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Remicade side effects

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100 Side Effects posted for Remicade

December 23th
2008
2:57 PM

Persistent cough again this winter...last winter I coughed for 8 weeks straight.
antibiotics don't help either. --B.P.

-- By bpman | Reply | Private Message me

October 26th
2008
8:35 PM

My mother is 40 yrs old and has RA and gets remicade treatments through an iv . It seems to help with the pain of her RA, but the side affects are out of control!!!! she has white puss pockets that show up on her hands and feet. She was told that that was her white blood cells dieing from the treatment. her hands and feet peel and swell making it hard for her to walk or touch anything. her throat has these awful spasms that make it hard for her to eat or drink anything. Theres so much more, it would take all day to explain! Is this really the price she must pay for RA relief??????

-- By chrystin | Reply | Private Message me

October 25th
2008
2:37 PM

Just got home from hospital. they drained a liter of fluid off my heart. I have been off remicade for almost a year now. I have posted many side affects on this list. I had to take drastic measures to get off Remicade. The sack around my heart had grown thick due to the pressure it was under. My many other side effects including soreness that moved all over my body and almost every other one I see listed here seem to be enough to pull this drug. I wish someone would take this serious. I need help with getting this info into my lawyers hands. because one week ago the doctors told me I was lucky to get the surgery I got. He said I was hours away from Death. Some of my side effects have got better but I still suffer from taking this drug. Don't be fooled by the short relief this drug can give. I was on it for 4 years. never again

-- By jbill | Reply | Private Message me

September 29th
2008
7:13 PM

Yes, at my second Remicade infusion, I got a stiff neck and severe pain, like a pinched nerve around cervical 4. The pain radiates down my right arm. It hurts 24/7. I also got this when I took Cipro! Today is my 3rd infusion and the pain is still there. The doctor says it is just arthritis, but this is not arthritis. It is a Remicade side effect. Analgesics so not help the pain.

-- By dimples | Reply | Private Message me

September 25th
2008
5:11 PM

I have been put through the wringer with Crohn's. 15 surgeries, all of my terminal ileum removed, 1/3 of my large bowel removed, etc., etc,- Those with sever Crohn's know.

I spent years on high doses of Prednisone, Imuran, Sulfasizine and other drugs and nothing worked.

I was even retired from the US Air Force due to its severity.

Remicade has help tremendously. However, some of the side effects listed above, I have also been through. Some of them, have been explained through other factors and those attributed to the Remicade I take other meds to offset them.

For example, Head aches. I figured the head aches were from allergies that I have had for some time. I attributed some of the headaches to the Remicade. The head aches are very sever after my infusions and decrease to a dull roar after that. I take four aspirin and Sudifed PE and this leaves me with a dull roar shortly after the infusions and does away with them till the next infusion - perhaps this will help some of you.

The muscle soreness is horrible and I take aspirin or Tylenol, but that barely takes the edge off.

I started get those little red dots. Then the dots turn to blisters. I get these on my hands, feet and scalp. My GI Doctor said it wasn't the Remicade, but a Dermatologist showed me a recent article that should Remicade could cause Psoriasis. I take Clobetasol Propionate for these and it has cleared them up.

I took the Remicade years ago and then it was stopped - it was the way it was done then - not constant, just three doses spread out over three months.

I got the tingling fingers during those. A neurologist attributed it to the Steroids I had been on. The nerve damage is permanent.

A few years later, they started the infusions again and I experienced no muscle soreness, headaches, etc. and it did not help the Crohn's as it had before. When I talked to my GI doctor he showed me a study that people build anti-bodies to the Remicade over time. They doubled the dose and it started working again. For those who are experiencing the Remicade not working - perhaps this is what has happened to you.

I get the mood swings, but had never considered it might be the Remicade. I will talk to my doctor about this one.

I have the blood pressure decrease during my infusions, but it has not been sever.

More recently, my joints have begun to ache and initially the Remicade had helped to stop the minor joint pains I already had. Come to find out, I have had bone thinning due to the Crohn's.

The one symptom I have started getting this week is random, sever pain in odd locations - not joints.. They have been deep and feel like they are in the bone. One midway up on my shine, one midway down on my foreman and one in my right thumb. Has anyone experienced this. The pain has been horrible and it does scare me.

I also suffer from depression, but have had it for years prior to the Remicade treatments.

