Singulair and mom

My daughter's doctor put her on Singulair just about a week ago. She had a persistent barking cough that would not go away, even after 3 weeks on Albuterol. Because the pill was so expensive (even WITH insurance it was $120.00) and I could not afford it, her doctor gave me free samples. I gave it to her for the first time last night. I was telling a friend of mine about how nice it was that my daughter's doctor gave me free samples and what a blessing it was. When I told her what pill it was she started telling me about what happened to some of her kids in her class (she's a teacher). I was surprised. She told me she didn't want to scare me, she just wanted to make me aware. I didn't get scared, but I certainly wanted to find out if what she was telling me was common or just rare in a few cases. I am one of those people that will ask advice of other moms, etc., but ultimately do my own research and find out for myself to confirm any suspicions. I know some moms who freak out over every little thing and take someone's word for it, even without doing their own research. I am not one of those mom's. So I Googled "singulair side effects" and found this site. I could not believe that everything my friend had told me has also been experienced by so many others on this site. Needless to say, I will NOT be giving her Singulair anymore. I am just so thankful that I had someone tell me about it BEFORE she had to experience some of the terrible things that other children have had to experience. It is unacceptable that this drug is allowed to be prescribed, especially for young children. I am going to look into a more natural way to help ease her sniffles and cough.

i had posted back a few weeks about my daughters situation on singulair well she has been off of the medication now for 3 and 1/2 weeks now and just starting last night she seemed to be a different child she has been on the med for about 14 months she is doing better in school not wanting to fight me on everything. now she is eating great which is scary when your child goes 3 weeks not eating due to being afraid.she was sent to mental health and the doctor said he had never heard of a reaction to singulair and she could go back on it we said it was not going to happen they said it was her being bull headed which we knew different.we were almost to the point where the doctor wanted to admit her to a physic unit . we had her off the med and within 1 week she started eating little by little we just about have her back to where she was.we video taped her having her fits and showed the dr. he just stated she is a handful. we let her see the tapes the other night she started to cry and asked what was wrong with her and we explained nothing baby it was the medicine that was making you do that and now everything is going to be ok .this is the 3rd time she has quit eating in 1 yr and we could not pin point it well now we think we know it was the medicine.they put her on zyrtec we only give it to her as needed not on a daily basis.

I found this web site while searching side effect of Singulair. My Son - 7 years old is experiencing same issue - Severe random leg pain in both legs or 1 leg as mentioned by few others. He can not walk when it happened and I have to carry him. The pain disappear in 2-3 days or sometimes it takes 5-6 days.

We did X-Ray and doc could not find anything wrong.

Others..who are facing same issue...I would appreciate if u can send me an email to ****** so that we can talk in detail.

My ADOPTED son almost 6 and was already on Singulair when he came to live with us at age 20mos.
After finding this site just over 2 weeks ago, I took him off on this stuff. Well, after about a week, things were so good that it was scary. His behavior improved so much, that everyone said he doesn't act like Jacob. I said, yes he does, we just didn't know him before going on this med.
He is currently going thru ADHD evaluation and I advised the therapist that I took him off this drug and he was like a new child. Her comment was "did we cure him"? Well, after her one on one with him, she commented, I don't know whats wrong, but he is extremely HYPER and then all hell broke loose on the way home. But, he has been fine since.
I am praying that I don't have to medicate him for ADHD, I am just not ready for that and have been fighting it for a while and then after reading all the side effects on this site, it described my child to a tee. He is in Kindergarten and is doing great academically and the therapist was a bit surprised by that with how hyer he is.
Please tell me with how long my son has been on this drug, that it's going take more than a couple of weeks. He is not near as hyper to us as he was before. Maybe he just got excited about all the toys in her office. He can also be very defiant, that is whole other issue we are dealing with. He does way better for his Dad than Me, so now if he doesn't want to listen to me, he Dad intervenes. I am hoping he will get it, that he can't be disrespectful to his Mom or he will have his Dad to deal with.
Thanks for listening and please pray that his behavior will continue to improve over the next few weeks with the absence of Singulair.

could anyone tell me if claritin is the same as singulair or what i could give my child that would help with the allergies/stuffy nose she was on singulair and was taken off

I have been making inquires as to how and if the fda will conduct investigations in to permanent damage left from this drug.Although on taking my son off this drug i saw a 90% improvement,i am still missing the final piece,is it that he lost 3 years to this drug or did it do damage that cannot be fixed,we as parents need to know.The FDA responded to my letter,they said if they see a trend in reports from medwatch,it may prompt an investigation .I am asking all who still have missing pieces to file a report.What has happened is a tragedy,we need to explore ever option for continued success for our childrens future.Good Luck to all,Keep Fighting

My 11 year old daughter had been seen by a doctor to control coughing and wheezing brought on, I believe, by allergies. When she was 5 or 6 years old, she had an asthma attack and it happened again this year when we could not control the coughing and she was short of breath. That is when Singulair was introduced to her. about 4 weeks after taking medication, her heart started beating irregularly (called heart palpitations), and she was experiencing chest pains. (very frightening for mother and daughter). The Coughing subsided, and she was feeling good prior to the last week, when this started happening. After all the researching, the minor side effect is palpitations, however, how healthy is this and what else is going to pop up unexpectedly?

I am a mom of twin boys who are 3 1/2. They were 9 weeks premature so we battled RSV for the first two years of their life. Allergies are also an issue therefore, they were put on Singulair at 10 months old. It really seemed to work for them and things seemed to be going okay but once they turned 1 1/2, their behavior started to change. They were constantly throwing toys at each other, sippy cups at people across the room, screaming for no reason, etc. Some may say it was normal behavior for little toddlers. Then the "terrible two's" set in. They started biting, pushing, screaming over anyone who talks to get attention, not listening and for two kids that slept through the night....all of a sudden that stopped too! My husband and I mentioned it to the pediatrician and also tried to going through the state (developmental clinic because of being premature) thinking that we would get some answers and everyone seemed to think it is a combination of their age and the fact there are two of them....sibling rivalry. We now deal with two kids that use to sleep through the night, now end up in our bed every night to fall asleep because they don't like their room and their erratic behavior is stressing my husband and myself out. When they are good, they are great but when it gets bad....it is a nightmare! I even find it hard to get people to watch the kids because they are too much to handle! After reading these postings I realize I am not the only one with kids going through this and that the common link is SINGULAIR! I am not giving this to my boys ever again and I already put a call into the pediatrician to discuss my findings. I have a sense of relief to know that it is not only my children who's behavior is like this but I am scared because I pray that there is not any long term effects that can not be corrected once this drug is out of their system. I just want my boys to be healthy and okay!

