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Singulair and 3 years

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100 Side Effects posted for Singulair

January 7th
2009
5:06 AM

My son is 12 and has been taking Singulair for the last ten months...he has been getting moody and upset for no good reason over the last 3 months and I put it down to "hormones" starting to kick in. He has now gone to feeling very sad and has even told me last night that he has thought about killing himself several times and feels he can't go on, or cope and feels lost and lonely or unwanted and in the way. He is confused and does not understand what is happening to him. I have just realized it may be the Singulair and will be taking him off it immediately. I'm hoping it is this as if it isn't I feel totally helpless as to how to help my child. Please say a prayer for him. He used to be happy go lucky.

-- By cusack7 | Reply | (3) replies | Private Message me

January 2th
2009
10:11 AM

I would like to know who is NOT experiencing side effects from Singulair.
We are not.
My 7 years old started Singulair three months ago because of allergy issues. She had asthma attack every other week, running nose all the time, she was so miserable, she missed many days of school and she couldn't exercise .Since she started to take SIngulair her allergy improved, no more asthma, no more running nose. SIngulair did not change her way to be. She is doing very good in school (she is above the average..) she does piano, ice skating, she is purple belt Tae Know Doe, speak two languages, she is doing great in everything. Of course she has her "bad moments" but which child does not?
I tried homeopathy, but it did not work, she got worst and worst. I was supposed to give SIngulair to my daughter a year ago, I did not because I was afraid of the side effects. But I wished I had started before because I could have avoid so much steroids since she had asthma most of the time. The doctor convinced me to use this medicine when she said " You think SIngulair has side effects, yes sometime it does, but do you know the danger of using steroids so frequently in a little body?" Then I thought I had to give a try. I am glad I did. Of course I keep watching my daughter behavior closely and reading all the possible side effects of this medication. I forgot to say that beside singulair my daughter is also taking Pulmicort, two puffs once a day.

-- By annany | Reply | (6) replies | Private Message me

December 22th
2008
8:31 AM

My 7 year old son has been on Singulair since this spring for a dry hacking cough and allergies. The Singulair worked great clearing up his symptoms. We have not seen any behavioral changes. Our doctor said he only needs to take it during fall and spring when his allergy induced asthma is the worst. Both times that I have taken him off of it for a seasonal reprieve he has developed a VERY PAINFUL STOMACH ACHE. He doesn't vomit, but he rolls around complaining that his tummy hurts. I have seen other posts concerning stomach aches when on the medication, but I am wondering if anyone else has had this experience when they went off of it. Even if he forgot his medication a couple of days, the stomach ache will present.

-- By queenbee4 | Reply | (1) replies | Private Message me

December 16th
2008
10:02 PM

We have a 5 year old daughter who has been on singulair for about 2 - 3 years. She went on singulair due to coughing asthma. We were soo happy about how well the medication worked, it took about three months, but wow, she finally got over her coughing and was living a more active life. I actually was soo impressed with it, I remember mentioning it and promoting it to some of our daughters friends' parents with children in similar situations....wow do I ever feel awful. Anyway, our daughter came down with a terrible flu a few weeks ago and although she didn't seem feverish, had not one, but 2 night terrors, something that we have been worried about and comforting her with for a couple of years. These 2 threw the 2 of us over the edge this time....we thought we had to get her to a psychologist.....she was terrified, and although we were holding her and comforting her, she was still screaming for us, and there was NOTHING we could do this time....we were doubting ourselves and the environments she was exposed to......what could have happened in her life to make her have such awful dreams??? It was about a 1/2 hour later when my husband asked about the possible side effects of the singulair.....I ran and grabbed the pamphlet, of course this is the first time that I actually sat down and read it, which I should have done some time ago....anyway it was then that I discovered how many issues weren't normal that everyone just kept ensuring us was fine. We had been questioning ADHD for some time, and had actually had it on our list to discuss with her teacher as she was sooo hyper on a regular basis...at the age of 5 she still couldn't sit through a movie at a movie theater, as much as she loved going, she couldn't sit through it....anyway, the only thing that made it difficult to think she could have ADHD was she was such a great learner. She was very eager to learn and loved learning and teaching things. But when giving her instructions or asking her to listen, she'd be so jumpy. She complained of severe leg pains which we chalked up to growing pains...poor thing! Her temper tantrums were out of this world.....she is a child that is soo full of love, but when she was in tantrum mode, she was soo destructive and she would feel soooooo awful for her actions, it was like she couldn't control herself. We just feel awful that we couldn't help her and we didn't realize that what she was experiencing was not so much disobedience, but an imbalance due to the medication. We have since taken her off the singulair, we took her off of it immediately following reading the pamphlet. We found that she was VERY emotional for about 3 days, then she pretty well recovered. She has since become a normally active 5 year old, she is soo good, and has not experienced any night terrors, complained of leg pains, and absolutely no tantrums. Oooh how we love her so much.

-- By tbmom | Reply | (3) replies | Private Message me

December 12th
2008
8:27 AM

My 8 year old daughter was on singular for 3 years and she was very active and a little hyper, after taking her off of singular now for almost 8 months she has incurred a tic, I have brought her to a neurologist and he says no its not from the medication or a side effect from it but I really think it is, she has a few vocal and 1 involuntary movement, this is so terrible that these medications that you think help your children are really hurting them, my daughter was on asthma medications since she was 3, and then the neurologist suggests that I put her on an anxiety medication I told him NO, you are not going to make my child stoned I will find other ways to help her with this problem because what I have read is there is no medication that clears tics, they go away on there own and I believe this I will not drug my daughter she has been through enough with all this medication that has caused this. So I do believe SINGULAR and a few others are responsible for our childrens behaviors.

-- By egonnella | Reply | (1) replies | Private Message me

December 9th
2008
8:52 AM

I have an 8y.o. daughter that has been on Singulair for about 3 years now. Since she started taking singulair she has been absolutely miserable! She cries at everything, is very moody, has leg pains, wont leave my side and is tired ALL the time. She has circle under her eyes, she looks like she hasn't slept a wink in days! She has been off her Singulair for about 5 days now and she is a totally different person. She has been "happy-go-lucky" and full of herself, she has even woke up happy (which hasn't happened in I dont know how long). She was put on Singulair by our Doctor b/c she had Pnemonia two times in a row. She has Allergies and Asthma and for the past 3 years has been on: Singulair (4mg), albuterol, flovent, Zyrtec, and Flonase. That is just too much for a little girl to be on. She hardly eats at all, gets headaches. I just see such a difference when she is not on it but, what will she take in place of this? My husband also takes Singulair (he is miserable all the time), he doesnt sleep at night and is always tired. Anyone have alternative to this drug?

-- By chevpa1 | Reply | (4) replies | Private Message me

December 4th
2008
7:00 PM

It seems that this subject has been extensively documented, but just wanted to confirm that I believe this drug is very dangerous. We JUST put our 5-1/2 year old daughter on it one week ago. She has NEVER had any issues sleeping, is most often in a great mood, and has been protected beyond belief by my wife from negative imagery, TV, etc. The last week was unbelievable. Night terrors every night, with the most vivid and negative imagery when asked to describe the content of her dreams. Things that I would have thought she must have gotten from watching a Stephen King movie. Given the lack of fitful sleep could have been a contribute, but her mood all week was very downtrodden. Hard to say a 5 year old can be depressed, but I would have to say she was, very sullen, moody, despondent to affection.

