Support group symptoms and conditions

I started this antibiotic because of symptoms my ER physician thought paralleled those of lyme disease... At first I had mild to severe nausea... which was assisted with the intake of a meal or snack. Those symptoms I could deal with... that and a wonderful yeast infection that occurred around the fifth day. The side affects that became unruly, were those of confusion, panic, paranoia (I became extremely jealous/thought my partner wanted to leave me/ and felt un-trusting of just about anyone near - people mocking me, wanting to avoid me, unloved me), and had random bouts of crying - which affected my libido tremendously.... one moment I was in the mood.. the next I wanted to be held in a fetal position and cry. I finished the 14 day regiment about three days ago, however I still have some side effects remaining... I still have panicky thoughts.. almost flash backs of past anxieties... as though I am relieving them again... and paranoia... that people are talking about me, or scheming. I can understand these behaviors if they were pertinently normal.. and a justified part of my general existence... however, I am generally a stable, upbeat and cheerful individual with normal reactions to stress... being that the only time I act reasonably irrational is around my period, where I feel fat and uncomfortable. The panic and rage I felt on this medication was coupled with insane thoughts and neurosis.

I do not recommend this to sensitive individuals.... or any one who is prone to medication side effects.... truly an awful experience... glad there is a support group. Still waiting to return back to normal.

I know this is a not support group, but I am having mine out Wednesday via day surgery (see my other posts). If I do not feel significantly better shortly thereafter I think I may admit myself into a hospital for the mentally ill. 80% kidding. Please someone send me a line who has had it out and how you now feel. Aussiegirl did a while back and I appreciate it. Any other good news is welcome. I feel horrible.

I'm on my second series of the lupron shot, I am also a very young age of 17 years old tying to conquer endo and it's symptoms.... At age 13 I received my first laparoscopy and have been on birth control since "becoming a woman". I have terrible cramps and creeping lower back pain that makes me feel weak and exhausted all the time. I should be full of energy,but i just have terrible mood swings, lost love interest, severe mood swing, extreme hot flashes, memory loss, I've lost so much weight ..... I have lost from 125 lbs to 111lbs in maybe a month. I get very sick to my stomach and vomit when something doesn't appease me such as the smells of certain things, room temperatures, or even if someone around me is smoking. Lupron does take care of my extreme menstrual pains i did have, but sometimes i just wake up to dread the day.... It just feels like anything can make me feel upset and empty on the inside, no one wants to feel like that. From April 08- July 08

Ladies go to google and search Yasmin Survivors! There is a support group for people who have been ruined by Yasmin. Please join and tell everyone your experience. The only way we can beat this drug is to get it recognized!!

To all the people who are just starting to make the connection between their symptoms and Levaquin or other fluoroquinolone antibiotic: There is a lot of information available on the internet. Check out the following websites: fluoroquinolones.org, antibiotics.org, medicationsense.org, fqvictims.org, fqresearch.org. There are also support groups on yahoo for sufferers. Please don't forget to file a medwatch report with the FDA. Finally the FDA is starting to listen to the victims!

I was prescribed Levaquin in Feb./March for 30 days. I have had tremendous pain in my heels since then. I am walking slower as every joint and muscle in my body hurts. I can barely stoop down and it is getting worse. I can not sleep. I thought I was just going through some depression and stress until I started reading about it in the WSJ and now realize I fit many of the symptoms being discussed.
We all need to take some action as this is only going to get worse for everyone.
FDA?????????????????

I would like to hear your opinions about Yaz/Yasmin Birth Control. Have you had any side effects? Has this pill been helpful to you? I have dedicated a support group website for women and girls who have previously or currently taking Yaz/Yasmin Birth Control. Please take a moment to view website,**** and post your experience while taking this medication. We need to hear your stories to make others aware of this birth control.

