August 13th
2008
3:02 PM
53 year old female who has taken "F" for almost 2 years - the past two months was the generic version. Have noticed a gradual onset of joint pain and heart palpitations, but am not one to see a doc unless I feel like I'm dying... So I wrote it off to aging. (-:
A friend recently mentioned that she had heard that Fosamax causes bones to be brittle, which caused me to wake up, look around and see what people are saying and what new articles or research are out there. Yeah, sure - there are lawsuits. Not a surprise in our litigious society. More importantly, however, are the comments from real people. Thanks to you who've posted your experiences!
I stopped the drug several weeks ago and seem to have an increase in joint paint. But I'm not going back to Fosamax! Also interesting to me is that around the same time I stopped the drug, I experienced an uncharacteristic downward shift in my mood/mental state. Not sure if there's a correlation to the drug or not...
It is reassuring to see some comments from people who indicate they feel better after weeks/months of being Fosamax free. I am a "gym rat" and very fit/weight appropriate. Weight training and nutrition will be my treatment of choose for osteopenia for now. With time, I am confident that the symptoms I'm experiencing will subside. And any future ailments for which I am prescribed a drug will be very carefully researched by me beforehand.
Be careful out there and stay informed!
July 9th
2008
12:17 PM
My sister was on Fosamax for 7 years. A few months ago she was walking and her femur broke... After surgery and check up it was determined that her other femur had a fracture in it too so she needed another surgery. This is all from a drug that is supposed to make your bones stronger. They are just finding out about this side effect. Recently they told her that if you have thick bones, you should only take Fosamax for 3 years. Personally, I will NEVER take this drug.
-- By nancy333 | Reply | Private Message me
February 29th
2008
12:21 PM
I had pain in my lower back and left side of my hip, while sleeping, the pain woke me up. I've been on Fosamax D for nearly a year, but I've been reading about the terrible side effects, that I am not taking it anymore, even if my doctor insists that it does more good than bad for my bones. I stopped taking Fosamax D for about 2 or three weeks and the pain stopped, thank God. I am looking into other natural alternatives like Vitamin K2 to build strong bones, in addition to Calcium supplements, Vitamin D and magnesium, and yesterday I read about the best Vitamin D comes from exposure to sunlight.
-- By donata | Reply | Private Message me
February 22th
2008
7:58 AM
I have been on Fosamax since 2003. In 2004 my left hip starting hurting so bad it would wake me up during the night. I had dislocated my left hip in 1994 so we put the pain down to complications from the accident. The x-rays were fine however so she sent me to a Rheumatologist to see if something else was going on. He told me I had Inflammatory Arthritis (even tho there were no markers in my blood) and put me on Plaquenil. After 6 months, the Plaquenil had done nothing but the Rheumy wanted me to stay on, and truthfully, I was afraid if I went off, the pain would become worse. Next came wrist pain so severe at times I couldn't lift a glass without wincing.To make a long story short, the joint pain has continued to migrate throughout my body. My thumb joints (where they join the palm) are so painful I can't undo jars or bottles, the small bones in my fingers ache all the time. I also get shooting pains in the long bones of my left leg and both arms. Back to the Rheumatologist last week. He said the Plaquenil was not working so he gave me an RX for Methotrexate 20 Mg once per week. This drug is one of the first-line chemo drugs for Cancer and it's effects on the body can be devastating. I have been crying since last Wednesday and had just decided yesterday to start taking this medication. I sat down at the computer to just test the drugs I am currently taking and one by one entered the drug name with "and joint pain". Plaquenil came up with only good things such as "less joint pain" etc. Mobicox also came up with good things. I entered Fosamax "and joint pain" and the top 15 hits were unbelievable. It was my problem in each and every article. I am dumbfounded. I have been seeking Dr.s help with my pain for 4 years, a GP, a Rheumatologist (2 actually) and an Orthopod, not one of these people ever mentioned a problem with Fosamax! What is going on. I am NOT going to be starting the Methotrexate and I feel I have been given dangerous medications over the past four years which I should not have been taking. I was a Personal Trainer and aerobics instructor for 12 years - now I can barely get through a yoga class without modifying the stretches because the pain is so severe.
Thank goodness for this site. I have made an appointment with my GP but I am stopping the Fosamax today (it was my day to take it). I pray I can regain some of the pain-free movement I used to have. In closing, I do have to say that I have regained some bone mass on Fosamax but...was it worth it? Was there another way I could have done this? Who knows. How long does it take for the pain to lessen after dropping Fosamax?
