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50 Side Effects posted for Remicade

August 17th
2008
6:55 PM

a full week after my first remicade treatment, i suddenly developed a very severe headache, followed by a stiff neck, a stiff left arm, a sore jaw where i couldn't open my mouth very far and i could not chew, then developed a fever, chills and itching. It came on fast but also subsided a good bit within about 12 hours. has anyone else experienced something like this, a full week after a treatment?

-- By dwynn | Reply | (5) replies | Private Message me

July 2th
2008
11:05 PM

Centocor, the maker of Remicade, aggressively pushed physicians to set up infusion clinics, write for the drug and promised huge profits.Most of these infusion suites are run by nurses. The drug dose is calculated by a nurse and mixed into the iv bag by a nurse NOT A PHARMACIST. The drug, which can put patients at risk for serious infections and tuberculosis is not even mixed in a sterile IV hood !!! It is mixed out in the open air and exposed to contamination. In the meantime,Centocor downplayed the severity of the side effects. This drug actually caused LUPUS in a patient who subsequently won $19,000,000 in a lawsuit. The drug can greatly increase the risk of lymphomas and blood disorders with fatal outcomes. But the literature does not adequately educate patients and physicians on how to properly monitor the drug! The drug can cause memory problems, visual changes, and increased sed rate and increased c-reactiv protein.

-- By cathyxiii | Reply | Private Message me

June 1th
2004
6:57 PM

My daughter's doctor is pushing very hard for her to be on Remicade for her crohn's. After researching it on the internet I'm against it. T.B., M.S., deadly fungus infections all being reported. 2 hour infusions. Bad headaches. Not for my beautiful 19 year old daughter if there is any other way. I also suspect the profit motive for her doctor. The nurse can administer the treatment at $25000 per year while the doctor goes on yet another europeen vacation.
Am I wrong?

-- By dancin_quinn | Reply | (2) replies | Private Message me

December 18th
2002
11:58 AM

My name is Ana, I am 27 yrs old with Rheumatoid Arthritis. During my 6th treatment of Remicade I couldn't breath, but I got better after the nurse stopped the infussion and later started it very slowly. During my 7th treatment I also couldn't breath, got cramps and my hands were soaking wet. After Oxygen & Benadryl I felt alot better, I got home at about 5pm from the hospital and at 7pm; I couldn't bare the muscle pain. I had an MRI schedule the next day and had to have someone drive me because I had a SEVERE headache and cramps. I had to drag my feet in order to move around, because I felt as if every step that I took was going to kill me. That day when I got weighed the nurse told me I lost 6 lbs, since they saw me last and it had only been 7 weeks. I now feel a slight headache and I do get hungry, but I can't seem to eat and I wake up with an upset stomach in the mornings. Has anyone else experienced this? Can someone please tell me if this is common. Please e-mail me at shy_peppy@yahoo.com if you like with any response to this

-- By shy_peppy | Reply | Private Message me

March 25th
2003
12:38 PM

May name is Ana and I want to add a little more to the information I provided you all back in december. After December I had more infussions, I noticed that each time I had an infussion; I kept feeling worse side effects during and the day after the procedure. The doctor added steroids and benadryl to knock me out during the infussion, but even then I felt the chest pain and the head aches the day after. Finally the doctor decided that remicade wasn't for me, but I had to give him a scare; an even bigger one. 3 weeks ago I had my very last infussion. I went in 1 week earlier because I was in alot of pain (previous treatment didn't work) and I had been for 5 weeks, but now I could barely move. The nurse placed benadryl in my IV and it knocked me out, about 30 minutes into the infussion; I started getting chest pain and remember I was asleep. I tried to tell someone, but I could barely talk. The nurse noticed me turning red and shook me; asking if I was ok. I tried to tell her, I couldn't breathe; but I was struggling with the benadryl. I finally began to cough and it woke me up a bit, I then kind of told her that I had chest pain. She immediately stopped the infussion, called the doctor, got oxygen and helped me sit up. I was still fighting the benadryl. Finally the doctor came in and said, remove the IV; this isn't working for her. As soon as the nurse removed the IV, I couldn't stop shaking and I was getting a rash. I was kind of scared, but I tried my best to stay calm. But then I began to feel very cold and they noticed a tear in my eye. The nurse then asked why I was shaking and I told her I didn't know, but that I was very cold. Then one nurse took my blood pressure and noticed that it was sky rocket high. One nurse ran to get hot packs, blankets and pillows and she began to shove the hot packs under my clothes and cover me up; while the other nurse ran to get doctors again. Finally the doctors noticed that I was shaking off the chair and even though I tried to stay still I couldn't. One doctor said for the nurse to get a shot of something, I was too sleepy I can't remember the name of it (drug). It did help and it calmed me down and put me back to sleep. It was scary and until now, I still have a very sharp pain in the back of my neck that comes and goes. But I just want to think that it'll go away soon. So I finally got on Enbral and it works wonders with me and I feel no side effects (yet atleast).

-- By shy_peppy | Reply | Private Message me


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