My son is now 31/2 years old and has been on Singulair since he was about 1 Yr. old. His pediatrician recommended this due to his allergies and runny nose. He has had fluid on his ears since age 1, at least that we had confirmed, and she thought that the Singulair combined with another type of antihistamine could dry up the dripping nose and clear up the ears. It did not clear up the ears, but it does stop the drip. He had tubes placed in his ears a year ago in May of 2007 and is looking now at his second set coming up in Mid-October of 2008. He has been taking this medication all but one summer of his short life. My husband and I have both had children, he a boy and I a girl, both 14 years old now. In comparison to the other two, our little one has been so completely different to raise. I've always seen children of "other parents" that have discipline problems with their children and wondered what might cause that type of action in such a small child. Now we have this beautiful little boy, but all we've ever known is how difficult he is to handle and how is anger, temper tantrums and stubborness have always put a damper on outings and even casual days at home. Due to the fluid on his ears, his speach was delayed and he has now really began to speak like a normal 3 year old. I have noticed within the last 2 weeks how he has really started saying things that I have not approved of, but have fluffed it off thinking that he has heard other children in his pre-school say these things, or heard it on a superhero show. Something happened today that really made me stop and think. I picked him up at pre-school like normal after work and he would not come to me. He looked slightly glazed in the eyes, totally not like himself at all. He talked very little on our 30 minute commute home, which was not like him. He said, "I hate you and you don't like me". I told him I do love him and he said, "NO". He said, "I'm bad for you and I have a dangerous heart". He then told me, "I kill you". This was so disturbing that I told my mother what he had said. She told me that it sounds so much like what she had heard on the news that I should check it out. This is how I've come to find this site. We have stopped giving this medication to our son and I am curious to see if there will be any change in his personality. Tubes will probably be placed in his ears again despite whether his nose drips again, so that is a mute issue at this point. When we voiced our concerns to his pediatrician when the information first surfaced several months ago regarding adult behavior and side effects of Singulair, she fluffed it off and told us she has many young patients on this medication with no adverse side effects. He is taking Pediox every 12 hours. I am worried that we may need a substitute med, but we have tried so many that haven't worked. He has Albuterol Inhaler and Xopenex Inhaler when his Asthma symptoms kick in, when his allergies are at his worst. He has had pnumonia 2 times, or one like run of it I should say. It's important to keep his allergies under control so he doesn't get something like this again, but his overall mental health and stability cannot be jeopardized. Since his brain has been developing on this medication for 2 and a half years, does anyone know if this has lasting effects? He is very active and has a very short attention span. He can however sit through an entire movie if it is something that he likes and he has nothing better he wants to do at home. I do not believe he is hyperactive or ADHD in the sense that he needs medication for that symptom. He can be a very loving child and he is very polite and knows his manners. He comes from a very loving home with loving siblings. We have wondered for so long how he could possibly have turned out this way, and I am truly scared to think that this medication could be the cause of so much turmoil in our lives. I will be monitoring his results.

I have a 4yr old boy who has been on singulair for 5 months. Before he began singulair he was the most happy, kind, gentle, loving boy. We had an awesome close relationship. I enjoyed just sitting there watching him play. I could not wait for him to learn something new, but EVERYTHING has changed now. I took him off of singulair on Sept 19, 2008 after accidentally running into this site while looking up children and OCD. Thank God I did. It has been 12 days since I found this and took him off. I couldn't type then because I was to upset. My son who never had ANY mental problems or anxiety is now completely riddled with it. Instead of playing all day care free like 4yr old are supposed to do, my son spends his days now clinging to me in fear that I may leave or go into a room without him and he will not be there to open the door. He obsessively has to open every door now. He spends his days getting upset at the smallest things. He now gets mad at everything I say, or I don't say it right. Our relationship is not the same now, and I am devastated. Before Singulair he slept through the night every night. Now he wakes up every couple of hours to go to the bathroom and say "are you still there mom?" ok "I love you" "Don't let the bed bugs bite" I have to answer "I love you to" and "you either" If anything different is said he will go nuts, and he will obsessively say this over and over and over again. This is not my son. He is a totally different person. I am so very scared that this poison has permanently ruined him. I mean he is so young and his brain is developing. It has been developing with this poison in it, that has ruined him. It has been 12 days and he is still doing the same ocd stuff. He still seems really agitated. His muscles hurt, his tummy hurts, his eyes hurt, his ankles hurt, and he has diarrhea. My beautiful boy is now mentally and physically SICK because of singulair. I feel really bad to, because I did not know at first that the singulair was causing this and I was always getting on to him for his behavior and putting him in his room. At pre-school a couple of days after first giving singulair to him he started crying ALL DAY at school, and I made him stay there because I thought it was just because he had gotten a new teacher and he needed to get used to her. I feel terrible!! Does anyone know if the ocd will go away or has he now learned the behavior?

My daughter had been on singulair from the time she was 8 yrs old until she was 14. This will sound as if I am a horrible mother but I just thought that she was a raging bitch. Without my knowledge, she stopped taking her Singulair for a few months and she became a different person. She was so sweet and loving. One night she came in my room having an asthma attack and I asked her if she was taking her meds, she admitted that she had stopped taking her singulair and I got on to her and immediately got her prescription refilled. Within a few days of taking the singulair she turned into a raging, screaming emotional wreck, a TOTALLY different person. I feel so bad that for 6 years of her life I put her on medicine that caused her to have screaming, uncontrollable tantrums, and severe mood swings that caused her to be miserable. It does seem to be the only thing that effectively controls her asthma symptoms but the emotional havoc that is causes her and the people around her is not worth the benefits. We have an appt. with her doctor to see what other options we have.

