Survivors symptoms and conditions

Well where to start. It started one Weds morning at work. Suddenly came over all dizzy and light headed and felt really really sick. Went home and started with a temperature. Parents say I was pretty spaced out for several days and didn’t really want to talk to anyone. It’s like I was there but I wasn’t. Went to doctor a couple of times and they diagnosed a virus. Problems with sleeping started. Ended up at the hospital out of hours as I was shaking, felt sick, thought I was going to pass out. Nothing found so sent back home. Saw doc again and was referred to a doctor at the hospital who had an interest in viruses. Saw doc and loads of blood was taken for testing. Went back after a couple of weeks and blood tests where clear. By that point I was feeling a bit better so they thought it was post viral fatigue. Went back to work part time and worked myself up to full time. Then it started again. Had to be fetched from work. Colleagues said it was more like I was having a panic attack. Broke down completely. Couldn’t stop crying and was in a right state. Went to docs and was diagnosed with depression and still post viral fatigue. My main symptoms have been, panic attacks, anxiety, faintness, dizziness, nausea, general feeling of unwell, blocked ears, palpitations. There are probably more but I can’t think of them at the minute (Oh yeah, brain fogginess as well !) More blood tests were done and that’s when they said my hormones were a bit low but they didn’t think it was anything to worry about. That’s when I started researching Low hormones and started to come across the problems with Yasmin. I cannot tell you what a relief it’s been. I honestly thought I was going mad and that there was nothing wrong with me and it was all in my head. I sat looking that the screen going ‘that’s me !’ Have stopped taking them straight away. Will see how we get on. Doctor didn’t know anything about the problems and has said he will be interested to know how I get on. I cannot believe they didn’t know. Main thing is I know now and can start getting better.

Wow! I can't believe how many of us suffers from the pill from hell, Yasmin. I stopped taking it September 17 after 5 years and I'm worried as hell as to what's going to happen to my body now. But first things first. I seem to have gotten pretty much every side effect in the book.

About a month after starting it I got gastroparesis- paralyzed stomach- and I also became lactose-intolerant after 30 years of drinking a lot of milk. Go figure! I get a huge bloated belly as soon as I drink a little water even now. I have gained about 6 lbs that I can't shake no matter how much I work out and that has never been a problem before.

I had migraines from hell and headaches nearly every day the last few years.

I got panic attacks and was very nervous, had anxiety and it felt like an elephant was sitting on my chest. And that is SO NOT me or anybody in my family. And I know it was the pill cuz I had no reason to feel that way.

I had blurry vision at times. Fainted once in the mall for no apparent reason, I had never fainted before in my life.

I had no interest in my own life or in doing anything whether that was working, going to school, exercising, going out with friends, traveling, whatever it was I was not interested. Again, so not me. I could have died and I wouldn't have cared. I could have gotten a Ferrari and I wouldn't have cared.

I could sleep 10 hours a night, take 1-2 hour naps in the afternoon and go to sleep again at 10 pm, no problem. And the nightmares! Holy crap. Awful dreams about plane crashes, robberies and murderers EVERY night. Thankfully they seem to have disappeared now.

I have high cholesterol, through the roof actually! -no family history there either- and blood pressure is a little high but not too bad. My thyroid was a little elevated last time and the doctor thought it was due to Yasmin.

I snap at everybody and think that I don't love my husband when I actually do love him a lot. He has put up with me being so unbelievably bitchy for 5 year. Bless his soul!

Since I started Yasmin we have had sex about 1-3 times a year. I'm NOT kidding. I haven't wanted anything to do with sex.

I have heart palpitations at times. Shortness of breath just walking up the stairs in my house.

Dry skin no matter what cream I use. Major hair loss.

I went off Yasmin once before and didn't get my period back for over 6 months so I just started taking it again like an idiot cuz I wasn't planning to have kids then anyway.

I was never happy, never sad. Mostly mad or irritated, no problems there.

