he has really started saying things that I have not approved of, but have fluffed it off thinking that he has heard other children in his pre-school say these things, or heard it on a superhero show. Something happened today that really made me stop and think. I picked him up at pre-school like normal after work and he would not come to me. He looked slightly glazed in the eyes, totally not like himself at all. He talked very little on our 30 minute commute home, which was not like him. He said, "I hate you and you don't like me". I told him I do love him and he said, "NO". He said, "I'm bad for you and I have a dangerous heart". He then told me, "I kill you". This was so disturbing that I told my mother what he had said. She told me that it sounds so much like what she had heard on the news that I should check it out. This is how I've come to find this site. We have stopped giving this medication to our son and I am curious to see if there will be any change in his personality. Tubes will probably be placed in his ears again despite whether his nose drips again, so that is a mute issue at this point. When we voiced our concerns to his pediatrician when the information first surfaced several months ago regarding adult behavior and side effects of Singulair, she fluffed it off and told us she has many young patients on this medication with no adverse side effects. He is taking Pediox every 12 hours. I am worried that we may need a substitute med, but we have tried so many that haven't worked. He has Albuterol Inhaler and Xopenex Inhaler when his Asthma symptoms kick in, when his allergies are at his worst. He has had pnumonia 2 times, or one like run of it I should say. It's important to keep his allergies under control so he doesn't get something like this again, but his overall mental health and stability cannot be jeopardized. Since his brain has been developing on this medication for 2 and a half years, does anyone know if this has lasting effects? He is very active and has a very short attention span. He can however sit through an entire movie if it is something that he likes and he has nothing better he wants to do at home. I do not believe he is hyperactive or ADHD in the sense that he needs medication for that symptom. He can be a very loving child and he is very polite and knows his manners. He comes from a very loving home with loving siblings. We have wondered for so long how he could possibly have turned out this way, and I am truly scared to think that this medication could be the cause of so much turmoil in our lives. I will be monitoring his results.

-- By jcrispy | Reply | (5) replies | Private Message me

September 29th
2008
12:04 AM

I am a loving mother of a 5 1/2 year old boy. He has been on Singulair for over 3 years. In this past 3 years my son has suffered in an unspeakable amount. He came down with Rota Virus and was hospitalized at 2. He then came in contact with Pneumonia in the hospital while he was there. They automatically put him on Singulair, Zyrtec, Prednisone, and antibiotics to treat the pneumonia. Since that day, my son has gone though more tests than I have in my entire life. He has had asthma, sinusitis, leg cramping ( to the point he cannot walk for 2 years), IBS, Acid reflux,(they gave him laxatives for a year that made things worse and addicted to them also), stomach pain, constipation and diarrhea back and forth. He also got Erythema Mulitforme TWICE, while on this drug. All of which the doctors said could NOT be caused by Singulair. He has had several Upper GI's and CT scans. Along with Barium enemas, several hundreds of blood tests, and many many pokes and prodded that were not necessary. All since he has been on Singulair. He now has frequent bathroom trips, depression, confusion, and anger outbursts. He also has to go to the restroom every 5 minutes. He has had genital swelling, and many other aches and pains. None of which his "doctor" ever said could be a result of Singulair. I am 100% sure it was!!!! He currently has anxiety and emotional sporadic issues causing problems in school The teachers and counselors say that it is so strange because there is no TRIGGER and the outbursts are completely inconsistent. His preschool teacher and director are sure he has ADHD. Well, we had him tested and he does not have any part of it. He has no learning disability what-so-ever. So that brought me back to square one. He is in a positive loving enviroment. How could he be depressed and want to hurt everyone around him? He cannot sit still. He cries and says he is 'stupid" and "can't think" like the other boys. He has nightmares and cannot sleep alone. He is scared of everyone and everything. So, as I sit here crying, I realized that this has all been a reaction of his "medicine" Singulair. He never should have gone through all of those painful tests, only to prove they couldn't find anything. So many treatments and sound full advice speeches from his doctors. How could they be so naive and selfish in the life of my son?

When I called my pediatrician of 5 years, she told me that " parents that have children with behavioral problems will LOOK for something to blame their problems on." She also said "drug companies only put side effects on their labels to PROTECT the drug companies. (as she laughed at me) They are not always valid". Then she said "if you take you child off of Singulair you will be playing Russian Roulette in his life." Then she said that all children around 5 or 6 go though this emotional time in their lives." She told me that if I take my child off of Singulair that she would no longer be a part of his health regimen for his asthma. She told me to see a Pulmonologist for further treatment.
Who is paying who? This is my son's life???????? I decided to go with my mother-gut instinct and get him off of this medicine. No matter what. He has been a different person since. He is currently going though a lot of side effects and withdrawals (leg pain, insomnia, hic-ups, emotional distress) but every day is getting better. How can the drug companies say that this is a "wonder drug?" There are more reported side effected patients then clinical studied patients! How can a "medication" that stimulates the brain not be connected to other problems? This "medication" interferes with the bio synthesis and action of LTs and has been marketed as NOVEL medication against asthma and allergic rhinitis. Who the hell is playing God here??? The pocket books of Merck or our over PAID "doctors?" Who pays the price? Our children? Or us. Thank god I found this before it was too late. I would not be able to withstand the pain of losing my son due to their lack of scientific evidence. They are lucky I am one of the smart ones. I will not settle for less than Justice for the drug companies and their paid "doctors?" You all end up in the same place. HELL

There are 18 million people on this drug. Most of them are children. Please save a life if not your own child's life. Thank You

-- By daisydookes | Reply | (14) replies | Private Message me

September 28th
2008
8:44 AM

My son is 6 years old, and I started crying when I read the above stories. My son, too, was a completely different person when he took Singulair. Prior to taking it, we had a wonderful, close relationship and he was a well behaved child that excelled in school and got along well with friends. His behavior changed for the worse, but until now, I didn't connect it to the use of Singulair-I thought maybe he had childhood depression but didn't know why, as his life is stable and happy, and no major life changes had happened to cause the mood swings.
He would say his life was bad and he wanted to die for the slightest thing, he would say he hated us and punch us for just simple time outs that he usually complied to and he never ever hit us before. I have had him off of Singulair the past month, and give him Zyrtec occasionally when he really needs it, and he has not had one major moody episode, and he is back to his happy self again. I am joining the class action lawsuit above.