I can positively say this was a blind test. We didn't really read the label on the medicine until yesterday, so we were not looking into things that weren't there, nor were we focusing in on the sleep issues. We took her off yesterday, and hopefully I will be able to report that the night terrors that I am 95% positive must have come from this drug will abate.

I hear because the chewable format is new, this drug is really being pushed. I hope this drug is pulled instead of being promoted. Buyer beware, especially administering to kids. I can't imagine if our daughter had been a little younger and not able to express herself to the level she can at 5.

-- By concerned_parent2008 | Reply | (3) replies | Private Message me

December 4th
2008
4:42 PM

My 3 year old is on 5mg of singular daily for her constant allergy issues and has had NO trouble at all with it. Her personality has not changed.. she's happy, outgoing, friendly and MUCH better than she was before she started the medication. Prior to starting she was constantly dripping from her nose, she had both ears filled with fluid, had bags under her eyes and was tired and grumpy all the time, due to allergies we could not get under control with other over the counter or prescription meds. Since being on Singulair she's been 100% better than she was. I'm sad to hear that others are having so much trouble with it, but I can say that I am happy my little girl is feeling better.

-- By joshnabbey | Reply | (8) replies | Private Message me

December 4th
2008
12:48 PM

I am shocked and outraged at the "NEW" list of side effects that were attached to my newly refilled Singulair prescription. I am an adult and have been taking this medication for 3 years. I also know that I have not been happy in three years and every day I feel more and more hopeless and withdrawn. I have little interest in leaving my house, being with other people or anything else. Everything in life seems like an overwhelming task for me. I am filled with ideas about how to 'get away-far away'. I am a decent person, a wife and a mother of 3, but lately I would have done anything to be able to get a divorce and run. I have hated myself for these thoughts, which makes it all worse. I'm always reminding myself that these are people that I'm supposed to love! I ran out of my Singulair right before Thanksgiving and kept putting off refilling it, quite frankly, because I just didn't have the 'energy' to go to the store and pick it up. I did pick it up 2 days ago and that's when I noticed the new labels all over the bottle and was shocked when I read the description of the side effects. It was if they had been written about me. I have not taken any more of it and have now been off for more than a week and I feel like a human being again.

-- By laura_5 | Reply | (1) replies | Private Message me

December 4th
2008
1:57 AM

Im 15 and I never knew that singulair had the side effects that included mental/mood change or worsening depression, etc. Although I did find it strange that I always seemed moody or bi-polar, it never occurred to me that it would be caused by singulair. I've been taking it for about 3 years and before I went from 5mg to 10mg i use to have difficulty sleeping, but just last October when I started taking the 10mg i noticed an even greater change in my moods and mental thoughts, i was always sad, doubtful, mad, and was always thinking of all the negative things in life, in fact I even went through a really deep anxiety stage around the end of October, it was a mixture of the medication and stress i'm guessing, but I couldn't stop crying, I'd cry then forget the reason, start crying again, and wonder what i was crying about or why i was crying for such a thing that lasted for about an hour... Then when I ran out, i sort of just put the thought aside to refill them for the whole month of November and noticed i began to feel more... up-beat, very happy, I cant remember the last time I felt so great for such a long period of time, at least not during my pre-teen through teen years so far. All my friends noticed too, normally i would be complaining about how the day is going so bad, but i can't compare November to any other month during the past almost 3 years, although my asthma symptoms came back. So I started taking them again this Monday, and right away that night when I was doing homework, i was studying about tabacco all these thoughts rushed through my head, I felt bad for the people i loved that smoke, and I started crying, almost blaming myself for their smoking, when i stopped crying i started wondering why i cried... it made no sense, normally i'd just be like, "oh man... why do they waste their time doing that.." and forget about it, but the tired, sad, doubtful feelings came back right away. these past few days I've felt like that, and today before i was about to take my pill i looked at some new information that was never included before about the mental/mood changes, worsening feelings of sadness etc... and it all just hit me like a ball going 90mph.

-- By kisshu | Reply | (1) replies | Private Message me

November 23th
2008
2:29 PM

My ADOPTED son almost 6 and was already on Singulair when he came to live with us at age 20mos.
After finding this site just over 2 weeks ago, I took him off on this stuff. Well, after about a week, things were so good that it was scary. His behavior improved so much, that everyone said he doesn't act like Jacob. I said, yes he does, we just didn't know him before going on this med.
He is currently going thru ADHD evaluation and I advised the therapist that I took him off this drug and he was like a new child. Her comment was "did we cure him"? Well, after her one on one with him, she commented, I don't know whats wrong, but he is extremely HYPER and then all hell broke loose on the way home. But, he has been fine since.
I am praying that I don't have to medicate him for ADHD, I am just not ready for that and have been fighting it for a while and then after reading all the side effects on this site, it described my child to a tee. He is in Kindergarten and is doing great academically and the therapist was a bit surprised by that with how hyer he is.
Please tell me with how long my son has been on this drug, that it's going take more than a couple of weeks. He is not near as hyper to us as he was before. Maybe he just got excited about all the toys in her office. He can also be very defiant, that is whole other issue we are dealing with. He does way better for his Dad than Me, so now if he doesn't want to listen to me, he Dad intervenes. I am hoping he will get it, that he can't be disrespectful to his Mom or he will have his Dad to deal with.
Thanks for listening and please pray that his behavior will continue to improve over the next few weeks with the absence of Singulair.

-- By ranbel | Reply | (3) replies | Private Message me

October 31th
2008
7:00 AM

I have been making inquires as to how and if the fda will conduct investigations in to permanent damage left from this drug.Although on taking my son off this drug i saw a 90% improvement,i am still missing the final piece,is it that he lost 3 years to this drug or did it do damage that cannot be fixed,we as parents need to know.The FDA responded to my letter,they said if they see a trend in reports from medwatch,it may prompt an investigation .I am asking all who still have missing pieces to file a report.What has happened is a tragedy,we need to explore ever option for continued success for our childrens future.Good Luck to all,Keep Fighting

-- By flindy | Reply | (3) replies | Private Message me

October 17th
2008
10:24 PM

Wow! I can't believe what I'm reading. My son just turned 5 years old. He was put on Singular when he was 2 years old because he constantly had sinus infections. For the past year, I've just used it off and on when he starts to get stuffy. He is very well behaved, but has has trouble with nightmares. He just told me a few weeks ago that he knows that monsters aren't real, but he can't get them out of his head. I know people think I'm a softie because I let him fall asleep with me every night (his dad puts him in his own bed after he's fast asleep), but he is petrified to go to sleep by himself. I didn't understand it, but I could see the terror in his eyes. It all makes sense, now. Sometimes he plays so well by himself in his room, but other times he doesn't even want to go to the bathroom by himself because he's scared. I'm betting he was taking Singulair during the times he was scared to go into the bathroom himself. Unbelievable. We have to get the word out about this drug. I feel like such a horrible parent for not searching for these side effects sooner.

