January 4th
2008
7:28 PM
Remicade did wonders for me, my Crohn's disease went into remission. Still have muscle pain over a year after not taking it. Maybe that is from the Imuran. When I had my infusions I had to have Prednisone before & during because of an allergic reaction.
-- By gillisbarbara | Reply | (1) replies | Private Message me
January 4th
2008
7:28 PM
Remicade did wonders for me, my Crohns went into remission. Still have muscle pain over a year after not taking it. Maybe that is from the Imuran. When I had my infusions I had to have Prednisone before & during because of an allergic reaction.
-- By gillisbarbara | Reply | (1) replies | Private Message me
December 30th
2006
11:57 PM
Originally diagnosed with PMR and was taking prednisone in high doses for 2 years with ok results, except that as I lowered the mg of prednisone the PMR symptoms returned. New doctor diagnosed RA instead and put me on Remicade. After 4 infusions I am having severe muscle pain in my upper right leg. And on occasion the beginning of the same problem in my upper left leg. Affectsmy mobility and I am taking large doses of tylinol & motrin for the pain. Doctor says this is not a side effect of the Remicade. At first I believed him, but now am having doubts. Anyone else have this side effect?
-- By eugilio1 | Reply | (5) replies | Private Message me
October 23th
2006
9:04 AM
I've had 4 remicade treatments on my 2 treatment they had to stop it after bumping it up to 20 cc cause it started respitory problems and made my blood pressure go up. now when I go for treatments I have to take 75 mg of benedril and 30 mg of prednisone, now i'm noticing leg cramps, muscle pain, joint pain, my hair is falling out more than it ever did before. I'm not sure if this is related. Now i'm having bruises that don't heel up and, i'm getting sick with a respitory infection and i get frequuent migrains I also noticed tooth aches , i try to stay away from sick kids but for my crohns and ulcerates colitis i'm eather bound up or running for the restroom.
-- By tamara452 | Reply | Private Message me
February 8th
2003
7:40 PM
I HAD AN INFUSSION OF REMICADE AND CANT STOP RIDING MY BIKE AND DOING THINGS,,I HAVE NEVER FELT THIS GOOD IN 15 YEARS, i have crohns,,MENERIS DISEASE,HAD A PITUITARY TUMOR REMOVED ON 3/13/02,I FEEL GREAT,,AND I GO FOR MY 2ND TREATMENT ON 2/11/03
-- By cccresort | Reply | Private Message me
February 8th
2008
12:32 PM
My experience with Remicade has not been good. On one hand it did help with the crohns. On the other I developed weakness and tingling in my arms and legs, joint pain, ankle swelling, I have difficulty walking now. I also have numbness on the side of my face and occasional sharp chest pain. I find I am very depressed. I'm at my wits end. It is horrible bing in constant pain. I'm thinking of just going it alone without any medical help. I was better off as a 117 pound, 5-'9" lady with only crohns to worry about. Sure swallowing anything felt like glass but it beats this.
-- By designercat | Reply | (1) replies | Private Message me