-- By lisarichbrandon | Reply | (4) replies | Private Message me

September 17th
2008
1:00 AM

Well after reading these posts...I am very sad that I didn't read this before I allowed my 3 year old son to start Singulair! The last month he has been complaining of lower back pain. Just recently, stomach pain as well. Says his head hurts, and at times is not himself. I pick him up from preschool awaiting a very energized little boy to talk nonstop about what he did and he doesn't:( He was put on this med for allergies with Flonase and Zyrtec as needed. I took him to the doctors for this lower back pain and they said it possibly was from playing too hard or growing pains. Trusting our pediatrician I took it as that. My son continued to complain and continued to, at times, seem depressed. I took him to the ER because the last week and a half he has had fevers of 100-102. They said its all viral. I came home, looked Singulair up trying to figure out what was wrong and found all of this. I am so sad I never researched this before and continued to give this to my little boy trusting it to be good for him. Needless to say, I am making another appointment for him tomorrow to discuss other options. Thank you all for the information!

-- By italia2 | Reply | (2) replies | Private Message me

September 16th
2008
8:50 PM

I have a 7 year old daughter. She is taking singulair. lately she has been complaining about pain in her leg it hurts when she walk. She also have pain in her arm. I gave her a pill tonight but I did not find this website until afterward. I am so glad I came across this site. She was taking zyrtec and she was having behavior problem. So the doctor switch her to singulair. I was hesitant to give her this medication. She also have seasonal asthma so I just got to find another way of treating her. I hope someone have good suggestions.

-- By pj4christ | Reply | (2) replies | Private Message me

September 16th
2008
12:20 AM

IS THIS SITE AN ANSWER TO OUR PRAYERS?

A little while ago less than two hours, after a very emotional, difficult battle with my daughter, we had yet another heart to heart to try to do better. At the end of our talk WE PRAYED for guidance to know how to help the situation. So I'm here looking for a link to her behavior fron the ADHD medication and I see someone had posted about Singulair side effects. I was floored! I have never thought that Singulair was not a safe drug. No doctor has ever mentioned any negative side effects to me regarding it. The more I'm reading about it the more in shock I am. Have I and her doctors been doing this to my daughter? My 12 1/2 yo daughter has been on Singulair for probably 10 years. She was a 28 week preemie and had severe lung issues so it was a needed medication. Her behavior has worsened the older she has gotten. Because of mostly anger issues and problems in school about a year ago she was started on ADHD medications. We are currently trying to find "the right one" . I feel so awful. Could all her misery have been caused by this little pill that was suppose to help her? Why has her pulmonoligist continued to give it to her although she has not had any serious asthma problems in years? I think I will stop all medications and see what happens. My daughter has also been on amytriptylin for about six months also for severe migraines. What do you think? Should I stop all of them cold turkey or gradually decrease one at a time? I would GREATLY appreciate any advise.
Thank you

-- By bamvanfam | Reply | (6) replies | Private Message me

September 9th
2008
4:42 PM

I just started the Singular and it has helped my asthma a lot. I can't tell about the coughing because I also started it while I had a cold. But now and then even before I took singluar I would cough. Sometimes coughs are produced from various types of airborne things, many different types of things. I have a mold aggreviated asthma so that could be why its helping my instead of causing me to go nuts like it does for some. But it doesn't sound like a very good drug for children. It seems as though none of the posts coming from children taken Singular are positive. But so far it's helping me. I made it through the day without grabbing for my inhaler which was a great relief for once.

-- By breatheeasy | Reply | (5) replies | Private Message me

August 25th
2008
9:22 AM

SINGULAIR AND ZYRTEC SAME MEDICATION made by different companies. Be careful!

-- By frightenedmother | Reply | (6) replies | Private Message me

August 23th
2008
8:57 PM

I have been reading all of these posts and have another question. I hope that someone can help. My daughter, 8 years old, has been on Singulair since she was 4. She is normally a very happy girl with a wonderful disposition. For the last year or so, she has been having trouble getting herself to sleep at night. She says that she hears things in her head such as ringing or "noises". A few hours before she knows it's bedtime, she cries and when we ask her why she's crying, she can't give us a reason. We initially thought that she was crying for no reason because she didn't want to go to sleep. I remember reading about the side effects of Singulair causing mood swings, etc., but her's are not violent mood swings. Just very emotional and has a hard time coming down from the "episode". I'm at a loss...I have not talked to her doctor yet about it, but have told her that we will make an appointment this week to discuss it with him. My husband suggested that maybe it sounded like she was having a panic attack or anxiety attack. I hate to label her as that at such a young age. My mind now goes back to the side effects of Singulair and maybe this is to blame. Any help or suggestions would be greatly appreciated. Thank you! Concerned Mom

-- By danap | Reply | (12) replies | Private Message me

August 21th
2008
10:49 AM

Have been experiencing the same serious behavioral issues (screaming, launching every toy he has out of his room, knocking over his night stand, hitting, kicking and just being hateful) with my 4 year old who has been on Singulair for 2 years as I'm noticing many of you have here. My wife and I have a wonderful relationship and happy home and tons of love and support from other family that's close buy so the kid has a very nice environment. We have taken him off the medication as of yesterday. I have consulted his doctor but I'm anxious to hear what methods of treatment for the asthma all of have chosen in replacement of Singulair or did you just maintain with an inhaled maintenance program with something like Pulmicort? Also, how long was after taking your child off of Singulair did take to for the outburst to subside and the behavior to become more mellow and normal (what is normal for a 4 year old?). Any info would be greatly appreciated.

-- By rhettro73 | Reply | (6) replies | Private Message me

July 21th
2008
9:33 PM

Sales of Merck's asthma and allergy drug Singulair dropped 1% to $1.1 billion for the second quarter. U.S. sales have been hurt by the recent introduction of an over-the-counter version of rival drug Zyrtec by Johnson & Johnson (JNJ), as well as concerns about the Food and Drug Administration's March alert of a possible association between Singulair and suicide and related behavioral side effects Got this off cnn money,i don't know but thought zyrtec and singulair were different drugs,my son at one time was prescribed both to take at bedtime

-- By flindy | Reply | (1) replies | Private Message me

July 18th
2008
8:38 AM

My son has been taking Singular as well as Advair and Zyrtec and Nasonix for the past 6 months. He is doing so well. He has not had to go to emergency, he has not been sick, and he has not had mood swings. If you look at the prescription information that comes with Singular, you can see what the side effects can be. My recommendation is to take your child off of them if they have a side effect. I contacted my Dr. and Merck is studying only 1 case with a child that had side effects, but they did not say if this child was on other Psych medicine at the same time. The 2 psych meds that have shown a bad interaction with Singular are Phenobarbital and Rifanpin (spelling may be wrong). With all the posts I have read, very few people indicate if they are taking other medications at the same time as Singular. My suggestion is that you consult your Dr. and then send your case to Merck for more studies. If all you are doing is posting on the web, you are not solving this issue with the makers of the medication.