I came to the website to see if Singular suppressed the immune system because he's been getting horrible cold sores in the fall for the past 3 years. It seems to correspond with the time he started taking Singular. I know that Singulair can't cause cold sores, but if his immune system was suppressed, his body can't fight off the virus. 80% of us have the virus that causes cold sores, but most of our immune systems are able to keep the virus in check. During a cold or other illness which compromises the immune system, cold sores can pop out.

In any case, I've already flushed the remainder of his pills. He's also complained of stomach and leg aches. In fact, the docs made him give-up milk thinking he was lactose intolerant but it didn't help the stomach aches. Hopefully giving-up Singulair will help his tummy aches, too.

-- By shawnatubbs | Reply | (2) replies | Private Message me

September 29th
2008
12:04 AM

I am a loving mother of a 5 1/2 year old boy. He has been on Singulair for over 3 years. In this past 3 years my son has suffered in an unspeakable amount. He came down with Rota Virus and was hospitalized at 2. He then came in contact with Pneumonia in the hospital while he was there. They automatically put him on Singulair, Zyrtec, Prednisone, and antibiotics to treat the pneumonia. Since that day, my son has gone though more tests than I have in my entire life. He has had asthma, sinusitis, leg cramping ( to the point he cannot walk for 2 years), IBS, Acid reflux,(they gave him laxatives for a year that made things worse and addicted to them also), stomach pain, constipation and diarrhea back and forth. He also got Erythema Mulitforme TWICE, while on this drug. All of which the doctors said could NOT be caused by Singulair. He has had several Upper GI's and CT scans. Along with Barium enemas, several hundreds of blood tests, and many many pokes and prodded that were not necessary. All since he has been on Singulair. He now has frequent bathroom trips, depression, confusion, and anger outbursts. He also has to go to the restroom every 5 minutes. He has had genital swelling, and many other aches and pains. None of which his "doctor" ever said could be a result of Singulair. I am 100% sure it was!!!! He currently has anxiety and emotional sporadic issues causing problems in school The teachers and counselors say that it is so strange because there is no TRIGGER and the outbursts are completely inconsistent. His preschool teacher and director are sure he has ADHD. Well, we had him tested and he does not have any part of it. He has no learning disability what-so-ever. So that brought me back to square one. He is in a positive loving enviroment. How could he be depressed and want to hurt everyone around him? He cannot sit still. He cries and says he is 'stupid" and "can't think" like the other boys. He has nightmares and cannot sleep alone. He is scared of everyone and everything. So, as I sit here crying, I realized that this has all been a reaction of his "medicine" Singulair. He never should have gone through all of those painful tests, only to prove they couldn't find anything. So many treatments and sound full advice speeches from his doctors. How could they be so naive and selfish in the life of my son?

When I called my pediatrician of 5 years, she told me that " parents that have children with behavioral problems will LOOK for something to blame their problems on." She also said "drug companies only put side effects on their labels to PROTECT the drug companies. (as she laughed at me) They are not always valid". Then she said "if you take you child off of Singulair you will be playing Russian Roulette in his life." Then she said that all children around 5 or 6 go though this emotional time in their lives." She told me that if I take my child off of Singulair that she would no longer be a part of his health regimen for his asthma. She told me to see a Pulmonologist for further treatment.
Who is paying who? This is my son's life???????? I decided to go with my mother-gut instinct and get him off of this medicine. No matter what. He has been a different person since. He is currently going though a lot of side effects and withdrawals (leg pain, insomnia, hic-ups, emotional distress) but every day is getting better. How can the drug companies say that this is a "wonder drug?" There are more reported side effected patients then clinical studied patients! How can a "medication" that stimulates the brain not be connected to other problems? This "medication" interferes with the bio synthesis and action of LTs and has been marketed as NOVEL medication against asthma and allergic rhinitis. Who the hell is playing God here??? The pocket books of Merck or our over PAID "doctors?" Who pays the price? Our children? Or us. Thank god I found this before it was too late. I would not be able to withstand the pain of losing my son due to their lack of scientific evidence. They are lucky I am one of the smart ones. I will not settle for less than Justice for the drug companies and their paid "doctors?" You all end up in the same place. HELL

There are 18 million people on this drug. Most of them are children. Please save a life if not your own child's life. Thank You

-- By daisydookes | Reply | (14) replies | Private Message me

September 26th
2008
9:55 PM

POLL: If you or your child have been adversely affected by Singulair could you please reply to this and let me know what ethnicity you are and skin tone. (fair, med., dark, etc.) I'm interested in the demographics of this drugs effects.
Thank you!

-- By matthewct1 | Reply | (13) replies | Private Message me

September 21th
2008
10:36 AM

Just took my 6 year old off Singulair after he began blinking incessantly... very frightening. After a couple of weeks on Singulair, I received a note home from his teacher that he was blinking all day at school. Sure enough, when he got home the blinking continued... non-stop for several days! Fortunately, I was able to find information relating this behavior to Singulair. After a few days off the medication, the blinking stopped and has not returned.

-- By gbenne | Reply | (3) replies | Private Message me

September 18th
2008
8:11 PM

While I am sure that Singulair has adverse effects for some children/teenagers/adults, I took Singulair for 2-3 years (until my asthma symptoms improved to the point where I didn't need to take it) while I was a kid and had no adverse side effects. Started back on Singulair in April after having severe reactions to my new puppy (I am now 21). Since then, I really haven't had any side effects at all. I agree that they should black box Singulair and possibly not prescribe it to some children/teens, but for some people (like myself), it works, and shouldn't be taken off the market completely.

-- By jesusfreak101 | Reply | (2) replies | Private Message me

September 8th
2008
9:25 AM

I am happy I found this website to express my concerns about singulair. My husband and I are still shellshocked about how singulair turned our lives upside down. My son was on singulair for 5 years. During that time he had extreme anxiety, nightmares, stomach aches, suicidal thoughts and tendencies, difficulty in school, aggressive behavior. We were at our wits end when we sought therapy at an anxiety clinic a year ago. He never went on any antidepressants or anti anxiety pills, just behavioral therapy. He went to therapy for approximately 5 months once a week. At the time he started therapy, I happened to switch doctors for his asthma due to an asthma flare up. He went to a pulmonology specialist at CHOP. He was taken off of singulair and put on other inhaler medications. Slowly, we began to see improvement in his behavior. I was holding my breath, thinking I was imagining his improvements and hoping his symptoms would not return. My son is now 9 years old and has been off singulair for one year. His horrific symptoms are gone and he no longer needs therapy. He is a happy, active nine year old. He had a successful year in second grade last year. I never realized it could have been singulair that caused his symptoms until I heard it on the news. His symptoms were always related to "behavioral problems". It was such a heart wrenching, frustrating experience because we could not figure out why he was behaving this way. My heart goes out to all the families who have experienced devastating symptoms. I contacted merck and the FDA. I want to contact my state representative. I am looking forward to seeing the results of the FDA study. I am curious how they are obtaining their data because I was never questioned about the details of my experience.

