November 4th
2007
6:07 AM
I have just been reading the list of, what I am considering to be "possible", side effects from Dilantin . Doesn't everyone, whether on Dilantin or no drugs at all experience headaches, nausea, stomach pains or depression from time to time?
After being on this medication for over 30 years there are some things which I've experienced. Just about everyone complains of hyperplasia but it has been my experience that if I maintain a clean healthy mouth, there is no hyperplasia. If, for one day, I do not brush my teeth, hyperplasia sets in immediately & it then takes a week or so to get it under control. So, brush, brush & brush your teeth.
As far as memory loss or difficulty learning, I suppose it happens to everyone at one time or another. However I have graduared from high school with honours & became a registered nurse (top 5 in my class of 56) all while I was on Dilantin.
The only true adverse side effect from taking Dilantin for over 30 years which I experience is that whenever I am tired, my speech can easily slur. I am very aware of this & it's become habit to pay close attention to my pronounciation & correct it so I may articulate normally. Not a big deal & a very small price to pay.
I'm not one for pity trips or blaming my seizures or medications for my downfalls in life. I am so grateful to have my seizures under control & hate to think where I would be today if not for Dilatin. Remember, if you look for it , you will likely find it. So try not to look for all these adverse side effects (crutches)& see the benifits. We have enough to handle keeping this under control & educating the sometimes ignorant world.
I took control of the epilepsy that attacked my system. I would never allow it to control me. Good luck to all of you. Sincerely :)
June 19th
2007
1:27 PM
57 years old male. I took Lipitor for 5 years. I didn't notice that 3 months ago I was getting very weak - attributed it to being out of shape. I went to the Dr when I started having trouble swallowing, and shortly after that I lost most of my strength and have difficulty walking, getting out of chairs, rolling over in bed, etc. If I walk more than 200 yards, I need to be supported by friends on both sides, and my legs and arms start shaking. I have been off Lipitor for 3 months with no improvements.
I would recommend to anyone on this drug to get off it if any sign of these side effects shows up, no matter how mild...
-- By chris2007 | Reply | (2) replies | Private Message me
December 11th
2006
7:05 PM
does anyone else slur thier words or otherwise seem like they have been drinking while on lisinopril?
thanks for your input.
July 28th
2006
11:53 AM
I've been on Lamictal for 3 years after a brain tumor removal. I was intially on Dilantin but the side effects made me crazy. My face constantly tingled and was numb, I couldn't speak well and the dizziness was debilitating. My neuro put me on Lamictal. I started off at 100mg, once in the morning and once at night, and had another seizure. I finally figured out I was having my seizures in the late afternoon and deduced the drug was wearing off around that time. My neuro put me on 150mg 2x a day and 100mg at lunch time. I've had no seizures for 2 years and 3 months so I think we have the dosage problem licked. However, I am really dizzy in the late afternoon and if I get excited like when I'm at a party. Shopping makes it much worse and I think that is due to moving my eyes around so much. Grocery shopping can be a tough task. I don't slur my words but I frequently cannot 'find' the right word. I'm slower in everything. I cannot take a walk looking at the horizon because I lose my balance and get dizzy again. Sometimes my head tingles. Heat makes it worse and when I get hot flashes (yes, I'm over 50) makes the dizzy much worse. Sometimes my fingers don't automatically go to the home key on the computer keyboard. I have to really concentrate on things that used to be automatic, like knowing a stop light is red. I used to be able to 'see' that and react appropriately. Now I have to concentrate on those red lights so it is irritating. I feel like I'm getting old. However, I will stay on this medication. It works and though the side effects are tough to live with, I'd rather stay on a med that I know works, rather than try one that might work. I lose my driver's license every time I have a seizure. I guess that is the worst side effect :-( I'm hunting for something to combat the dizziness and am using mybraintrainer.com to see if brain training exercises will help me become faster again. It can't hurt and so far I've had a little bit of success. I'll just keep going.