-- By motherbird | Reply | (4) replies | Private Message me

July 2th
2008
8:51 PM

After reading all the horror stories on here, me and my husband soon began to realize that we were having a lot of the side effects listed here and not listed on my son's actual Singulair prescription. The side effects my son had were behavioral changes, irrational behavior, inattentiveness, not able to stay on task or stay still -- in fact he broke his arm twice being so hyper, yelling, screaming and just plain mean.

We took our son off of Singulair as a trial for a few days. Immediately we began to notice differences in his behavior. He wasn't as agitated and quick to yell or get angry. (He's only 5 years old). He actually would be listening when we would speak to him. He would sit calmy and read books and the one huge thing he would do was look at us and smile. He even said to my husband once, "I love you Daddy," which just brought tears to our eyes. I never realized what a Singulair fog he was in and what it did to him. Here we were pretty close to getting him evaluated for ADHD or even Aspergers. So now we're in the same boat as others that are searching for other asthma meds to give my son. Right now we have gone back to Pulmicort, Xopenex, Nasonex and Allegra. I'm so glad I read this forum because I was desperately searching for answers for my sons behavioral issues. Oh, by the way he was on Singulair for 1-1/2 years.

-- By rtorzewski | Reply | (3) replies | Private Message me

June 30th
2008
12:29 AM

In 2003 at the age of 31. I had been taking singulair for over 2yrs. I started experiencing muscle weakness and I got to the point I could not sit or lay down. I was extremely in a lot of pain and taking large amounts of pain medicine. It went on for several weeks. I went to the doctor because I was having muscle spams or what I thought was a ruptured disk. I had a MRI done and it didn't show anything. I was sent to a back surgeon and he checked me out and wanted me to list all my medications. I began to tell him about zyrtec and singulair. He asked me how long I had been on singulair? I told him almost 2 years. He told me to get off of it right now because it would kill me. He said the singulair was deteorating my muscles
and causing me to have muscle spasm. I had no muscle tone. He sent me to a massage therapist 3days a week for 6 weeks and I came off of the meds. The doctor told me he had at least 10 patients that had happen to them.That was a wake up call. The doctor also told me his wife was on it 6 months and started throwing up blood and took her to the ER. All because of singulair and my kids have been on it for 3 years and have not had one problem. They are 10 and 7.
My husband is a pharmacist and he had not heard anything bad about it. He filled out a card about the side effect. It only happens in 2% of people taking it.

-- By lexieh | Reply | Private Message me

June 28th
2008
2:54 AM

I have been on SINGULAIR for 2 months now, I am a very active person, I do lot of sports. First thing I noticed was severe tiredness that affected me during practicing. Sleep disturbance and insomnia became very common, I had to shift from ZYRTEC to BENADRYL to be able to sleep.
Last week I did a blood test, the scary thing was elevated ALT levels ( almost 3 times the normal level ). I excluded all factors that could cause that. Nothing but Singulair. I have stopped it and I will go for a course of sylimarin and retake the test in 1 month.

-- By ikthos | Reply | Private Message me

June 27th
2008
2:13 PM

My 10 year old son has taken Singulair on and off since he was 5 years old and has been on it for the past 3.5 years. My son at an early age was affected by a bad marriage and then the divorce when he was 5 yrs old. So we always suspected that his behavior issues were caused by this and I had done everything I possibly could to give them the help he needed to get over and through his issues. He was held back his first year of Kindergarden and during his second year midstream he was placed in a special class for behavioral problem children. Nothing ever seemed to help him, everytime we would see some progress and encouragement we were always blind sighted by a behavior that was always worse. Two steps forward and them 5 steps backwards. I always knew that his problems would never get better overnight so I just kept on going. He was diagnosed with ADHD but because he has some ticking issues I had to put him on Strattera which was did not do a thing for him. I always described him as my Dr. Jeckyll/ Mr. Hyde child. He could be really good and sit still and behave but I think he had to try really hard to do so. He eventually was always overpower by the impulse to show negative behaviors. Defiant, extremely impulsive, always negative and completely miserable all the time. He also went through phases of compulsions. There was always a compulsion of the month- germs, bathroom habits, noises, repetitive words. He hated school and always complained of a stomach ache which i thought he was always faking to get out of school. He had confrontations in school everyday for most of the day. I often thought some of this was because of being tired all the time. We had battled over bedtime every single night. He was terrified to go to bed alone, I tried everything to get him to sleep alone. I wore myself out falling asleep next to him, I would then go to my own bed only to be up with him half the night going back and forth. I gave in many a night and slept with him just so we could get a good nights sleep. At age 8.5 I finally got him to go to sleep alone but the lights haf to be on and he has to know that I am still awake before he will fall asleep. He would always say he didn't want to go to sleep because when he does he has bad thoughts about me and people that he loves. He always had an extremely hard time excepting the word "no"- he would flip out and hit his head with whatever was handy, throw things, break things, scream holler etc. It would take hours to get over it. When he did he would be very remorseful and lovable. He was always in turmoil. Finally in February of this year, this graduated to a new level where he would want to just kill himself and would actually go and pull a knife out of the drawer and just shake with anger as he held the knife to his throat. I was terrified although i really didn't think he was going to harm himself he just wanted to scare me. Then at the end of March when i first heard the news about the possible side effects of Singulair, I had only heard about the suicide effect. Oh great just what I needed was this medicine causing him to do that. The doctor was thinking about taking him off if this summer because he wanted to see if he out grew his seasonal allergies so I took him off immediately. Well I had no idea about the other side effects until my son turned into a completely different kid. School noticed a huge difference in him! His grades went up, his is able to control his behavior, he is happy he is NORMAL. I never suspected this drug as the culprit due to the timing of taking it. Our lives have changed completely. When i first found this site, it seemed as though some of the parents were writing about my child. It is amazing. My son still has some old habits to break but overall he is a wonderful and normal 10 year old boy. He did not outgrow his seasonal allergies but Allegra seems to help in through it. I get so angry- his whole early childhood was ruined by this medicine. He is a labled kid in our school system. This whole experience has opened up my eyes. Thank you for letting me share my story.

-- By cindy48 | Reply | (5) replies | Private Message me

June 14th
2008
7:47 PM

Is heart racing one of the side effects? I have problems with edema which are worsened by Singulair and Zyrtec. Vivid Night terrors depression, anxiety are standard also made worse. Headaches extremely high blood pressure and nausea. I have been off the singulair for a month. I am Zyrtec Free as well.
I too will rely on my inhalers. This drug should not ever be prescribed for children.

