April 9th
2008
3:47 PM
Hello, my name is Rob and I have been on Remicade for the past 5 years. I had a reaction to my first Infusion, shortness of breath and feeling flushed. They then added Benadryl to all future infusions and everything has been fine until this last infusion in April of 2008. Halfway into the infusion my face became flushed, the person adminisitering the Remicade said it was hives, this was accompanied by tightness in the chest and headache. They stopped the infusion, gave me some Benadryl added to the IV, that did not work, they then added Solu-Medrol 125MG into the IV and it seemed to reduce the effects of my reaction. The infusion was completed and I went home. Upon arriving home I looked quite pale until that night. My face became red, almost as if I spent too much time in the sun and I have had a headache followed by chest pains. This condition has continued into the next day but it does not feel severe enough to go to Emergency. Should I be concerned or will this pass? Is it possible that I have been on it so long that I am now building up a tolerance to it?
-- By habsolutely | Reply | (1) replies | Private Message me
April 6th
2008
11:22 PM
off it 4 yrs still havin problems . blurry vision ,chest pains , achey muscles ( like fibromyalgia ) very painful . lost my vision 5-6 times the first two yrs .
-- By laura10 | Reply | Private Message me
April 22th
2008
6:06 PM
I'm on my third infusion. Up till recently? It was a wonder drug. I got all my energy back, no more random joint pain and everything was going great. Then my third infusion happened. And I get jimmy arm. It's like jimmy leg, where you can't stop it from bouncing. Only worse. It's like my arm just won't rest. The next night? Both arms. The night after? Chest pains, racing heart, breathing shortness, all kicked off at 3AM with a lack of sleep. This is all very new to me and I'm waiting to hear from my Rheumatologist if I should go to the hospital or not.
-- By rr3000 | Reply | (1) replies | Private Message me