Reglan and neurologist

THIS IS A HORRIBLE DANGEROUS DRUG!!!!!
Doctors prescribed this to my mother for 5 years!!!! Because of it's devastating side effects it is FDA approved for short term 4-12 weeks and only as a last resort. And NEVER for Parkinson's patients. It is unclear if Reglan caused the Parkinson's like symptoms or if she had it prior. Either way the doctor was so wrong to prescribe this medication to her. She is completely disabled can't walk or even get out of a chair had a auto accident and falls one time a metal frame fell on her head causing a hospital visit another time she fell into cactus! I was horrified to learn that no one caught this error. Not one doctor or the drug store told my parents REGLAN could cause her to end up using a walker and unable to function even the simplest daily tasks and that these symptoms could be permanent.

My little boy who is now 4 has been off the Reglan for two years. I really thought my husband and I were doing the right thing by putting him on the Reglan at 8 months because he was vomitting blood. The gastric doctor said he had to be on it plus prevacid .Well I WISH WE HAD KNOWN THE SIDE EFFECTS. Now my son is in the process of going to a Neurologist next week because they think he might have Tardive Dyskinesia . He has the symptoms of it on and off for a year now and the doctors have said it is from stress not possible because all of the stress therapist we have taken him to say he is not stressed. I would like to say one thing do not put your child on this drug because it could be the biggest mistake of your life . This is a disease that can not be curred.

Hi I was on Reglan for over six years for IBS and nausea.My GI never mentioned any side effects from use of the medicine.I have a c-spine injury that has caused some neuropathy. I never thought that symptoms that I have like extreme restlessness,shaking of my hands,feet and toes,sucking my tongue,my mouth puckers,my lips shake,my jaws tighten up,I now have a facial tic.I never even considered that taking the Reglan for so long could have caused these side effects until I was recently taken off of the medicine by my GI.He said that long term use could cause undesirable side effects like a facial tic.(Now he mentions side effects after over six years!) I then came home and looked it up on my computer and found all of these sights! I really need to get to a Neurologist one that specializes in movement disorders.If I had known of all of the side effects before taking the Reglan I could have prevented my Tardive Dyskinesia today!! My advice is always check the side effects of any medication before taking it.If only I would have I could have prevented so much long term damage! Pharmacy Companies should have better guidelines for testing their drugs before being allowed to have the drug on the market.We must send a clear message that as the public we demand better practices from our FDA.

I had to have my appendix removed -- told them before surgery that I had very bad chronic acid reflux, so I guess that's why the surgeon wrote orders for them to give me Reglan right after the surgery -- he did not specify for how long, and they kept giving it to me every four hours for the next day or so. Within 24 hours, I had terrible nausea causing violent dry heaves (there was nothing to throw up because I hadn't eaten anything for the previous 24 hours. When I did try a few sips of water or broth, I would immediately vomit that back up). I was dry heaving so hard and so continuously I was afraid I was going to break my stitches from the appendectomy. Also had extreme shortness of breath, like I was having an anxiety attack, extreme stiffness/pain in my neck and head mucles, like the back of my neck and my head were being crushed in a giant vise grip. Felt very dissociated and had trouble focusing my eyes and focusing my attention on anything. .
If I laid down to try to rest, the shortness of breath would get worse -- would feel like I was suffocating. So then I would get up and walk around a little to try to breathe better, and the violent dry heaves would start again until I was so exhausted from them I would try to lay down again to rest a little. Then the shortness of breath would start up again, and I would have to stand up . . . I went round and round like that for a solid 24 hours, no sleep, until the surgeon showed up for his rounds and decided I might be having a reaction to the Reglan, that he hadn't intended for them to keep me on it for that long. They took me off the Reglan, then the surgeon and my regular MD called in a neurologist who prescribed Flexaril for the neck stiffness and Phenergan for the nausea, instead of the Zofran they had been giving me, which wasn't helping.
Within 30 minutes of my first doses of Phenergan and Flexaril (and I had been off the Reglan for about 3-4 hours by then), I was sleeping like a baby, and continued to rest comfortably throughout the night, and was able to go home the next day with prescriptions for Phenergan, Lortab, and Flexaril. I will never, NEVER allow anyone to give me Reglan again -- I seiously felt like I was dying, and it scared the h*ll out of both my husband and me, because I am not the "sickly" type at all, The entire episode was a nightmare, and I am convinced it was directly related to the Reglan.

Upon awakening each morning, horrific tightening of the buttocks and legs which makes it very difficult to take a shower, brush teeth, etc. This lasts for approximately 1 1/2 hours and then stops. This has been going on for several months now. Going to a Neurologist this week.

I went into the hopital for a bowel resection. They gave me Reglan after the surgery. Within in a day. I had strange feelings, restlessness, edgy and could not stop moving. I walked the hopital for hrs and hrs. One nurse said I was having anxiety attacks and gave me ativan. They released me after 9 days. I was back in another hospital that same night with a bowel obstruction. They pumped me with more reglan. I became very shakey and felt like I was going to fall apart. I stayed in that hospital for 19 days. When they released me I had to go back and see my original surgeon. I told her I thought the reglan was doing strange things to me. She just increased my ativan and told me I had to take it for at least 3 more mos or I could end up back in the hospital with another bowel obstruction. I started to have head shaking episodes about once a week but I still thought it was anxiety. Then after being off reglan for 1yr, I was still having attacks only every night. I saw a neurologist and she said I had permanent damage to my brain from taking Reglan and now I"m on Parkinsons medicine and ativan to try and control the symptons. I will never be the same and would not recommend this drug to anyone.

I was perscribed Reglan to counteract stomach discomfort while taking a strong third course of antibiotics for a persistant sinus infection. I generally felt fine before taking Reglan, exept for the general sinus infection symptoms. So, after taking the dose of Reglan, I went to the store to do some shopping. While walking down the aisle, my eyes rolled up inside my head. I though I was going nuts and could not understand why I could not look down - kept trying with all my might to move my eyes down, but they wouldn't. I carefully drove home (very nearby) and went to bed - it was VERY painful, as my eyes went all the way up and I could no longer see. 4 hours later, I was fine, but hadn't realized that the Reglan was the cause until I took the second dose and went through another 4 hours of hell.

A neurologist has since told me not to take compazine either, since people who have this severe of a reaction to Reglan may have it with compazine, too.

Another note - Went to the ER recently with severe abdominal pain (turned out to be due to Vioxx!), and noted in the chart that I was allergic to Reglan. Once in an ER bed, a nurse came at me with a needle. I asked what it was, she said, "Just something to help with your tummy". I asked more stongly again what it was, and she said Reglan. I told her to check my chart first - I'm allergic.
** If you are somseone with allergies or reaction to meds - ALWAYS ASK WHAT YOU ARE BEING GIVEN, or make sure someone is with you who can!! **
I can't imagine what would've happened if I had let her give me that shot...

My mother was prescribed Reglan following surgery for colon cancer. She had delayed gastric emptying and also had pre-existing hiatal hernia and GERD. She was kept on the Reglan for 3 years, now has Tardive Dyskinesia. It is pitiful to observe. She has constant involuntary head jerking (side to side) and involuntary mouth movements that look as if she is chewing. We only found out recently that the problem is Tardive Dyskinesia, when she was referred to a neurologist with suspected Parkinson's Disease because of "stiffening" of the extremities and tremors. Parkinson's was ruled out, instead we were told the muscular stiffness, along with the involuntary movement disorder, is due to the side effects of Reglan. It is a dangerous drug.