My daughter began taking Singulair in 2003 for asthma and allergies. I slowly watched her deteriorate from a lively, intelligent, and outgoing young woman to a depressed, withdrawn and self-mutilating person who said that she hated herself and everybody else in the world. She was an athlete, a straight A student who had received an academic scholarship to college, she was fluent in German and had been teaching herself Japanese, and she was a staunch supporter for equal rights for children with disabilities and gay and Lesbian teens. On February 3rd, 2007 my daughter hung herself after working at the local community center. I no longer recognized who she had become. I have a degree in psychology, my father is a retired police officer, and my mother is a retired R.N. We were all trained to recognize the symptoms of depression and suicidal thinking, but we were never able to connect it to the medication that she was taking.We must all ban together to prevent other people from suffering the way that our loved ones have! Educate everyone that you know about what Singulair can do to you. They are still prescribing this drug to people without any notification of what the side effects are.

I am 16 and have been on Singular since July 9th of this year and the only side effects that has been affecting me that I really notice is the ear infections and headaches. my mom and I think that I might have one right now but have not gotten the chance to make a doctors appointment. The other side effects that I read about while googling it were a sore throat and upper respiratory infections which are both things that I have been fighting since March, which is what lead to me being diagnosed with asthma. In response to the person that was talking about asthmex, I also got put on that the same day and the only side effect that I had from that is a higher blood pressure that usual but it was still in the normal range, caused by the steroid in it.

I have been reading all of these posts and have another question. I hope that someone can help. My daughter, 8 years old, has been on Singulair since she was 4. She is normally a very happy girl with a wonderful disposition. For the last year or so, she has been having trouble getting herself to sleep at night. She says that she hears things in her head such as ringing or "noises". A few hours before she knows it's bedtime, she cries and when we ask her why she's crying, she can't give us a reason. We initially thought that she was crying for no reason because she didn't want to go to sleep. I remember reading about the side effects of Singulair causing mood swings, etc., but her's are not violent mood swings. Just very emotional and has a hard time coming down from the "episode". I'm at a loss...I have not talked to her doctor yet about it, but have told her that we will make an appointment this week to discuss it with him. My husband suggested that maybe it sounded like she was having a panic attack or anxiety attack. I hate to label her as that at such a young age. My mind now goes back to the side effects of Singulair and maybe this is to blame. Any help or suggestions would be greatly appreciated. Thank you! Concerned Mom

My son became soo aggressive 3 days after starting Singulair, that he was almost banned from soccer for life because of attacking another player on the field. It resembled what I had heard of 'roid rage'. When I questioned the doctor immediately, was told there was no connection. After months of the aggression, then came depression and self mutilation. My 15 yr old was secretly burning himself to 'punish' himself for things he done wrong or "disappointing" those around him. He now has permanent scars all over his arms from these burns. The depression took to drug abuse and my A student fell to an F student in 6 weeks. He completely lost his will to live and thrive. After 4 months of hell, the dr informed us that the FDA just warned physicians of this side effect. Im furious now that I read through the court documents and find that the drug company knew this all along. I know I am a luckier parent than some whose children committed suicide, but still wish that the FDA would get off their BUTTS and do something to take this drug off the market. I was told by a rep at the FDA that Merck will not take it off the shelf until they're made to because even if they had to pay parents millions for their child's suicide, they would still be pocketing more profit than our children's lives are worth in the court system. Not sure WHY we even HAVE an FDA, they won't do anything to protect us from these money hungry drug companies. A YEAR to do an 'INVESTIGATION" are you kidding me? If the CEO of Merck had to bury his child, it would come off the shelf THAT DAY.

I have asthma that was not controlled. I coughed and wheezed constantly. I had trouble eating, because even the food passing through the esophagus was enough to cause an attack. I was in and out of the emergency room for years, and the Ambulance folks knew to arrive with epinephrine when I'd call.

I started taking Singulair sometime around 1998. I haven't had any serious problems since then with asthma, and have had ZERO side effects.

Every drug has side effects for some people. For me, Claritin causes my heart to race. I can take that or that purple circurlar inhaler thing. I had a terrible reaction to that.

For ME, Singulair works. I am not sure it should be given to children if they are having severe problems. But it certainly should NOT be removed from the market...because people like me needed it to control their asthma.

I just wanted everyone to know that I am still here and concerned about everyone who is having side effects from Singulair. Sometime within the next few weeks I am going to post a summary and conclusion about all of the research that I have posted. I hope to come up with a well organized concise statement about why everyone who experiences side effects from Singulair should stop using the drug immediately. Not everyone has an adverse reaction to this drug. For those who do, it is very dangerous to continue this medication even for one more day.

STOP IMMEDIATELY IF YOU SUFFER SIDE EFFECTS FROM SINGULAR. WHEN YOU SUFFER SIDE EFFECTS FROM SINGULAIR, THE REASON IS THAT YOU ARE NOT COMPATIBLE WITH THE DRUG'S GENETIC BASED MODEL.

Singulair targets the CysLT1 receptor, which is a gene. This gene is not the same for everyone. If your doctor does not understand that the mode of action of Singulair has a genetic component, then tell him/her.

I have 2 sons with asthma that have both been taken singulair (the oldest for 3 years & his brother for 2). My younger son's asthma got alot better since he was diagnosed & he was recently taken off Singulair thanks also to my husband hearing a report about the moodiness caused. When he was on it he would cry for no reason, get very irrational & seemed to think the world was against him. In just 2 weeks he is happy & cheerful and has told me he thinks it is due to being off singulair. His older brother's asthma has gotten worse over the years & I'm concerned about taking him off but he too has crazy moods. Just tonight he started a new soccer team & got crazy & suddenly didn't even want to participate in something he loves (wanted me to let him quit right then) until we argued enough he reluctantly participated. He then came home complained of a headache (which is also way too frequent) and now has been asleep for hours. Are there any alternatives to this drug? I'm a stressed out mom that doesn't deal well with these mood swings. He is normally a social butterfly & a sweet kid but lately seems more withdrawn, more irritable (especially tonight) & complaining about leg cramps in addition to these frequent headaches. I can't deal with too many more of these evenings & wonder if all these things are possible side effects. I'm glad to see my other son doing well but miss his normally sweet brother! Even his siblings think he is acting crazy :(

