December 9th
2008
8:52 AM
I have an 8y.o. daughter that has been on Singulair for about 3 years now. Since she started taking singulair she has been absolutely miserable! She cries at everything, is very moody, has leg pains, wont leave my side and is tired ALL the time. She has circle under her eyes, she looks like she hasn't slept a wink in days! She has been off her Singulair for about 5 days now and she is a totally different person. She has been "happy-go-lucky" and full of herself, she has even woke up happy (which hasn't happened in I dont know how long). She was put on Singulair by our Doctor b/c she had Pnemonia two times in a row. She has Allergies and Asthma and for the past 3 years has been on: Singulair (4mg), albuterol, flovent, Zyrtec, and Flonase. That is just too much for a little girl to be on. She hardly eats at all, gets headaches. I just see such a difference when she is not on it but, what will she take in place of this? My husband also takes Singulair (he is miserable all the time), he doesnt sleep at night and is always tired. Anyone have alternative to this drug?
-- By chevpa1 | Reply | (4) replies | Private Message me
December 7th
2008
6:18 PM
I am a pediatrician and my and I take care of my one year granddaughter is with allergic rhinitis and bronchial asthma. In her past history other than her usual problems she developed an episode of ketotic hypoglycemia after a viral syndrome.
I started her in Singular as she was having nocturnal episodes of cough in spite of having Pulmicort twice daily. As soon as she was started in Singulair she developed restless episodes of irritability. She never behaved that way before. She is now sleeping well all night after she had discontinued Singular.
December 7th
2008
7:55 AM
I had been taking singulair for over two years. I am 70 yrs old and in good health except for light asthma, allergy problems. My doctor took me off it. It did some good in the beginning but the last four mts I was continuing to get wheezing and bronchitis infections. I also had a lot of leg pain and was tested for all kinds of blockage, etc. I experienced very painful leg cramping, toes twitching, etc. The only way I could stop it was to pull my toes forward as the worst happened at night and woke me up. I finally found Leg Cramps with Quinine an all natural homeopathic med. It worked like a charm. I didn't know that this was a side effect of Singulair. Since I am off singulair just two weeks. It was replaced with Flovent an inhaler ( 2 puffs 2 x a day to begin and then later it will be 1 puff as the inflammation gets better. It also comes in granules. I am feeling much better and now I am ready to stop Leg Cramps as I feel the singulair may have been causing the problem. While taking Singulair I also had stomach cramps with diarrhea. I will not go back on Singulair. If the cramping returns, I will definitely go back on Leg Cramps with Quinine (available in any pharmacy over the counter and very inexpensive.
-- By talcott38 | Reply | (2) replies | Private Message me
December 4th
2008
4:42 PM
My 3 year old is on 5mg of singular daily for her constant allergy issues and has had NO trouble at all with it. Her personality has not changed.. she's happy, outgoing, friendly and MUCH better than she was before she started the medication. Prior to starting she was constantly dripping from her nose, she had both ears filled with fluid, had bags under her eyes and was tired and grumpy all the time, due to allergies we could not get under control with other over the counter or prescription meds. Since being on Singulair she's been 100% better than she was. I'm sad to hear that others are having so much trouble with it, but I can say that I am happy my little girl is feeling better.
-- By joshnabbey | Reply | (8) replies | Private Message me
December 1th
2008
9:59 AM
I was surprised to hear that Merc, the maker of singulair update their side effects 4 times in one year to include depression, anxiety, suicide, and suicidal thoughts. It was prescribed to me cos of my allergies and asthma. I never really took singulair on a daily basis because it made me feel so tired and out of it. So i would only take it when my allergies were very very bad, like having a bad sneezing fit or nose would be runny non stop which would be at least 1 to 2 times a month. My asthma wasn't really that bad, i would get it when my allergies would act up like i mentioned before. When the fires in California were going on my asthma started acting up because of all the ash in the air. I was having asthma attacks every day. Since singulair works great for asthma i started to take it everyday and noticed my asthma went away. The first couple days were fine..and after two weeks i started noticing i was becoming anxious and irritable. Also depression sunk in...So i wondered what was causing it. I wasn't going trhough any major life changes. So i looked up singuliar side effects and noticed the four new side effects that i mentioned above...I stopped taking the pills to see what would happen and i felt emotionally better but the asthma came back..id rather suck on my inhaler then be anxious and depressed.
-- By franciscor | Reply | (1) replies | Private Message me
October 23th
2008
3:11 PM
My daughter is 7 and was just put on Singular as a preventive medication for croup which she gets when she has an infection. She is not on a daily inhaler nor does she have asthma attacks at school. I asked the doctor for an alternative to the pulmicort breathing treatments b/c the prolonged use of this caused her to have dental issues (8 cavities) and he gave her singular. I am concerned of the side effects in the reviews of this medication but I need some relief for my child. She has been on the medication only 1 day is frequent urination a side effect and can it come on that quick? If there is another medication that doesn't have the side effects apparently singular has please let me know.
-- By jennifer1784 | Reply | (5) replies | Private Message me
October 23th
2008
12:35 PM
I am so thankful I found this site! My 4 year old son who suffers from asthma & allergies was just prescribed Singulair on Tuesday 10/21 along with Pulmcort inhaler & Xyzal.The doctor said to give him these daily for a month due to it being Fall. I do not like the idea of him being on any drug let alone 3 at one time. So today I started to do research on them. I will NOT be giving him the Singulair ever again!! He only had it the past two nights. He only had one pill on Tuesday night and by Wednesday night at his basketball practice he was saying he was tired and laying on the floor...this is so not like him. I believe it probably was from this medicine already having an effect on him. I am glad I found this site before he started to have these horrible symptoms that so many innocent children have had. I am going to call his Doctor and ask for something else to give him. What have doctors prescribed for your children in place of Singulair????
-- By kris24 | Reply | (3) replies | Private Message me
October 17th
2008
11:30 PM
My son is almost 5 now and has severe food and inhalant allergies, along with sever asthma. When he was 3 he was hospitalized for 4 days because of his asthma. I have been warned that only 1% of asthmatics will ever be hospitalized, so I've made sure he stays on all his meds. He has been on Singular ever since he was 15 months old. At first it was a God send. Everyday was a constant challenged, fussy, icthy red eyes, constant flow of mucous and wheezing. I would have to pin him down 6 times a day with the inhaler, but when Singular came "poof" it was like magic. He was on Singular when he was hospitalized and is now on 3 meds; Zrytec, Singular and Q-var all given to him everyday. Lately we have had some major issues come up for him. I think I have the next J. D. living with me. NO FOR REAL. My next step is a shrink. You might think I'm mean for saying it, but I don't know how else to describe it. When I was driving he asked for some gum, because I wouldn't let him pick out his own piece, he got out of his car seat and started hitting me over and over again, pulled my hair and tried to "break my arm" as he put it. I had to pull over and I couldn't get him to calm down he kept slapping me in the face and kicking me not only was I embarrassed, but it hurt, I was crying. I have finally come here trying to see if other children, who are on Singular, have had similar episodes. He is a very good boy most of the time and aggression is a hit and miss. I don't know what to do.
