January 24th
2006
8:20 PM
My husband has been on and off with remicade for 3 years,he was in a car wreck last week,but not hurt,but the stress from it has flared-up his crohn's. Tonight he is in the bed with headache,fever,swelling of the feet and hands,node's under the skin,he tendon,s have tightened up and he is having problems walking,sitting up and just holding up his head. with crohn's he seem's to get a purple color under the eyes. After a while the remicade just want work,he has more arthritis now than he did before taking the remicade,but without it the fistula in his stomach want close up. after the treatment he does good for about 2 weeks and then he starts having problems with his joints.
-- By kimhawkins | Reply | Private Message me
February 4th
2008
8:35 PM
I have been taking Remicade for years. At first it was getting the job done. I started having severe pain that seemed to migrate to different places in my body. Sometimes the bottom of my feet would get so tender I could barely walk. My finger would bend while sleeping and I could not straighten it for days and it would hurt real bad. Knees and ankles would do the same things and then move onto other parts of my body. I thought it was more of a tendon problem, but the pain could also be in any random spots on my body, like shins or maybe a random place on my back. My wrists seem to be a favorite place too. The pain can set in fast and sometimes leave fast. Prednisone is the only thing that seems to help these symptoms. I have been taking 5mg a day for years and when I am having problems that is not enough. I went to a Rheumatologist and he says it is not the Remicade but another antimmune problem. My family doctor thinks it is a side affect of the Remicade and I tend to agree with him. I am going to have my damaged pouch removed in hopes of getting off all medications. I have been living with a colostomy bag for the past three years and it is the least of my problems. Before that I had all my large intestines removed and a pouch which worked well for approx 15 years. I am one of the early people to receive that kind of surgery. I can only pray for all of you that are suffering and lend hopeful advise to your journey.
-- By jbill | Reply | (3) replies | Private Message me