Best Wishes,
***

I just posted a link to a site and when I returned to the computer it was deleted .I will try again *****
Wonder how that keeps happen? I am not that great on the computer. My son tried to teach me some things but I am on my own now and maybe I am doing something wrong,
Kate

Who administers this site? I posted a side effect last night after I registered and then this morning I got an email saying there was a reply to my posting and when I tried to log in, my account was inactive and my posting had been removed, as had the reply to my posting. I don't know if it is because I put a link the an online reporting tool where the FDA is compiling feedback from people/or their children who have experienced terrible side-effects. Here is the link again and I urge you all to report your cases: http://www.fda.gov/cder/drug/early_comm/montelukast.htm

My son is 3.5 and has been on Singular for 2 months and just like all of the other stories about the other young children posted here, he is a different kid after being on Singular. Last night was the first night I took him off of it. All of the side-effects that are mentioned here are the same ones my son is experiencing, nightmares (screaming in the night), hyper, aggressive, reliving injuries from days past, the day care telling me that they now have concerns about how different he has been lately and the even used the term "bad behavior". They said he is hyper, he screams, not listening, aggressive. He is a favorite at day care since he is so loving, polite and kind. I know all parents say that, but pretty much anyone who has met him compliments me on how well behaved he is. I am even nervous to have people over since he seems out of control and I have found myself ensuring people that he isn't normally like this. I have taken him off as of last night and I am hoping he will get back to his old happy-go-lucky self soon. Does anyone know how long it can take to get this poison out of their system? I pray that there are no permanent side-effects.

PRAISE GOD for all of the stories shared on this site. And I've only read page one. My husband called me back today to say that he "googled" Singulair and found some interesting things (to say the least). While we were on the phone, my three-year-old was in the throes of another meltdown, kicking me, hitting me, throwing whatever he could get his hands on. My older two boys, 8 and 12, were ordered, once again, to lock themselves in their rooms to avoid being hurt by him. He will throw stuff, bite, hit, kick, and, at times, spit on us. This disturbing behavior is rather constant lately. He is like a mad man. Very scary.

Caleb has been on Singulair since about age 1, when he was diagnosed with chronic sinusitis and allergic rhinitis. Unfortunately, we initially equated his rages with the onset of "terrible two's" and dismissed his behavior to a chorus of "oh, he's just a boy!" My husband felt, at times, that I was just not disciplining him properly. I intuitively knew, having raised two other boys, that this behavior was abnormal, even for severe tantrums. We received a variety of suggestions from his pediatrician, caregivers, and grandparents, all to no avail. We have several calm days but things always deteriorate back to insanity. He is VERY unpredictable.

Last Thanksgiving, Caleb (age 3) was kicked out of his daycare setting for biting and hitting. Once I witnessed him run as fast as he could into a group of playing children, falling on them, kicking them. He would walk up to sweet little girls half his size and push them down as hard as he could. It was a nightmare. My husband had to take 3 weeks of leave to stay home with him while we prayed and searched for new care. We had him evaluated and he was staffed into the "developmentally delayed" program in our school district (for poor adaptive skills and personal/social behaviors). We recently had his tonsils removed, hoping that some of the sinusitis symptoms and behaviors would improve. They really haven't. This past week we have been looking into the Feingold diet. We have been PRAYING for answers. The last time we spoke with his developmental neurologist, he recommended a trial of Risperdol (sp?). We feel like more meds would be like a band-aid, not a solution. But his rage is becoming unbearable.

So, that brings us to today. I was so moved by your accounts. Unlike so many of you, we don't have much of a "before" to go by. But his "after" sounds VERY much like what you have all described. It's probably the pure rage that I see on his face that is the scariest part. And at the same time he seems desperate and vulnerable. He truly seems to snap. If we had pool chairs, I can just picture him throwing them (citing another post :).

We are going to throw the Singulair away. He will never, ever have it again. Even if this isn't the cause of his problems, I certainly don't want to exacerbate any behaviors with this toxic medicine. I will post again just to let anyone who's interested know if this changes his behavior. I am praying that my entry will help someone else, just as all the other postings have helped me. I have renewed hope.