-- By tracyvalley | Reply | (4) replies | Private Message me
October 12th
2008
12:10 AM
My 8 yr old has been on singulair since May. I never put two and two together until reading these posts. He has been having anxiety at night..crying and looking terrified saying he can't stop the scary thoughts in his head. Tonight I felt so bad for him...because I can't make it go away. I am hoping with tonight being the last night on singulair he will not have such a hard time at night. He also says it's very hard to get to sleep at night. Poor kid. I also know he's a sensitive kid but it seems a bit overboard in the last few months....like getting upset and just not knowing how to handle his emotions so he just shuts down. Please message me if you've had similar experiences. I'm calling his dr. on Monday to figure out some other options if there is any. My son started with a cough in March and finally took him to see the dr. in May and she heard wheezing and started him on singulair and then added zyrtec. I know they control his coughing (wheezing...slight asthma) because if we miss a dose he coughs all day the next day. I'm a bit scared to go off it...but hope it stops the anxiety and moodiness. He had his first asthma attack last week too...and I wasn't prepared as we never have had to use the inhaler...so I didn't have it with us. Anyway, hoping he doesn't get too bad taking him off...and I hope he is able to control the scary thoughts by going off of it too.
-- By caredock | Reply | (7) replies | Private Message me
September 25th
2008
7:13 PM
for the people that have taken their children off singulair...
what are you using for a preventative med?
my daughter has really bad asthma and I don't know of any alternatives
September 25th
2008
9:02 AM
This past winter we found out that my son had developed asthma. His allergist /asthma doctor put him on Singulair as his preventative. Not two days later a report came across the news that Singulair has depression as a side effect. I immediately called my son's allergist / asthma doctors and was told that these symptoms have been found ONLY in children in their teens. That they are linking something in the med with hormones and it spawns depression.
Even though this is terrible for the parents of teenagers, my son is 6 years old... the chance of this happening to us was slim. Or so I thought.
One morning, to my horror, two weeks later my 6 year old son whom never really watched anything on television without his parents (with the exception of Noggin programs) is talking about how he wished he was never born. That no one would care if he was to die or disappear. That maybe he should just go to sleep one night an just die..... he was getting so angry for no apparent reason, throwing things and yelling all the time... telling me, his mother (we have always been so close) that he wished I were dead and that he hated me...
Needless to say I immediately called his doctors and they told me to stop the Singulair right away. The doctors were shocked that this has happened to a 6 year old and had filled out reports for the FDA that I had to give detailed descriptions of what happened to my son so they could start warning other parents.
Now, four months later and we have our happy go luck son back. No preventative, but the inhaler is doing the job.
Good luck out there if you agree to put your child on this medication. I understand it does not happen to everyone, I just cannot tell or describe to you how horrifying and traumatizing it was to go through seeing my happy go lucky son become this extremely depressed angry aggressive child within two weeks. We are still battling the aggressive behavior, but hey, he is 6 and that could be normal... right?
September 9th
2008
4:42 PM
I just started the Singular and it has helped my asthma a lot. I can't tell about the coughing because I also started it while I had a cold. But now and then even before I took singluar I would cough. Sometimes coughs are produced from various types of airborne things, many different types of things. I have a mold aggreviated asthma so that could be why its helping my instead of causing me to go nuts like it does for some. But it doesn't sound like a very good drug for children. It seems as though none of the posts coming from children taken Singular are positive. But so far it's helping me. I made it through the day without grabbing for my inhaler which was a great relief for once.
-- By breatheeasy | Reply | (5) replies | Private Message me
September 8th
2008
9:25 AM
I am happy I found this website to express my concerns about singulair. My husband and I are still shellshocked about how singulair turned our lives upside down. My son was on singulair for 5 years. During that time he had extreme anxiety, nightmares, stomach aches, suicidal thoughts and tendencies, difficulty in school, aggressive behavior. We were at our wits end when we sought therapy at an anxiety clinic a year ago. He never went on any antidepressants or anti anxiety pills, just behavioral therapy. He went to therapy for approximately 5 months once a week. At the time he started therapy, I happened to switch doctors for his asthma due to an asthma flare up. He went to a pulmonology specialist at CHOP. He was taken off of singulair and put on other inhaler medications. Slowly, we began to see improvement in his behavior. I was holding my breath, thinking I was imagining his improvements and hoping his symptoms would not return. My son is now 9 years old and has been off singulair for one year. His horrific symptoms are gone and he no longer needs therapy. He is a happy, active nine year old. He had a successful year in second grade last year. I never realized it could have been singulair that caused his symptoms until I heard it on the news. His symptoms were always related to "behavioral problems". It was such a heart wrenching, frustrating experience because we could not figure out why he was behaving this way. My heart goes out to all the families who have experienced devastating symptoms. I contacted merck and the FDA. I want to contact my state representative. I am looking forward to seeing the results of the FDA study. I am curious how they are obtaining their data because I was never questioned about the details of my experience.
-- By theresealbert2 | Reply | (1) replies | Private Message me
September 3th
2008
9:37 AM
I just read an article dated 9/1/08 that stated that the American Lung Association just cleared Singulair as causing depression and suicide. They had researchers study the results from the original test trials because they are supposedly more accurate than after market reports. The article is at ******. I cried when I read this report. My now 8 year old daughter has been on this medication for mild asthma since she was 4. We have thought the stomach aches and tantrums were related to moving to a new town around the time she started taking singulair. But, 3 months ago, she all of a sudden started having depression, ocd about germs, afraid she might hurt herself and then depression and suicidal thoughts. She has been off meds for 8 weeks and still has some problems with thinking she wants to hurt herself and feeling down. She is normally very happy and our family is happy and normal, but dealing with this is difficult. How long does it take to get out of their system?
-- By denisem3 | Reply | (1) replies | Private Message me
August 28th
2008
7:47 PM
After taking a "leave of Absence" from this site, I see that Singulair is still up and thriving. I still see ads for it on TV, over and over again. They haven't been altered at all. Makes me sick. I wish there was away to get to other people whose children have died by suicide and investigate as to whether or not they were ever on singulair. Keep fighting. We'll get there! Kate K
-- By kate60 | Reply | (2) replies | Private Message me
August 23th
2008
8:57 PM
I have been reading all of these posts and have another question. I hope that someone can help. My daughter, 8 years old, has been on Singulair since she was 4. She is normally a very happy girl with a wonderful disposition. For the last year or so, she has been having trouble getting herself to sleep at night. She says that she hears things in her head such as ringing or "noises". A few hours before she knows it's bedtime, she cries and when we ask her why she's crying, she can't give us a reason. We initially thought that she was crying for no reason because she didn't want to go to sleep. I remember reading about the side effects of Singulair causing mood swings, etc., but her's are not violent mood swings. Just very emotional and has a hard time coming down from the "episode". I'm at a loss...I have not talked to her doctor yet about it, but have told her that we will make an appointment this week to discuss it with him. My husband suggested that maybe it sounded like she was having a panic attack or anxiety attack. I hate to label her as that at such a young age. My mind now goes back to the side effects of Singulair and maybe this is to blame. Any help or suggestions would be greatly appreciated. Thank you! Concerned Mom
-- By danap | Reply | (12) replies | Private Message me
August 21th
2008
10:49 AM
Have been experiencing the same serious behavioral issues (screaming, launching every toy he has out of his room, knocking over his night stand, hitting, kicking and just being hateful) with my 4 year old who has been on Singulair for 2 years as I'm noticing many of you have here. My wife and I have a wonderful relationship and happy home and tons of love and support from other family that's close buy so the kid has a very nice environment. We have taken him off the medication as of yesterday. I have consulted his doctor but I'm anxious to hear what methods of treatment for the asthma all of have chosen in replacement of Singulair or did you just maintain with an inhaled maintenance program with something like Pulmicort? Also, how long was after taking your child off of Singulair did take to for the outburst to subside and the behavior to become more mellow and normal (what is normal for a 4 year old?). Any info would be greatly appreciated.