-- By ben1961 | Reply | Private Message me

September 23th
2008
6:46 PM

after my first remicade treatment i developed a slight but constant headache,flushing

-- By luckysmom | Reply | (1) replies | Private Message me

September 23th
2008
6:25 PM

horrible . uveitis , shakes , balance off , , .muscle stiffness and pain. heart pain tremors .the tremors really hurt. went to emerg for shortness of breath many times . ive been off it for 4 yrs and still hurts just as much . how long does it take?

-- By laura10 | Reply | Private Message me

September 11th
2008
4:20 PM

My name is Alex, this is a 7 years since I have been on Remicade, The Remicade works well for me .
The only side effect from remicade I feel like I am not myself and I don't feel like do anything, and I don't perform good at my work, I don't like to think to deep or details work. My job is computer.
I get tired of things so easy.
Overall I am not happy person when I do my remicate.
Dose Anybody has these problem I mentioned????

-- By samimi | Reply | (1) replies | Private Message me

September 8th
2008
9:44 AM

I had my 4th infusion about 10 days ago and had a really bad reaction. I had just started the infusion when I felt uncomfortable cramping in my upper left arm then the pressure in my chest started. The nursing staff noticed right away and called the doctor who ordered them to stop the infusion. Just as they gave me a shot of benadryl to help control the bad reaction, I started to shake and pass out. Since that time, I've had terrible headaches and a very painful stiff neck. So painful that I haven't been able to sleep. It has been 10 days and I'm still experiencing the stiff painful neck and terrible headaches. I won't ever take this again. I'd rather suffer with the affects of RA than with these horrible headaches.

-- By mystory | Reply | Private Message me

September 7th
2008
9:46 PM

I have had 5 Remicade IV's. I have severe Psoriasis as shown on my photo of one leg. I have had no side affects that I can pinpoint. I now have a resp infection and sinus and cough it scares me that it may be Remicade. I would hate it my legs are completely clear. I was depressed before and would not go out in public. What do any of you think. It could just be a cold.

-- By rbanker4 | Reply | Private Message me

September 7th
2008
9:44 PM

I have had 5 treatments of Remicade and no side affects yet. But I seen the ad on TV and it scared me so I have been reading all this stuff everyone as sent in. I have a cough, runny nose, eyes matter, and sometimes shortness of breath. Can anyone tell me what they think. I take it for Psoriasis and it has completely healed. I felt like a freak before. I really want to keep taking it.

-- By rbanker4 | Reply | Private Message me

August 25th
2008
10:02 PM

My mom had Crohn's & just passed away at the age of 44. My mom died from a enlarged heart in which was due to taking Remicade for many years. We started getting stuff in the mail about all the side effects & worst things that could happen. Well it happened all the WORST things you could think of. IF YOU LOVE SOMEONE TAKING THIS MEDICAN let them know what it does !! I'm getting married in October, & my mother will not be there, due to DEATH FROM REMICADE !!

Good Luck to those on it, & try to get off !!

-- By katied08 | Reply | Private Message me

August 17th
2008
6:55 PM

a full week after my first remicade treatment, i suddenly developed a very severe headache, followed by a stiff neck, a stiff left arm, a sore jaw where i couldn't open my mouth very far and i could not chew, then developed a fever, chills and itching. It came on fast but also subsided a good bit within about 12 hours. has anyone else experienced something like this, a full week after a treatment?

-- By dwynn | Reply | (5) replies | Private Message me

August 9th
2008
9:23 AM

Remicade has totally changed my life. I could barely walk due to ankylosing spondylitis and I also suffered from severe ulcerative colitis. I still have pain, but nothing like it was 10 years ago. The ulcerative colitis has been in remission since my first infusion. If I die from taking Remicade tomorrow, I will be die happy. I was ready to die when I started the infusions!

-- By livingdead | Reply | Private Message me

July 2th
2008
11:05 PM

Centocor, the maker of Remicade, aggressively pushed physicians to set up infusion clinics, write for the drug and promised huge profits.Most of these infusion suites are run by nurses. The drug dose is calculated by a nurse and mixed into the iv bag by a nurse NOT A PHARMACIST. The drug, which can put patients at risk for serious infections and tuberculosis is not even mixed in a sterile IV hood !!! It is mixed out in the open air and exposed to contamination. In the meantime,Centocor downplayed the severity of the side effects. This drug actually caused LUPUS in a patient who subsequently won $19,000,000 in a lawsuit. The drug can greatly increase the risk of lymphomas and blood disorders with fatal outcomes. But the literature does not adequately educate patients and physicians on how to properly monitor the drug! The drug can cause memory problems, visual changes, and increased sed rate and increased c-reactiv protein.