What else? How many hours do you girls have to read my post? ;-)

To sum it up. Yasmin has destroyed my life for the past 5 years but I was to blind and scared to get pregnant before that I just didn't care. And not caring about my own health was surely caused by that rotten pill too.

What can I expect now that I'm off the pill since 2 weeks? How long before the hormones are gone from my body? What can I expect and when does it get better? Can I go to the ob/gyn after 2-3 months if I don't get my period and have them give me something to start it? Or would that be bad? What about the weight, should it go up or down? Acne? Hair loss? What else? Have you had any medical problems that you needed medicines for due to Yasmin? How long has it taken you to get your period back? And most importantly; can this pill make me infertile???

If there is a class action lawsuit I want to be in it!

Vitamin D deficiency. Severe.
Fatigue/Exhaustion
B12/Folic Acid deficiency-resulting chest pain
30 lb weight gain post Yasmin
Plugged ears/pressure
Elevated potassium
Depression
Total lack of interest in life
There is a wealth of information of fellow sufferers at Create a Forum, under health, medications if you type in Yasmin. Or google Yasmin Survivors. Its an international forum that has grown exponentially.

I suffered a stroke 2 months ago thanks to taking the Yasmin birth control!!! I also discovered I had a pulmonary embolism a week following the stroke! I am outraged! This must be taken off the market! please let me know , i'd love to take part in any class action lawsuit!! Im a 30 year old, healthy woman,i was not smoking, drinking, etc, and exercised frequently...

My daughter was taking a deadly cocktail of Zyrtec, Advair, and Singulair. She was on these medications for three years. At the time we thought that it was fantastic that her severe asthma and allergies were finally under control. After about six months of being on the medications we saw her slowly decline into a state of depression and withdrawal, she had constant headaches, she couldn't sleep, she was no longer interested in any of her friends or activities. She went from a loving and sweet girl to an angry and bitter person. In 2003 she committed suicide. Six months after her death reports started to come out about the links to Singulair and depression and suicide. Perhaps it was the combination of the three drugs in her case. If we would have had any idea what the effects of these drugs were we would have taken her off of them immediately! Please spread the word about the dangers of Singulair, Zyrtec, and Advair. Go on to the other sites and read what people have been posting and you will be shocked. The Singulair survivors are banning together to try and get this medication pulled. Do what you can to spread the word!

I had been taking this pill for a month and a half, i'm 23 and my gp said it would be good for mood swings etc, in the first month i was constantly tearful with headaches, i felt better on my week break and then when i started back on it i got a rash covering my legs and the itching was unbearable, i also got pins and needles in my head and face, i stopped taking Yasmin at this point and the rash went straight away along with the pins and needles/anxiety,im sure it was because of the pill.

When taking YAZ there is only one question to ask yourself, do you feel lucky? Well do you? I am the fiance of the daughter of y_oung_a_american_z_ombie who was laid to rest on Aug 4, 2008. (See posting) She was misdiagnosed with pleurisy by what we thought was a trusted doctor, and passed away from a pulmonary embolism. I want all who are planning to take this drug or currently taking this drug to know that YAZ is a silent killer. Be aware that although you may tell your doctor that you are on YAZ your doctor should look at ALL the possibilities when making a diagnosis. God bless and watch over those that have perished at the hand of this crap and also to the survivors who are telling the true story of this "Wonder drug"

Ladies go to google and search Yasmin Survivors! There is a support group for people who have been ruined by Yasmin. Please join and tell everyone your experience. The only way we can beat this drug is to get it recognized!!