-- By rhettro73 | Reply | (6) replies | Private Message me
August 15th
2008
5:15 PM
My 10 year old son has asthma. His inhaler is not working so the Dr. put him on Singular yesterday. I had him take one right when we got it. I then dropped him off at a friends house. Around 2pm I picked him up. He fell right asleep when we got home. He woke up crying. He proceded to cry & be totally unreasonable for 5 hours (until bedtime). He told us he didn't want to play football & he didn't like it (this from a kid who lives for football). He then proceded to call his coach & quit football. We tried to console him but there was no consoling him. This was all after being on it for less than 12 hours. I think the only reason we noticed this dramatic change in demeanor was because his is normally a very good kid & he instantly became uncontrollable. I then called his friends mom & according to his friends older sister he was 'out of it' for most of the time he was there & kept asking the same questions over & over. Needless to say he will not be taking another Singular pill! I have notified my son's Dr. of this & hopefully they will report it to the company.
-- By mnmom08 | Reply | Private Message me
August 1th
2008
12:31 PM
it is so good to see this! I can't believe I am not the only one suffering with Singulair. I developed what I thought was just bronchitis, and my new doctor put me on a cocktail of respiratory meds... 2 inhalers, antibiotics, steriods, and singulair. Well, I finished the course of antibiotics, and am feeling better. I stopped using one inhaler, because it made my hands shake uncontrollably (I was assured by my doc this was normal). I stopped using the other, because I thought it was making my head feel foggy and making me moody. The only medications I am currently taking are Cymbalta for my panic disorder, and Singulair.
I have been on the Cymbalta for long enough to know that I do not suffer side effects from that (unless I miss a dose). But lately I have been more moody, emotional, snippy, and having almost daily panic attacks! I can't concentrate on a thing, my mind almost feels detached. I also suffer periods of numbness in the left side of my face.
After reading this site and everyone else's stories, I am not taking Singulair any longer! Hopefully some of these effects subside. And now I know to never let my son take it, either. I am so angry with my doctor for not warning me about these effects, not taking into consideration that I already have an anxiety disorder, and just brushing off my concerns!
-- By kristen1983 | Reply | (2) replies | Private Message me
June 10th
2008
5:55 PM
PRAISE GOD for all of the stories shared on this site. And I've only read page one. My husband called me back today to say that he "googled" Singulair and found some interesting things (to say the least). While we were on the phone, my three-year-old was in the throes of another meltdown, kicking me, hitting me, throwing whatever he could get his hands on. My older two boys, 8 and 12, were ordered, once again, to lock themselves in their rooms to avoid being hurt by him. He will throw stuff, bite, hit, kick, and, at times, spit on us. This disturbing behavior is rather constant lately. He is like a mad man. Very scary.
Caleb has been on Singulair since about age 1, when he was diagnosed with chronic sinusitis and allergic rhinitis. Unfortunately, we initially equated his rages with the onset of "terrible two's" and dismissed his behavior to a chorus of "oh, he's just a boy!" My husband felt, at times, that I was just not disciplining him properly. I intuitively knew, having raised two other boys, that this behavior was abnormal, even for severe tantrums. We received a variety of suggestions from his pediatrician, caregivers, and grandparents, all to no avail. We have several calm days but things always deteriorate back to insanity. He is VERY unpredictable.
Last Thanksgiving, Caleb (age 3) was kicked out of his daycare setting for biting and hitting. Once I witnessed him run as fast as he could into a group of playing children, falling on them, kicking them. He would walk up to sweet little girls half his size and push them down as hard as he could. It was a nightmare. My husband had to take 3 weeks of leave to stay home with him while we prayed and searched for new care. We had him evaluated and he was staffed into the "developmentally delayed" program in our school district (for poor adaptive skills and personal/social behaviors). We recently had his tonsils removed, hoping that some of the sinusitis symptoms and behaviors would improve. They really haven't. This past week we have been looking into the Feingold diet. We have been PRAYING for answers. The last time we spoke with his developmental neurologist, he recommended a trial of Risperdol (sp?). We feel like more meds would be like a band-aid, not a solution. But his rage is becoming unbearable.
So, that brings us to today. I was so moved by your accounts. Unlike so many of you, we don't have much of a "before" to go by. But his "after" sounds VERY much like what you have all described. It's probably the pure rage that I see on his face that is the scariest part. And at the same time he seems desperate and vulnerable. He truly seems to snap. If we had pool chairs, I can just picture him throwing them (citing another post :).
We are going to throw the Singulair away. He will never, ever have it again. Even if this isn't the cause of his problems, I certainly don't want to exacerbate any behaviors with this toxic medicine. I will post again just to let anyone who's interested know if this changes his behavior. I am praying that my entry will help someone else, just as all the other postings have helped me. I have renewed hope.
I have copied many of your comments to a Word document. I will be sharing it with a high ranking officer at the medical clinic/hospital on Keesler Air Force Base. I hope that he will discuss this with his staff and that perhaps we can at least make a difference here. I, too, will be filing a report with the FDA. I can only pray that this medicine has not permanently altered his developing brain.
-- By calebsmom | Reply | (4) replies | Private Message me
June 2th
2008
12:40 AM
HI,
As with many others I found singulair to be a miracle with asthma. No more rescue inhalers. I am not sure which of my current meds is causing the very vivid, often gruesome dreaming I have been having as THREE of them show this as a side effect. I am referring to Cymbalta, Xanax and Singulair. It may be that the combination of the three is just too much and is causing brain toxicity of some sort. I started cutting down the cymbalta, and also the Xanax days ago. I found myself still waking up remembering vivid dreams that I would rather forget. I remember them all like they just happened in living color and detail, days and weeks later. At first I thought it was interesting, but now I just want to FORGET THEM, anyone have ideas???? Help!!! ( I also developed depression and anxiety after being on singulair for several years which is how I ended up with the two additional meds.
May 2th
2008
11:06 AM
I am a 50 year old women. I had bronchitis that turned into severe asthma.
Could not stop coughing. I have been on Singulair for over a year. Have had weight gain, Hand numbness,Stomach problems. Even had an colonoscopy but turned up nothing. Now I understand after reading all these posts. The weight gain alone was driving me crazy. Limiting myself to 1200-1400 calories, eating only lean meats and vegetables.Exercising and loosing MINIMAL weight over a 4 month period. I felt like I was doing something wrong. Ive thrown my Singulair away after reading your posts. Will figure out something else if my allergies and or asthma flairs. Just not worth it. Will repost after Ive been off a while.
April 29th
2008
1:32 PM
(A divorced father)
My son has been on Singulair now 5 years and I am in the middle of fighting to get him off. My son is now 7 years old and has been diagnosed with allergies (no test have been done which I find very odd), which leads to a case of mild asthma. This past weekend his mother forgot his Singular on Friday so I could not give him any till the next day, where we met at his soccer game. Saturday night I gave him his usual pill and thankfully due to his exhaustion from playing out side all day he went to sleep in 10 min. vs 3 hrs later which is the norm since Singulair seems to jack him up.