-- By cathyxiii | Reply | Private Message me

July 2th
2008
10:16 PM

REMICADE IS DEADLY and the Cenjtcor downplays the severe side effects that normal blood work will not pick up. The drug causes and increased risk of lymphoma. WHY AREN'T THEY URGING PATIENTS TO GET A BASELINE BONE MARROW BIOPSY!!!! MARK MY WORDS...PEOPLE ARE GOING TO BE DROPPING LIKE FLYS WITH CANCERS FROM THIS TOXIC DRUG!!!!!

-- By cathyxiii | Reply | (1) replies | Private Message me

June 30th
2008
11:16 PM

The arthritis/crohn’s disease drug Remicade, manufactured by Centocor is a deadly drug and should be taken off the market. The drug has caused death and permanent damage to patients across the world. The drug company makes billions of dollars and downplays the side effects including the increased risk of lymphoma and blood problems. The company downplays infusion-related reactions saying that those reactions usually occur within 1-2 hours post infusion. Here’s the truth:

*Centocor has been reprimanded by the FDA for publishing false claims in its marketing literature given to physicians. See FDA website for official document.

*The literature lists syncope (drop in blood pressure), bradycardia (slowed heartrate), pancytopenia (dangerous drop in blood cells..platelets, whit blood cells, red blood cells etc, increased risk of lymphoma, serum sickness. The literature says to call MD if you are “pale”.

*Here is a case of what happened to a woman in her 30’s with rheumatoid arthritis after only the 2nd infusion. She was not on methotrexate at all so this is all Remicade’s fault. Approximately 2-3 days after the 2nd infusion the patient began to feel tired and sore but still worked an 8 hour shift that day. By 12 midnight the patient’s entire body flared up…every joint was literally swollen and she was vomiting violently.. She could barely get to a phone to call for help. Her blood pressure dropped to 50/40 and all of her blood counts plummeted. Her Sedimentation Rate (which measures inflammation had always been below 2 and it spiked to 29!!!) Remicade caused the opposite of what it was supposed to do. It also increased greatly her C-Reactive Protein which is also a measurement of inflammation and can cause cardiac inflammatory processes as well increasing the risk of cardiac damage. The nurse in the triage area told the patient that if she had not called for help SHE WOULD HAVE DIED !!! She ended up in the hospital for 5 days in an isolation room. She was in excruciating pain and had to be given Oxycontin every 12 hours and Dilaudid IV every 2 hours to control the pain. For the first 2-3 days she could not even walk or go to the bathroom without assistance. She was given high doses of prednisone to decrease the inflammatory process and get her pain under control. A hematologist performed a bone marrow biopsy which revealed an abnormal population of plasma cells that can develop into myeloma or lymphoma. The hematologist said that the patient would have to be monitored lifelong to watch the pre-cancerous cells. The patient was out of work for 3 months and was forced to change jobs because of her fatigue level and short term memory problems. She also suffered post-traumatic stress due to her near-death experience and total upheaval in her life. She is a healthcare professional. Even 4 years after the reaction her blood counts are still abnormal and she has still had short term memory problems and vision problems.

-- By lopi13 | Reply | (1) replies | Private Message me

June 26th
2008
9:20 AM

I have been on it for two months due to severe psoriatic arthritis. I'm taking the max infusions every four weeks, methotrexate injections and prednisone. I'm tired, sleepy, sweaty and somewhat nuts a lot. However, after last week infusion, I have some type of rash-little red dots that feel like pin pricks that itch somewhat. I feel like a thousand fleas are attacking me all at one time! Has anyone had this type of feeling? PLEASE reply-it is driving me nuts.

-- By nellie | Reply | (3) replies | Private Message me

June 17th
2008
3:56 AM

After 2 years on Remicade I slowly developed SEVERE JOINT PAIN all over my body, including my jaw. It's so bad I can't walk and do simple tasks. I have not been on any other meds.

The only thing that cures the pain and allows me to go back to work is another infusion. It's like CRACK.

Now the DR. has scheduled my infusions closer together and the pain just comes on sooner, like the medicine doesn't last as long.

