Remicade and headaches

I had my first infusion of remicade with the benadryl on Tuesday since then I have had a very bad headache, stemming from the back of neck all the way over my left side to my eye and also a very painful stiff neck. I am literally inches away from surgery to remove my large intestine and this was my last chance. The good news is that it seems to be working for the UC but I am not sure I want to live with these headaches it is awful.

Terrible headaches after infusion two. The headaches are intense and in the back of my head. They actually cause my neck to stiffen. They are also accompanied by blurry vision and double vision-especially at night. I'm wondering if these side effects will go away or if they will continue as long as I'm receiving Remicade treatments.

I had 2 remicade infusions. I received benadryl 50mg IV before first infusion and had a terrible reaction to it. Rigor,shaking..at least an hour and while this was going on they administered remicade.
Bad headaches and some back pain ,nauseau first infusion. Infusion 2 neck pain,intolerable sinus head pain. Went to osteopath and most of the pain went away so it was from the stress of benadryl reaction. Hemoglobin dropped from 12 to 10.4 in 5 weeks but I also have genetic thalassemmia(anemia) and my diet ..well..almost none..vegetarian and iron content not as soluble.
Checked for rectal bleeding, urinalysis etc. All fine. Another cbc tomorrow and now dr. says if it's back up he knows it's the remicade and wants me off it(been stuffing myself with red meat, and all iron foods for nothing it seems) and if it isn't still no remicade. My skin has started clearing and now I will be very depressed once again after all of this..never mind the expense since my insurance company would not cover it.
Anyone else experience drop in hemoglobin drops?
Cierra2

I had my second infusion, and a debilitating headache came on. I feel very grogy the day after and as of yet no real change in the way I feel. I suffer from Sarcoidosis, and my doctor feel that this will help with the immflamation. I was worried about the headaches, but I see that several people have experienced them also. If anyone is positive that the Remicade is the cause please note. I'll be checking in from time to time.

Bamm

My daughter's doctor is pushing very hard for her to be on Remicade for her crohn's. After researching it on the internet I'm against it. T.B., M.S., deadly fungus infections all being reported. 2 hour infusions. Bad headaches. Not for my beautiful 19 year old daughter if there is any other way. I also suspect the profit motive for her doctor. The nurse can administer the treatment at $25000 per year while the doctor goes on yet another europeen vacation.
Am I wrong?

I have received two infusions. I get headaches, muscle pains, back ache, and today I had a sudden nosebleed for no apparent reason. I can cope with the back and muscle aches, because I have had them for years due to arthritis, but the headaches are going to kill me. Nothing seems to help them. Can anyone else share any thing on this? Is it because of the Remicade? Any help would be appreciated. Thanks, Mickey