He also has red puffiness under his eyes - most likely allergies.
Seems depressed - just driving down the road and I look at him in the rear view mirror and he just sits and stares into space. When I ask what's wrong he either says nothing or I am tired.
He will try to tell a story or think for himself and just stops mid sentence and says " never mind I am just confused"
He will be having fun one moment and just starts crying or gets depressed.
He was throwing a ball in the house (yes I know) and accidentally knocked a glass over breaking it - he went running to his room, crawled under his bed and sobbed profusely for over 30 min.
He has a hard time doing / focusing on homework - becomes bored very easily.
Does not want to go outside. I will take him to allot of cultural events/ hands on or participation events - he will not try anything. He is unsure and will not come out of his box so to speak.
I spoke with his doctor who was reluctant to take him off, but then agreed that if it was OK with the ex, to take him off for a week to see what happens.
The fun part: My ex is convinced that since he has been on Singulair for 5 years he is fine and does not need to come off it.
1.) Son is diagnosed with mild asthma or allergy induced asthma.
He has never had an allergy test done and has not had a lung function test in over a year.
2.) It is documented that our son has four outbreaks a year. (sounds like the changing of the seasons) but is given Singulair all year round and the dosage has also been increased.
3.) Since the court order, ordered my ex to enroll our son in sports (she would not let him play anything) he does not wheeze or cough uncontrollably.
4.) Since I had to battle to get our son on my insurance I have cut her control issues off a little, but she is refusing to take him off Singular just for a week to see how he reacts. Although I do agree that he should have some form of allergies medicine.
5.) When I found out about the side effects of Singulair, I also found that his doctor was getting ready to add two other allergy medicines to his portfolio - totaling 3 different meds.
I see our sons behavior getting worse and I watch him turn into something he is not and with a controlling individual not believing anything about the side effects it looks like I will have to rely on the medical system to prove my point. I do believe he needs to be accurately tested for allergies and given a regularly lung function test but most of all since he is now on my insurance, a second opinion and a 3rd to narrow down what the situation is and an alternative medical procedure that is fit for the symptoms.
-- By aussie63385 | Reply | (9) replies | Private Message me
April 29th
2008
3:36 AM
My son is 5 years old. He was put on Singulair in August following a case of pnemonia. He has asthma. I found it worked well since I was barely using inhalers anymore. His eczema was even getting better. So I was happy with the medication. He also seemed to be getting more agitated with us. At least three times a day he would have an outburst towards his brother or us, like he was going to punch or hit us. Then I would say "why are you mad at me" and he would say "I'm not mad, I'm frustrated" and then burst in tears. He was getting a lot of time outs. Then two months ago he started saying "this is not a good day" or "this is a sad day". I was wondering if singulair was to blame, but it wasn't until I heard concerns from other moms. I took him off it as an experiment and noticed the next day was without his outbursts. Then I just never gave him anymore...and I am relieved to say he is as "normal" as I remember him before Singulair!!! He also was unable to get to sleep easily on Singulair, sometimes 1, 2 and even three hours to get to sleep. Now he is out in 20 minutes if not less. I haven't talked to the Doctor yet. I have noticed his eczema is flaring up again and he has used his inhaler this week (although he has a cold). I think I can deal with that without Singulair and the problems I am suspicious come from it's use.
-- By sunflowergurl76 | Reply | (4) replies | Private Message me
April 17th
2008
8:59 PM
Hello to everyone, I just came home from a parent teacher conference for my son who is 7 yrs. old, and heard the same old thing, "he is restless, impulsive and has a short attention span". He has been taking Singulair for about 3 yrs.. Since he has started school I have had these complaints and have also been told he displays symptoms of ADHD, which ironically has been for the last 3 years. Like any parent, I question" if I am doing something wrong with my parenting, is his diet good, etc. etc.", I am also a nurse, I realize that medications are needed and beneficial in some circumstances, however I firmly believe and was taught in nursing school that medication is last resort. That being said, I have been very adament about NOT giving my son ADHD medication after doing alot of research on the different meds and their side effects. So, we started him on all natural vitamins, changed his diet some ( kids got to have candy once in a while) and started a more structured routine( the best we can since we both work) and also enrolled him in Sylvan. The teacher says there is a 50% improvement but he is still impulsive and still does not pay attention like he "COULD", again suggesting he needs ADHD meds. I came home in tears and started to do more research online to see what else can I do besides putting him on psych meds?....Then I came accross this site, I just want to cry after reading all these posts. I wonder, could this be his problem, the Singulair?.. About a year ago he use to get up in the middle of the night, 5 out of 7 complaining of nightmares, hearing things at times, headaches, decreased appetite, stomach upset, all AT TIMES, not all the time so I never thought alot about side effects of Singulair. When the school started complaining I did look at side effects of Singulair and seen HYPERACTIVITY and mentioned it to his pediatrician and she shrugged it off saying she never heard of it being a problem. She's a great MD so I listened to her because his asthma was bad when he was younger and it is now under control. But then I think maybe he is outgrowing the asthma. I am afraid to stop Singulair and him have breathing problems again but then I can't help this strong feeling in my heart that says this may have been his problem with everything else all along. We are going to stop the Singulair tonight and see what happens. If anyone else has a child with asthma any suggestions for alternative treatment would be appreciated. I already know what's out there but sometimes it's nice to hear from another parent going through similar situs. Thanks for reading, Bobbie
-- By bobbiejo | Reply | (5) replies | Private Message me
April 15th
2008
9:19 AM
I have been Singulair-free for 11 days now. I do not entertain any more suicidal thoughts, I feel MUCH happier just generally. I have cried, but haven't felt really low, just sad, normal-sad. I do have more difficulty breathing and tightness in my chest, but I am looking into adopting an anti-inflammatory diet. I have exercised more since stopping the Singulair, so I hope that will help long term with my lung function. I would definitely say I would rather feel some tightness in my chest or breathlessness going up stairs than intense sadness and irrational suicidal ideations. This life is much better than the one I had two weeks ago, and I know it's the same life, nothing has changed, just my perspective. I wonder if taking drugs off the market is going to be like putting up stop signs or traffic lights - we have to wait for a significant number of accidents before that move would be warranted. I really can't believe that all those years I thought it was me. I am a whole new person psychologically and it is because of an asthma medicine that is approved for KIDS! Amazing.
-- By psiloveyou75 | Reply | (3) replies | Private Message me
April 11th
2008
11:09 PM
I am starting a new post in the hopes that others will see what I am trying to say about the delayed reaction in those that took Singulair for allergies.
If it is consistent that Singulair does not stop allergy symptoms immediately, then the pathways that eventually stop allergy symptoms involve a change in the mast cell function, development and migration (or some combination).
I asked this question for a reason. Are allergy symptoms stopped immediatedly. My question below:
I have a question that will help me continuing looking for information. I can understand that in the case of asthma that Singulair would provide immediate relief. If it is used for seasonal allergies or other allergies without asthma, does it work right away or does it take a period of days or weeks to be effective? If it takes time, could you tell me how long it took in your situation?
My thinking was going in the right direction if the answer below is consistent of everyone or most.
about 2 hours ago on Apr 11, 2008 by catherineevans, #7045
My granddaughter was put on Singulair for allergy symptoms without asthma. Itching, red eyes, terrible congestion, etc. dark circles under her eyes all the time. When we first put her on this, we didn't see any consistent results for 2-3 weeks, then it seemed to 'kick in.' I don't know if this helps. By the way, she was 9, now she's almost 12 and was immediately taken off when this story came out 2 weeks ago.