-- By theresealbert2 | Reply | (1) replies | Private Message me

September 3th
2008
5:05 PM

Everyone please go to the American Lung Association home page to read the article on their "research study" into the association between montelukast and depression/suicide and write to: ****** with your experiences. I wrote a letter with my son's negative experience, stating why I thought their study was flawed - they only studied 569 children and adults (I think there are more posts of negative reactions in children on this site alone) and urging them to do a more exaustive and statistically singificant study before releasing the results. This drug is unsafe and we need to take action to get it identified as such by the medical community.

-- By zsmom | Reply | (2) replies | Private Message me

September 3th
2008
11:55 AM

I just read the article in question ,i am not sure what on earth they think mood changes and anxiety is,but i am not surprised as the doctors do not believe us,this has been a complete uphill battle,what would prove it to them,children have died, been poisoned tortured and imprisoned in there minds,and yet they say there is no evidence,the evidence is clear when your child improves when not taking this drug,what do they need.They agree this can happen in rats,but turn a blind eye to children.This article and findings of these so called specialists makes me want to vomit.The researchers should have to take the drug for 3 years and then tell us how they feel

-- By flindy | Reply | Private Message me

August 29th
2008
7:53 PM

Has anyone experienced difficulty swallowing solid foods? My son has been on it for 2-3 years and this issue has just developed. Not sure if it has to do with the Singulair or not. He's had an Upper GI and no physical problems show up. He is 11 years old and the allergist says the mood swings are due to his age, not the medicine. He has been really down and cries at the strangest things.

-- By clouds | Reply | (3) replies | Private Message me

August 23th
2008
8:57 PM

I have been reading all of these posts and have another question. I hope that someone can help. My daughter, 8 years old, has been on Singulair since she was 4. She is normally a very happy girl with a wonderful disposition. For the last year or so, she has been having trouble getting herself to sleep at night. She says that she hears things in her head such as ringing or "noises". A few hours before she knows it's bedtime, she cries and when we ask her why she's crying, she can't give us a reason. We initially thought that she was crying for no reason because she didn't want to go to sleep. I remember reading about the side effects of Singulair causing mood swings, etc., but her's are not violent mood swings. Just very emotional and has a hard time coming down from the "episode". I'm at a loss...I have not talked to her doctor yet about it, but have told her that we will make an appointment this week to discuss it with him. My husband suggested that maybe it sounded like she was having a panic attack or anxiety attack. I hate to label her as that at such a young age. My mind now goes back to the side effects of Singulair and maybe this is to blame. Any help or suggestions would be greatly appreciated. Thank you! Concerned Mom

-- By danap | Reply | (12) replies | Private Message me

August 18th
2008
12:54 PM

I have asthma that was not controlled. I coughed and wheezed constantly. I had trouble eating, because even the food passing through the esophagus was enough to cause an attack. I was in and out of the emergency room for years, and the Ambulance folks knew to arrive with epinephrine when I'd call.

I started taking Singulair sometime around 1998. I haven't had any serious problems since then with asthma, and have had ZERO side effects.

Every drug has side effects for some people. For me, Claritin causes my heart to race. I can take that or that purple circurlar inhaler thing. I had a terrible reaction to that.

For ME, Singulair works. I am not sure it should be given to children if they are having severe problems. But it certainly should NOT be removed from the market...because people like me needed it to control their asthma.

-- By sasquatches_mom | Reply | (2) replies | Private Message me

August 11th
2008
9:55 PM

I am a parent of a 14 year old son. He has been on many meds due to having migraines, adhd, seizures, and asthma. For 3 years his ADHD meds have been switched. Now Thanks to a friend she told me about singular side effects. OH MY GOD. it blows my mind reading this stuff. He has been on singular for 3 years and never once did I think all these problems were caused by that drug. Flipping out over the smallest things, arguing with us his parents, his friends, being mean to us and a real smartass, depression, and MAJOR attitude. Getting upset over nothing at all then crying for no reason What was his Dr. thinking? Needless to say, I took the singular while she was telling me this stuff about her own son, and threw them away, I will never allow my son to take that shit again. I hope in three days like all of you say, that my son will be that loving, caring, friendly person he use to be ! Singular free is how he will be!!

-- By te12 | Reply | (3) replies | Private Message me

August 11th
2008
9:30 PM

I have 2 sons with asthma that have both been taken singulair (the oldest for 3 years & his brother for 2). My younger son's asthma got alot better since he was diagnosed & he was recently taken off Singulair thanks also to my husband hearing a report about the moodiness caused. When he was on it he would cry for no reason, get very irrational & seemed to think the world was against him. In just 2 weeks he is happy & cheerful and has told me he thinks it is due to being off singulair. His older brother's asthma has gotten worse over the years & I'm concerned about taking him off but he too has crazy moods. Just tonight he started a new soccer team & got crazy & suddenly didn't even want to participate in something he loves (wanted me to let him quit right then) until we argued enough he reluctantly participated. He then came home complained of a headache (which is also way too frequent) and now has been asleep for hours. Are there any alternatives to this drug? I'm a stressed out mom that doesn't deal well with these mood swings. He is normally a social butterfly & a sweet kid but lately seems more withdrawn, more irritable (especially tonight) & complaining about leg cramps in addition to these frequent headaches. I can't deal with too many more of these evenings & wonder if all these things are possible side effects. I'm glad to see my other son doing well but miss his normally sweet brother! Even his siblings think he is acting crazy :(

-- By brettman | Reply | (2) replies | Private Message me

August 10th
2008
7:15 PM

One month on the drug became aggressive and moody got very anxious about everything to the point of dibilatatingpanic issues. I am a 46 year old male, working full time and attending college at night.Singular has made me almost drop out in my senior year due to panic issues in class.I am now off the drug one complete week feeling better still having mild panic issues.
Does anyone know how long it takes to get out of your system?

-- By jrcox1 | Reply | (2) replies | Private Message me

July 31th
2008
1:25 AM

negative -aches all over, joint pain, lack of energy and motivation, positive -nil asthma, greatly improved sinuses, less head congestion, was told this was the best drug for asthma, polyps-sinus, aspirin allergy. Have been taking singulair for two months, concerned have also noticed feelings of anger/mild depression. Am female 50yrs, breast ca 3 years ago taking femera for 8 months. Am worried whether to continue singulair aches are killing me but could be side effects of femera to scared to go off it. Want to live and have quality of live, have 13 year old, I need to be fit for parental duties/work.

-- By cupcakeabroad | Reply | (1) replies | Private Message me

July 28th
2008
12:16 PM

I have just come across this website and I am so upset. My 10 year old daughter has been on Singulair for 8 years. Since she was 2 years old. About 3 years ago I spoke to her pediatrician about the fact that I was concerned that she had been on it for so long and about the possible long term side effects. She brushed me off and told me that there weren't any.

Over the years she has complained often of stomach aches and pains. We even had her on Miralax for a couple years because the Dr. was sure it was constipation. The last couple of years she has been complaining of leg cramps and I sort of brushed that off as "growing pains."

