Suspicions symptoms and conditions

My daughter had been on singulair from the time she was 8 yrs old until she was 14. This will sound as if I am a horrible mother but I just thought that she was a raging bitch. Without my knowledge, she stopped taking her Singulair for a few months and she became a different person. She was so sweet and loving. One night she came in my room having an asthma attack and I asked her if she was taking her meds, she admitted that she had stopped taking her singulair and I got on to her and immediately got her prescription refilled. Within a few days of taking the singulair she turned into a raging, screaming emotional wreck, a TOTALLY different person. I feel so bad that for 6 years of her life I put her on medicine that caused her to have screaming, uncontrollable tantrums, and severe mood swings that caused her to be miserable. It does seem to be the only thing that effectively controls her asthma symptoms but the emotional havoc that is causes her and the people around her is not worth the benefits. We have an appt. with her doctor to see what other options we have.

hi everyone, i'm a 36 y.o. male and have been on and off of prednisone for 25 yrs. my experience has always been more positive than negative with taking this drug. it has helped me to breath better and has made me to feel extra healthy and even physically stronger. but i have my suspicions about this drug also. it has given me a false since of good health and i feel like i want to keep taking it just to feel better. i have only taken the drug after an asthma attack for about 5-7 days. early on the only side effect was increased appetite and occasional insomnia. but the last time i took this drug the doctor increased the milligrams and a VERY UNUSUAL side effect occurred that never happened before. I HAD HALLUCINATIONS! i have never had these side effects before and on the leaflet of possible side effects that came from the pharmacist for the very first time i saw hallucinations listed as a possible side effect. the hallucinations were damn near demonic in nature. the experience went like this... i woke up in the middle of the night to use the bathroom and on my way to the bathroom i passed my dresser mirror and in the mirror was writing on the mirror in a mist! just like it would be when you get out of the shower and take your finger and write on the mirror. THERE WERE LEGIBLE WORDS ON MY MIRROR! mind you this is in my bedroom and the shower was off! at that point i refused to read what i saw in the mirror! it was weird enough what i saw i didn't need to read it. i refused to be fearful at that point cause i realized i was hallucinating and not getting a haunting. when i woke up later i went back to the mirror and of course no writing in the mirror. IF THERE IS ANYONE WHO HAS EXPERIENCED THIS PLEASE TELL ME YOUR STORY PERSONALLY! MY EMAIL IS ******! i would like to know that i'm not alone in this. to make it easier for me to see your response please type prednisone in the subject box on the email cause i receive a ton of emails and spam. and i would really like to hear other stories and experiences of taking this drug with very weird side effects!

August 5, 2008

Thank you for this website. These testimonies has confirmed by suspicions of Advair's side effects.

I am 52 years old and was diagnosed with adult onset asthma 10 months ago. My physician prescribed Advair (500) and Albuterol inhaler. I was instructed to take the Advair 2 times/day and Albuterol 3 times/day. During the last few months, I have noticed a slight weight gain, fatigue, hoarseness, dry mouth and occasional insomnia. The hoarseness has resulted in 2.5 weeks of losing my voice. Also, I have noticed that my recovery from a prior illness, such as cold, was very slow.

As a result, I discontinued the Advair and use the albuterol as needed. My voice began to returned to normal in two days and I am feeling much better.

Now I am wondering if I am experiencing drug withdrawal symptoms due to discontinuing Advair five day ago. The following symptoms are: dizziness, and needle-like tingling in hands, feet and side.

Again, thank you gals for sharing you'll experience with Advair.