Then after seeing one response, I gave my reason for asking.
I asked this question because I have a theory of how montelukast really works for allergies as compared to how it works for asthma.
Asthma is a hyper-sensitive state that gets going because the mast cell has a receptor (the leukotriene receptor that Singulair blocks) that sends a signal along a pathway that causes lung tissue to have that extreme response - the wheezing, the airway constriction.
On the mast cell is another receptor the histamine receptor that causes the secretions that make our noses runs and and stuff up. This is not the same immune response as the asthma response. When I saw a post that somebody's doctor said that Singulair is an anti-histamine, NO it is NOT.
So if Singulair does not block histamine immediately and your child's allergies did not go away immediately, then maybe Singulair is working through some other means such as changing normal mast cell homeostasis.
I know that this seems like "what does this mean?" I am really writing this hoping to God that there are people reading this site that know what I am talking about.
Thank you so much for responding. Your answer actually told me what I wanted to know and confirmed my hypothesis. More answers will help. I hope others respond.
PLEASE respond about the length of time that allergies disappeared if you took Singulair for allergies.
-- By concernedcitizen | Reply | (10) replies | Private Message me
April 11th
2008
7:43 PM
has anyone took their child off of singular for more than 2 weeks and has the child had any breathing issues since being off?
-- By henrymel | Reply | (5) replies | Private Message me
April 11th
2008
8:23 AM
My son is off singulair for two weeks now and is showing improvements. He was on it for 7 years and at the beginning we blamed it on steriods, even though his dose was low. When he went off the steroids, the behavior didn't stop. I questioned the allerist if the singulair could be doing it, but was told no, it doesn't have those side effects. I don't blame the doctors because they weren't given the info. He was extremely emotional, cried for no reason, had no confidence, didn't like himself. We on more than one occasion have told his older sister that when he hits his teenage years we would have to watch him for suicide, as his reaction to problems was sooo out of whack! He was on motrin for headaches 4-5 days a week(blamed it on sinusses). Unexplained stomachaches. These symptoms came on over years, not right away. I have always thought that the steroids had done damage because he took them when he was so young. Until the news reports hit, and I started reading other people's stories and doing the "OMG, that's my kid!", I never put the problems on singulair. I was still skeptical, but took him off. His symptoms immediately got 100x's worse for a week. But funny thing is, his headaches are gone, his stomachaches are gone and he seems much less emotional. The strangest thing is, EVERY night, he comes in to kiss us good night 7 or 8 times, and sometimes by the 7th time he is crying and can't explain why. This has been going on for YEARS, EVERYNIGHT, never a break. It stopped! Just stopped cold 7 days ago. Comes in once, says goodnight, leaves and falls asleep. I know this isn't a coincidence. After years of wondering what's wrong with my kid, now I feel like I've been poisoning my him for 7 years. I'm not skeptical anymore.
-- By lisa4 | Reply | (5) replies | Private Message me
April 10th
2008
8:17 PM
UPDATE: Our nightmare with SINGULAIR has not ended! After reading "conerned citizens" report discussing the possiblility of Singulair causing asthma blew me away. My son was put on this drug for food allergies not asthma b/c they thought of his two anaphylaxsis episodes in 5 days. 1 food related the other unknown (maybe outdoor mold?) He had no prior issues with breathing.
He has been off of it for almost 2 weeks however over the last week he has slowly developed some breathing issues. After getting off of it, he still has his ear infection from the second day of being on it and last Friday after playing some basketball began to seem like he was winded so I brought him in. He was having trouble breathing. I called the Dr. and he said it could be excercised induced asthma. He is a very active boy who runs non stop and has NEVER had breathing issues before Singulair! It seemed to pass after a few hours. The next fews days he coughed a few times when playing and I thought what the heck is happening to him. Monday at school they didn't go outside so he was fine b/c he didn't run around. Tuesday, they came to get me b/c he was having trouble breathing and one of his teachers whose son has asthma said I think you better give him an inhaler. I called the Dr. ASAP and he approved us to borrow another child's. He freaked out and wouldn't let us give it to him. After 2 epi-shots in the previous weeks, he wanted nothing to do with that. At school the next day, we made him take the inhaler if he wanted to go out to playso he did. He didn't cough but a few times. No excercise at all. Then last night, he got really bad. He started to cough and couldn't stop to the point of gaging and it seemed as though he had developed a ton of phlem and kept trying to swallow. We ended up in the ER where we were told that he has asthma! I am so furious! I don't get this at all! If this report is accurate and my son got asthma by going on it - this will be devastating. We kept him home today from school and took him into the Dr. b/c he continued to cough all night. He is now on Flovent, Albuterol and has an enebulizer. I'm probably the only one of all of us who child did not have asthma to begin with.
Has anyone who did not have asthma before singulair now have any issues? Please let me know!
-- By njcukett | Reply | (7) replies | Private Message me
April 8th
2008
9:09 AM
Update...Today is the 11th day my 7 yr. old son has been Singulair free! He was taking it for "cold induced" asthma. He never had the typical asthma where he needed an inhaler. He got RSV when he was almost 3, then whenever he got a URI it seemed to go straight to his lungs, so the dr. prescribed Singulair and Xopenex (to be used with a nebulizer). I had asked the dr. a few times to take him off Singulair because he seemed to be doing much better and I wanted to see how he would do without it. The dr. would say "oh, let's wait until summer or let's wait until allergy season is over" and kept putting it off. I just had some sort of bad "feeling" about it. Of course, I look back now and know with certainty that his wierd behaviors started around the time he started Singulair. I am relieved now because his erratic behaviors are almost totally gone!!!! When I heard the news I decided to take him off the Singulair immediately. I was nervous because he had a cold and a bad cough, but did it anyway. You know what? He is fine! His cough is almost gone now without the help of Singulair! He is much happier and can actually focus on doing his homework without getting up from his chair until he is done. Before he would get up about 10 times and just couldn't sit still. He has a better attitude about everything now! He is doing great! I hope everyone who was taking this and stopped is doing better! I learned a valuable lesson from all this. I won't put him or my other son on anything until I research it! I will not trust anything anymore, and that in itself is sad, but true. Good luck to all!
-- By laura_seeley | Reply | (2) replies | Private Message me
April 7th
2008
11:49 PM
I am one of many that has decided to stop giving my child Singulair. And like many others, I have noticed a great improvement in her behavior.
My question is for those who have done the same. What medication have you replaced the Singulair with and have you noticed any of the same side effects that Singulair was causing? What are your thoughts on Flovent inhaler?
Any feedback would be greatly appreciated. Thanks!
-- By kaysmom | Reply | (7) replies | Private Message me
April 7th
2008
3:52 PM
Has anyone else that has taken Singulair for awhile tried getting off of it and noticed that their asthma was worse than it was before they started on Singulair? I'm a 29 year old male, been on Singulair for 2 years. After reading these blogs 2 weeks ago, I decided to see if I noticed any difference in my energy level, moods, etc after dropping Singulair. I didn't. But what I did notice during my week-long experiment was that my asthma was way worse. Prior to Singulair, I would only have to use my inhaler if I exercised. During the week that I dropped Singulair, I had to use my inhaler 5+ times daily because I was wheezing...especially waking up in the middle of the night not being able to breath. This never happened to me before I started on Singulair. In any event, I'm back on Singulair now to keep my asthma in check.