-- By toomanydrugs4me | Reply | (3) replies | Private Message me

June 13th
2008
11:23 AM

Who administers this site? I posted a side effect last night after I registered and then this morning I got an email saying there was a reply to my posting and when I tried to log in, my account was inactive and my posting had been removed, as had the reply to my posting. I don't know if it is because I put a link the an online reporting tool where the FDA is compiling feedback from people/or their children who have experienced terrible side-effects. Here is the link again and I urge you all to report your cases: http://www.fda.gov/cder/drug/early_comm/montelukast.htm

My son is 3.5 and has been on Singular for 2 months and just like all of the other stories about the other young children posted here, he is a different kid after being on Singular. Last night was the first night I took him off of it. All of the side-effects that are mentioned here are the same ones my son is experiencing, nightmares (screaming in the night), hyper, aggressive, reliving injuries from days past, the day care telling me that they now have concerns about how different he has been lately and the even used the term "bad behavior". They said he is hyper, he screams, not listening, aggressive. He is a favorite at day care since he is so loving, polite and kind. I know all parents say that, but pretty much anyone who has met him compliments me on how well behaved he is. I am even nervous to have people over since he seems out of control and I have found myself ensuring people that he isn't normally like this. I have taken him off as of last night and I am hoping he will get back to his old happy-go-lucky self soon. Does anyone know how long it can take to get this poison out of their system? I pray that there are no permanent side-effects.

-- By ryager11 | Reply | (6) replies | Private Message me

June 11th
2008
11:59 AM

I have been reading the posts at this site for two weeks, ever since the day I went to my GP for a check on blood pressure and general well being. As I was getting ready to leave the examining room, he asked how I had been since my last visit, and I responded that I'd been OK, except of course that I wasn't sleeping well. I didn't tell him that I'd had obsessive thoughts of death and dying, severe anxiety, morbid depression, horrible mood swings, and compulsive thoughts and actions. Yes, I've been taking Singulair since it was approved for seasonal rhinitis. It seemed to work well with Allegra, although when my allergies were extra severe, I also had to resort to Benadryl or one of the other "drowsy" antihistamines. When I mentioned sleep, he said "You have heard about Singulair, haven't you?" Guess how shocked I was when he told me about the latest information on the medicine I was taking every night for the last 5 years? Unfortunately, I had been under severe stress because of professional and families issues during the same general time frame, so it would never, ever have occurred to me that a prescribed medication could make me so miserable. My psychiatrist had recommending doubling my dose of Cymbalta, but after some trials of that, I became convinced that when I did so, I felt worse. About 6 months ago, my emotional state went from bad to worse. I began to feel a sense of panic when called upon to make the most innocuous decisions, and was always aggravated and nasty to the people I loved most. With my doctor's mention of Singulair, I stopped taking it. I slept better from the second day of not taking it. In the last 2 weeks, my emotional roller coaster has smoothed out, not perfectly, but enough so that I'm much more like my old self. The stresses are similar, but my reactions are different. Zyrtec (1/2 tablet) works much better for itchy eyes and nose than Singulair did in the first place. My husband and son both have continued to take Singulair with no apparent problems. I think that if one has developed unusual or unexpected emotional symptoms it is definitely worth a trial off Singulair. I wish I had been aware of even the smallest possibility of a reaction such as mine when I started taking it.

-- By annreid | Reply | (3) replies | Private Message me

June 10th
2008
2:25 PM

Well, we just got out of the ENT and he couldn't believe that his ped put him on Singulair. He said he didn't like it, it wasn't a good drug, and hadn't heard of many good things about it. He also told me to take my son off immediately, to bad I already had. He also wanted me to put him back on Zyrtec but only when needed, not every day like he had been taking it. Told him about how the neb. had been talked about so he listened to my little one's lungs and he said that they are all clear and there is no need for one. While I was in this appointment, his ped. called. She said that she had never heard of any side effects with this and she wanted him to stay on it for a week to see if it worked or not. Sorry we aren't doing that, we had four doses of it and that is more than enough to say we aren't staying with it. This is just his first full day off the med and I shouldn't get all worked up but while in the waiting room to see the ENT we had two huge fits and even hit his head on one of the chairs because he didn't get his way. The ENT said to give him about a week to go threw "detox" and get it out of his system and then he should be back to himself.

Also, on top of the big mood changes and swings we didn't sleep good last night and had another fit of rage in the waiting room of the ENT. Not fun at all.

-- By coopersmom | Reply | (2) replies | Private Message me

June 9th
2008
4:21 PM

My 15 month old son was just put on this Friday, four days ago. He had been on Zyrtec since he was five months old and his allergies had recently gotten worse along with a percistant cough. As the weekend went on he became more and more angry and fidgety. Sunday afternoon, after his nap he came running down the hall screaming and crying (this nap is usually 1 1/2 hours long and he had only been asleep for 30 to 45 minutes when this happened). He was very upset for about 20 minutes. He is normally a very happy, fun loving child. Later that afternoon he didn't get his way and took it out on me. He began to kick and scream(at the top of his lungs) , throwing his head back, and then hitting me. Everyone that was with us have been around him from day one and they all said how he wasn't himself and had never seen him act this way. Now, this morning on our drive into town to go to daycare he normally is talking the whole way (45 minutes) but this morning he was just staring off out the window and didn't want to talk or "have a conversation" with me. I knew something wasn't right and had already had it in my head he wasn't getting another dose of this. I found this site and some of the little things began to jump out at me and I know for sure we aren't going to take this again. I just hope and pray that this hasn't caused any lasting side effects, again he has only been on it for 4 days. After reading all of this I have called the daycare to check and the doctor, who hasn't called me back yet. Going to see his ENT tomorrow and we will be having a long conversation about it all. His ped. is the doctor who put him on it. She is trying to try everything before he is put on a nebulizer.

Another side effect named on the Singulair web site is ear infections. This med. should have never been given to my son who has already had one round of tubes because of ear infections. The tubes have already fallen out and within a week he had an ear infection.