After reading these posts, I am glad I didn't change my mind about having the MIUD removed. I have had all sorts of problems since that evil piece of plastic was inserted. I didn't think much of it at first and thought maybe I am just tired because I have my period and cramps alllllll the time. The relationship I was in was bad and thought maybe I was tired and moody because of that. After a couple of months - boyfriend free - things didn't change. I had horrible mood swings, my concentration was shot. My work ethic went down the toliet, I felt like a 10 year old kid with ADD. No energy, back hurt on a regular basis, carpal tunnel came back with a vengence and TMJ (I don't know if that's related but I've never had it before), acne, weight gain, no sex drive, and a constant itching around my neck. I am sure the NP was ready to try to talk me out of it and wait the full 6 months for "side effects" to go away. Well, the last 5 sucked, I really didn't want to deal with this crap any longer, besides with the price of gas, I can't afford the money for the regular buying of feminine products. I am only 6 hours free of this and I am already feeling a little better. I don't have that "pressure" you feel in your belly and a have bit more energy. I am so looking forward to the next few weeks when things start to get back to normal!!! If you have any doubts about this thing....get rid of it. Its really not that bad to get it out, 99 times less painful than getting it inserted!!!

I had my Mirena removed three days ago and I already feel like if my life is back. I had Mirena since January of 2006 and I had been feeling like another woman for the last six months...The horrible side affects included: Lower back pain, fatigue, depression, cloudiness, slurred speech, rapid heart rate, thinning hair, high blood pressure and the list goes on.....I can't thank one of my co-workers enough for opening up my eyes to take this thing out of me....Of course the doctor told me that the Mirena had nothing to do with the way I was feeling, but I decided to have it removed anyways. He sent me to do some bloodwork, so I did this morning...He's blaming the way I felt on my thyroid....I'll keep you posted....No matter what.... I am glad the Mirena is out!!!

My doctor wants to give me Yasmin due to bad pms every month. I am already on meds for mood disorder but they don't seem to budge the monthly aggravation and agitation I suffer. I am 43 and do not need a BC pill as I had my tubes done a few years back but he feels this may be the answer for the pms. I had an oblation procedure done last year and only have a 3-4 day mild period anyway. Is anyone else in this situation? Should I take this pill ?

I am so glad I found this site as it has confirmed many of the suspicions I've had about advair for quite some time. I've had the hoarseness, dizziness, memory loss, major weight gain, and major cramps and leg pains. I was even diagnosed with rheumatoid arthritis because of the non-stop joint pains etc... The doctors too insisted that non of my troubles were due to the advair and I find this completely maddening that they lead patitents to believe that something is safe when it is not! About 9 months ago, totally fed up with the state my health has fallen to, I began alternative medicine-- acupuncture and am starting homeopathy soon-- and the results have been very promising. I am not using rescue inhaler at all and am weaning myself off the advair. I am starting to feel best I have since I was diagnosed with adult on-set asthma. I would encourage anyone to explore these safe alternatives and would also like to know if anyone has found any "safe" replacement for advair which does help control asthma symptoms w/out the HORRIBLE side effects?

DO NOT TAKE AS A BIRTH CONTROL PILL!!! THE DOSE IS NOT ENOUGH TO PREVENT PREGNANCY. WORST SIDE EFFECTS OF ANY PILL I,VE BEEN ON. IT IS NOT A GENERIC OF ANY OTHER PILL. NOR IS IT MEANT TO BE A BCP. IF YOU WERE SWITCHED TO THIS BY YOUR PHARMACY (IN MY CASE WALGREENS) GO TO YOUR DOCTOR ASAP TO SWITCH TO SOMETHING ELSE. AND REPORT THE PHARMACY. MY DOCTOR TOLD ME THAT THIS PILL IS BASICALLY AN "OLD LADY HORMONE PILL". IT IS AGAINST THE LAW FOR A PHARMACY TO SWITCH YOUR MEDICINE EVEN MORE SO WHEN IT IS SWITCHED TO SOMETHING OTHER THAN WHAT YOU WERE TAKING IT FOR.

Follow up to my post earlier today...

I took the my son to the doctor this morning and he was somewhat dismissive of the recent reports on Singulair...says he's had a lot of kids on the drug and never heard a peep about side effects until last week when the report on suicidal tendencies showed up. He did advise that when these kinds of behavior changes happen after a new drug is started he would recommend that we stop taking the drug no matter what it was, but I still felt uncomfortable with his response to us.