I have copied many of your comments to a Word document. I will be sharing it with a high ranking officer at the medical clinic/hospital on Keesler Air Force Base. I hope that he will discuss this with his staff and that perhaps we can at least make a difference here. I, too, will be filing a report with the FDA. I can only pray that this medicine has not permanently altered his developing brain.

WOW!!! I am glad I came across this website. I have twin boys that will be 7 this month. One has been on Singulair for about 3 years for allergy induced asthma and my other son has been on it for 9 months for allergies. I am taking them both off of it today. The son that is taking the medicine for 3 years has become increasingly angry and gets upset over small things. Over Memorial weekend, he lost a game he was playing on the wii and exploded. He was banging his head and then started to hit me. NEVER in my life have I seen him attack anyone. A few days later he threw rocks at his friend because he wanted the wagon. Over the past 3 years I have noticed some change in him and just took it as growing pains. He has always been a strong will child. However, over the past 3 years he has gotten worse and since he has physically attacked me and his friend, I have decided to send him to counseling. Now I firmly believe it is the Singulair.

My other son has been on it since August. He started to have anxiety within a month of taking it. His behavior has been stressed, depressed and not wanting to play with other kids. He was biting his nails to a nub, licking his hands, not talking to anyone at school and rubbing his head. I have also noticed he does like to look at the person he is talking too. Of course I thought the worse and thought he was being molested. I went to his Teacher and she has worked very hard with him, but he is still a loner. If you knew him before, he played with everyone and enjoyed life. I was told by his Ped. that he had anxiety and to have him see a shrink.

I am hoping that after taking them both off this medicine, I will see improvement.

I have a three year old son who has severe allergies. He's been taking singulair for 2 years on & off just in the allergy season. He started taking, singulair again in the beginning of April. One morning he woke up and both eyes were really swollen and red, I called his doctor's office and told them i thought he had pink eye, after 2 different drops and no change I brought him into the doctor's to see if it could be his allergies, and they agreed and started him on Zyrtec. I still was not impressed with the results so i brought him back yet again to see if we could see a specialist. Instead they put him on nasonex to try.
In the beginning of March I started to see a change in my usual happy fun loving son. He was scared to sleep in his bed, waking up in the middle of the night from bad dreams, uncontrollable screaming fits that would last up to an hour, saying he wants a Boo Boo. At first we thought it could be jealously over his new brother, or maybe something at his school.
Then i found this website and everything clicked, how scary it must be for a child to have these horrible thoughts and not be able to understand or stop them. What are the people at merck thinking??
Can any one tell me when the symptoms stop. He's been off for a week and we see some improvements. But he still has these fits with almost an OCD tendency to them (mainly when he's overtired), stomach pains, lack of appetite.

So glad to have found this site - but too late! Another night without sleep - sitting up writing this is helping with my sickness - seems worse when I am lying down. Not good at all. Know the doctors thought it would help but this is like no other period problem I have ever experienced. I usually get the whole thing headaches, mood swings, nausea, now I have all these things all the time! I have only had it in for 10 days and once the period started I just felt like I wanted the Mirena out of me even though I had no idea that I was feeling unwell. Seems like a big coincidence that I should be like this! I am not going mad but it feels like I could do if I don't get a decent night's sleep!

I am going to try and get it removed tomorrow because that might be one way of reversing how I feel because I have never felt so bad in 10 years of PMS. I am a 44 year old woman. Keep up the blog because we need to be there for each other - wish me luck I am crying whilst I am typing this.

Another disgruntled user.