She is extremely emotional and has serious mood swings. I even asked her Dr. about ADD and she said it was just her personality. I am almost in tears typing this because I have no way of knowing if her actions are because of her age, her personality, or because of this medication. She has been on it for so long that I wouldn't know what her personality would be if she had never taken it.

Her asthma tends to be seasonal and she hasn't had an attack in years. I took her off the meds as soon as I read about the disturbing side effects that hit too close to home. I am upset that her Dr. never warned me about these side effects (that were not listed on the label) and didn't take my concerns seriously.

She is very small for her age and I was concerned that the medication may have stunted her growth....little did I know there were so many other dangerous side effects. I just hope and pray that she doesn't suffer any long term negative effects from this medication that I have given her, thinking I was helping her.

-- By casibugg | Reply | (2) replies | Private Message me

July 10th
2008
2:22 PM

My 3 years old daughter was on Singulair for 8 months, that was prescribed by her Pedestrian from the Asthma clinic in Canada, Quebec. Lately, some of the symptoms of adverse effects are surfacing in her, including depression, action very emotional, constant having bad dreams (which causes tiredness), crying almost whole day in the daycare, refusing to eat and drink, refusing to join her favorite activities... Her Pedestrian told us there is no side effect on Singulair when she renewed the prescription 2 days ago. Because of my doubt about that, I started research on the web and found out that the early communication was issued by FDA. Of course, I took my daughter off from Singulair right away.

I work in the drug development clinical research field. I know that nothing the FDA or Health Canada will pursue until a lot of cases on adverse events (side effects) reported to them. Please everyone, if you or your child has had developed any side effects on this particular drug (Singulair), please report to FDA at once. It got me so upset is that this drug is constantly and widerly prescribed to children, and the Pedestrians are not caution enough to tell the parents. I definitely do not want to see other children suffer the same symptoms as my daughter had.

-- By ko_karen | Reply | (1) replies | Private Message me

July 2th
2008
8:51 PM

After reading all the horror stories on here, me and my husband soon began to realize that we were having a lot of the side effects listed here and not listed on my son's actual Singulair prescription. The side effects my son had were behavioral changes, irrational behavior, inattentiveness, not able to stay on task or stay still -- in fact he broke his arm twice being so hyper, yelling, screaming and just plain mean.

We took our son off of Singulair as a trial for a few days. Immediately we began to notice differences in his behavior. He wasn't as agitated and quick to yell or get angry. (He's only 5 years old). He actually would be listening when we would speak to him. He would sit calmy and read books and the one huge thing he would do was look at us and smile. He even said to my husband once, "I love you Daddy," which just brought tears to our eyes. I never realized what a Singulair fog he was in and what it did to him. Here we were pretty close to getting him evaluated for ADHD or even Aspergers. So now we're in the same boat as others that are searching for other asthma meds to give my son. Right now we have gone back to Pulmicort, Xopenex, Nasonex and Allegra. I'm so glad I read this forum because I was desperately searching for answers for my sons behavioral issues. Oh, by the way he was on Singulair for 1-1/2 years.

-- By rtorzewski | Reply | (3) replies | Private Message me

June 30th
2008
10:50 PM

I'm seeing some posts from parents who say their children have returned to normal after discontinuing the use of this medication. However, there seem to be a lot of diagnosed "ADHD" or "BIPOLAR" conditions. Are your children really returned to normal? Or have they been diagnosed with a psychological issue and are receiving treatment? There seems to be a connection here, even after discontinued use, especially male adolescents. Any thoughts?? The increase in cases of ADD, ADHD, AUTISM, etc has been multiplying at a very disturbing rate in the last 10 years. I'm thinking definite connection to the "new" breed of "receptor blockers". What is it triggering? Any thoughts out there? Lets post anyone with similar cases and see how many are out there.

-- By wewe | Reply | (1) replies | Private Message me

June 30th
2008
12:29 AM

In 2003 at the age of 31. I had been taking singulair for over 2yrs. I started experiencing muscle weakness and I got to the point I could not sit or lay down. I was extremely in a lot of pain and taking large amounts of pain medicine. It went on for several weeks. I went to the doctor because I was having muscle spams or what I thought was a ruptured disk. I had a MRI done and it didn't show anything. I was sent to a back surgeon and he checked me out and wanted me to list all my medications. I began to tell him about zyrtec and singulair. He asked me how long I had been on singulair? I told him almost 2 years. He told me to get off of it right now because it would kill me. He said the singulair was deteorating my muscles
and causing me to have muscle spasm. I had no muscle tone. He sent me to a massage therapist 3days a week for 6 weeks and I came off of the meds. The doctor told me he had at least 10 patients that had happen to them.That was a wake up call. The doctor also told me his wife was on it 6 months and started throwing up blood and took her to the ER. All because of singulair and my kids have been on it for 3 years and have not had one problem. They are 10 and 7.
My husband is a pharmacist and he had not heard anything bad about it. He filled out a card about the side effect. It only happens in 2% of people taking it.

-- By lexieh | Reply | Private Message me

June 22th
2008
9:03 AM

Hi,
I wanted to post this link just to give some small consolation to our concerns about the lack of awareness THAT DOCTORS HAVE ABOUT SINGULAIR.This is a voluntary online informational site,that doctor's can join. It provides updated information on serious label changes and safety concerns on drugs.Most doctors at this point still get snail mail updates,in the paper shuffle a lot of information gets misplaced.The AMA would like to have all information come in online,eventually.The link is ******
read it and tell me if you think more can be done By the way my pediatricians office does not have online communication.Our life is forever changed because of that ! Information is playing a vital role in this drugs destructive path ,or the lack there of information.Again this is voluntary for the Doctors to sign up .In this modern day of communication how does important information not get where it is the most useful, I ask you?When drugs are making multi billion dollar profits,that would be an educated guess.I am doing another interview with CBS affiliate out of Boston on the 23rd of June,they contacted me.I hope it will reach more people who are still unaware of this drugs serious potential side effects.If any of you parents have some connection to media ,please use it to your best advantage to get this very important information out to the publicAlso so many of you ask how to help.Contact your local Senators and keep bothering them to reach out to the FDA to expedite this investigation. Make a pain in the butt out of yourself and be persistent.I will try to make reference to this site so your stories are heard. Dave and I are coming up on a year since our son passed on to our lord .Still fighting Kate and Dave M.

-- By kate2 | Reply | (4) replies | Private Message me

June 12th
2008
2:56 AM

I have stated many times that I am not an expert. I just post what I find. This has been a mind boggling journey for me. This is way over my head but I struggle to read and understand. Finding answers to why children are suffering from neuro-psychiatric side effects is worth the effort.

I have made the following observations.

1. Some quinoline are known to be able to cross the blood brain barrier.
2. Molecules that ionize are known to be more likely to be able to cross cell membranes. So if montelukast ionizes as a result of change in blood pH to sufficient acid conditions that it ionizes, then it could be possible or maybe like that it does in fact cross the blood brain barrier.
3. We know that there are cysLT1 receptors in the brain.
4. We know that researchers believe that montelukast may bind at the arginine of the cysLT1 receptor.
5. We know that arginine contains four nitrogens. And montelukast contains one.
6. We don't know what happens to those nitrogens.
7. We do know what macrophages create nitric oxide as I posted.
8. We do know that if something cause excessive nitric oxide to build in the brain that there would be damage to the neurons.

