June 1th
2008
12:24 AM
My son has side effect following third infusing...headache, acne like pimples, rash, mood swings, lose of short term memory, frequent urination, stomach spasms, and over all total body ache...now six weeks after last infusion...seeing two dermatologists, his regular doctor, and having to take a two week leave from work...my son finally showing improvement..his gastro Dr. wants him to go on with treatments of remicade...No, No, No...
-- By misterb | Reply | (1) replies | Private Message me
January 4th
2008
7:28 PM
Remicade did wonders for me, my Crohns went into remission. Still have muscle pain over a year after not taking it. Maybe that is from the Imuran. When I had my infusions I had to have Prednisone before & during because of an allergic reaction.
-- By gillisbarbara | Reply | (1) replies | Private Message me
March 25th
2003
12:38 PM
May name is Ana and I want to add a little more to the information I provided you all back in december. After December I had more infussions, I noticed that each time I had an infussion; I kept feeling worse side effects during and the day after the procedure. The doctor added steroids and benadryl to knock me out during the infussion, but even then I felt the chest pain and the head aches the day after. Finally the doctor decided that remicade wasn't for me, but I had to give him a scare; an even bigger one. 3 weeks ago I had my very last infussion. I went in 1 week earlier because I was in alot of pain (previous treatment didn't work) and I had been for 5 weeks, but now I could barely move. The nurse placed benadryl in my IV and it knocked me out, about 30 minutes into the infussion; I started getting chest pain and remember I was asleep. I tried to tell someone, but I could barely talk. The nurse noticed me turning red and shook me; asking if I was ok. I tried to tell her, I couldn't breathe; but I was struggling with the benadryl. I finally began to cough and it woke me up a bit, I then kind of told her that I had chest pain. She immediately stopped the infussion, called the doctor, got oxygen and helped me sit up. I was still fighting the benadryl. Finally the doctor came in and said, remove the IV; this isn't working for her. As soon as the nurse removed the IV, I couldn't stop shaking and I was getting a rash. I was kind of scared, but I tried my best to stay calm. But then I began to feel very cold and they noticed a tear in my eye. The nurse then asked why I was shaking and I told her I didn't know, but that I was very cold. Then one nurse took my blood pressure and noticed that it was sky rocket high. One nurse ran to get hot packs, blankets and pillows and she began to shove the hot packs under my clothes and cover me up; while the other nurse ran to get doctors again. Finally the doctors noticed that I was shaking off the chair and even though I tried to stay still I couldn't. One doctor said for the nurse to get a shot of something, I was too sleepy I can't remember the name of it (drug). It did help and it calmed me down and put me back to sleep. It was scary and until now, I still have a very sharp pain in the back of my neck that comes and goes. But I just want to think that it'll go away soon. So I finally got on Enbral and it works wonders with me and I feel no side effects (yet atleast).
-- By shy_peppy | Reply | Private Message me
June 8th
2008
1:10 PM
I have had 1 remicade infusion so far for ulcerative colitis. The next day a bunch of spots appeared on my lower legs. There were 30-40 of them, small, roundish, purple/dark red. They looked like blood spots under the skin.
-- By kitty_d | Reply | (7) replies | Private Message meIt wasn't a rash and they didn't itch or hurt. My doc had no explanation, and I haven't heard of anyone else having this reaction. They checked my blood for a clotting problem and didn't find anything. The spots faded away over a week or so. My next infusion is in 2 days, so we'll see if they reappear.
I have also been experiencing a weird kind of insomnia where I am so physically antsy I CANNOT keep lying still, I have to shake my body or kick my legs or something. I read up on restless legs syndrome and the symptoms sure sound like what I am experiencing. I don't know if it's connected to the Remicade - I read that iron deficiency can also cause it and I am anemic due to the UC. But since Remicade can disturb the central nervous syndrome, it seems possible. Anyone else experience RLS with Remicade?