My son is almost 6 yrs old. He has been taking Singular for approx 3 years, in addition to Claritin and Nasonex. This is all for his allergy to mold. His doctor started him on these meds after a 6 month episode with sinus infections leading to asthma-like symptoms. We have not noticed anything unusual about his behavior until approx 3 months ago. He started waking up every night (2-3 hours after going to bed) with bad dreams. At first he would not fully awaken and fall back asleep immediately. After a month or so of this happening most nights, he had two nights in a row where he woke up screaming and was inconsolable for about 30 minutes. We initially thought it was night terrors, but he was not scared or fearful, he was just upset/angry. He would hit the bed repeatedly and yell. He didn't know what he was upset about but would talk about how he thought we hated him, he was dumb, etc. After about 30 min he would 'snap out of it' and return to his normal self and go back to sleep easily.
At first we thought these were night terror brought on by a recent fever, but he had another episode last night. He has also been falling apart at the littlest things and getting quite violent (for a 6 yr old). He was sent to his room yesterday evening because he was complaining about the dinner his mom made (lots of complaining these days..). He had a total melt down an started throwing things and hitting the door so hard he put a hole in it.
Some of this behavior I would chalk up to normal kid stuff, new baby brother, etc. But I am suspicious about the negative thoughts, bad dreams, and instant melt downs... I stopped giving him Singular today and we will see what happens. God bless you all as we figure these things out...

I have two sons on Singulair, my three old was suspended today from pre-school for bad behavior. Screaming, biting, scratching, and hitting have been going on for the last few months. But worse the past two weeks. He has always been active and played like a boy, but he has been getting violent. We have tried positive reinforcement, praising good behavior both verbally and with rewards, I have tried time-out, being grounded, not being able to participate in activities, no t.v. and old fashioned butt spanking. All of this with no positive results. I am not looking for an excuse for my child's behavior, but could Singulair really be the cause of his aggression?

Like most of you state in your posts.........I cannot begin to describe how relieved I am to have found this site. I honestly thought I was losing my mind. I had Mirena placed in December '06. It was uncomfortable during the actual procedure, but not too bad. Then within a day or two I was in severe pain and bleeding like crazy with severe lower back pain. I was told to take ibuprofen and allow my body to "adjust". I went for my follow-up ultrasound and the placement looked fine although I was still bleeding like crazy and very uncomfortable. After several more calls they brought be back in for another ultrasound, told me that my uterus must have gotten bacteria in it during placement and that I had an infection. They sent me home on antibiotics and pain medicine. I bled pretty regularly for 6 months straight accompanied by lower back pain, fatigue, and headaches. Finally the bleeding let up only to be followed by a multitude of other nasty side effects. Depression, anxiety, fogginess, forgetfulness (severe), waking up with headaches every morning, nausea (to the point that I can't tell you how many pregnancy tests I've taken), weight change (redistribution, thicker waist, tummy, and hips even though actual number only changed by about 5 pounds), feeling swollen and bloated when I wake up in the morning, NO libido whatsoever and feel like crying during sex because it's nearly impossible to reach orgasm (this has never been a problem previously), hair loss (becoming more noticeable over time), dandruff, boil-like acne on my face and back, dry eyes and blurred/double vision, chronic yeast infections and dryness in that area too. The list goes on and on. I went to three different doctors and had tons of bloodwork done, all came back normal (thyroid, hormones etc....) I was told over and over that it couldn't be the Mirena. HA! How can this many women be delusional? I called last week and got an appointment for May 20 to get it removed. After reading this forum my husband called the doctor himself and I don't know what he said, or how he managed to do it.........but I'm going in tomorrow morning at 10:20 am to get it removed and you better believe I'm going in armed with this website and others I've found. Physicians need to be more aware of this! Even if it's not common, it's miserable for the 1 in 1,000 woman who gets the worst of the side effects. It's literally ruining my life and my marriage. It's impossible to be a good wife and mother when you feel terrible everyday.

-Amanda

My 5 year old son was taking Singulair for about 2 years when I came upon this site. I immediately called his allergist and got no answers, so I decided to take him off of it. Within 24 hours I noticed a big difference. He use to not sleep. He would be up all night. he uncontrollable outbursts at school, and home stopped. He is now the sweet boy I remember. I really think he was over medicated. He takes Zyrtec in th morning and was taking Singulair at night. I am appalled at the fact that doctors are over medicating our children.

Thank you for this site. I now can love and hug my child agan.