I want to stop treatment in the worst way but I have been reading that the side effects do not go away - even after treatment has stopped.

Has anybody here discontinued their infusions???? Please help!

-- By bill713 | Reply | Private Message me

June 8th
2008
7:39 PM

I have been on remicade for 3 1/2 years or so and it worked great for a while I have severe crohns disease . but recently I am having severe joint pain and don't feel like it working anymore? has anyone else have this problem? the pain causes me to miss work and now seem to be having stomach pain just feel bad ?????

-- By athornton | Reply | Private Message me

June 8th
2008
1:10 PM

I have had 1 remicade infusion so far for ulcerative colitis. The next day a bunch of spots appeared on my lower legs. There were 30-40 of them, small, roundish, purple/dark red. They looked like blood spots under the skin.
It wasn't a rash and they didn't itch or hurt. My doc had no explanation, and I haven't heard of anyone else having this reaction. They checked my blood for a clotting problem and didn't find anything. The spots faded away over a week or so. My next infusion is in 2 days, so we'll see if they reappear.
I have also been experiencing a weird kind of insomnia where I am so physically antsy I CANNOT keep lying still, I have to shake my body or kick my legs or something. I read up on restless legs syndrome and the symptoms sure sound like what I am experiencing. I don't know if it's connected to the Remicade - I read that iron deficiency can also cause it and I am anemic due to the UC. But since Remicade can disturb the central nervous syndrome, it seems possible. Anyone else experience RLS with Remicade?

-- By kitty_d | Reply | (7) replies | Private Message me

June 1th
2008
12:24 AM

My son has side effect following third infusing...headache, acne like pimples, rash, mood swings, lose of short term memory, frequent urination, stomach spasms, and over all total body ache...now six weeks after last infusion...seeing two dermatologists, his regular doctor, and having to take a two week leave from work...my son finally showing improvement..his gastro Dr. wants him to go on with treatments of remicade...No, No, No...

-- By misterb | Reply | (1) replies | Private Message me

May 30th
2008
3:38 PM

Now a new side effect, I have posted other side effects that were enough to get off the remicade. I went in and had another surgery because the side effects of this drug was killing me.{see other effects I posted under Jbill} So now the Doctors are looking into Brain damage. I am going to have a MRI done to see if this is a reality, I feel as though I have lost my wits. this is not something that I came up with, it is starting to show up in others and is talked about among the doctors that treat us. I used remicade for approx 4 years and feel like it is a dangerous drug. It can work pretty good but would not take it on a regular basis. I will not take it again.

-- By jbill | Reply | (1) replies | Private Message me

May 24th
2008
12:35 AM

i will have my first treatment remicade this coming may28 2008,tell me if its a good idea????

tony k.

-- By tonyk | Reply | (1) replies | Private Message me

April 22th
2008
6:06 PM

I'm on my third infusion. Up till recently? It was a wonder drug. I got all my energy back, no more random joint pain and everything was going great. Then my third infusion happened. And I get jimmy arm. It's like jimmy leg, where you can't stop it from bouncing. Only worse. It's like my arm just won't rest. The next night? Both arms. The night after? Chest pains, racing heart, breathing shortness, all kicked off at 3AM with a lack of sleep. This is all very new to me and I'm waiting to hear from my Rheumatologist if I should go to the hospital or not.

-- By rr3000 | Reply | (1) replies | Private Message me

April 9th
2008
3:47 PM

Hello, my name is Rob and I have been on Remicade for the past 5 years. I had a reaction to my first Infusion, shortness of breath and feeling flushed. They then added Benadryl to all future infusions and everything has been fine until this last infusion in April of 2008. Halfway into the infusion my face became flushed, the person adminisitering the Remicade said it was hives, this was accompanied by tightness in the chest and headache. They stopped the infusion, gave me some Benadryl added to the IV, that did not work, they then added Solu-Medrol 125MG into the IV and it seemed to reduce the effects of my reaction. The infusion was completed and I went home. Upon arriving home I looked quite pale until that night. My face became red, almost as if I spent too much time in the sun and I have had a headache followed by chest pains. This condition has continued into the next day but it does not feel severe enough to go to Emergency. Should I be concerned or will this pass? Is it possible that I have been on it so long that I am now building up a tolerance to it?