I have been taking BCP since I was 18. I started w/ Aleese, Yasmin, Orthotrycyclin-Lo, Ortho Evra and the last being Loestrin24Fe. The sad part is that I can't remember what/if any side effects I had while taking those prior to Loestrin24Fe. Unfortunately for me, I have managed to gain 30lbs in the last 5yrs and I cannot seem to get rid of it. Of course the gyno said it wouldn't have been the BCP, but I would like to believe I didn't make myself a fat ass. I was taking Loestrin24Fe for 2 years and can't say I noticed too big of a change while taking it other than the periods being shorter, but they were still very heavy. But my acne has started to get worse the past year. In May I went to the doctor for my migraine's and skin/hair (too oily). After running blood tests it showed my thyroid was pretty low and had room for improvement. I was prescribed Maxalt for my migraine's and 30mg of Armour (thyroid medicine). I went back at the end of June and we upped the Armour to 60mg because I haven't noticed a difference since taking it. She also suggested I switch my BCP to Yasmin as it's been known to help with acne problems. Today was my 2nd day on Yasmin....and obviously it's too soon to notice if/what side effects will bother me. I just wonder if maybe I should take a break from BCP all together and allow my body a chance to breathe. I really hate the thought of having that longer period again but I'm going to have it with Yasmin anyway unless I choose to start a new pack early every month (to keep same schedule as Loestrin24Fe). Advice would be helpful :)

Hey guys I posted my rant last night about Yasmin. Well my wife still can't see and I gave her , her nightly meds and she was having stroke like symptoms so I gave her an aspirin and called the on call doctor. He told me to stop the Yasmin he was very concerned by this.I stopped it last night. He only wants her to take her vitamin and ibuprofen no percocet for pain.But again he was very worried about the Yasmin. I will update again

Hello all Yasmin Survivors.
I stopped taking Yasmin in July 2005 and three years on I am still re-building my life! I feel this pill and its side-effect stole some of my best years, I am 33.
My main side effects were extreme anxiety, agoraphobia, pounding heart, panic attacks, fear of doing anything (even going 10 minutes away from my own home). I was on it for 12 months and the side-effects started very gradually at about 5-6 months, I barely noticed them creeping up on me. It took me another 6 months of taking it to start to question whether Yasmin could be causing the extreme change in my personality. I think if I hadn't stopped I'd have had a major breakdown. I had lots of weird physical symptoms too including, bloating, passing urine all the time, leg cramps, dizziness, hair loss.
Anyway, all the extreme anxiety and stress caused by Yasmin left me with exhausted adrenal glands - which I'm now trying to re-build. Anyone feeling fatigue, nervousness, anxiety, inability to handle stress in the same way as you used to, PMS several months after stopping Yasmin should look into Adrenal Fatigue as a possible cause of their symptoms. It's hard to treat and can take a long time to recover - but there are lots of things you can do to help your body re-build. Visit ******(doctor Andrew W. website on Adrenal Fatigue) as a start to find out more about the condition and how to find out whether you are suffering from it.
It would be good to hear from more people re-building their lives after the impact of taking Yasmin on this site. Also, is anyone out there trying to put together a class action?
Sarah

Yasmin is the WORST drug out there. I'd been taking Yasmin for 5 months when suddenly one day I had a terrible panic attack and couldn't stop shaking. I went to the ER and they told me I was just having a panic attack so I went home and layed on the couch for about 2 weeks having one panic attack after another and being extremely anxious. Eventually I went to my normal doctor who said Yasmin had nothing to do with it and put me on 37.5mg of Effexor which took away the panic attacks. Eventually I found this website and the Yasmin Survivors website and made the connection. I've been off Yasmin for almost 2 weeks and Im already making a very slow recovery. I don't recommend antidepressants but they are helping me get through it and im hoping very soon I wont need them anymore. This pill is not worth it. It almost ruined my life.

I took Leva-kill last November, 500mg for 10days due to a resistant ear infection. On the 3rd day, my back felt like it was on fire. Went to ER, did one blood test for muscle deterioration, came back fine.Told to keep taking. I thought I was going to die. I felt and still feel like I was poisoned. Seems to be permanent. Some days worse than others. Check out FQVICTIMS.ORG.Any doctors and dentist I have seen says not Levaquin {about ten]. One ENT said "I bet" when told levaquin made me feel like dying, but that was it. Has anyone heard of any hope? Is this really permanent?