Some people may remember when I got stuck at the astrocytes, the cysLT1 receptors and glutamate. I keep looking for research reports that may shed more light on this.

Titre du document / Document title
Nitric oxide causes glutamate release from brain synaptosomes
Auteur(s) / Author(s)
MCNAUGHT K. S. P. (1) ; BROWN G. C. (1) ;
Affiliation(s) du ou des auteurs / Author(s) Affiliation(s)
(1) Department of Biochemistry, University of Cambridge, Cambridge, ROYAUME-UNI
Résumé / Abstract
We determined the ability of pathological levels of nitric oxide (NO) to cause glutamate release from isolated rat brain nerve terminals using a fluorometric assay. It was found that NO (0.7 and 2 μM) produced (4 and 10 nmol/mg of synaptosomal protein) Ca2+-independent glutamate release from synaptosomes (after 1 min of exposure). Spermine/NO complex (spermine NONOate; a slow NO donor) and potassium cyanide (an inhibitor of cytochrome oxidase) also caused Ca2+-independent glutamate release. Preincubation of synaptosomes with 5 μM 1H- oxadiazole quinoxalin-1-one (an inhibitor of soluble guanylyl cyclase) had no effect on NO-induced Ca2+-independent glutamate release. Ca2+-independent glutamate release produced by NO was greater in a low-oxygen medium. NO, spermine NONOate, and potassium cyanide inhibited synaptosomal respiration with a similar order of potency with respect to their ability to cause glutamate release. Because NO has been shown previously to inhibit reversibly cytochrome oxidase in competition with oxygen, our findings in this study suggest that NO (and cyanide) causes glutamate release following inhibition of mitochondrial respiration at the level of cytochrome oxidase. Thus, elevated NO production leading to mitochondrial dysfunction, glutamate release, and excitotoxicty may contribute to neuronal death in neurological diseases.
Revue / Journal Title
Journal of neurochemistry ISSN 0022-3042 CODEN JONRA9
Source / Source
1998, vol. 70, no4, pp. 1541-1546 (29 ref.)

INIST-CNRS, Cote INIST : 4037, 35400007527188.0230

-- By concernedcitizen | Reply | (4) replies | Private Message me

June 9th
2008
10:27 PM

I took my son off Singular a month ago, some slight improvements with the sleep and behavior problems. I voiced my concerns with my doctor twice now he looks at me like Im crazy and then he goes on the PC and says he cant find any of these side affects im talking about. My son was an appointment to see an allergist specialist.

-- By mommy12 | Reply | (5) replies | Private Message me

June 6th
2008
3:17 PM

WOW!!! I am glad I came across this website. I have twin boys that will be 7 this month. One has been on Singulair for about 3 years for allergy induced asthma and my other son has been on it for 9 months for allergies. I am taking them both off of it today. The son that is taking the medicine for 3 years has become increasingly angry and gets upset over small things. Over Memorial weekend, he lost a game he was playing on the wii and exploded. He was banging his head and then started to hit me. NEVER in my life have I seen him attack anyone. A few days later he threw rocks at his friend because he wanted the wagon. Over the past 3 years I have noticed some change in him and just took it as growing pains. He has always been a strong will child. However, over the past 3 years he has gotten worse and since he has physically attacked me and his friend, I have decided to send him to counseling. Now I firmly believe it is the Singulair.

My other son has been on it since August. He started to have anxiety within a month of taking it. His behavior has been stressed, depressed and not wanting to play with other kids. He was biting his nails to a nub, licking his hands, not talking to anyone at school and rubbing his head. I have also noticed he does like to look at the person he is talking too. Of course I thought the worse and thought he was being molested. I went to his Teacher and she has worked very hard with him, but he is still a loner. If you knew him before, he played with everyone and enjoyed life. I was told by his Ped. that he had anxiety and to have him see a shrink.

I am hoping that after taking them both off this medicine, I will see improvement.

-- By nradovcich | Reply | (2) replies | Private Message me

May 21th
2008
5:13 PM

My son is almost 9, he has been on Singulair for 3 years. Last Friday the pulmonologist took him off of it. My son has been sleep walking since about the time he started singulair, have noticed major behavior changes. He gets very angry over nothing, he is extremely sensitive, he is not the happy little boy he once was. He has horrible dreams. Over time this has gotten progressively worse. I have to say that since last Friday when he was taken off the singulair, I have noticed a huge difference. My happy little boy is coming back! I told the Pulmonologist my concerns ans could this be side effects and he replied "YES", Also, he feels that my son has outgrown his asthma which is wonderful. I feel so horrible for all these children and families going through this. Parents, remember you are your child's best advocate. don't let the children suffer.

-- By kwag | Reply | (1) replies | Private Message me

May 19th
2008
2:43 PM

In September of 2007 my then 13 year old daughter was put on Singular for mild asthma. At the time she was a straight A student, vice president of our school and a popular girl who's guidance counselor described as "the glue of her grade" because she was so well liked. In November she told me that she was struggling with advanced Latin and Science. She asked to drop down to on grade Latin so we did. In December her science teacher notified us that she had a C average. She told me that she thought she had ADD/ADHD and she couldn't keep up. At the same time she was having a lot of problems with friends at school and we just attributed it to being 14. 3 weeks ago we discovered that she is significantly behind in English and it was then that she told me that she is been having horrific night mares. She said that they usually involve someone killing her or her killing herself. She said that they were so graphic that she couldn't repeat it out loud. She also said that she would feel waves of anxiety that would come over her at school and she would act "witchy" to the kids in her class for no real reason. She said that sometimes when she is trying to do her homework she will read the same passage for 2 hours and still have no idea what it's about. She also said that the suicidal thoughts from her sleep happened during they day and that she had thoughts of her harming herself. Fortunately her pulminologist told us that this may be caused by singular and we immediately took her off of it which was 2 weeks ago. She has only had 1 "bad dream" not even a nightmare since. She had one anxiety attack 3 days after she was off it and she describes her moods as the "cloud lifting....slowly". Now, we have to pick up the pieces. Her grades have suffered, her friendships have suffered and most of all her self esteem is very low. I'm grateful that we found out the cause but I feel as if my daughter lost a year of her life and I worry that because Merck won't admit there are side effects we can't find out how long it remains in their system. Is anyone else concerned about the long term affect and has anyone pursued a class action suit to try to get this drug tested properly?