-- By habsolutely | Reply | (1) replies | Private Message me

April 6th
2008
11:22 PM

off it 4 yrs still havin problems . blurry vision ,chest pains , achey muscles ( like fibromyalgia ) very painful . lost my vision 5-6 times the first two yrs .

-- By laura10 | Reply | Private Message me

March 21th
2008
11:37 AM

I had my first infusion of remicade with the benadryl on Tuesday since then I have had a very bad headache, stemming from the back of neck all the way over my left side to my eye and also a very painful stiff neck. I am literally inches away from surgery to remove my large intestine and this was my last chance. The good news is that it seems to be working for the UC but I am not sure I want to live with these headaches it is awful.

-- By melliep | Reply | Private Message me

February 8th
2008
12:32 PM

My experience with Remicade has not been good. On one hand it did help with the crohns. On the other I developed weakness and tingling in my arms and legs, joint pain, ankle swelling, I have difficulty walking now. I also have numbness on the side of my face and occasional sharp chest pain. I find I am very depressed. I'm at my wits end. It is horrible bing in constant pain. I'm thinking of just going it alone without any medical help. I was better off as a 117 pound, 5-'9" lady with only crohns to worry about. Sure swallowing anything felt like glass but it beats this.

-- By designercat | Reply | (1) replies | Private Message me

February 4th
2008
8:35 PM

I have been taking Remicade for years. At first it was getting the job done. I started having severe pain that seemed to migrate to different places in my body. Sometimes the bottom of my feet would get so tender I could barely walk. My finger would bend while sleeping and I could not straighten it for days and it would hurt real bad. Knees and ankles would do the same things and then move onto other parts of my body. I thought it was more of a tendon problem, but the pain could also be in any random spots on my body, like shins or maybe a random place on my back. My wrists seem to be a favorite place too. The pain can set in fast and sometimes leave fast. Prednisone is the only thing that seems to help these symptoms. I have been taking 5mg a day for years and when I am having problems that is not enough. I went to a Rheumatologist and he says it is not the Remicade but another antimmune problem. My family doctor thinks it is a side affect of the Remicade and I tend to agree with him. I am going to have my damaged pouch removed in hopes of getting off all medications. I have been living with a colostomy bag for the past three years and it is the least of my problems. Before that I had all my large intestines removed and a pouch which worked well for approx 15 years. I am one of the early people to receive that kind of surgery. I can only pray for all of you that are suffering and lend hopeful advise to your journey.

-- By jbill | Reply | (3) replies | Private Message me

January 30th
2008
12:44 AM

I have had one infusion of Remicade, and I had a headache and dizziness only the first day.But my Hemoglobin dropped to 74 which is critical low, is this common or what??

-- By maryd57 | Reply | Private Message me

January 4th
2008
7:28 PM

Remicade did wonders for me, my Crohn's disease went into remission. Still have muscle pain over a year after not taking it. Maybe that is from the Imuran. When I had my infusions I had to have Prednisone before & during because of an allergic reaction.

-- By gillisbarbara | Reply | (1) replies | Private Message me

January 4th
2008
7:28 PM

Remicade did wonders for me, my Crohns went into remission. Still have muscle pain over a year after not taking it. Maybe that is from the Imuran. When I had my infusions I had to have Prednisone before & during because of an allergic reaction.

-- By gillisbarbara | Reply | (1) replies | Private Message me

January 3th
2008
9:10 AM

Terrible headaches after infusion two. The headaches are intense and in the back of my head. They actually cause my neck to stiffen. They are also accompanied by blurry vision and double vision-especially at night. I'm wondering if these side effects will go away or if they will continue as long as I'm receiving Remicade treatments.