This is by far the worst pill I have ever taken. Before Yaz I was on Nordette, Ortho Tri cyclen and Alesse. I saw the commercials and got sucked into trying this pill. All I can say is proceed with caution. I ended up taking this pill for the unhappiness 8 months of my entire life. I had problems with other pills causing weight gain (Nordette, Ortho Tri cyclen) or acne (Alesse). However, those symptoms are mild compared to what Yaz inflicted on me.

I have always been described as happy go lucky and Yaz gave me extreme moodiness, panic attacks about my future and life, and major depression. I did have the best skin of my life and lost about 5 lbs but I was an emotional MESS! I would cry at the drop of a hat and find fault in everyone and everything. This symptom didn't start right away but each month I was on Yaz got worse. My friends coined my "alter ego" "she devil." I almost felt possessed at times on this pill. I finally realized it was the pill and not life causing these problems when 3 of my girlfriends had the same problems and got off and the problems went away.

Prior to having this experience I thought people tried to blame too much on the pill but my experience showed me just how much these can mess with your body. I switched back to Alesse 5 days ago and it's like I am a different person--even my skeptical boyfriend noticed the change. As for the acne, I am going to go to a dermatologist to address that. I will be happy to have a few zits as opposed to being a crazy woman.

Proceed with caution on this pill and watch your moods carefully. Just because you've been on it for a few months doesn't mean you're safe. The majority of my emotional disorder started about 5 months in. I do have some girlfriends that like this but most have found it to bring out "she devil".

After I had a heart attack 3 years ago I had stents inserted I was put on Atenol, butemide, lisinopril, amoplodine, spirolactate and metroformin for my diabetes. Since taking these tablets I have suffered from some horrible side effects my weight has increased I cannot stand for long I get so out of breath I can only walk about 8 steps before I feel like I am going to colapse and my breathing gets really bad. I also suffer now from Lymphodema which is caused by excess water being made by the tablets lisinopril and the amoplodine my legs from the knees down to my toes are so swollen even though I take water tablets my legs feel like leads weights I have now become virtually house bound because I can hardly walk to get out of my house II get so out of breath now. I also cough up a lot of mucus all night which is clear and frofey my GP asked if I had ever suffered from asthma I said I have never had asthma in my life before, christmas I felt so bad my husband called a local GP in and he said that I had fluid on my lungs and an Xray revealed that I had fluid around my heart also I am convinced that these tablets were the cause of this I have to sleep sitting up I can't lay down now. I saw my GP and told her that I had read about the side effects of these drugs on the internet and I was sure these were causing my condition I asked if I could come off lisinopril, amoplodine and spirolactate and since I have come off these tablets although all my symptons have not completely disappeared yet I do feel a lot better this was five weeks ago that I stopped taking them. I asked my GP if there were any other tablets that I could take that were more suitable. I have suffered pain in my back in the kidney area as well and my potassium levels were very high. I have had diabetes for 52 years and my old GP told me that I would not live to see 40 years, the way that I was feeling I thought my god my times up.

First of all, finding this website and these stories is a divine intervention! I have a 3 year old that started on singular for food and mold allergies about a week and a half ago. Immediately he complained of an upset stomach which the allergist told us may happen but that was it. The days ahead he became a totally different child - angry, overly emotional, moody, and the only thing new was the Singular. His brothers saw the drastic change too. Thank goodness the worst was over our Spring Break. I am in a support group called MOCHA(Mothers of Children with Allergies) and thought I am going to email everyone my story and see if anyone else has experienced what we had. ( My Dr. also told us he had no complaints on the drug and it was safe. I decided after 5 days, that I was taking him off of it to see if his personality would return. Well, with in a day only off of it, he was not as agitated and less angry so I knew it had to be it.) Almost all of the responses were negative and people were so relieved that it wasn't in their head and that it was the drug. Since just yesterday, one has also decided to take her son off of it. And I am sure many others are going to follow even to just see if by being off of it for a week any of their old self returns. This drug at least for children should not be prescribed!