I felt like he was accusing me of making it up or only coming up with it because of recent news and message board posts. In fact, I made the appointment BEFORE I saw the posts. I was worried about his behavior BEFORE I saw the posts. It's just that seeing the stories from everyone else basically confirmed my suspicions that it might be the drug causing the problems.

I feel like I definitely wasted OVER AN HOUR waiting for a doctor to spend five minutes making me feel small.

Last night was the last time my son will take the drug, and I don't care what the doctors think of me.

Repeating my post from way down below - IN CASE someone's child with these head drops is looking for someone with similar symptoms.

WELL - Thank God! It is so about time! My son, age 6 now was given a very grim outcome/future by two top pediatric neurologists 2 years ago when he started having not the typical seizures we associate with epilepsy (no epilepsy in our family) - his head would drop forward - like his muscle tone in his neck would collapse for a few seconds and he would literally bang his head on tables (this was when he was 3.5 yrs old) - my husband and I always knew in our heart of hearts it WAS THE SINGULAIR he had been taking for 1 year after he had a bad coughing spell the year before - not formally diagnosed with asthma - but the pediatricians insisted it would only benefit him to continue to take it. When we noticed these head drops and his eyes would at times roll back in a matter of just a second or two and he was the most loving, caring and affectionate child and turned into an aggressive and obsessive compulsive child, who also began to have HALLUCINATIONS at night - he would sit up in bed and be seeing things and scream and cry, WE JUST KNEW IT WAS THE SINGULAIR and we stopped it COLD TURKEY on Oct. 31st 2005 - against the advice of the pediatrician. We took him to a neurologist and we told him about our suspicions about the Singulair he, just like the pediatrician brushed it off, but he had an MRI and an EEG - the MRI came back normal, but the EEG was devastating!!! We were told to get ready and pray a lot - that our little boy would become a vegetable and would require assisted living for the rest of his life. That he had a rare form of seizure disorder for which there was no cure.
We took him then to Duke University Hospital and had him checked by the top pediatric neurologist for a second opinion - he gave him another EEG and the diagnosis from this dr. was even worst - he would probably die an early age due to the severity of his condition and that he would lose all his motor skills and regress to a vegetable. Those were the worst days of our lives. We went back home and put him on anti-seizure medication and prayed A LOT - even strangers added him to their prayer list. Well, the seizures stopped in late January 2006 and just last March of 2007 he had another EEG and it was NORMAL - he was weaned off the anti-seizure medication and is thriving and his a great kindergarten student.
Doctors cannot explain how he was cured - there is just no explanation.
Aside from the faith we have in God's hand in this cure, we just KNOW THAT STOPPING THE SINGULAIR saved him from further damage and probably loss of life.

He is the most affectionate and caring little boy you can imagine and I do want to point out that his speech was affected in our hearts, we know it was the Singulair but in the last year his speech has improved dramatically and he is doing just fine.

My husband and I have been struggling to get awareness about the dangers of Singulair and children but the doctors do not believe us. At our last appointment with the pediatric neurologist, I told him, "one day, you will see that we were right about our suspicion regarding Singulair".

I do want to add that it was just too much coincidence that when he went for his first EEG in Dec. of 2005, there was another little boy in the room next door that his parents suspected Singulair as the culprit too.

If anyone wants to email me and if there is anything I can do to help with my own personal testimony - please email me ****** - I will be glad to share any other information.

LET'S RAISE AWARENESS TOGETHER and stop more damage from occurring. Remember, my son (post is far down) almost became a vegetable and was given a grim prognosis by 2 pediatric neurologists including the top one at Duke. No cure we were told. But we always knew it was Singulair. He was cured and there is no medical explanation. Had he continued to take it he would be the vegetable they had predicted he'd become.

Okay, I just emailed DATELINE NBC - please be sure to submit your children's adverse reactions story to them - here is the email address:
*******

I also tried emailing ABC for PrimeTime and 20/20 but they use regular snail mail for story suggestions - please do your part and mail out your story to them at:

To submit a story idea to one of the ABC News shows listed below, write a single page letter including your name, phone number, and address. Include photocopies of backup information. On the outside of the envelope, write "Story Idea." If a producer is interested in your story, he/she will contact you. Here are the show addresses:

20/20
147 Columbus Avenue
New York, NY 10023

Primetime
147 Columbus Avenue
New York, NY 10023

Together we will do something to help avoid more tragedies

I went ahead and reported our experience online to the FDA:
https://www.accessdata.fda.gov/scripts/medwatch/medwatch_online.cfm

FILE YOUR REPORT - TOO.