hi everyone my name is Katie, and my son has been on Sindulair for over 6 months now. I took him off 2 nights ago, the day I found this sight. I just cant believe how many families this medication has hurt. When my son was put on, I was never told anything about anything like this happening. I thought his behavior was due to the divorce and child custody things in his life that were going on. It did not cross my mind that it could ever be this medication. He does not take anything else at all.
Some of the things we have been dealing with are, panic attacks at night, bad dreams, aggressiveness, depression, anxiety! Fits that you would not believe. Crying all the time, very emotional. And the newest one, thinking everyone he loves is going to get killed. These are not things a 6 just turned 7 year old should be going through.
I got to thinking that I needed to get him some professional help, this is not normal! I decided to look up Singulair on the net, I did not find anything. I looked up Childrens depression, and angziat, still nothing fit. Then I found this site. Wow did it blow my mind. It fit and it felt right, if you are a mom, I think you know where I am coming from. When you know you just know! So I got him off the medication, and already I am seeing changes. The first night was not grate but better than it has been in a long time, the next day though, he woke up and smiled at me for the first time in way to long, he only had 2 meltdowns that day, when he was having at lest 2 in an hr before. So far so good, I just hope that It keeps going well for him.
Thank you for letting me tell my story!

Dear Friends,

Just want to reconfirm that this drug, that according to the Lab, present this side effects as "rarely" now we can see that it is not, I have a 2.5 year old boy, that is presenting these same side effects that you are mentioning. In a sudden he starts to act really nervous, his eyes turn red and cries while he tries to express something, but he does not know what is going on, in the meantime he has this truly visible crisis, his heartbeat goes up like hell, and his hands shakes. My wife and I got really scared the first time we experienced this with him, and we did not know what to think, we asked the Doctor and the stupid guy told us that he needed a shrink, but we did not believed it. Today he had the second same crisis, not as hard as the last one, and we discussed and came up with the idea to find out what were the side effects of this drug, and voila, is the gdm Singulair. I just can't believe that the Doctors that are prescribing these drugs do not warn the people that this may happen. The only thing that I can do is write my experience to you, thanking you for your attention, and spread the voice to the other parents that are around me that they take care of this and prevent their children to go through this process. I really feel like trash, because I did not do this before starting giving him this drug. Thanks for listening.
By the way this is an international problem, I am writing you from Mexico City.

Added to my previous comment about seizures which my son developed, I have been worried about his growth as well. I realize that kids grow at different rates but my son's growth pattern is so different from my other children!! I have asked the Pediatrician about this several times but he always says that no studies have shown a link between Singulair and growth.Has anyone else wondered about this?

My son is almost 6 yrs old. He has been taking Singular for approx 3 years, in addition to Claritin and Nasonex. This is all for his allergy to mold. His doctor started him on these meds after a 6 month episode with sinus infections leading to asthma-like symptoms. We have not noticed anything unusual about his behavior until approx 3 months ago. He started waking up every night (2-3 hours after going to bed) with bad dreams. At first he would not fully awaken and fall back asleep immediately. After a month or so of this happening most nights, he had two nights in a row where he woke up screaming and was inconsolable for about 30 minutes. We initially thought it was night terrors, but he was not scared or fearful, he was just upset/angry. He would hit the bed repeatedly and yell. He didn't know what he was upset about but would talk about how he thought we hated him, he was dumb, etc. After about 30 min he would 'snap out of it' and return to his normal self and go back to sleep easily.
At first we thought these were night terror brought on by a recent fever, but he had another episode last night. He has also been falling apart at the littlest things and getting quite violent (for a 6 yr old). He was sent to his room yesterday evening because he was complaining about the dinner his mom made (lots of complaining these days..). He had a total melt down an started throwing things and hitting the door so hard he put a hole in it.
Some of this behavior I would chalk up to normal kid stuff, new baby brother, etc. But I am suspicious about the negative thoughts, bad dreams, and instant melt downs... I stopped giving him Singular today and we will see what happens. God bless you all as we figure these things out...

I am an individual that started taking Singulair about a year ago. I've had allergies to weeds, grasses, and pollens since I was a little girl and have taken a variety of meds including Claritin, Zyrtec, Allegra, Flonase, and allergy shots. Last summer, my usual Claritin just wasn't enough so my doc prescribed Singulair. It worked wonders for my allergies. Soon after, I began to feel "numb" -- that's the best word to describe what I felt. I was depressed. It just so happened that my mother had had surgery and I had moved to a different city about the same time as beginning the Singulair. When I began feeling depressed and disconnected from the world, my doc and I contributed it to depression from life transitions. It didn't go away though. For a year, I isolated myself. I didn't talk to friends and family. I missed over 10 days of work just because I didn't want to get out of bed. I slept almost 15 hours a day, gained 60 lbs, didn't clean my house. I didn't really do anything and I didn't care. I felt so disconnected from the world. I didn't cry. I didn't feel suicidal, but I knew that something was wrong with me. I thought I was having a breakdown or something. My doc checked several things but all test results were normal. It wasn't until my mother seen a CNN report on Singulair that I began to link my depression to when I started the drug. I immediately quit taking Singulair and felt better within 4-5 days. After 2 1/2 weeks, I was back to being my old self. It was so scary feeling so isolated, numb, and disconnected from the world. I never would've thought about it being a side effect from an allergy medicine.

I took my 16 year old child off of singulair 6 weeks ago (3-28-2008). She started taking it 11-17-2003. She became dark, depressed, grades dropped, dropped out of dance and cheerleading, started cutting her legs with razors, stomachaches, headaches, anxiety attacks, trips to the emergency room. 6 months of fluoxetine given by her psychiatrist. Nothing helped her be happy again. Sad and Dark young woman. NOW: She smiles a lot, and is eating diner with the family. No headache or stomachache for a month now. She is sleeping better. Before she said that her mind would not stop thinking. She is taking pictures again and even asked me to order her book called "Understanding Exposure" and is talking about taking a class on digital photography at NMSU branch university to start on her college electives now. She is out more and even has a part time job at an ice cream parlor. Just lately I have stopped checking the trash for waded up tissues with blood (from cutting). Chris, I have had all her medical records sent to her primary Doctor and we are very willing to open them up. You have to have a child suffering to understand where we are coming from. The most dangerous place on earth is standing between a mother and her child. Singulair took our children from us and maybe changed them in some way forever.