My husband and I found out he had Meatastic prostate cancer 13 months ago..We went to the doctor because his lymph glands were hudge.. He has been on the Lupron injections ever since.. He had really bad hot flashes for the 1st few months but that has past, but now he is very moody and angry for no reason.. He yells and gets angry over the littlest things i think he is going crazy and he is driving me nuts, he has no desire for me and is rude and acts like he don't even like me sometimes.. it is torture to me..He has depression he doesn't enjoy anything like he use to.. whenever we go try to have fun he gets all stressed and makes the fun turn into miserable..He acts as if he has no problems..He has some big rashes on his legs and crack and I am pretty sure it is from the Lupron shot also.. he has a little aches and pains. Very tired all the time..just about a week ago we found out the Lupron shot is not working very well anymore, his psa level went up to a 15..I am thankful for the shot because i know it has saved him some time to be here.. I love him so much, but the way he is now has caused me to feel like he is a grouchy roommate on his period 24/7.. There is other things like casodex to take but i heard it does not work as well as the Lupron..Hopefully one of these days they can find something that works even better then Lupron without the side affects..The lupron Shot has helped many people live longer, but what about the quality of life he is miserable but I am sure he rather be alive and miserable.. Good luck to everyone with the Lupron shot, it is a trying time when they or you go through these changes and do not understand why you feel negative and unhappy..

I was prescribed Avelox after an ongoing sinius infection. I took 3 doses of the 14 day prescription. After the 2nd dose I started having extreme muscle & joint pain from my neck to my toes. I had a slight rash on my forarms and around my knee joints and I had itching on my feet that felt like biting flies. I was unable to move without pain for 3 days after that. My doctor prescribed Medrol dose pack steriods to help with the joint pain. After the first day of the steriods the itching on my feet worsend to extreme burning itching to the point I lost my mind with no sleep and overdosed on benadryl. I slept that off and continued to have muscle pain/joint pain. I started researching on the web and found that this class of drugs can be very toxic to the body. I found a support group online and they gave me some advise to help with the pain. As of this day it's been 8 days since the first dose and I would say the pain is 90% gone (thank God)

I take 3600 MG/Day to help with an indiopatic neuropathy on both legs. It does work very well and I am more or less able to live my life except for the side effects which are memory loss (I now write everything down) and sleepless nights. Please check the neuropathy.org site and try to create a support group in your area

hi guest 36372,
i set up the new forum precicely so that people could chat and carry on personal correspondance and leave this site for posting factual information and personal stories as well as seekng advice as i agree that the site has become very hard to find answers from if you are a newcomer. i have been "advertising" daily to keep the link where regular visitors and newcomers can see it because it was only set up on friday and many people are not aware of it yet,as time goes on it will not be necessary to post the link. we have quite a few members already. i am sorry if this has offended you in any way but a lot of ladies on here just need some support and understanding and maybe just someone else that understands how they are feeling to chat too. i do not make any money from the new site,it is not a business it is just something i wanted to do to help people who want help and understanding. i am glad that the information you have found in the guests long postings have helped you,that is precisely the point of this site,if you want to chat about what you have discovered then please come to the new site. i won't post the link as it is on this page already.
I thought that a new site was needed to share personal experiences instead of clogging up this page,kind of like a yasmin support group...as the TV advert says it's good to talk!
once again,i wish you all the best,if you find out anything that could help all the other ladies please post it here and the new forum,we should all be doing as much as we can to help each other get through this nightmare.
Oh and in answer to your question about the chest pain,i get that too,especially before my period,sometimes it goes into my shoulder too and i feltl i am having a heart attack! my pulse races for a while then calms down but skips a few beats here and there,i had an ecg done and was told everything was fine,it was just anxiety,but my doctor would say that as he does not believe that yasmin caused any of my problems anyway. There are lots of reasons why your heart may feel this way but no definative answers,it is all if's but's and maybe's. it could be to do with dehydration,could be to do with lack of magnesium or it could be a surge or lack of the correct hormone peaking at the correct time. the truth is only time will tell,hopefully it will start to improve soon.
best wishes.
sarah