My almost 7 year old son was prescribed Singulair 3 years ago for severe asthma and allergies. It worked great--for a while. No hospitalizations, incidences of bi-lateral mucous plugs and pneumonia decreased, etc. I thought it was a miracle drug for him. This past summer/fall however, the nightmares, sleepless nights, multiple sinus infections, moodiness and mild anxiety, extreme hunger (he can now eat my 6'7" 260 lb. husband under the table and my son only weighs 52 lbs.), thirst, leg pains, reflux and very frequent complaints of stomach aches and nausea, etc. began. He was even admitted to our local Children's hospital in November for a severe upper respiratory infection that affected his asthma and blood oxygen levels and for the first time ever, did not respond to therapy. He was on oxygen for 3 days. Not realizing all this was likely due to Singulair, I took him to his ped. pulmonologist, pediatrician, ped. allergist, a ped. gasteroenterologist, and an ENT. None of our doctors suspected the Singulair--and I still have confidence that they are all good doctors. In December, he had surgery to cauterize the inferior turbinates in his nose and remove his adenoids to try to alleviate the sinus infections. At the same time, we had an upper G.I. series done to see if we could find what was causing all the stomach aches and reflux. The GI doctor found nothing. I am just sick to think that Singulair did all this to him, that we put him through surgery to try and "fix" the symptoms, and doctors and parents didn't know enough about the side effects of this drug to suspect it as a possible culprit!! I called our pulmonologist and pediatrician this morning to report my suspicions and took him off it. I sure hope his symptoms will improve.

Hi
I started taking 10 mg. daily ofLipitor 8 yrs. ago and about a year later I was diagnosed with Fibromyalgia. There's no test for Fibro, just blood tests to elimate everything else ex: Lupus, RA etc. I've been suffering so much from muscle pain, all the tender points as in Fibro and also diagnosed with chronic fatigue syndrome. Three doctors diagnosed me with Fibro. and chronic fatigue. I had most of the symptoms everyone else is complaining about also. The pain in my stomach muscles are just about gone too.

It reached a point three weeks ago when I was having sharp pains all over my body and muscle cramps and charlie horses at night and I could just about walk up the stairs my hips hurt so much that decided to stop Lipitor. I was so tired all the time and in constant pain.

My doctors said it couldn't be the Lipitor. The pain in most of the tender points are just about gone but I know it will take a while to get out of my system. I lost muscle strength over the years and hope to get that back. I'm 64 years old and know it will take awhile .

I went to my doctor Tuesday and told him I took myself off the Lipitor and that I now remember being diagnosed with Fibro shortly after going on Lipitor. He got so mad at me and said that Lipitor doesn't cause a disease. As I said there's no test for Fibro and it's not a disease it's a syndrome or condition where the brain sends pain signals to the tender point muscles but there's nothing actually wrong with the muscles. I told him that 6 years ago when I tried going off Lipitor for 3 months and joined a gym, Curves, I felt fine and thought I was in remission. Then when I started taking Lipitor again I couldn't do the exercise in Curves and had to stop going. It never dawned on me it was the Lipitor.

I now have a problem with my heart, one condition I might have been born with but the Arrthymia I don't know about. My heart beats too many beats and it beats 4 beats and the 5th beat is backwards. Now I'm on 25mg of Topricin (the generic) beta blocker to slow down the heart beats. I don't know if this is caused by the Lipitor or not. My cardiologist said that Lipitor can affect every muscle in your body and she suggested that I get a RX for a blood test to tell whether I have muscle damage. I went for the test Tuesday but haven't received the results yet.