After visiting this web site everyday for the past four weeks, I feel the need to share my daughter's (and my families') experience with singulair. My 8 year old daughter was put on singulair aprx. 2 years ago in addition to zyrtec to treat her allergies. Shortly after starting the drug, she developed stomach pain. After a few weeks of chronic pain, I pursued help from our pediatrician. After visits to two different pediatric GI doctors, an allergist (to test for food allergies), and an orthopedic surgeon ( because of sudden leg pain), the results were inconclusive. During this time my daughter also became very sad, angry and fatigued. She also completely lost her appetite and refused to eat much of the time. I attributed all of these symptoms to her stomach pain . In addition, she developed difficult sleep patterns and would often wake-up exhausted in the morning. Over time she also began to have more and more "melt-downs", breaking into crying spells over the smallest provocation or challenge. I recently contacted my daughters pediatrician to discuss what other testing or direction we could take to help my daughter. In the interim of making that contact, a friend told me about this web site. As I read page after page of other parent's experiences, I was in tears. I felt as if I was reading about my own family for the past two years. I say "family" because when one child is living through this kind trauma, everyone in the family is negatively affected in some way. My husband and I felt completely frustrated and unable to help our daughter. Our older children began to resent the great amount of time and energy I spent on behalf of our daughter. My younger daughter who had always looked up to and loved her older sister was sad and confused by her sister's anger and impatience.On March 29th I took my daughter off singulair. Unbelievable. Within 2 days, my daughter's appetite returned. On the second day, she came home from school and requested a corn dog and then some ice cream. She suddenly wanted to eat breakfast again. She started smiling and laughing again. She has suddenly become capable and responsible for doing her homework and chores. She is going to sleep more quickly and waking up happy. The best part is having our daughter back...the sweet, wonderful, happy six year old who I feel like I lost for two years of her life! As a side note-the return call I got from my pediatrician was that he wanted my daughter to see a psychiatrist. That's how close we were to taking another (completely unnecessary) path to helping my daughter. I also recently spoke with my daughter's allergist about our experience. At first he was somewhat dismissive. I asked him to listen to me parent, to parent for just a moment. He seemed to soften and said he would take a second look at singulair and its side effects. I encourage every parent who's child has been so adversely affected by this drug to be proactive. First, please contact the FDA to report your experience. Second, talk to your children's physicians and share, with confidence your experience. Third, share this web site or a similar one with everyone you know. I have been astounded how many children are on singulair just within my own small circle (school, church and play group). I really believe one voice can make a difference. I have to believe that for the sake of all the children still suffering.

Up until today I was unaware of any side effects. I have been taking singulair for about a week and I felt fine, until yesterday. Yesterday, I felt anxious and on the edge. I felt as if I was going to blow up if anyone said anything that I did not like. I was feeling as if my heart was going to beat right through my chest. Then when it was time for me to go to bed, I had trouble falling asleep. I awoke the next morning with vivid memories of nightmares that I had throughout the night. Even after I awoke I felt in intense rage. I called my mom later on in the day and I mentioned to her that I was taking Singulair for my allergies. She told me to stop taking that drug immediately. She told me that she just heard last week that it may cause some people to commit suicide. I'm glad I mentioned that to my mom, if I hadn't I may be worse off. Unfortunately I did feel as if the pills helped my allergies, however at what cost? Possibly my life...

I just read a few days ago that Merck is trying to get approval for a new drug. It is a combo of Singulair and the Shering pharm. co. drug Claritin. Isn't it nice to know that while we are suffering from this drug, Merck and another pharmaceutical company are trying to make more money on a drug that is supposed to be under investigation. Fortunately, the FDA is not approving it along with a few other drugs Merck is trying to push. This shows us how concerned they are with public health. They would sell us arsenic if they could get approval for it.

As an adult, I have had no problems with the drug. That being said, I wanted to remind readers that very few drugs, if any, are tested on children. As any good pediatrician will tell you, children are not just little adults. Drugs companies and doctors should not just adjust dosages and say that a drug is OK for kids. As a mom, I'm cautious to give my kids any medication that is new, including vaccines that are new, because I know testing has been limited with respect to children.

I wrote an earlier post but I am now reading alot of your posts where you say your child experienced FEAR on Singulair. That is so interesting. When my son was on it for around 3 years he would never sleep alone in his own bed and he would have episodes every night that would last up to 3 hours at bed time because I would try to get him to sleep in his own bed, even at 8 years old. I thought he was possessed!!!! He would scream and fight me and I would literally have to hold him down to get him to stay in bed. It was horrible. I'm not sure how a hullicination would be described but maybe that was part of it. All I know is that he turned into a totally different child. It was something out of a horror movie. I eventually gave up and let him sleep in our bed cause it was exhausting. He would just make blood curdling screams and the terror in his eyes was horrific. Then the next morning he would be fine like nothing had ever happened.
Now that he is off of Singulair he will sleep in his own bed with the light off all night. It was an amazing turn around. He also told me he's not scarred anymore.. Who knew????? Has anyone else experienced anything like that with their child????

I could not find the post from the mom of two who is a pharmacy student to reply to her.

My husband is a pharmacist with over 25 years hospital experience. he never questioned the doctors assumption that it would take 6 weeks to totally be out of his system. all drugs have some residual and cumulative or residual effects. it really isn't magically gone from your system in a set number of hours. especially a daily dose and more so in the elderly, and I have seen this first hand , when they are dehydrated or other wise compromised the drugs can stay in their system for a time and accumulate.

i will update on our son later today, he is doing much better two weeks off

Kate Kendle Here. I'm looking for Corey Miller's Mom. You had e-mailed me before. My son also committed suicide and you said that it was on your son's birth date. Please e-mail me at my personal e-mail address as I'd like to hear all about Corey and tell you all about my A.J. I'm sorry that we have to share this as a commonality but I'd really like to stay in touch with you.
If I remember correctly, your name is also Kate.
Hoping to hear from you. Kate Kendle

I am posting an update on my granddaughterwho has been off for 2 weeks since the story broke in the news. There certainly has been a difference, she's more 'present' when I'm speaking with her, not angry, calmer and she slept through the night the other day when she came over to visit. There were actually no 'scenes' or carrying on. However, in light of the last posting I do not know how she will be affected in the long term, None of us can know that, none of us know how this drug actually works on the brain to create such side effects. I just saw a Singulair commercial on TV and almost got sick. Cody Miller's mom in her post stated that he had no behavioral problems before his death. I imagine that is true for the majority of us. My granddaughter never had the need to go see a counselor before this drug. She was a happy, normal 9-year old. That all changed in only 2 months as her mother took her to a psychologist to find out why she was acting so bizarrely. I am convinced this drug has caused untold misery and should be at least restricted to adults or at most taken off the market. This website is only the beginning at some point those who feel strongly will have to come together and organize against this giant company Merck.

