June 8th
2008
1:10 PM
I have had 1 remicade infusion so far for ulcerative colitis. The next day a bunch of spots appeared on my lower legs. There were 30-40 of them, small, roundish, purple/dark red. They looked like blood spots under the skin.
It wasn't a rash and they didn't itch or hurt. My doc had no explanation, and I haven't heard of anyone else having this reaction. They checked my blood for a clotting problem and didn't find anything. The spots faded away over a week or so. My next infusion is in 2 days, so we'll see if they reappear.
I have also been experiencing a weird kind of insomnia where I am so physically antsy I CANNOT keep lying still, I have to shake my body or kick my legs or something. I read up on restless legs syndrome and the symptoms sure sound like what I am experiencing. I don't know if it's connected to the Remicade - I read that iron deficiency can also cause it and I am anemic due to the UC. But since Remicade can disturb the central nervous syndrome, it seems possible. Anyone else experience RLS with Remicade?
September 28th
2004
8:06 PM
I have just went for my 7th Remicade infusion. I didn't even get a third of the way done with it. They had to stop it becuause I started to itch real bad and broke out in hives. I always get severe muscles aches about 2 weeks before my treatment to the point where I can't walk or move. My doctor always puts me on a two week treatment of Prednisone to make the pain go away. I'm hoping that this is the last of the Remicade for me. It worked wonders at the begininng but now my body just doesn't want it anymore. Anyone experiencing anything like this??Please email me! ******
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September 29th
2008
7:13 PM
Yes, at my second Remicade infusion, I got a stiff neck and severe pain, like a pinched nerve around cervical 4. The pain radiates down my right arm. It hurts 24/7. I also got this when I took Cipro! Today is my 3rd infusion and the pain is still there. The doctor says it is just arthritis, but this is not arthritis. It is a Remicade side effect. Analgesics so not help the pain.
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