-- By smj12254 | Reply | Private Message me

December 20th
2007
11:16 PM

Had 8 infusions that helped a lot,but then things took a turn for the worst. During my treatment I GOT BUTTERFLY RASH ON MY FACE(drug induced lupus). I had small red bumps everywhere I have hair. My body then and still year latter always feel tired and ache. In April of 06 I went to have my colon removed, because the Remicade stopped working, and took my immune system down to nothing. My body could not fight off the infection. Four day after the colon came out my doctor had to open me back up. I was full of infection, it poured out of me. They took my innards out and washed them. Remicade and a weak immune system gave me sepsis infection. The infection clogged my heart and gave me a major heart attack. I was put in a coma for 4 days. They had to continually flush me with water and antibiotic. I did not remember the first 3 weeks of the nightmare. I had a respirator to keep me breathing for 3 weeks. Then a track for two more weeks. I had to be feed threw a tube, go to the bathroom using a catheter. I lost a total of 85 pounds and spent 41 days in the hospital, because of infection. My wife and daughter had to help me up two steps to get in my house. I was suppose to have my surgery April 06, get second surgery June 06 to get rid of the bag and use the pouch the doctor had constructed. Its 7 months later and the healing posses, because of the REMICADE has been so slow I am still waiting. I have a scope up my butt every 6 weeks to check the progress. I thank the Lord , doctor and my wonderful wife I am alive today. Remicade can be deadly, as my family doctor said its like playing with fire cracker. By the way I am 42 years old, my name is Mike H. from Lake city, MI. If you are on Remicade please keep a very watchful eye. If you get a infection , REMICADE has lower you body's ability to fight back. I wish the best for all who suffer from illness, GOD BLESS.

-- By mikeer | Reply | Private Message me

December 15th
2007
9:31 AM

Muscle pain in arms,numbness in fingers and hands, nausea and stomach pain within 4 days after each infusion (I have had 3 infusions so far for Crohn's Disease)

-- By lika37 | Reply | Private Message me

September 27th
2007
9:19 AM

I have had four uniary-track infections from Jan. 07 until Aug. 07. I have runny nose, allegery type sympons. lost taste/smell senses, burning/numbnes/tingling hands feet,muscle/joint pain feet,knees,hips, back, shoulders,upper arms, hands,dry mouth, dry eyes, vision problems/blurred/double vision and times cannot read news print,increased heart pallpation,insomina,headache. had to cancel last infusion due to unary-track infection and while on antibotic. In the past two weeks, i have noticed decrease in most of the above sympons, except burning/numbnes/tingling in feet, and swelling in feed and hands has disappeared. I was due for infusion today, I told Dr. of disappearing sympons, he delayed another two weeks. I also have been diagnoised with chrons disease. I want to continue to see how I feel in next two weeks, before scheduled infusion, other headache,nausea,stomach abd. pains.

-- By rmarybetzler | Reply | (1) replies | Private Message me

May 2th
2007
4:41 PM

I had 2 remicade infusions. I received benadryl 50mg IV before first infusion and had a terrible reaction to it. Rigor,shaking..at least an hour and while this was going on they administered remicade.
Bad headaches and some back pain ,nauseau first infusion. Infusion 2 neck pain,intolerable sinus head pain. Went to osteopath and most of the pain went away so it was from the stress of benadryl reaction. Hemoglobin dropped from 12 to 10.4 in 5 weeks but I also have genetic thalassemmia(anemia) and my diet ..well..almost none..vegetarian and iron content not as soluble.
Checked for rectal bleeding, urinalysis etc. All fine. Another cbc tomorrow and now dr. says if it's back up he knows it's the remicade and wants me off it(been stuffing myself with red meat, and all iron foods for nothing it seems) and if it isn't still no remicade. My skin has started clearing and now I will be very depressed once again after all of this..never mind the expense since my insurance company would not cover it.
Anyone else experience drop in hemoglobin drops?
Cierra2

-- By cierra2 | Reply | Private Message me

December 30th
2006
11:57 PM

Originally diagnosed with PMR and was taking prednisone in high doses for 2 years with ok results, except that as I lowered the mg of prednisone the PMR symptoms returned. New doctor diagnosed RA instead and put me on Remicade. After 4 infusions I am having severe muscle pain in my upper right leg. And on occasion the beginning of the same problem in my upper left leg. Affectsmy mobility and I am taking large doses of tylinol & motrin for the pain. Doctor says this is not a side effect of the Remicade. At first I believed him, but now am having doubts. Anyone else have this side effect?

-- By eugilio1 | Reply | (5) replies | Private Message me

October 23th
2006
9:04 AM

I've had 4 remicade treatments on my 2 treatment they had to stop it after bumping it up to 20 cc cause it started respitory problems and made my blood pressure go up. now when I go for treatments I have to take 75 mg of benedril and 30 mg of prednisone, now i'm noticing leg cramps, muscle pain, joint pain, my hair is falling out more than it ever did before. I'm not sure if this is related. Now i'm having bruises that don't heel up and, i'm getting sick with a respitory infection and i get frequuent migrains I also noticed tooth aches , i try to stay away from sick kids but for my crohns and ulcerates colitis i'm eather bound up or running for the restroom.