-- By maryfromct | Reply | (9) replies | Private Message me

May 15th
2008
11:13 AM

My son is almost 6 yrs old. He has been taking Singular for approx 3 years, in addition to Claritin and Nasonex. This is all for his allergy to mold. His doctor started him on these meds after a 6 month episode with sinus infections leading to asthma-like symptoms. We have not noticed anything unusual about his behavior until approx 3 months ago. He started waking up every night (2-3 hours after going to bed) with bad dreams. At first he would not fully awaken and fall back asleep immediately. After a month or so of this happening most nights, he had two nights in a row where he woke up screaming and was inconsolable for about 30 minutes. We initially thought it was night terrors, but he was not scared or fearful, he was just upset/angry. He would hit the bed repeatedly and yell. He didn't know what he was upset about but would talk about how he thought we hated him, he was dumb, etc. After about 30 min he would 'snap out of it' and return to his normal self and go back to sleep easily.
At first we thought these were night terror brought on by a recent fever, but he had another episode last night. He has also been falling apart at the littlest things and getting quite violent (for a 6 yr old). He was sent to his room yesterday evening because he was complaining about the dinner his mom made (lots of complaining these days..). He had a total melt down an started throwing things and hitting the door so hard he put a hole in it.
Some of this behavior I would chalk up to normal kid stuff, new baby brother, etc. But I am suspicious about the negative thoughts, bad dreams, and instant melt downs... I stopped giving him Singular today and we will see what happens. God bless you all as we figure these things out...

-- By parrym | Reply | (3) replies | Private Message me

May 13th
2008
10:32 AM

My daughter has been off of Singulair for about 6 weeks now and is still having "explosive" reactions to minor issues. My daughter's personality is better - no more dark thoughts, etc, but the anxiety/aggressiveness is still hanging on. Anyone having similar issues? We are also still dealing with the OCD behaviors as well. She is 4 and I really think her brain chemistry is still altered. At what point should I recognize that this new child may be my new reality? I would really appreciate any thoughts from those of you that have been off for more than 6 weeks. Are you back to 100%?

-- By freakedoutmom | Reply | (5) replies | Private Message me

May 13th
2008
10:08 AM

In response to dtrzaski post Im am sending out this question to everyone. We know there have been stool/stomach/weight issues. Are there any other children that it has been discovered to have high cholesterol. My son was discovered to have high cholesterol at around 3yrs old, apprx 6 months after starting Singulair (regardless of a very healthy diet lots of fruit and veggies!) Any thoughts out there?

-- By sp2008 | Reply | (2) replies | Private Message me

May 7th
2008
5:49 PM

My son, Wilson, is a bright, easy-going, athletic 12 year old who has a history of asthma and allergies. After several asthmatic episodes from age one year to about four, he was prescribed Singulair. The asthma triggers seemed to be change of season or congestion from a cold, but not from exercise or physical exertion. As I recall, his asthmatic episodes seemed to decrease after he was on 5-10 mg of Singulair, and even more so with each passing year. Over the years, of my three sons, Wilson was the one to catch any virus that came around and missed more school time than both of his brothers combined. Often, he was the only one to get sick from a virus, which never passed to anyone else in the family.
About five years ago, Wilson started complaining of stomach aches. He was tested and was prescribed Prevacid on and off since then with varying success. In the last couple of years, headaches would come and go. He was re-tested for allergies and blood work with no conclusive results. About 2-3 years ago he would complain that he “felt funny…like he needed to do something.” Further conversations revealed that he was expressing anxiety. He’s a good student, has lots of friends at school, and is popular among his sports team mates. Occasionally, a teacher here and there over the last couple of years would note that he did not participate enough in class, or did not appear to be attentive. We thought perhaps he is shy. Still his good behavior, agreeable personality and diligence otherwise earned him good grades overall. He loves school and was very unhappy having to stay home when he was sick.
This past winter, he seemed to catch a virus about once every month and a half which caused him to miss 2-3 days of school. Headaches and stomach aches were common with each illness (sometimes nausea), and sometimes these same symptoms when he was not ill. He would only complain when they were prolonged or significant. Trips to the doctor did not result in anything conclusive. Again, Wilson was only too happy once he returned to school.
He claims that sometimes in school he feels like he’s in a fog and has difficulty concentrating. He gets plenty of sleep and sometimes sleeps up to ten hours during the weekend. We attributed it to adolescence and a busy schedule. He claims that this year is the easiest for him at school, and his social life with his friends is very active. His friends’ parents like him and find him to be an agreeable child. Other adults mistake his sometime mumbling answers and lack of eye contact rude. We concluded that he is just shy. He is the most hyper of his brothers, and has difficulty sitting still and constantly exclaims that he’s bored. We chalked it up to being an active boy. His grades are good in school and we never get complaints about bad behavior.
The last illness started a week ago, and he’s still out of school. The doctor said he had no significant allergy symptoms, other bacterial infections, and his blood work all returned with normal results for white blood counts, liver and kidney functioning and anemia. He can’t return to school because of his constant headaches (which cause pain in different parts of his head), nausea, constant stomach aches, no matter what he eats, and feelings of anxiety, mostly in the evening hours. He’s also complaining of dizziness, leg cramps and other muscle soreness. The notable difference in this illness is the anxiety. My husband and I take turns staying home with him, but if we left him alone for a half an hour at a time while the other was in route picking up a sibling, he became very anxious. In the past, he seemed to enjoy some alone time at home so he could play his computer games. He also becomes easily dizzy with shooting pains in his muscles. The doctor said that viruses can manifest themselves in later stages in the form of sore muscles. However, he was concerned about Wilson’s feelings of anxiety. The anxiety had not been as prevalent in prior illnesses. I finally signed onto the internet reading all the stories about other parent’s observations of their children on Singulair. My husband cautioned me about “internet diagnosing” with symptoms and stories that can be easily taken out of context in hope of self-diagnosis. I’ve always thought that Wilson’s doctors have had good judgment. Both my primary physician and allergist don’t think that Singulair has caused these symptoms, but agreed to take him off as long as we monitored any effect on his asthma.
I don’t know what to think. I want the cause of these problems to be the Singulair, because it’s an easy answer. Today will be the first day he’s off the medication. He probably won’t go to school again tomorrow. We’ll wait and see what happens…

-- By anotherconcernedmother | Reply | (6) replies | Private Message me

May 2th
2008
6:07 PM

Am a forty-two year old female, have been on singulair approximately 3 years, decided to stop taking it abruptly because of constant leg cramps and difficulty sleeping. THAT was when my trouble really started, the week after abruptly stopping. Crying for no reason, felt impending sense of doom....I think things will get better, I wish a would have weened myself off slowly.

-- By survivor84 | Reply | Private Message me

April 22th
2008
11:01 AM

In response to all the brain research theories, I just wanted to say that when my son (at age 6) was on Singulair there was a noticeable relationship between food and mood. Although his weight was not affected noticeably he would almost predictably have meltdowns if he skipped a snack or we had dinner late. And I remember that I would do almost anything, including spoon feeding him like a baby, in the morning, knowing that, after a few bites he would become 100x more manageable.

I mention this because even though one could argue that this phenomenon happens with many kids and adults it really was sharply apparent in my son - and of course his behavior was more extreme. Like the mother who mentioned a hypoglycemic-like reaction, I felt that my son's explosive behavior and intolerance at these times quickly improved after eating.

By the way, he has been off more than a year now and does not have this problem any more. Also he is much less lethargic.