I have been suffering with Levaquin induced pain for the past couple of months. I have found a website that has been very helpful in educating me on what is happening and what I can expect. There is hope! The web address is http://health.groups.yahoo.com/group/Quinolone Survivors/messages. I hope this is helpful to all of you.

I agree, for me this is a horrible drug! This is the 2nd time my allergist prescribed it to me (last time was this past summer and I had severe panic attacks and thought I was losing my mind) this resulted in me returning back to my GP and him putting me back on Paxil (which I had been off of for a year). I was extremely reluctant to use this again but thought i might be able to manage it this time (with the help of Paxil).

My allergist prescribed Prednisone to me 2 weeks ago (5mg 3x's day for 3 days then, 2 2x's day then 1 for 5 days) I made up until the last 3 pills. I had severe brain fog and felt like I was floating through space. I couldn't even remember driving to work and parking my car! Extremely fatigued (I have diabetes (which is under control, but I had to keep checking my bg because I thought my sugar was dropping to low). Now, within the last week of taking the Prednisone I have experienced aching in my kidneys and I think I have a kidney infection.

Can Prednisone do this to you??

I am calling the doctor tomorrow. Today is the first day without Prednisone and I feel like I am totally out of it - really spaced out, dizzy, panicky and a bit nausea.

How long does it take for you to get Prednisone out of your system?

Survivors Of Prednisone
Type: Common Interest - Health & Wellness
Description: Many of those with auto-immune diseases such as Crohn's Disease are forced to go on a prescribed steroid known as Prednisone. The effects of Prednisone are terrible. Prednisone creates water retention (puffiness) in your face and torso. It causes severe mood swings. It also causes your hair to fall out. And that is just going on the Prednisone. Once you get off the Prednisone, you then have to deal with the adrenal insufficiency as Prednisone can shut down your adrenal glands.

There seems to be little support for people who have been on Prednisone. They seem to be left alone to deal with the side effects and the confusion and fear that it causes.

This is what this group aims to do:
***
Provide awareness of how Prednisone can and has affected lives.

So if you are feeling down or suffering from crazy mood swings or can't handle looking in the mirror anymore then come and let it all out !

I was diagnosed with Crohn's disease in July. I had my colonoscopy/endoscopy the day before 4th of July. Got sick with what I thought was the flu on June 26th. That's when I first landed in the hospital (dehydrated & sick). After the diagnosis I was first put on Entocort and Pentasa (Pentasa is supposed to be a remission drug - keep you from having flare-ups). Entocort didn't work so they switched me to Prednisone. I've been on Prednisone for about 6 months now. Going from 20 mg to 40 mg and then I'm finally weaned down to 5 mg. I get to go completely off of it Jan. 13th. Scared of what other side effects might occur from coming off the drug. While on it I've had emotional problems, acne(never had a problem with it before), moon face, gained 30 pounds, joint pain (I was in therapy for as long as insurance covered. - I recommend water therapy, it helps for some people as it did me), trouble sleeping (haven't slept a full night since I got sick), certain days I'm really really thirsty, I've had sort of what I'd call restless leg (I had this before I was on this medicine but it has gotten significantly worse - mostly at night or when lying down), and dry skin.I have to say though that the WORST side effect is the FOG. It's horrible. I enjoy learning and using my brain and when I'm on this I can't think, I mix up words, and it feels like my brain is covered in cobwebs.I had to drop a calc 2 class and that got me off the track I'd set with my academics. My inflammation rate is down where it's supposed to be as of the last blood test a couple weeks ago. So I guess the Prednisone and Remicade are doing what they are supposed to - but I still don't feel as if the pain (not associated with Prednisone - caused by the disease) has gone completely away even if the inflammation has gone down. And Prednisone's effects are just horrible. Some nights I feel depressed and just want to cry and cry. The past months have been trying because of several hospital stays, switching to many different doctors (gastrointernologists, nephrologist, urologist (kidney stones), primary doctor - and they think maybe I should see a rheumatologist), and Pentasa (it began shutting my kidneys down). I just hope that when I come off the Prednisone the side effects will fade (hopefully quickly but lets be realistic - ill just be happy if they go away sometime in the next few months) and I won't flare up again. Anyone know the best way to get rid of the weight? I'm already drinking lots of water and I go walking and do exercises everyday.