I just came back home from the dr. We made some tests and my 5 years old daughter is allergic to house dust mites and has beeing diagnosticated with athopic asthma. The dr. prescribed Singulair. Now, after reading all the posts, I freaked out and I have not idea what to do. I am really sorry I did't ask about side effect, but I considered, her beeing a dr, knows better than me. My thought now is: I'm not going to give my daughter Singulair.

Follow up to my post earlier today...

I took the my son to the doctor this morning and he was somewhat dismissive of the recent reports on Singulair...says he's had a lot of kids on the drug and never heard a peep about side effects until last week when the report on suicidal tendencies showed up. He did advise that when these kinds of behavior changes happen after a new drug is started he would recommend that we stop taking the drug no matter what it was, but I still felt uncomfortable with his response to us.

I felt like he was accusing me of making it up or only coming up with it because of recent news and message board posts. In fact, I made the appointment BEFORE I saw the posts. I was worried about his behavior BEFORE I saw the posts. It's just that seeing the stories from everyone else basically confirmed my suspicions that it might be the drug causing the problems.

I feel like I definitely wasted OVER AN HOUR waiting for a doctor to spend five minutes making me feel small.

Last night was the last time my son will take the drug, and I don't care what the doctors think of me.

Hi to all,
I am Cody Miller's mom, the boy who took his life after 17 days on SINGULAIR.I am just checking back to read some postings and I am truly amazed and saddened at the stories.I believe that if you follow through by filing your side effects with the FDA , advise anyone you know to do the same,the seriousness of this drugs danger cannot be hidden or ignored any longer.We have met with some knowledgable people on the drug company Mercks outlandish ,irresponsible practices .They said, the thing that helps in cases like this are,< REPORTS AND PHONE CALLS TO THE FDA>This is what we are being told.I have copied the pages on this website and, the Congresswomans that is helping us, has scanned your stories to disk.We will be taking them to Washington DC on May 2 to speak to the FDA.These stories cannot be ignored.Please make sure you look at all the serious side effects. When speaking to your doctor, let them know that this drug can cause alot of things besides suicide, although that is a serious added side effect. It can slowly steal the quality of your childs life and your family's life.Risk to benefit is all I am reminding everyone of,it seems the doctors sometimes dont look at the overall picture.I do believe however that more physicians are looking at this with eyes wide open, now that people are putting two and two together.My quest is relabeling this drug ,after removing it from the market to study further.Safety should be first ,not profit for GIANT PHARMECUETICAL COMPANIES.Your voices will be heard if you just make waves , have some faith.My husband and I will make it known to all who will listen, we are not alone in our request. They must seriously evaluate this drug and it's benefit to risk ratio, childrens lives are dependent on this important investigation.You can find the phone number to the FDA on the website if this number does not work,718-340-7000ext.5657 Alice in Jamaica New York.This person will direct you if your having difficulty filing on medwatch.com.She will file while on the phone with you.Please again, take these steps to move this important matter forward in the right direction.Blessings to all Kate Miller

I am speechless at all the postings re: Singulair. Both of my sons-ages 12 and 10 - have been on Singulair for over 5years for Allergies/Asthma induced by allergies and after reading the possible side effects, I now realize that my oldest son has been affected. His behavior, sleeping habits and social interaction has changed and in the last couple years has increased out of control. I recently made an appt. for him w/a therapist re: anger issues and as of today, called his allergist re: taking him off Singulair cold turkey. He still takes Zyrtec every day and I'm hoping that will be enough for his seasonal allergies to get him through. I miss my sweet boy and will try to make up to him what I've done by allowing this drug to damage his inner self.
Justin/Jake's mom-Ohio
angelray9698@att.net.

Hi I am one of the Mom's who's child was affected by this drug.
After seeing so many similar stories and people asking what we can do,
I decided to create a support board. We can share info, stories and ideas.
If you have not already joined please copy and paste the following link
http://health.groups.yahoo.com/group/Singulair_side_effects_friends/
If you have any problem with the link you can email me at
staceynlilphil@yahoo.com
Wishing everyone happy days again!
Stacey

Hey all. Reeces mom. I posted April 1. We went to the Dr. yesterday and she brushed off the singulair issues. She said that she was not convinced that it is the cause of his probs. She did state that she understood if I wanted to try claritin. I respect her and she is a great dr. but in my heart I feel that singulair was the cause and time only convinces me more. I can see it in his eyes and feel it from his hugs. To even get a hug from him is a miracle. He has been off the meds for 1wk. today. He is pleasent to be around.!! I don't know what else to do if anything, except I want EVERYONE to have the info and make their on minds about it!!!

I am 13 years old i have been on singulair for 8 years. I use to be the kind of girl who loved art and i was always happy and active, but whene i started Singulair all that changed i didnt like any of the things i use to like my mood was conpletly different i always yelled at my mom and my little sister. About 4 years later whene i was 12 i was sent to a Psych Center because i attempted to kill my self and my mom. i have been off this for about a week and i have been feeling much happier.

I have a 15 yr old son, that has been on Singulair for 4 years. He used to complain to me about not being able to sleep through the night, he couldn't concentrate at school. He was an honor roll student. Then he became short tempered. He also isolated himself, and no motivation. He would not want to do anything. He was depressed. Does not want to shower or anything. He has absolutely no self worth. He would talk about having these problems and I would just say to him that maybe it was just the changes going on. New school, changes to his body, it's just those times where changes and expectations are harder. Some handle it better than others. Than everything just continued to go down hill. My son is very intelligent, so when mom did not listen, he decided to self medicate. Went online to try find out what was going on. Tried to find what would help him. He learned quite alot about pharmacology(spelling???) at any rate he then started experimenting with other drugs. Prescriptions drugs. He just wanted desperately to be happy. I found out about this. He was getting into trouble at school, grades fell. So we then sought counceling and then a psychiatrist. They put him on all kinds of meds. Prozac, Ridilin anti pshychotic drugs. You name it my son has probably done it. Now my son is an addict. I now hear all these things about Singulair don't know what to think.??????? I have had him a drug treatment program of which he was kicked out for overdosing. Then, the hospital of which just put him on more drugs. I don't know what to do. He has asthma, when he does not take his Singulair the asthma really kicks in. I know this we are going to look for something else to treat his asthma. I need input. My thoughts are simple. I believe that it is possible that the problems my have started with Singulair but then my son took a step further. I think to try to survive. But in the mean time he is now an addict and I'm scared of whatever permanent damage that may have occured over the years. Are there any other parents out there, that think their teenager might be going through the same problems? If so PLEASE reply to this message.