-- By deenen | Reply | Private Message me
February 3th
2008
12:14 AM
Thank-you for this site! After reading all the testimonials I was greatly helped in realizing I was not alone in the terrible side-effects I was having since being on Fosamax for the past 5 months. A week ago the pain got so crippling I could barely walk,---left hip was awful, pain going right down the leg. It was hard to even sit without pain... X-Rays ordered by our internist revealed no new fracture or injury. I was on 70 mg tablets once weekly. Fortunately a lobotomist lady told me while taking my blood that the pain she had when on a Biphosphate medication (Boniva) crippled her with such pain she had to stop working! My internist is unable to accept the fact that Fosamax is the culprit causing the horrible pain...and although he has asked me to continue it, and use acupuncture to alleviate my pain, I HAVE TAKEN THE LAST DOSE Of IT AND HAVE INFORMED THEIR OFFICE...Many of the postings reiterated what I have suffered the last few months. The capstone came yesterday when an adult doctor-student of mine told me he would not take any Biphosphate drug and feels that like Vioxx the FDA in time will HAVE TO TAKE IT off the market. In the meantime, you folks are doing a wonderful service in helping your fellow-beings make wise decisions! I feel doctors prescribe these drugs in good faith,---after all their training is drug-oriented...I am thankful there are also Natural Alternatives and this is the route I plan to take! Blessings on all you dear folks out there who are victims of drug-reactions....The good news is that I understand most symptoms will be relieved when we stop taking the drug....Also, aural surgeons will not do surgery on any patient until they have been off Fosamax or any Biphosphate drugs FOR SIX MONTHS.....THANKS AGAIN FOR THIS SITE AND ALL OF YOU WHO POSTED ON IT....You have all helped me make a wise decision...Thanks again and God bless!
-- By musiclover8 | Reply | (2) replies | Private Message me
January 22th
2008
4:37 PM
As a prime candidate for osteoporosis I was prescribed Fosamax at least 12 years ago if not longer. At the time I started taking it, my mother was very ill and did pass. That was when I noticed small 'jumps' in my legs at night which I attributed to the stress of the time.
Over the years, the 'jumps' increased in intensity to almost convulsive movements of not only my legs - but my arms - head - neck - torso. There were times when I thought I would be flung from my bed or dislocate my joints so strong were the muscle contractions. It was impossible to get to sleep and I was often woken from sleep by a convulsive movement.
I went to the Seattle Sleep Clinic for help (around 2000/01) after 5+ years of progressive worsening of these symptoms. Unfortunately, the doctor only wanted to fit me into the 'restless leg syndrome' in spite of my constant statement that I had NO feeling of 'creepy crawly, etc' before the convulsion. None. They just whipped me about out of the blue. No resolution.
About two months ago I ran out of Fosamax (actually taking a generic here in Mexico) and (for whatever reason) I did not refill. Since then I have noticed a HUGE lessening in these god-awful, annoying, scary convulsive movements. I have made no other changes in medications nor can I think of anything else that would cause this reprieve. A "milagro" isn't likely.
I haven't seen this side affect listed and am wondering if any other people have experienced this 'convulsive' problem?
Gracias,
Jillian
July 25th
2007
1:38 PM
Well.....I've had two good bone density tests (the proper test)...the last i had was in 2002, and showed an actual increase of density of 7.5% in one hip, and 4% somewhere else....I was THEN put on Fosamax by my dr. because I am "white, thin, hysterectomy and smoke...." and said he wanted to keep my bones healthy. Hence, I've been on this since. I'm now wondering.....I had alopecia (hair loss) 2 years ago, just patchy, it's back in fine, no recurrence. I'm seeing a chiropractor now, as I feel constantly "pretzeled" My head feels like it weighs 100lbs on a wobbly neck, my fingers are often sore, one of my knees is dodgy, ....we have no athritis, osteoporosis in my family, I cannot remember a female breaking a bone! I just don't feel great all vague feelings. I exercise every evening 20mins on a glider, I'm 105lbs, I eat a sensible diet, I do everything at 100mph, so not sedentary! I go for my Bone density the end of this month, and I have a feeling this is the end of my Fosamax!