-- By cordellray | Reply | (1) replies | Private Message me
April 6th
2008
8:43 PM
My daughter is seven years old. She was diagnosed with asthma when she was around two years old and, for years, suffered with the night cough associated with childhood asthma.
When Singulair came along, my initial reaction was that of joy. My husband and I could not believe that we no longer heard coughing throughout the night. However, while on this drug, we also noticed that she underwent a change. Sometimes, she seemed terribly sad and withdrawn. Other times, she became angry and even aggressive. We rarely saw her smile. It also seemed like she was in some sort of fog much of the time. About a week ago, I found her on the floor of our office. She had just gotten out of the shower, and I was getting her pajamas for her. The towel was not around her and she was shaking violently and crying. She explained that she had the chills, but it was clear that she didn't even comprehend that her towel was not around her. We all know our kids, and, I'm telling you that this scene was frightening. This was not at all my daughter.
In addition to the mental/emotional changes, she also had physical symptoms including sudden and frequent headaches, fatique, stomach pain, and bed wetting. A day after her "breakdown" in our home office, my husband called me from work and told me that he had just been reading MSNBC and that there was an article about the negative side effects of Singulair. When he listed things that matched what our daughter had been going through since on this drug, it was both comforting and horrifying. I am relieved to know that there is nothing wrong with my daughter psychologically, but I am furious that she and so many others have been treated like guinea pigs. We took out daughter off Singulair the very same night that my husband came across the article on Singulair, and she hasn't had any of the mental or physical symptoms that she had been experiencing...the change was that drastic. Currently, we are only using her inhaler and Benadryl at night. She has a doctor's appointment next month, and I will tell the doctor about our experience.
I have my little girl back, but I can't help but wonder how many families are going through this and do not have a clue that Singulair could be the problem. Other than reporting this to our pediatrician, is their another agency I should contact?
-- By tess42 | Reply | (2) replies | Private Message me
April 1th
2008
10:33 PM
Good evening all....I as well as you all have a story to share about my son. Kameron lived the terrible twos to the fullest and turned into the biggest sweetheart when he turned 3. But then his doc wanted to try something stronger for his allergies and thats when Singulair changed out lives. Kameron has been on that junk since about November/December and since then everyones lives around him has been pure hell. He turned into satan in the flesh. I have never seen as much anger as I do in my son. On a weekly basis we go through stomach pains, depression, anger issues, him not eating for days, many sleepless nights, and thats not even all of them. He has spit in my husbands face and called me very bad words (that nobody has ever used in front of him towards me), Ive walked around with black eyes from him (remember he is only 3), he has given me bloody noses and straight up told his dad and I both that he hates us, and doesnt love us anymore. We cant take him around our friends children cause he is very abusive and controlling with them. He shows no interest in the things that he once loved, like his toys and pets. We have taken him to the doc and have been told over and over again that he is just a typical 3 year old but a mama knows when something is wrong with her baby!!I havent seen my sons precious smile since this stuff has taken over him or even heard him laugh. Im taking him to a different doc tomorrow and takin all of your comments with me and I am not leaving his office till they do something for my son!! My thoughts n prayers are with all of you that are goin through this cause I myself now how hard its been..
-- By kameronsmama | Reply | (1) replies | Private Message me
March 31th
2008
10:07 PM
My son 10, has been on Singulair since he was 4 yrs old for Asthma and allergies. His last dose was 3/26/08. He has always been my emotional child, he is 2yrs older than this younger brother. Some of his side effects included headaches, stomaches, leg cramps, emotional breakdowns, major mood swings, crying outbursts over small situations, night sweats, lack of motivation, weight gain, ADHD, wishing he were dead and the list goes on. His younger brother has always been involved in sports but he was always too afraid he would get hurt. This medication has robbed my 10 yr old son from 6 yrs of his childhood. Since he has been off Singulair he feels motivated and looks forward to joining the football team his younger brother plays for. I look forward to meeting this new young man who for so long has been hiding behind this so called allergy medicine. I am so thankful to know that my son can look forward to a bright future without these side effects. God Bless you all who are going through this as well.
-- By jaimeerice1 | Reply | (9) replies | Private Message me
March 31th
2008
6:41 PM
We've been searching and wondering for the last 4 1/2 years what happened that November night that our 15 year old son suddenly took his own life. This boy was a fun, loving, jokester that was loved by everyone he came in contact with. We always had a stream of kids in and out of our home. He had just gotten his drivers license, went to homecoming and played on the football team.
Andrew had been on Singulair for about 3 years. He would get the stomach aches, leg cramping, odd sleeping habits and moodiness at times, but we attributed it to a young boy going through puberty. He also experienced the shakes which we were told were from the inhaler.
We had no dramatic warning signs nor was there a note. It all happened so fast that evening. He walked out of the house and 10 minutes later he was gone. Our whole community was in disbelief and devastated.
After speaking with Miller's and reading many, many testimonies on numerous sites, We feel we may have our answer to our years of wondering.
March 30th
2008
3:05 PM
I have been on Singulair for nine years and I thank Merck for discovering and manufacturing it. I also thank my doctor for prescribing it to me. I have my life back! I had asthma so bad I was on high dose inhaled steroids and Albuterol. I had a nebulizer on my kitchen table and a drawer full of Albuterol in my refrigerator. Like clock work I would wake up wheezing and gasping for air and have to administer myself a treatment at 4 am every morning. I would try to exercise and I would wheeze and cough. I then went on Singulair and my nebulizer has been in the basement for at least 9 years, I have the drawer back in my refrigerator too. I exercise now and even ran my first race last summer without needing an inhaler. Thank God for Singulair. I am not going to die from my asthma.
There are so few choices to treat asthma and allergies and all the medications have problems like an FDA black box warning for increased death on Salmeterol(I stopped taking that) which is in Advair and emotional disturbances with steroids and increased suicide risk with Zyrtec which is now over the counter.
I do feel sorry for Cody's parents. It must be tragic to lose a child. My heart does go out to them. However looking rationally at this story, there seems to be a whole side missing. The news story did not mention anything about Cody's past history on the news. Did he ever have signs of depression? Was there an interview with his doctor? Was he having problems with friends at school? Was he into any drugs or adolescent games? Teenage boys also have the highest rate of suicide, medicines aside.
With all due respect, I never saw any of Cody’s friends or teachers be interviewed. Maybe this did happen and I missed this but I watched the news cast videos. Could there be more to this story that is purposefully being edited out or just not asked?
I never believe the media fully. They are very irresponsible and inaccurate at times.
If you read the product information of any drug including aspirin you would never want to take it. The truth is that many times the benefits of drugs out weigh the risks. I know I will keep taking my Singulair because I do not want to die of asthma sucking on inhalers like my mother did.
March 30th
2008
12:13 PM
Hi I'm 20 years old and i've been on Singulair for at least 6 years (seems like forever) since i was about 14/15 (around the time i started Singulair!!!!) i have been developing severe anxiety. social anxiety, and just random panic attacks. for the past 1 1/2 years i have had at least 1 panic attack a day. Most of my days i am in a complete fog and cannot focus on anything, and seeing that i have a one year old to take care of this is NOT good. i just stopped taking the Singulair completely the day i heard the news about its negative side effects- so now I'm clutching to my inhaler all day just in case until i can get to my PCM to get a safer medication!
i am really shocked to hear this news about Singulair, i never would have considered that this could be causing my daily anxiety. It could be completely unrelated but i really hope this is at least a large portion of my issue since no medication other than tranquilizers have ever helped me.