-- By massmomof3 | Reply | (2) replies | Private Message me

April 17th
2008
8:59 PM

Hello to everyone, I just came home from a parent teacher conference for my son who is 7 yrs. old, and heard the same old thing, "he is restless, impulsive and has a short attention span". He has been taking Singulair for about 3 yrs.. Since he has started school I have had these complaints and have also been told he displays symptoms of ADHD, which ironically has been for the last 3 years. Like any parent, I question" if I am doing something wrong with my parenting, is his diet good, etc. etc.", I am also a nurse, I realize that medications are needed and beneficial in some circumstances, however I firmly believe and was taught in nursing school that medication is last resort. That being said, I have been very adament about NOT giving my son ADHD medication after doing alot of research on the different meds and their side effects. So, we started him on all natural vitamins, changed his diet some ( kids got to have candy once in a while) and started a more structured routine( the best we can since we both work) and also enrolled him in Sylvan. The teacher says there is a 50% improvement but he is still impulsive and still does not pay attention like he "COULD", again suggesting he needs ADHD meds. I came home in tears and started to do more research online to see what else can I do besides putting him on psych meds?....Then I came accross this site, I just want to cry after reading all these posts. I wonder, could this be his problem, the Singulair?.. About a year ago he use to get up in the middle of the night, 5 out of 7 complaining of nightmares, hearing things at times, headaches, decreased appetite, stomach upset, all AT TIMES, not all the time so I never thought alot about side effects of Singulair. When the school started complaining I did look at side effects of Singulair and seen HYPERACTIVITY and mentioned it to his pediatrician and she shrugged it off saying she never heard of it being a problem. She's a great MD so I listened to her because his asthma was bad when he was younger and it is now under control. But then I think maybe he is outgrowing the asthma. I am afraid to stop Singulair and him have breathing problems again but then I can't help this strong feeling in my heart that says this may have been his problem with everything else all along. We are going to stop the Singulair tonight and see what happens. If anyone else has a child with asthma any suggestions for alternative treatment would be appreciated. I already know what's out there but sometimes it's nice to hear from another parent going through similar situs. Thanks for reading, Bobbie

-- By bobbiejo | Reply | (5) replies | Private Message me

April 16th
2008
12:10 AM

My 4 year old daughter has been on Singulair daily for approximately 2 months. We started noticing some minor changes in her behavior early on (shyness, separation anxiety, anger, moodiness) but chalked it up to starting a new pre-school and arguing with her older sister. Then about two weeks ago, she started having an obsessive-compulsive type behavior about wiping herself. My first inclination was that she had some type of infection (yeast, UTI, bladder, etc) but all of the tests came back negative. My doctor told us to stop the Singulair, so we have been off for about a week now, but the OCD symptoms haven't lessened. I would say that some of the other behaviors are improving somewhat, but I am not seeing a "whole new kid" effect after being off for one week. Has anyone had a similar experience with OCD type behaviors? I am beside myself with concern! Thanks for any help.

-- By freakedoutmom | Reply | (8) replies | Private Message me

April 15th
2008
1:54 AM

My 9 year old son was on Singulair for about 4 weeks. His whole personality changed. He cried all the time, he would not sleep alone, he had headaches, dizziness, tummy aches and horrible nightmares. His whole bodyy broke out in a rash and even now after 2 months of taking him off he is still covered in a rash. He was so sad all the time and so irritated. He would yell at us and was so angry all the time. He still is not back to himself. I see where people say their kids are back to their old selfs. I know my son is better but he still is having a hard time focusing in school and crys easily. He seems as though he is not the same child. I wonder if these side effects can cause permanent damage in some way. This is all so scarey. Drs. need to talk and help these children, NOW

-- By gag | Reply | (1) replies | Private Message me

April 14th
2008
10:40 PM

Hi, I have written on this forum before. Our son (6) was on Singulair for over 3 years for Asthma. Over those years, his whole personality changed; it happened so slowly, however, that we assumed that those changes were "phases". We stopped Singulair 16 days ago, and we have seen big changes in our son. Thus, I want to summarize our side effects by describing the changes in my son:
Suddenly no more fears (nightly waking up scared to death, and fear of being alone in any room in the house during the day), sleeping through the night, less agitated and less aggressive, better listening skills (again!) and more interest in learning (this was a child that once loved science and did math at age 3. He lost interest in anything that had to do with learning). He draws happy faces again. He is also less nervous. He lets us hug him again, and tells us how much he loves us.
Some days are better, some days are worse. There are times he still tells me that he wants to "throw himself in the trash" and other negative things about himself and his life. We also still see obsessive compulsive behavior (a tic where he touches his head and then his legs from his feet up, driving me crazy), but it is slowly getting less severe. But overall the changes are very clear.
As for the Asthma: we still use Flovent once a day: so far we had no setbacks. Our doctor noted the side effects, but was rather surprised about them. Obviously, I will NOT EVER give my children Singulair again, no matter what the doctor will tell us.

-- By happymom | Reply | Private Message me

April 14th
2008
8:03 PM

My son is 10 ½, and had been on Singulair for almost 6years to treat his well controlled asthma and allergies. We have had behavior problems with him for years, but it seems to have gotten worse this school year, when his grades (he is in the gifted program at school) went down the tubes. Our family has been to counseling, where it was suggested we put him on ADHD meds. We resisted, but things had reached the point that I was ready to give the NEW meds a try. ARGH!!!!! Then my sister sent me a link for a story about the teenage boy who committed suicide. This was several weeks before the Singulair/suicide stories were in the news. I did some research, and I started reading these posts. It was like I was reading descriptions of my son!! I talked to several pharmacists and none of them knew of any behavior problems attributed to taking Singulair. Talked to his pediatric pulmonary doc, he knew of no connection, but said to try taking him off. He thought the allergy/asthma would be OK since he also uses an inhaled steroid every day. Well........... I thought I could see a difference in 4 or 5 days, my husband thought I was wishful thinking! But, since then everyone in his life agrees, he is a different kid! No moodiness, no unexplained anger, more on task, sleeping better. I could go on and on. There is no doubt in my mind, the differences started when he stopped taking the Singulair.

-- By tallmom2two | Reply | (4) replies | Private Message me

April 14th
2008
2:42 PM

I wrote an earlier post but I am now reading alot of your posts where you say your child experienced FEAR on Singulair. That is so interesting. When my son was on it for around 3 years he would never sleep alone in his own bed and he would have episodes every night that would last up to 3 hours at bed time because I would try to get him to sleep in his own bed, even at 8 years old. I thought he was possessed!!!! He would scream and fight me and I would literally have to hold him down to get him to stay in bed. It was horrible. I'm not sure how a hullicination would be described but maybe that was part of it. All I know is that he turned into a totally different child. It was something out of a horror movie. I eventually gave up and let him sleep in our bed cause it was exhausting. He would just make blood curdling screams and the terror in his eyes was horrific. Then the next morning he would be fine like nothing had ever happened.
Now that he is off of Singulair he will sleep in his own bed with the light off all night. It was an amazing turn around. He also told me he's not scarred anymore.. Who knew????? Has anyone else experienced anything like that with their child????

-- By wlhiic2424 | Reply | (5) replies | Private Message me


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