-- By camberwell | Reply | (1) replies | Private Message me
September 14th
2006
9:45 AM
I was put on Fosamax in 1997 after a total hip replacement and was told that studies show it maintains the bone growth around the implants (I later discovered this is not proven) Oct. 2005 I had a spontaneous fracture of my pelvis. After doing much research on my own I have discovered that others have experienced this as well. Still no warning on Fosamax insert. Apparently Bisphosphonates (Fosamax and Actonel and Boniva) cause severe repression of bone turnover which is what actually makes the bones strong. No one should stay on this drug for more than 5 yrs. You do not lose any of the gain you have gotten when you quit as Fosamax stays in your body forever.......GREAT!
-- By caconner | Reply | Private Message me
March 24th
2006
7:42 PM
I had many of the named side effects so refused to use fosamax and actonel.
I searched the internet to find other help. was buying many minerals. Finally tired a suplement that contained most of those recommended. I buy it from independent health food stores.
It is called BONE UP .
I got tired of taking the recommended 6 capsuls each day. so took only 3 capsuls. Just had a bone density test scan. two years after last test and found that my bones had improved.!!!! the nurse that gave me my results was very impressed. Still need to let my docter know what I've been up to.
-- By thecybermission | Reply | Private Message me
June 1th
2005
9:28 PM
I've taken Fosamax for about 3 years. About 4-5 times now, 1 week after taking the pill I will get a one sided awful sore throat along with a lot of heartburn and bad burning sensation from stomach to throat. Feel totally worn out and depressed, very weepy (all very unusual for me). This usually lasts several days, I am on day 9 right now with no sign of let up and I've about had it. I only take the pill once a month as that has seemed to do enough for my bones at this point, but I still get this side effect now and then. I don't know whether to see my Dr at this point or keep riding it out. I did not see this particular side effect on the list from anyone else here. My Dr. said it wouldn't be Fosamax because if you react it will be within 12 hours. I don't agree, this happens the same way every time it happens. It has to be the drug. I worry that this might be doing some long term damage??
-- By deedeemurry | Reply | Private Message me
March 12th
2004
11:50 AM
After taking just 2 weekly pills (70mg) I felt so sick. I'm talking about a severe pain in my middle upper chest that felt like something was stuck there plus dizziness. I know the pill was not stuck because it is small. I drank the 8oz of water with it & was sure to wash it down, but this feeling was not going away. My doctor told me to take it for another 2 months & that she may change me over to the Actenol. I was never sick like this in my life. I stopped taking it, a week went by & I still have this pain in my chest, not as severe, but I wish I could put my hand in there and massage it. It worsens every time I eat a meal. Thought I was going to have to go to the ER the other night. The only thing that made it feel better was eating ice cream. I feel this stuff does to your esophagus what Draino would do to a pipe. It probably ate away the sensitive tissue lining. I'm just going to drink soy and take calcium vitamins and walk more. I'd rather have weak bones, than something really awful happen. It's just not for everyone. Easy for the doctors to tell you what to take, they should try a few doses.
-- By pamrncc | Reply | Private Message me
August 17th
2008
10:00 PM
I am a 72 year old white female who has been on Fosamax over 5 years for osteoporosis which runs in my family. In December, I had severe discomfort in the thigh area of my right leg. X-rays ordered by my GP showed nothing. Sent me to orthopedic surgeon whose x-rays also showed nothing. He ordered bone dye test which showed stress fractures of BOTH femurs. No one, NOT EVEN THE ORTHOPEDIC SURGEON, could figure out how it happened since I had not fallen or had other trauma. When I began to do my own research, I found answers to other problems I had been experiencing, for which no one had answers.....bone and muscle pain, hair loss, depression. I realize doctors are overwhelmed with info but I am especially disappointed in the orth. surgeon who should have known this was a possibility since the study came out in The Orthopedic Journal. As I continued my research, I find that women have been experiencing these side effects for years. I was previously very active and a dedicated walker, but this has robbed me of my confidence since I fear breaking other bones. The femur is the largest and strongest bone in the body and if I broke both of those with no trauma, what else could happen? I want to get the word out to women but am not sure the best vehicle for that. Any suggestions? There are Fosamax lawyers anxious to jump on this but I am more interested in spreading the word, not litigation, however I think there are possibly many unreported cases of the Fosamax side effects just because people don't know where to turn.
-- By sandyj1936 | Reply | (1) replies | Private Message me