QUESTION: When tapering Prednisone does anyone have a place(s) on their stomach that are sunken in and feels dry compared to the skin around it?

Anyways, I hope that everyone overcomes their difficulties, whatever they might be or concern. It's hard to have a life when you are constantly fighting your own body to stay healthy.There are plenty of situations in life that are already hard enough to deal with without medical issues of your own. Best of luck to all!

I was given prednisone for the second time this year having never taken it.
1st time was for an allergic reaction to sulfa,
thought I was having a heart attack a couple of hours after it kicked in.
(I am 28)
Lost so much strength, used to go out & do 10-15 chin-ups, couldn't get to 1.
Grouchy, weepy.
That was in August.
I November (1 week before thanksgiving) I got sick with upper respiratory, same cold as rest of my family, but it knocked me out. Doctor figured it was cause of the 5-8 cigarettes i smoked at the time,
prescribed antibiotic.
Flash to 2 weeks before Christmas:
Laying on couch, unable to breath, went to doc, given antibiotic, inhaler, and Prednisone:
2 pills 2x's a day for 1st three days, then 2 pills 1x a day next three days.
I think they where 20 mg?
I was in very bad shape,
But NOW
I had tried to give up those last few cigarettes I had held on to, since I had gotten so sick.
I had insomnia, nausia, insatiable appetite, sweating, fuzzy upper lip ( i am female)
gained 15 pounds, depression, couldn't even shower unless I dragged myself through it, quit quitting smoking to try to alleviate the depression, but this is unlike anything I have ever felt.
Oh, and the reason I am up so late,
my right thigh feels like it is dying from the inside out.
It started the day after starting the meds, that was December 21st. It is now January 3, and it won't stop. I am so worn out from it.
I can't sleep.
It's like a cramp that never ever ends, but it's down in the bone.
My 3 yr old daughter put her weight against it and I screamed.
It seems like it is walnut sized, with pain radiating out from it.
I thought I might have a blood clot, my husband brought me Aspirin tonight in bed, and now I just cannot sleep,
it doesn't just hurt, it is hurting to distraction.
I feel out of my mind,
and so old.
My stomach had been solid abs a few months ago, I worked so hard on them, now, I do not have the strength to lift a jug of milk, and my tummy looks more like pizza dough.
I am 5'6" and went from 118 lbs to 135, right now back down to 127 as I cannot eat even though I am starving, I just can't.
But I am really scared about this leg pain.
I swear there is something in there, and at night I fear it coming loose in my sleep and killing me. Mind you, I am not sitting here imagining it, i am feeling this pain in what little sleep I am getting, and the dreams start.
I was on it a short time, but it was 2 times this year, within 6 months, do you guys think it is the reason?
any thing you think would help. Thanks

I was just wondering...I've been weened off Prednisone the last month or so and today is my last pill. YEAH!!!!!!!!!!!!!!!!! AMEN!!!!!!!!!!!!!!!!!!!!!.
However, I've noticed that my joints hurt and my feet oh the pain. Is this normal. I feel like my muscles are weak. walking up a flight of stairs is painful. Anyone know how long this will last or if this is something I will have to live with.

I also would like to encourage everyone with Prednisone issues. I met the creator of this site from postings and replies on medications.com. At the time I was researching Prednisone concerning dosage levels and how this drug effects all major organs. She done a fantastic job with assisting in this matter. This all came about after my father passed away after being prescribed a MASSIVE dose of this horrible drug.. It is my belief that it does not take massive dosages of Prednisone to cause organ damage. So please if you are suffering from any of the mile long list of side effects, check out 'Sirvovors of Prednisone' before it is too late.