-- By tamara452 | Reply | Private Message me

April 26th
2006
5:29 PM

I had my second infusion, and a debilitating headache came on. I feel very grogy the day after and as of yet no real change in the way I feel. I suffer from Sarcoidosis, and my doctor feel that this will help with the immflamation. I was worried about the headaches, but I see that several people have experienced them also. If anyone is positive that the Remicade is the cause please note. I'll be checking in from time to time.

Bamm

-- By jadav721 | Reply | Private Message me

January 24th
2006
8:20 PM

My husband has been on and off with remicade for 3 years,he was in a car wreck last week,but not hurt,but the stress from it has flared-up his crohn's. Tonight he is in the bed with headache,fever,swelling of the feet and hands,node's under the skin,he tendon,s have tightened up and he is having problems walking,sitting up and just holding up his head. with crohn's he seem's to get a purple color under the eyes. After a while the remicade just want work,he has more arthritis now than he did before taking the remicade,but without it the fistula in his stomach want close up. after the treatment he does good for about 2 weeks and then he starts having problems with his joints.

-- By kimhawkins | Reply | Private Message me

September 28th
2004
8:06 PM

I have just went for my 7th Remicade infusion. I didn't even get a third of the way done with it. They had to stop it becuause I started to itch real bad and broke out in hives. I always get severe muscles aches about 2 weeks before my treatment to the point where I can't walk or move. My doctor always puts me on a two week treatment of Prednisone to make the pain go away. I'm hoping that this is the last of the Remicade for me. It worked wonders at the begininng but now my body just doesn't want it anymore. Anyone experiencing anything like this??Please email me! ******

-- By jenspiess | Reply | Private Message me

July 17th
2004
4:28 PM

I am taking remicade every 4 weeks i don't feel llike its helping because i have to be sedated to take the treatments and i wake up coughing and sometimes cannot funtion until 2 days later my fever keeps going up and down and its real scary sometimes i do not feel like i want to cont. the therepy i feel worse after it

-- By williamsdavjac | Reply | Private Message me

June 20th
2004
11:17 PM

I have had numerous remincade infusions over the last year or so, and for the last six months I have been fighting an upper respiratory infection and persistent cough. I am now convinced it is a side effect of the remicate that I was not warned about in sufficient detail. This has become a major problem and I will probably no have any more of the infusion, although my Crohn's in now out of control. Has anyone else experienced upper respiratory disress, cough and sinus problems following remicade infustions? email me with your information. Thanks. Max.

-- By maxsauler | Reply | (4) replies | Private Message me

June 1th
2004
6:57 PM

My daughter's doctor is pushing very hard for her to be on Remicade for her crohn's. After researching it on the internet I'm against it. T.B., M.S., deadly fungus infections all being reported. 2 hour infusions. Bad headaches. Not for my beautiful 19 year old daughter if there is any other way. I also suspect the profit motive for her doctor. The nurse can administer the treatment at $25000 per year while the doctor goes on yet another europeen vacation.
Am I wrong?

-- By dancin_quinn | Reply | (2) replies | Private Message me

July 31th
2003
12:38 PM

I forgot the blisters! I seem to be breaking out in round water blisters, and some "knotty" sores. The blisters look like someone burnt me. The knots are hard and very sore! How about these? Thanks, Mickey

-- By charitybal | Reply | (1) replies | Private Message me

July 31th
2003
12:34 PM

I have received two infusions. I get headaches, muscle pains, back ache, and today I had a sudden nosebleed for no apparent reason. I can cope with the back and muscle aches, because I have had them for years due to arthritis, but the headaches are going to kill me. Nothing seems to help them. Can anyone else share any thing on this? Is it because of the Remicade? Any help would be appreciated. Thanks, Mickey

-- By charitybal | Reply | Private Message me

December 4th
2002
10:49 PM

stiffness in hands 3 weeks out

-- By urnotalone_1970 | Reply | Private Message me

December 12th
2002
6:19 PM

Had my infusion yesterday about one week earlier than scheduled (ie five weeks rather than six). Was fine yesterday but this evening my head started to "swim" and I feel a little unsteady on my feet.
I don't know if this is Remicade or some interaction effect.

-- By psuschnigg | Reply | Private Message me


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