I'm going to change doctors, I don't like my doctor's attitude with me over the Lipitor. These doctors think they're God. When I told him on Tuesday about the 3 months that I felt fine 6 years ago he said that there are other drugs besides statins to lower cholesterol. I don't want to go on any drugs and the non statin drugs can cause intestinal blockage, he got upset when I told him that too. I'm going to try to lower it with flaxseed and fiber and see if that works. I go to Weight Watchers and kept 17 lbs. off for 6 years now, I do try and eat healthy.

I can't believe it cost me almost 8 years of my life in pain. It's even hard for me to get down on the floor with my granchildren, I have to crawl to the couch or chair to lift myself up and I get tired so easily. I just hope I get back to normal.

I'm so glad I found this website and figured out what was wrong with me. I hope my writing helps someone else dignosed with Fibromyalgia and taking a statin.

Thanks for listening.
Marie

Behavioral changes started when my son was 3 years old and on Singulair, 4mg chewables. He became more angry, irritable, and even stated a few times that he wished he were dead. He has had trouble concentrating and has frequent nightmares.

I have been taking Omeprazole since December 2007 now so 2 and a half months.

I had the dose increased to 40mg 3 weeks ago as 20mg wasn't curing the burning in my throat.

For a few weeks now i have had increasing vertigo/dizziness and palpitations. I only linked the 2 to the medication just yesterday, googled it just now and confirmed my suspicions to the Omeprazole.

Other feeling i have had since taking this medication...

Severe dizziness
vertigo
palpitations
headaches/migraines
weakness
fatigue
sweating
nausea
bloating
stomach cramps
visual problems
intolerance to bright lights
aching joints
chest pain

Now my question to myself is do i come off the tablets and endure the misery of my acid reflux? surely there must be something else we can take for our stomach problems that don't cause these awful side effects.
Anyone tried anything else that worked and didn't make them unwell?

I've been using NuvaRing for 3 weeks now, and I haven't felt none of these symptoms. I wonder if anyone of you have had these symptoms in the past with any other birth control method. I heard that it could be part of a family history thing. I just hope i don't get none of those things, because to be honest, I am pretty impressed by NuvaRing so far. For me its perfect, I don't feel it at all (not even while I have sex). Please, if anybody could answer me back, please do, because now I am very confused with all this comments. Thank you!

I am so glad I found this website. I've been on NuvaRing for almost two years. I've experienced many of the symptoms other postings have described such as nausea, excessive bloating, mood swings, bizarre discharge, headaches, etc. I always felt better the week of my period when I was off the NuvaRing. I just put up with them thinking I'd rather deal with this than take the pill every day. The biggest complaint that I have is how (I now know) it has affected my sex life. I've been on NuvaRing since I was married and have never really enjoyed sex during our marriage. Last night was really painful, and it was obvious that it was because of the ring. My vagina felt insensitive during sex and then crazy burning pain. I found this website because I wondered if the ring might actually be affecting my sex drive and the ability to enjoy sex. Much of what I have read confirms my suspicions. I'm done with it and look forward to feeling myself again.

My 6 year old son has had all of these more or less. He has been on Singulair for about 5 months. We took him off last Friday when he started having seizures. It is only now that we are connecting the things he has complained about. He is still going through testing but everytime a test is done it is negative. He is in perfect health. The dr.s are stumped. What happens is, he smells a wierd smell. Then he sees lights. After this he has a bad headache and becomes weak so he lays down. Shortly thereafter he stiffens and starts shaking his arms and legs while clinching his hands. He also grunts and makes a buzzing sound and appears as though he only breathes out. the dr.s say it is not seizures but movement disorder and if it is Singulair it should be out of his system within 3 days... He is still having the seizure type fits and its been a week since we took him off singulair. He is still losing his temper and having horrible dreams as well. Cat scan was normal, EEG was normal, blood work is ok, they want to do an MRI but does this sound familiar to anyone?