I can hardly believe what I have read on this board. It is my son's story repeated over and over again and the sad fact is that I never put 2 and 2 together until I saw the news stories last week. My son has been on Singulair for years (he is now 7 years old) along with other drugs for asthma. We recently started taking him to a therapist because of his extreme unhappiness, violent temper tantrums, bad nightmares, many tics, and overall negative attitude. I took him off the singulair 5 days ago and cannot believe the results so far. My son is not affectionate in any way, does not even like a simple pat on the back, no hugs or kisses for sure. Two days ago he came over and gave me a kiss and a hug out of the clear blue. I cannot express enough what this meant to me. I have 3 other children that can't get enough of hugs and kisses, but coming from my 7 year old it just brought me to tears. The hugs have continued and he even told me that he loved me. The therapist had me convinced that he had a sensory deprivation disorder... until now. I cannot believe that until now I have not heard anything metioned in the news and that the medical professionals are so quick to dismiss claims against Singulair.
I am so thankful that I have found this website and for all of the people that have taken the time to include their experiences as it is evidence that there are serious problems when it comes to prescribing Singulair to children. I cannot help but to be saddened when I think of all the years I have lost to this with my son. All the time spent in frustration and tears over what I thought were serious behavior issues on his part. Not to say that I never expect any negative behavior out of a child, but certainly not like I have had to endure in the last years. The last few days have been amazing...I pray it continues. Shame on Merck for not being forthcoming and only keeping their bottom line in mind.

Our story is so similar to many of the others posted. I am including it because it adds to the data. Our 12 year old son has been on Singulair since age 7. Prior to going on Singulair (although I did not make the connection between these two events until this week..) he was an easy-going, happy, delightful boy. During the late fall of first grade he started developing strange behaviors--obsessive hand-washing, kicking our pediatrician, saying the water was poisoned. He is continuously irritable, moody, easily annoyed, impulsive, self-critical and has difficulty modulating his attention. He has had a few incidents where he has said he wants to die, he is worthless and a loser. He continually apologizes for his behaviors and is extremely remorseful, but then goes and does it again. We have seen so many specialists, spent so much money on counseling, have tried neurofeedback, Adderall, alternative supplements (eg omega 3's)...the list goes on. His issues have been like a part-time job for me. I never made the connection to Singulair, because the pediatrician and allergist assured me that Singuair had virtually no side effects. Right after the New Year (2008) he had a few days where everything seemed to go right for him-- moodiness disappeared, did his homework agreeably, seemed truly happy for the first time in a long time. In retrospect, I am guessing it is because we forgot to bring his Singulair on our vacation, so it was out of his system for several days. Now that we've tossed the meds, I'm hoping that the side effects are short lived...and we see our old son again.

As for the individual who wrote that we may be ambulance chasers, I can promise you that any money I receive in a successful class-action law suit would go towards helping other families avoid the pain and suffering our son has gone through. I consider myself an educated & well-informed parent and yet I was blind-sided by the medical industry.

Here is some perspective for you all. I take Singulair and do well on it and in ACTUAL studies it has one of the safest safety records. Understand that post marketing reporting does not mean there is a correlation between the event and the product. Throughout the life of a drug the companies must disclose any report of side effects reported to them REGARDLESS of causality. A popular antihistamine that is OVER THE COUNTER also has suicidal thinking/behavior listed in its post marketing section. However, just because patients who had reported having these thoughts while taking the product doesn't mean it was a result of the product! Maybe they had a depressive personality and were also on multiple other medicines to treat that. You must look at the "Adverse Reactions, Warnings and Precautions" sections of package inserts to see the side effects that were actually seen in studies. You can die from ulcers derived from over use of aspirin or ibuprofen. Decongestants can throw off your blood pressure and these events are documented in actual studies! Listen to your bodies when taking any med. If you feel differently report it to your doctor.

These are all drugs people, there are potential side effects. There are also side effects to those "natural" over the counter remedies that are not nearly as regulated by the FDA or studies by the drug companies.

To anyone out there who has experienced side effects to singulair timed to when you started it, talk to your doctor, stop taking it and see if it goes away. Same advice for any product prescription or over the counter medicine. Side effects can be a combination of many factors (what other meds are you taking?) But understand for many people this product is the safest and most effective treatment for them. The FDA and Merck are reviewing all information to see if there is any correlation to the reporting. But singulair been around for about 10 years and prescibed to billions of people and is known to be one of the safer medicines out there overall.

In between the legitimate posts on this site I get the sense there is a lot of ambulance chasing going on. People looking to cash in on this big drug companies. We want drugs, we want them cheap and with no side effects which is not a reality. Keep stepping up the regulation and make the companies hire more lawers to protect themselves and jump through even more hoops and see what happens to the price and access to new meds. Even better, see how regulation has impacted the development of new medicines around the world (here's a tip, it will dramatically decrease). Drug companies certainly aren't perfect but which industry is?

Please, when taking any medicine over the counter, prescription or herbal supplement listen to your bodies to see if the potential benefits of the product outway the risks or side effects. Report any changes to your doctor.

My daughter who is ten has been taking singular for two years. My uncle and my mom had both told me about the recent report. I was outraged. Since I didn't see it myself, I got online to check it out. I am so pissed off. My daughter has at times seemed to be depressed, my husband and I just thought it was a phase. She was never consistently depressed, more of an up and down thing. And she was fatigued from time to time. I never made the connection to Singular. I mean seriously it's an allergy medicine. And I always read the label. Never once have I ever seen a label say " may cause depression, or suicidal thoughts." I immediately took her off of it. Her last dose was 3/27/08. I noticed a difference almost right away. With in a day or so she seemed to be happier. I am so pissed off at myself and the doctors. of course I would have no way of knowing singular could cause this. I guess as a mom I feel like I should have know. I feel horrible!! Never once have they ever said anything of these reports. The FDA will be hearing from me. They hand out the medications like candy and have no idea what it really does to people. I just PRAY that my daughter, my nephew ( who was also on it for quite some time) and all these other kids out there have no lasting side effects from this medication. God Bless you all I will be praying!