-- By crystal2756 | Reply | Private Message me
March 29th
2008
3:27 PM
A couple of years ago I tried Singulair due to problems with oral yeast infections from my inhaler. I'm a athletic, health conscious 46 year old woman with a high-burn hypoglycemic metabolism, and often have unusual and extreme reactions to food and medications. I hallucinate on Diet Coke, for example. I waited until the weekend to try Singulair just in case I reacted, and it was a good thing I did. I slept about 10 hours in three days, and when I could sleep I had bizarre dreams. I felt like an ADHD woman having a manic episode! My boyfriend noticed behavioral changes right away, and fortunately he did all the driving that weekend! I stopped the drug on Sunday, and was barely able to sit up at work by Monday afternoon. The next weekend I broke the pills into quarters, but had the same problems even with only a fourth of the dose. Once all the drug was out of my system, which didn't take long, I was fine. I went back to my Claritin and Pulmacort Turbuhaler, and I've been fine ever since. I'm both surprised and not to find Singulair causes similar reactions in others. I thought it was just my strange metabolism, but apparently not. This is a sad, cold comfort way to find out I'm not as freakish as I thought. My condolences and best wishes to everyone dealing with children and family members on this drug and/or going through withdrawal.
P.S. I never drink soft drinks anymore, or eat or drink anything with artificial sweeteners, either.
March 29th
2008
9:24 AM
Wow. It is like I am reading about my son in every one of these entries. The emotional issues - just crying at the drop of a hat, being scared of the smallest issues and being very clingy. We always just figured he was a sensitive kid My son has been on Singular since he was 4-1/2 (he is now 8). I have always insisted it was a miracle drug. He could finally go outside and play and not be bothered by his allergies. So, he needs to be on something similar to this drug for that. Any suggestions? We saw the news report Thursday night and immediately called the allergist on Friday. We are seeing them on Tuesday.
-- By molly4968 | Reply | (1) replies | Private Message me
March 28th
2008
11:57 PM
READ THIS:
I'm posting this again for the sanity of the concerned parents on this board to let you know you're not alone:
My 5 year old son was diagnosed with mild asthma and put on Singulair. Within a few months he began having uncontrollable fits of rage, displayed self-loathing behavior, had night terrors, and was inconsolable during these episodes. He became very destructive and was a danger to himself and our family. He even talked about killing himself and would say things like "I don''t want to be in this life anymore" and "I want to kill myself". He would threaten my wife and his siblings and told them he wanted to kill them. It was a truly terrifying experience. Our pediatrician was clueless to these side affects and recommended we have our child go through a psychological evaluation. I knew this was not my child''s normal behavior so I searched the internet for Singulair side affects and found some message boards where parents just like myself were telling their stories of their children''s aggressive behavior. I immediately took my son off the drug and within a couple days he was back to his normal self. He told us that he no longer has "that feeling inside of him". Five year old children don''t even know what suicide is and to see my son talk like this was extremely frightening. He is a sweet, intelligent, loving boy who had never exhibited behavior like this until he went on Singulair. We have not seen this behavior after taking him off the drug.
-- By matthewct1 | Reply | (6) replies | Private Message me
March 28th
2008
5:40 PM
My daughter is 12 years old and was diagnosed late last year with exercise and/or stress induced asthma. She had a severe asthma attack at school. I was hesitant about taking her to the ped, as she had never had an attack before. She has always had allergy problems, I guess it is typical to where we live. The pediatrician put her on singulair and she uses a rescue inhaler, ProAir. The doc gave me a months worth of sample tabs to give to her to see if it would improve her wheezing and coughing. IT WORKED! The tabs they gave me were 10mgs. Because it was all new to us, sometimes we missed a dose or two, but her symptoms improved, but she also experienced headaches, nausea, complained of her mouth hurting, especially in the mornings and she couldn't sleep (these symptoms we noticed after seven days of being on the meds). I read the pamphlet for side affects and these were typical side affects, not to be alarmed right? By the time we made it through the all the tabs she started with some behaviors you might expect to be normal for pre-teens and some that were alarming. Most parents know their children very well, especially behaviors. My pre-treen was a very loving and agreeable child and never had outbursts of anger that was uncalled for. To make a long story short, I didn't fill the prescription because of the above stated behaviors. Within about eight days, my child was back, but so was the wheezing and the coughing and the picking her up from school three times a week because of her asthma, so back to the doctor we went again. They wrote the prescription for singulair 10mgs and I got it filled. A very interesting thing happened when I went and filled the prescription. The pharmacist told me that the doctor was prescribing too high of a dose for my child, that the 10mg dose is usually given to adults and not children. So I cut the tabs in half and started her back on the meds. She has been on them for almost three weeks now and it has of course helped the wheezing and the coughing but we are back to not sleeping, angry outbursts (probably from not sleeping) and not wanting to go anywhere or do anything with her family or friends. When I saw the news about singulair it really scared me, because I love my child and I don't want anything bad to happen to her. I called the doctors office, our doctor was out, the nurse said for me to not give her the meds for the rest of weekend until I can talk to her doctor on Monday. I will update you all of what our pediatrician has to say.
-- By mystmagic99 | Reply | Private Message me
March 28th
2008
4:45 PM
I had my asthma under control, avoiding anything that would cause problems, not medicines etc... until recently I had a bronchial spasm from a traumatic experience. After an ER visit I now have an inhaler and was prescribed Singulair. For someone who knows their body who has never really taking nothing, now I was taking Singulair. Singulair singled out my life and gave me a horrible life. I thought I was going to die because I felt like it. I thought I could be coming down with the flu or something. It made me feel very down and out leaving a yucky feeling. The normal activities I once enjoyed doing, that joy was gone. Insomnia set in after taking this medicine for the past 8 weeks now. As of yesterday after hearing reports of the disturbing side effects, I'm off of Singulair. I will have to resort to something else, because I want my life back.
-- By piky | Reply | Private Message me
March 28th
2008
3:17 PM
I am a 30 year old female and have had asthma since I was 3 years old. For years I struggled with it, having to always have an inhaler on hand everywhere I went. About 4 years ago by the prescription of my pulmonary doctor I started taking singulair and advair once a day (before bed) The one thing that I have noticed that concerns me a bit, is that when I miss even one day of the medication (due to my forgetfulness in refilling) my asthma will be worse then before I even started the medication. So it's like I'm dependently addicted to it, which is really scary. Just one day off of it and I have to use my albuterol inhaler at least 5 times a day and I can't even get out of bed sometimes.
The other thing that I noticed was my complexion changed. I have been to several dermatologists who either think I have a mild rosacea, mild acne rosacea or a mild adult acne. I have never had a problem with my skin, it was always clear. However now it is just so tempermental. I recently asked an internal medicine doctor who doesn't seem to feel that there is any link between singulair and skin problems but thought that perhaps it was the advair.
I also have experienced strange mood shifts that sort of go back to the time I started the medication. I fight a lot more with my husband and just feel very anxious, fearfull, reclusive, depressed. I feel like another poster, that everything is going to go wrong, or is always wrong. I'll have extreme anxiety about small everyday things. I am an actress living in LA. I have a commercial agent and was quite active in auditioning but this has dwindled as the years have passed.