-- By coopersmom | Reply | (2) replies | Private Message me

June 7th
2008
1:22 AM

My daughter is 4 and has allergies. Last year she was briefly on Zyrtec and I immediately noticed that she became very aggressive. This year her doctor prescribed Singular. She has been on Singular for 8 days. Her appetite has dwindled. She has complained that her stomach hurt which I thought was due to not eating. Last night, she had nightmares - screaming out in a panic. This afternoon she couldn't sleep. This evening she fell asleep in my arms. Suddenly she sat up with glazed eyes wide open and began to relive when she fell and hurt her hand a few days earlier. I thought she was sleep talking with her eyes open. She was in a total panic but appeared to be sleeping. Yet, when her dad approached she held out her arms for him to pick her up. She eventually fell back asleep only to awaken two more times with similar sceneros played out. I could not get these scenes out of my mind. Given the previous experience with Zyrtec, I looked over the side effects of Singular and the word Hallucination jumped out at me. I spoke with a pharmacist who was not aware of anything I have since read on this site. I decided to Google Singular Side Effects and came upon this site. Tears well in my eyes after I read posting after posting. Thank you, thank you to all who have posted their experiences. You have saved my daughter and our family from a true nightmare. Bless you and your family.

-- By lindsaysmom | Reply | (4) replies | Private Message me

May 19th
2008
11:46 AM

I just viewed a commercial for Singulair now marketing directly to children. Has anyone seen it? They're promoting cherry flavored chewables and a cute little kitten in the background. The side effects so many of us have experienced with our children are still not mentioned instead they've done the exact opposite. With this drug under investigation(Dr. Sarah Sellers has already sent a personal email from the FDA) this is immoral! What can we do to stop any more children from being injured? Merck has no ethics, NONE!

-- By catherineevans | Reply | (2) replies | Private Message me

May 16th
2008
9:23 PM

This is a follow-up. I have posted about our experience before, but to summarize: 6 year old boy on Singulair for over three years for Asthma. Drug worked wonders, but side effects developed so slowly that we thought those were "phases" that would go away. Side effects were just as everyone else reported: nightmares, fears, depression/sadness (we even went to a child psychologist since we thought this behavior was all due to father's deployment), aggressiveness, crying at the drop off a hat (like a 2 year old, not age appropriate), attention deficit, school performance dropped, and also, at the very end, obsessive compulsive behavior.
We stopped Singulair as soon as we heard about the FDA investigation (on NPR, about 6 to 7 weeks ago). Asthma has not worsened, thank goodness, so we make due with the Flovent for now. Most of the side effects were less prominent after some time, however the obsessive compulsive behavior stopped only a few days ago. We have better days, we have worse days, but slowly the better days outnumber the bad, aggressive, and negative ways.
What I read again and again in the postings is that we all assumed our children entered a bad "phase." A phase that just got worse and never ended!
Reading about the very same side effects in our children, over and over again, alarmed me. Taking my son off the Singulair and seeing the improvements, some faster some slower, totally convinced me. I will never ever have Singulair in my house again.

-- By happymom | Reply | (2) replies | Private Message me

May 15th
2008
11:13 AM

My son is almost 6 yrs old. He has been taking Singular for approx 3 years, in addition to Claritin and Nasonex. This is all for his allergy to mold. His doctor started him on these meds after a 6 month episode with sinus infections leading to asthma-like symptoms. We have not noticed anything unusual about his behavior until approx 3 months ago. He started waking up every night (2-3 hours after going to bed) with bad dreams. At first he would not fully awaken and fall back asleep immediately. After a month or so of this happening most nights, he had two nights in a row where he woke up screaming and was inconsolable for about 30 minutes. We initially thought it was night terrors, but he was not scared or fearful, he was just upset/angry. He would hit the bed repeatedly and yell. He didn't know what he was upset about but would talk about how he thought we hated him, he was dumb, etc. After about 30 min he would 'snap out of it' and return to his normal self and go back to sleep easily.
At first we thought these were night terror brought on by a recent fever, but he had another episode last night. He has also been falling apart at the littlest things and getting quite violent (for a 6 yr old). He was sent to his room yesterday evening because he was complaining about the dinner his mom made (lots of complaining these days..). He had a total melt down an started throwing things and hitting the door so hard he put a hole in it.
Some of this behavior I would chalk up to normal kid stuff, new baby brother, etc. But I am suspicious about the negative thoughts, bad dreams, and instant melt downs... I stopped giving him Singular today and we will see what happens. God bless you all as we figure these things out...

-- By parrym | Reply | (3) replies | Private Message me

May 6th
2008
10:54 PM

I am an individual that started taking Singulair about a year ago. I've had allergies to weeds, grasses, and pollens since I was a little girl and have taken a variety of meds including Claritin, Zyrtec, Allegra, Flonase, and allergy shots. Last summer, my usual Claritin just wasn't enough so my doc prescribed Singulair. It worked wonders for my allergies. Soon after, I began to feel "numb" -- that's the best word to describe what I felt. I was depressed. It just so happened that my mother had had surgery and I had moved to a different city about the same time as beginning the Singulair. When I began feeling depressed and disconnected from the world, my doc and I contributed it to depression from life transitions. It didn't go away though. For a year, I isolated myself. I didn't talk to friends and family. I missed over 10 days of work just because I didn't want to get out of bed. I slept almost 15 hours a day, gained 60 lbs, didn't clean my house. I didn't really do anything and I didn't care. I felt so disconnected from the world. I didn't cry. I didn't feel suicidal, but I knew that something was wrong with me. I thought I was having a breakdown or something. My doc checked several things but all test results were normal. It wasn't until my mother seen a CNN report on Singulair that I began to link my depression to when I started the drug. I immediately quit taking Singulair and felt better within 4-5 days. After 2 1/2 weeks, I was back to being my old self. It was so scary feeling so isolated, numb, and disconnected from the world. I never would've thought about it being a side effect from an allergy medicine.

-- By kentuckycuz | Reply | (1) replies | Private Message me

May 3th
2008
10:32 PM

I forgot to add my son was also on zyrtec & claritin b4 singulair & they caused similar side effects as singulair but not nearly as severe & I didn't realize all this till after I stopped the singulair & started looking up all the old meds. he was on