My gynocologist had to put me on Yaz because I had had a Kenalog Injection for a slipped disk and after being injected with Kenalog I kept having menstrual periods....4 in a month a half! So she gave me Yaz, it seems to work so far, but this drug gives me side effects too. Has anyone experienced extreme tiredness? I seem to be tired non-stop even after having a lot of sleep. This wasn't listed as side effect on my prescription, but I thought this may be causing it. Since I started taking this 3 weeks ago I began to feel real depressed and angry for no reason at all. I just get these weird bouts of depression.

I had been taking topamax for 4 weeks. I'm not sure when but sometime during this time I noticed I was getting a uti. I saw a doctor and he started me on cipro for 3 days. When I finished the meds I noticed the infection had not cleared up so I went back to the doctor and they told me I didn't have any infection, but I was still uncomfortable and in pain. So I decided to stop the topamax. After a couple of weeks the pain went away. Did anyone else have this or a similar side effect?

I, too am having itchy skin and not sleeping at night. I have been taking the Advair for a persistent cough for about 3 weeks. I am going to try and only take it in the mornings and see if that will help the sleep problem. Because it is really frustrating. I had my suspicions that it could be the Advair but wasn't sure. Now I know it must be. Thanks for the posting.

It has worked fine for a few years. In the beginning I was taking a Generic only to suddenly realize it wasn't working and my skipping beats were as active as ever. Upon questioning the Pharmacist, she allowed that LEGALLY, the drug companies only had to put %80 of the active ingredient in the Generic drug! I was put on Toprol and everything was fine until one day my lips began to swell up especially in the morning and then a few weeks later I got a nasty migraine and I never get headaches. I suppose it could be anything but I have my suspicions. The next step is to contact my Cardiologist.

I am 24 years old and I have had suspicions that I had endometriosis since I was 16. In January of 2006, I had an operative laproscopy confirming my suspicions and found out that it was worse than we all thought. I had my first Lupron Injection the 9th of Feb. 2006 and I must say I think I am doing pretty well. My doctor has me on the ortho tri-cyclen lo birth control pill for"add-back therapy" to help with the night sweats, osteoperosis, etc. I have only had one case of night sweats. I have however, experienced and increase in my appetite. I am bloated and I have gained weight. I also have had hot flashes but I have always been a sweater. I was skeptical about the drug after reading everyone elses side effects but had no other choice if I wanted to preserve my ability to have babies. I am grateful that I have yet to experience the other side effects and I hope I never do. Ladies, everyone does not have a horrible experience with the drug. And if you are like I am and want to have children in the future you should, if recommended by your doctor, try this drug! These horrible side effects may not happen to you either. Good Luck!

I am so relieved to read some of these postings! My fiance has been having these spontaneous seemingly "phantom" pains since October. The first was knee pain on the outside part of both knees. He had an MRI and everything--nothing showed up. Then there was groin pain, wrist pain, and foot pain. His doctor said it was not neuropathy from diabetes. Everyone at work thinks he's faking it. The worst is currently left shoulder pain so intense he woke up crying last night, and he has a very high tolerance for pain. His prescription listed a possible side effect of "muscle aches" which prompted me to explore the lipitor issue in the first place. I noticed that the pain is very isolated and his skin is extremely sensitive to touch--has anyone else experienced this? He's seeing his doctor Wednesday for a physical, so I am anxious to see what he has to say about this theory. Thank you everyone for your postings--I feel as if I am not alone now in my suspicions....

I am a 5'2'' tall asian 26 years old who had suspicions of an UTI and was givin this RX. After 7 days (on the 8th day OF a 10 day RX) I forgot to take the morning pill but broke out in a rash all over my body from neck to my knees. At first I thought it was a sun rash but it was even in areas where the sun didn't shine. After an hour I broke out to my ankles and on my face. After two hours began to itch and went to urgent care where they think I was allergic. I took another urine sample and still had irritation in the bladder.

Well I'm not sure yet if it's the NuvaRing, but my suspicions are growing... I've had persistent and nagging headaches all the time and my mood swings are almost intollerable. I'll admit that I'm a bit of a control freak and I like my emotions when they're in control, but I've been beside myself lately because I can't control my emotions or predict them. The headaches are driving me crazy. I've been using the ring 3 months now, perhaps a switch back to the pill is in order...