Is all this due to the medication? I cannot say obviously, and like another poster said, you can't attribute side effects that some people have had to all the millions of people that must take this medication.And, it is true that during studies conducted of medications anything that someone experiences has to be listed as a side effect. I was taking a medication for my possible ADD symptoms, concerta, and one of the side effects is "Accidental Injury" what does that even mean! I asked my doctor about it and he told me, that if someone so much as accidentally bumped into a table or tripped during the study it would have to be listed as possibly being associated with the medication.It's a legal thing I'm sure.
But in any event who's to say that it isn't causing these symptoms. I certainly hope that it doesn't. I can only vouch for my physical symptoms for sure. I know whether or not I can breath or not and that it's due to not taking the medication since being on it is like I don't even have asthma. But as for the emotional stuff, they are just that emotional and there are many other things in peoples lives that could be contributing factors. The greatest test would be to stop taking the medication to see if the emotional symptoms improve.
-- By elk | Reply | (1) replies | Private Message me
March 28th
2008
7:45 AM
My daughter who is 8 has been taking singulair for about 3 years. Her behavior has changed so much and the doctors said it was normal kid things......
She went from a sweet child to one who seems to have these horrible mood swings which cause her to lash out and say mean things, nobody loves her, she wants to run away, she hates me. She gets so angry and slams doors and acts like a child having a tantrum. She has had stomach problems which we went to doctors/specialists for a year......stomach aches at night/sometimes 24 hours a day. She has nightmares and wants me to sleep with her. She does not want to open her curtains because she thinks monsters will come in the windows. She has bad OCD related to germs. She now wants me to go with her when she plays at a neighbors house, she seems to want to know I am close by.
She is very independent and to start this clingy behavior this past year is not normal.
A relative is a doctor and thought my daughter has a touch of ADH but she is honor roll and very well behaved in school so maybe my relative is noticing anxiety in her. I need to call the doctor today and take her off this. I don't know if there is another medication to put her on or if she should be on it. She takes qvar and abuterol inhaler along with claritin D.
I just feel sick reading all these horror stories. I was being told her behavior is normal tantrums to get our attention. Now I know none of this is true.
March 5th
2008
11:03 AM
I have asthma as well as my son and daughter. We all take Singulair and I thank God for this medication that allows us to live a normal life. I grew up with asthma and since this kind of medicine was not available, know how it feels to be a kid and not able to keep up. I felt like I was out of shape and blamed myself. Not until I started taking Singulair did I realize what it was like to take a full breath and it literally gave me back part of my life. My children are athletic and love to compete. Before Singulair, my daughter was taken to the emergency room by ambulance because of asthma, even with her inhaler. Since she started Singulair, she can play an entire game and now even playing at college level. We have not experienced one side effect, only blessings!!!
-- By jenw | Reply | Private Message me
February 4th
2008
9:42 PM
My daughter is 2 months shy of her 8th birthday. She has always been a very tiny girl compared to her entire class. She has had chronic asthma since she was an infant. Honestly, I thought we would not see her 4th birthday due to her asthma. Singulair causes many of these reported side effects as Hailey has experienced many.
However, due to the fact that she can't breath without it I tried to self medicate her by lowering her dose. Since she is smaller than most we tried cutting the 4mg tablets in half and started her off at one half every other day in the morning with breakfast. Then as she got used to it slowly ....we started to increase her dose. Now at almost 8 years old she weighs 45 lbs. and is 3 foot 8 inches tall, still the shortest in her second grade class. We now give her 1/2 of a 5mg chewable every morning and she does great with little to no side effects and the best part is her asthma is manageable. Hailey does complain sometimes of side effects (headaches, stomach aches, arms tingling) but without the Singulair she needs her treatments 2 times per day along with her inhaler and suffers to just make it through the day.
She still needs treatments if she is exposed to allergens like cats, dogs, outdoor pollens, to many milk products in one day, etc. Sometimes I take her off the Singulair for a day or two just to give her body a break. I sympathize with many parents but never got my asthma doctor to bring up the idea to lower her dose. My regular pediatrician said it couldn't hurt when I suggested we lower her dose, and it worked for our daughter!
-- By elizabethnorthcutt | Reply | Private Message me
January 3th
2008
2:03 PM
Firstly I want to mention that I am a simple Turkish guy whose English is not that good; so, sorry for any incorrect or "hard-to-understand" sentences...
I am 20 yard old male who has mild asthma from my 3-4 years old ages...
But since 1.5-2 years, i changed my doctor , a professor, who gave me Singulair...For the first months, it was extremely wonderful...that with this thing taking one pill before sleep everyday, I was just so wonderful and healthy that I even forgot that I had asthma really...
I hardly used Ventolin inhaler once in 1-2 months...
then I wanted to give it up thinking "maybe i got better and my asthma no longer exist as it happens when they age older, so why bother taking more drugs if I have no asthma at all.."
and I tried 3-4 times..to give up Singulair...
however after the 2nd day I have been really bad at breathing every time I tried that...like i needed to 4-5 time of inhaler as i have never needed before...
has anyone experienced this before?..like you are better when you use Singulair, but when you try to give it up, you are much worser then ever before about asthma...?
..and actually the main things is, started after that...like I thought it might be written at prospectus...I looked at the side effects part..(how funny that some pill that I use everyday , that I look at its side effects for the first time!)..
then sooo interestingly, I realized that almost all those psycho logic effects appeared on me...disorder at sleeping, bad and ABNORMAL dreams, restlessness...(but not hallucination or such extremely serious things...)
..and I just can't explain if it's really "there" and if it's caused by that Singulair but...its just always "there"....since I started using Singulair..I just have very weird and unwanted dreams, and especially I REMEMBER them all (which I would almost never remember my dreams before..) ...I am just a bit restless...because of that sleep thing of course...
I don't know, I can't explain exactly...and I am not sure if I am only having this as the psychological effect of reading all these comments here and also at the prospectus of the Singulair...but I am sure that something is wrong about it...and seriously thinking of giving it up no matter what...
January 3th
2009
11:28 AM
I wrote a post few days ago about Singulair and how great my daughter is doing since she started to take this medication three months ago.
Then I started reading about all the side effects that other children had because of Singulair. I GOT SO SCARED!
So scared that last night I stopped giving Singulair to my daughter.
From January to September my daughter had asthma every other week. She was put on steroids (prednisolone) every time she couldn't breath. Then in September the pulmonologist said we have to take control of the situation because so much steroids can damage a little body.
She made me feel I had been a terrible mothers since I always refused to give her singulair.
She convinced me and then I started Singulair, but now I feel worst because I have the feeling I am giving poison to my daughter even if her asthma is under control.
My 7 years old stopped Singulair 12 hours ago, I do not know what is going to happen now. Of course I cannot call the pulmonologist anymore in case my ds gets bad.
Somebody here said that she is giving her son Nordic Naturals Fish Oil, Culturelle probiotics, vitamin c, and changing his diet - increased magnesium and decreased dairy.I will love to have more information about this alternative way of controlling asthma. I do not remember who wrote this post. If there is a web site of a doctor I can contact i will do right away. I live in New York.
I need help. Thank you so much.
-- By annany | Reply | (1) replies | Private Message me