-- By kristina551980 | Reply | (2) replies | Private Message me

May 1th
2008
2:31 AM

After visiting this web site everyday for the past four weeks, I feel the need to share my daughter's (and my families') experience with singulair. My 8 year old daughter was put on singulair aprx. 2 years ago in addition to zyrtec to treat her allergies. Shortly after starting the drug, she developed stomach pain. After a few weeks of chronic pain, I pursued help from our pediatrician. After visits to two different pediatric GI doctors, an allergist (to test for food allergies), and an orthopedic surgeon ( because of sudden leg pain), the results were inconclusive. During this time my daughter also became very sad, angry and fatigued. She also completely lost her appetite and refused to eat much of the time. I attributed all of these symptoms to her stomach pain . In addition, she developed difficult sleep patterns and would often wake-up exhausted in the morning. Over time she also began to have more and more "melt-downs", breaking into crying spells over the smallest provocation or challenge. I recently contacted my daughters pediatrician to discuss what other testing or direction we could take to help my daughter. In the interim of making that contact, a friend told me about this web site. As I read page after page of other parent's experiences, I was in tears. I felt as if I was reading about my own family for the past two years. I say "family" because when one child is living through this kind trauma, everyone in the family is negatively affected in some way. My husband and I felt completely frustrated and unable to help our daughter. Our older children began to resent the great amount of time and energy I spent on behalf of our daughter. My younger daughter who had always looked up to and loved her older sister was sad and confused by her sister's anger and impatience.On March 29th I took my daughter off singulair. Unbelievable. Within 2 days, my daughter's appetite returned. On the second day, she came home from school and requested a corn dog and then some ice cream. She suddenly wanted to eat breakfast again. She started smiling and laughing again. She has suddenly become capable and responsible for doing her homework and chores. She is going to sleep more quickly and waking up happy. The best part is having our daughter back...the sweet, wonderful, happy six year old who I feel like I lost for two years of her life! As a side note-the return call I got from my pediatrician was that he wanted my daughter to see a psychiatrist. That's how close we were to taking another (completely unnecessary) path to helping my daughter. I also recently spoke with my daughter's allergist about our experience. At first he was somewhat dismissive. I asked him to listen to me parent, to parent for just a moment. He seemed to soften and said he would take a second look at singulair and its side effects. I encourage every parent who's child has been so adversely affected by this drug to be proactive. First, please contact the FDA to report your experience. Second, talk to your children's physicians and share, with confidence your experience. Third, share this web site or a similar one with everyone you know. I have been astounded how many children are on singulair just within my own small circle (school, church and play group). I really believe one voice can make a difference. I have to believe that for the sake of all the children still suffering.

-- By concernedmomof4 | Reply | (2) replies | Private Message me

April 28th
2008
10:47 AM

My 5 year old son was taking Singulair for about 2 years when I came upon this site. I immediately called his allergist and got no answers, so I decided to take him off of it. Within 24 hours I noticed a big difference. He use to not sleep. He would be up all night. he uncontrollable outbursts at school, and home stopped. He is now the sweet boy I remember. I really think he was over medicated. He takes Zyrtec in th morning and was taking Singulair at night. I am appalled at the fact that doctors are over medicating our children.

Thank you for this site. I now can love and hug my child agan.

-- By jilzsue | Reply | (2) replies | Private Message me

April 26th
2008
10:15 AM

My 13 yr old daughter was put on Singulair along with Asmanex and Clarinex for her asthma about 6 weeks ago. Everything seemed to be going very well at first and her symptoms were starting to get controlled. I started noticing after about 3 to 4 weeks that her temper and attitude were getting much worse. Anyone with children this age knows what I mean but this was like a 180 degree turn for her. Her actions were becoming totally out of character. Before I knew it she would cry and get highly upset over the least little thing. Week 5 came around and things totally bottomed out. She came home from school and WAS NOT HERSELF. Made comments about how she hated her life and it was not worth living. Later that evening we had a big argument because I was telling her nothing was worth saying that. She went totally out of control and I had to physically restrain her to calm her down. It appeared everything was better so she went to her room. I went down to check on her and she calmly told me that she had taken advil and tylenol pm and things would be better for her forever now. We went to the ER where they made us wait for at least an hour, then finally took her back. She had to drink two cups of charcoal and was poked and prodded repeatedly. They did a catheter to get a urine sample. She was very cooperative but also was in a complete daze so who knows. The poor child couldn't even lift her head up when she started the vomiting to get rid of the drugs. It was very upsetting and sad. Her heart rate and blood pressure went very low and I really thought in the back of my mind that this was it. Finally, after several hours she started coming out of it and they sent us home. The next evening when she was starting to really come around she proceeded to tell me how she had been seeing a man walking around in her bedroom at night and she was afraid to go down there. Breaking down and crying telling me about all of the horrible nightmares she had been having recently and didn't know why. I thought what am I dealing with here? This just isn't her. Three days ago I heard about singulair in the news and looked it up on the internet. OH MY GOD THIS SOUNDED LIKE US!!!!! I immediately had her stop taking it and the next day phoned her asthma specialist who agreed she should stop now. We are going to watch her for two weeks and see if any symptoms return and then decide if she needs something else or will be fine on just the Asmanex. As a side note, she also mentioned being unable to concentrate in school (unable to do even the simplest math problems) and that her brain felt confused or like something was missing. She said this had been bothering her for several weeks. I know it was this drug. They really need to take this off the market NOW and stop flirting with disaster. The only reason I posted this was to let others know they are not alone.

-- By km39 | Reply | (12) replies | Private Message me

April 25th
2008
9:13 AM

Unfortunately my lawyer told me that they do not want to take our case because of the lack of evidence that Singulair has caused our daughters problems. :(

Does anyone out there have a pending class action lawsuit that We may be able to get in on? I have tons of proof that Singulair has caused our daughters problems and loss of almost 5 years of her elementary school career!

My phone number is *** and my email is ****** if You email me please put "Singulair" in Your subject line so I know it pertains to this posting.

Thank You in advance,
Chuck & Brenda
Jamestown New York

-- By csferraro | Reply | (11) replies | Private Message me

April 24th
2008
3:10 PM

Our son started taking Singulair when he was 2 for severe allergic rhinitis and cough variant asthma (in addition to Zyrtec, which didn’t control all of his symptoms). He is 5 now. For the last three years, he has been an increasingly violent, difficult, defiant, argumentative, volatile child who has intense mood swings--one minute he’s laughing uncontrollably, the next he’s weeping over nothing. His doctor and therapist recommended that we see a psychiatrist to have him evaluated for bipolar disorder, which used to be unknown in children. Because he has such chronic sleep problems, the doctor also suggested we take him off Singulair (and increase his Zyrtec dose) to see if it improved his sleep issues. Within a week, he was sleeping much better and was a calmer, happier, gentler boy. He suddenly could take “no” for an answer without flipping out and trying to hurt me. We thought that we were just in an unusual, calm window that would shift either to mania or intense sadness or both, any minute. We also thought that his behavior change might be due to sleeping better. We were enjoying the rare reprieve. Over the last weekend, his springtime allergies really flared up. We gave him Singulair on Monday and by noon, he was completely out of control. I had to strap him into his car seat at one point to keep him from hurting either me or himself. It finally occurred to me that Singulair might be causing his “bipolar” disorder. Of course, we stopped the Singulair. After two days he was a new boy. Yesterday, I Googled “Singulair bipolar children” and got a few hits. I am stunned to read how similar other families’ experiences have been to ours and I feel sick that we gave this drug to our child for three years.