Got email receipt today that the FDA received my concerns,everybody send in your form its easy,stop this from happening

I am Cody Millers mom ,the boy who died from Suicide while on Singulair for 17 days, I just wanted to say one thing to all of you that take the time to post.GO ONE STEP FURTHER CONTACT THE FDA and report to medwatch .The investigation needs evidence like your stories to help make informed decisions about this drug.The poorly orchestrated disclosing campaign that Merck had supposedly set out to accomplish in 2007, has obviously not reached the mass majority of people using this drug .Seeing now how many people did not make the connection to these HIDDEN AND DANGEROUS SIDE EFFECTS.Our child's pharmacy sheet that came with the medicine ,showed none of the updated side effects.They were added in April 2007,I filled the prescription in July 2007.Nothing had been disclosed until we put forth this effort to get the FDA's attention ,by asking the Senate and Congress to look into this matter.Go to your doctor and insist that they report YOUR SIDE EFFECTS to the company and the FDA.It is of the utmost importance.,Kate and Dave M.

Here's something to ponder...
Here's a quote from Merck's site "Merck voluntarily updated the worldwide product label for SINGULAIR in October 2007 to include "suicidal thinking and behavior" and included similar changes to the patient product information". So if they voluntarily updated their information, why aren't doctors aware, why is the public not privy to this information?

Moms, Dads, and everyone who is taking Singulair with these side effects..if you are wondering why you've changed since being on Singulair, it just may be the side effects of this drug. Please don't wonder anymore, and take yourself off. You don't need to wean off it (coming from my son's pediatrician). It may take a few weeks to really see results. With our 5 year old son, we saw results little by little, and now it's been a month and he's completely back to normal. No more suicidal thoughts, no more blank stare, completely focused, and is his loving self again.

Every time someone new comes here and posts their story, it just breaks my heart that we've all suffered silently for so long without knowing the causes. To all the Mom's and Dad's who've thought they were doing something wrong as a parent, I feel for you, I was there. We did do something wrong though, we trusted the very person who made an oath to protect our children, to help our children. But we cannot blame ourselves for that. We're doing everything in our power right now to make our children's lives better, be proud of yourselves that you're here, finding the answer. Now let's do something about it. It's important to educate everyone we can about this. Don't let these doctors or compassionless people come in here and tell you there are no side effects, trust your parental instincts and go with them!

My son started on 5mg Singulair in 1999. Later that year and the next at the age of 10, my husband and I realized he seemed really depressed. I took him to his pediatrician, who talked to my son at length about anything that might be bothering him, if someone had try to touch him, etc.,etc. Nothing. He had been a really happy outgoing child. Now he was not. The next year in 4th grade he seemed to be worse. We kept an eye on him. There were no warnings whatsoever about Singulair causing emotional problems, depression etc. at that time. Shortly after he started 5th grade, we moved to another city with almost no air pollution in the area we picked to live, and he was still "down". But a few months after we moved, even though we left long time friends, etc., I took him off the Singulair, as he was not really having asthma. The kid got happy again--he was was my happy cheerful boy! I don't believe this is coincidence. Then when he started Middle School in 6th Grade, his school was old and dusty with no doubt mold problems and he started having breathing problems pretty bad again. We started him on Singulair again, for the next three years that he was at this school. He tanked emotionally. Hated himself. Was so depressed it was scary. I kept telling him it was adolescence and it would get better. Then he started a new high school, and was off the Singulair for 6 months, and he was happy again. Then he got flu and bronchitis and was back on it and emotionally tanked again, and never really came out of it. Though out these episodes a few times he told me he thought the medicine was making him feel weird. He last took the 10mg Singulair in 2006, the beginning of his sophomore year when he was sick. His depression exploded and he became suicidal. He was diagnosed with depression in April of 2007 and went on Zoloft. He was not on Singulair then. Then he became suicidal again in August of 2007. His depression medication was changed. He got worse. We found a psychiatrist who was able to help some, but could find no background reason for depression. There is some depression in the family, but none of these relatives became depressed until adulthood. He became suicidal again in November of 2007 and went through outpatient care at the local children's and psychiatric hospital. He came out somewhat better, with skills to help monitor himself. He had more med side effects and has changed meds again. Now he is on 40mg Prozac daily now and doing a lot better, and since we saw the news about Singulair a few days ago, he is extremely better. He is almost back. I would rather go the emergency room 5 times a year then go through this again. We were not given a choice. What are the long term effects of this drug for someone who has been on it through adolescence? No one knows. How can a drug with this sort of side effect for children be allowed on the market? I feel blindsided by the FDA and Merck. If his Dr. in 1999 knew about this side effect she would have never put him on this drug, nor would I have allowed it. I say sue the bastards.

As a pediatrician I write for singulair every day.
The medication is for allergies.
Allergies cause adenoidal swelling, which cause sleep disturbances which makes the child tired the next day with makes him over weight, less attentive, hyper and eventually act out.
This in turn makes the child experience parental, peers and teachers criticism/ abuse, with leads to the child feel inadequate, embarrassed, frustrated and eventually depressed and suicidal.

Yes, singulair does cause behavioral change but they appear within the first couple of peels, the rest is due to allergies, lack of medical care, i.e. sleep, singulair, and zyrtec deficiency.
Allergy shots cause 4 times the incidence of suicidally than singulair, and Ritalin 10 times more.
They say in hebrew "once a stone is thrown into a well, thousands of smart people won't find it".
Check it, it's true.

I just heard about this from my mom this morning. I've been on Singulair for 4 years for allergies. I'm 23 years old. Over the last several years I have had many nights that I went without sleep. I have gotten severely depressed and on the rare occasion that I drink more than a couple drinks, I have had insane mood swings. I have had horrible anxiety and I have gone from an honors to student to being on academic probation.

It has really helped with my allergies, but I had gone through hell the last few years and I've been borderline suicidal for a period.