-- By isobel1228 | Reply | (7) replies | Private Message me

April 23th
2008
3:02 PM

I usually have allergy headaches in the morning which would go away after taking 1 Benadryl w/ Tylenol. About a week ago my doctor started me on Singulair because she was concerned about me taking Tylenol daily. The last few days I've had terrible headaches that linger most of the day. (I've continued to take the Benadryl w/ Tylenol to try to help the headaches, but it's just not working.) Today is day 7 with the Singulair, and the headaches seem to be getting worse. Are headaches common with Singulair?

-- By natalieg | Reply | (8) replies | Private Message me

April 22th
2008
8:53 AM

Effective after two weeks for some people - not effective for others. Side effects for some people - others do not report side effects. So why does Merck have to grow their market before they have any idea what's going on?

This isn't a big group of people in the study but it makes sense from what we are reading here. These researchers did examine the mast cells. We need to know about mast cells (while suppressed by montelukast) on a longer term basis.

J Asthma. 2008 Apr;45(3):243-50. Links
The efficacy of montelukast and airway mast cell profiles in patients with cough variant asthma.Kawai S, Baba K, Matsubara A, Shiono H, Okada T, Yamaguchi E.
Division of Respiratory Medicine and Allergology, Department of Internal Medicine, Aichi Medical University School of Medicine, Aichi, Japan.

Background. Cough variant asthma (CVA) is characterized by chronic cough without apparent wheezing; its pathophysiology is considered to be similar to that of classic asthma. Objective. The clinical effects of montelukast, a cysteinyl-leukotriene receptor antagonist, on cough variant asthma were assessed, and the activation profile of airway mast cells was examined. Methods. Montelukast (10 mg/day) was given orally to 36 CVA patients (25 women and 11 men; median age, 37.5 years). Before treatment, the patients' bronchial mucosa underwent a biopsy with a fiberoptic bronchoscope. The biopsy specimens were double stained with anti-CD63 antibody and anti-human tryptase antibody. Results. After 2 weeks of montelukast treatment, cough symptoms improved in 22 patients (the effective group) but did not improve in 14 patients (the ineffective group); in the ineffective group, the symptoms disappeared 2 weeks after they were switched to fluticasone propionate (400 mug/day) inhalation therapy. In the effective group, the time interval from the onset of symptoms to the initiation of treatment was significantly shorter than in the ineffective group. The bronchial mucosa biopsy specimens showed that the proportion of CD63-positive cells in tryptase-positive mast cells was significantly higher in the effective group than in the ineffective group; although the total numbers of mast cells were not different between the two groups. Conclusion. There is a subgroup of CVA patients in whom leukotrienes are closely involved in the pathogenesis of their chronic cough; activation of airway mast cells may be an essential feature in these patients.

PMID: 18415834

-- By concernedcitizen | Reply | (3) replies | Private Message me

April 17th
2008
8:59 PM

Hello to everyone, I just came home from a parent teacher conference for my son who is 7 yrs. old, and heard the same old thing, "he is restless, impulsive and has a short attention span". He has been taking Singulair for about 3 yrs.. Since he has started school I have had these complaints and have also been told he displays symptoms of ADHD, which ironically has been for the last 3 years. Like any parent, I question" if I am doing something wrong with my parenting, is his diet good, etc. etc.", I am also a nurse, I realize that medications are needed and beneficial in some circumstances, however I firmly believe and was taught in nursing school that medication is last resort. That being said, I have been very adament about NOT giving my son ADHD medication after doing alot of research on the different meds and their side effects. So, we started him on all natural vitamins, changed his diet some ( kids got to have candy once in a while) and started a more structured routine( the best we can since we both work) and also enrolled him in Sylvan. The teacher says there is a 50% improvement but he is still impulsive and still does not pay attention like he "COULD", again suggesting he needs ADHD meds. I came home in tears and started to do more research online to see what else can I do besides putting him on psych meds?....Then I came accross this site, I just want to cry after reading all these posts. I wonder, could this be his problem, the Singulair?.. About a year ago he use to get up in the middle of the night, 5 out of 7 complaining of nightmares, hearing things at times, headaches, decreased appetite, stomach upset, all AT TIMES, not all the time so I never thought alot about side effects of Singulair. When the school started complaining I did look at side effects of Singulair and seen HYPERACTIVITY and mentioned it to his pediatrician and she shrugged it off saying she never heard of it being a problem. She's a great MD so I listened to her because his asthma was bad when he was younger and it is now under control. But then I think maybe he is outgrowing the asthma. I am afraid to stop Singulair and him have breathing problems again but then I can't help this strong feeling in my heart that says this may have been his problem with everything else all along. We are going to stop the Singulair tonight and see what happens. If anyone else has a child with asthma any suggestions for alternative treatment would be appreciated. I already know what's out there but sometimes it's nice to hear from another parent going through similar situs. Thanks for reading, Bobbie

-- By bobbiejo | Reply | (5) replies | Private Message me

April 17th
2008
11:01 AM

My M.D had prescribed Singulair approximately 3 months ago. I was extremely hesitant to take it and did research online before i made my final decision. I am/was fortunate not to have many of the side effects as stated in the other postings. Upon filing the second refill, I noticed I was putting on weight. My eating habits and daily routine has not changed prior to taking Singular or during taking the course of taking the pill. I started to become very concerned and I too found this site. I can tell you for a fact, that there is a very definite side effect of weight gain. I have gained weight all over my body, not only limited to the stomach area. As a result, I too, will NOT continue taking this pill, not only because of the weight gain, but in addition to the fact that my allergies are still bothering me. I am going to try Zyrtec, which is now an over- the -counter allergy pill. Zyrtec, until last year, was by prescription only. In final, to all those that are complaining of weight gain and various serious side effects, you are not crazy, The symptoms you are experiencing are real. Good luck to all of you.

-- By amarige | Reply | (1) replies | Private Message me

April 15th
2008
12:27 PM

My husband and I have been increasingly worried about our 11 year old son lately. He had been becoming increasingly unhappy and difficult. He was in the school play, one of the things he loves most, but had no enthusiasm or energy for it. He seemed apathetic about many activities he had always been eager to participate in. I kept thinking maybe he was just tired and too stressed out. It seemed like almost nightly he was sinking into anger and depression. We were walking around on eggshells trying to prevent him from spiraling into one of his angry moods where he would just shut down and say he didn't care about anything. The happy, cooperative, well-adjusted kid we had always known was gone.

Three weeks ago we began to talk about the fact that maybe there was more going on than just adolescent angst. We were beginning to believe some kind of professional intervention might be required.

Two and a half weeks ago our local paper ran the story about the Miller family whose son committed suicide while on Singulair. My son had been taking Singulair for three months.

The same day the newspaper story ran, my son had another tough morning When I went to bed that same night, I found two “suicide” notes from my 11 year old on my pillow. (He had not seen the article.) In one he asked for a gun or knife for his birthday so he could kill himself. In the other, he told me he had been thinking about killing himself since February.

My life for the past month has been filled with conversations and appointments with the suicide hotline, the pediatrician, a psychotherapist, the school social worker, the mother of the boy who committed suicide, the FDA, etc. etc., filling out forms and writing notes and observations.

My son had just recently finished his last bottle of Singulair. I had not yet refilled the prescription, and we have no intention of doing that. The turn around in my son has been extraordinary. My incredibly exuberant and joyful son is back. I did not realize until the past few days how much light he brings to this house and how far away he had faded. But everyday, as the drug leaves his body, his beautiful, loving, affectionate, helpful happy self returns. We just kept thinking for so long… I guess this is normal for a 6th grader. It must be adolescence. It is an incredible gift to see the cloud lifting.

I worry a great deal about the children who are not as severly affected - whose parents are thinking, as we did, maybe this is just typical for kids this age. I am incredibly grateful that my son was finally able to articulate some of the horrible feelings he had inside, and that the article appeared when it did to give us some clue as to what we were really dealing with.

-- By skye1289 | Reply | (1) replies | Private Message me

April 13th
2008
6:11 PM

Oh my gosh, I am just shocked after reading these posts. I am taking my son off of Singulair immediatedly!!!! I knew I wasn't crazy!! My son was on Singulair for over 2 years and it was awful. He was so hyper and uncontrollable. He couldn't control his temper. He had headaches everyday. He was put on it due to severe allergies and asthma. He is on other medications as well as allergy shots. I kept telling the doctor that I think the singulair was causing his bad behavior problems. He was just so hard to handle. He couldn't sit still for anything. The teacher couldn't get him to sit still in his chair. It just wasn't normal behavior for him. The teacher even thought he had ADD!! I didn't accept that however. The doctor just thought I was crazy and told me that Singulair wouldn't cause those symptoms. She said it actually would work opposit that and cause him to be sleepy. Well I took him off of it anyways and he did get pretty sick. His asthma acted up ect. But he eventually felt better and his behavior improved drastically. He wasn't so hyper and he could actually sleep at night and wasn't so scared at night. Just within the last week he has been pretty sick due to allergy season, his asthma has been bad and the doctor told me to put him back on the Singulair. So I did he has been on it for four days now and he is HORRIBLE.. It was an instant change. My husband and I can't control him and he can't sleep at night and has headaches every day. I am so glad I found this sight. I am taking him off immediately.
Thank you all so much for your comments. This medicine should be outlawed. I don't care what the doctors say. By the way my son is 9 years old. I certainly had no idea that it has caused suicide. I am so sorry to you all that have experienced such horrible things. Come to think of it my son used to say he hated himself all of the time when he was on this medicine.
God Bless You All

-- By wlhiic2424 | Reply | (4) replies | Private Message me

April 12th
2008
10:45 PM

I am posting an update on my granddaughterwho has been off for 2 weeks since the story broke in the news. There certainly has been a difference, she's more 'present' when I'm speaking with her, not angry, calmer and she slept through the night the other day when she came over to visit. There were actually no 'scenes' or carrying on. However, in light of the last posting I do not know how she will be affected in the long term, None of us can know that, none of us know how this drug actually works on the brain to create such side effects. I just saw a Singulair commercial on TV and almost got sick. Cody Miller's mom in her post stated that he had no behavioral problems before his death. I imagine that is true for the majority of us. My granddaughter never had the need to go see a counselor before this drug. She was a happy, normal 9-year old. That all changed in only 2 months as her mother took her to a psychologist to find out why she was acting so bizarrely. I am convinced this drug has caused untold misery and should be at least restricted to adults or at most taken off the market. This website is only the beginning at some point those who feel strongly will have to come together and organize against this giant company Merck.

-- By catherineevans | Reply | (3) replies | Private Message me

April 12th
2008
3:31 PM

Ok I haven't been following along for several days so I may have missed some info. But what I'm wanting to know is if anyone out there has had the their child off singular for several months and had the attitude problem get worse rather than better. I don't know what is going on with my son but he has been off the meds for almost 7 months and within the last month turned very mean and ill-tempered. We would get this reaction sometimes while he was on the medicine but now it's 10X worse. Could be totally unrelated, but I thought I'd through it out there just to see.

-- By poohina | Reply | (5) replies | Private Message me

April 11th
2008
8:23 AM

My son is off singulair for two weeks now and is showing improvements. He was on it for 7 years and at the beginning we blamed it on steriods, even though his dose was low. When he went off the steroids, the behavior didn't stop. I questioned the allerist if the singulair could be doing it, but was told no, it doesn't have those side effects. I don't blame the doctors because they weren't given the info. He was extremely emotional, cried for no reason, had no confidence, didn't like himself. We on more than one occasion have told his older sister that when he hits his teenage years we would have to watch him for suicide, as his reaction to problems was sooo out of whack! He was on motrin for headaches 4-5 days a week(blamed it on sinusses). Unexplained stomachaches. These symptoms came on over years, not right away. I have always thought that the steroids had done damage because he took them when he was so young. Until the news reports hit, and I started reading other people's stories and doing the "OMG, that's my kid!", I never put the problems on singulair. I was still skeptical, but took him off. His symptoms immediately got 100x's worse for a week. But funny thing is, his headaches are gone, his stomachaches are gone and he seems much less emotional. The strangest thing is, EVERY night, he comes in to kiss us good night 7 or 8 times, and sometimes by the 7th time he is crying and can't explain why. This has been going on for YEARS, EVERYNIGHT, never a break. It stopped! Just stopped cold 7 days ago. Comes in once, says goodnight, leaves and falls asleep. I know this isn't a coincidence. After years of wondering what's wrong with my kid, now I feel like I've been poisoning my him for 7 years. I'm not skeptical anymore.

-- By lisa4 | Reply | (5) replies | Private Message me


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