-- By raney7 | Reply | Private Message me
July 26th
2006
1:00 PM
i am a highschool student and have been taking geodon off and on for at least 6 months, i got BPD and have been on other stuff but this is the only one i will put up with, after being on it at least 6 months i still could not wake up in the morning, when i get up my eyes start rollin around the back of my head and i cant stay awake , i cant walk and i slur my words when i talk, at the most i was taking 20mg morning with 40mg riddlin and at night 20mg geodon, well i got pissed off at the side effects and stoped takin it in the morning. i read up on riddilin and i dont like it being narcodic so i stopped that since its summer and i can sleep a little later. long story short i thought i wasnt bipolar and had no problems this was a big mistake, a month after completly stopping geodon i relized all my close relashonships have been destroyed and blame it on not taking meds. one more thing i noticed though, if anyone gets very parinoid on geodon thats what happend to me and when i got off i wasnt parinoid, its now setting back in, i cant stay in my home alone. but anyways just thought id put my two cents in about that stuff its kinda put me through hell.
-- By natasha88 | Reply | Private Message me
February 9th
2006
7:34 AM
I am on now 400mg of Topamax a day. I take it for epilepsy. I have some halluciations but I ignore them. I lost over 30 lbs. The weight loss was needed because of a seond medication I am still currently on that made me gain weight. The Topamax gives my legs and neck the worst pain and mucsle achs... I get blurred vision. I will be trying to talk and my speech will start to slur or I forget words that I will need help remembering that are right on the tip of my tongue. My short term memory, that is not so good, I forget things most of the time. The medicine is for migrane relief but since I have been on it I have had the worst headaches ever! Along with the rest of you I do have gas problems also......The only reason I do not get off this stuff is that I have tried over 10 different medicines that didn't control my seizures, this does. I have had all the tests, Just went in for an MRI, what else can we do?
-- By babybleus | Reply | Private Message me
February 9th
2004
8:21 PM
About a half hour after I take one teaspoonful I feel like I am Drunk on wine! I giggle and slur and eventually pass out! The medicine works great however I wouldn't recommend working or driving after taking it.
-- By arat459 | Reply | Private Message me
Topamax (1) Dilantin (1) Geodon (1) Lamictal (1) Yasmin (1) Lipitor (1) Bromaxefed DM RF Syrup (1) Lisinopril (1)
June 17th
2008
3:00 PM
I have waited long enough to tell my story. I am a 29 yr old single mother of 3. I started YAZ in Feb of 2008. I took it for 11 days. ELEVEN DAYS. It was about 4 days in that the headaches started. I couldn't stand light, I wore hoodies and sunglasses. I was nauseated. Saw double, black spots. Motion sickness.I could barely make it to work. I was out of control. I did not have control over my mind. I was crazy. My friend almost took me to the hospital to have me committed. There is no history of this in me or my family. The headaches would last from the time I woke up til the time I would go to sleep. Painkillers was the only thing that would keep me asleep through the pain. My dr immediately stop the the pills. I saw an eye doctor and they found nothing. They ordered an MRI. They found T2 Foci scattered throughout my brain. VERY unusual in someone my age. What that is, is my protective covering of my brain cells had been damaged there were gaps in its covering. I soon developed a stutter and a slur in my speech. The pain then moved throughout my whole body. They said fibromyalga and daily migraines. I'm now on topamax daily which gives me breaks in my headaches. I still get them daily. I still have pain in my body daily and I'm on painkillers daily. I have found a new dr who is wonderful. Who has recently taken blood. Who thinks that maybe it could be lupus. So I started researching Lupus...my symptoms and rashes match up. There is also a DRUG INDUCED LUPUS. and ORAL CONTRACEPTIVES is a KNOWN drug that can cause this!!! BUT IS THAT ON THE LABEL???? NOOOOOOOO!!! I was perfectly healthy before yaz, in kick boxing and now I walk and have the memory of a 60 yr old and my brain is permanently damaged. I have another MRI coming up to find out if there is more damage and I will find out the results of the blood work to find out what is wrong with me...but I blame all of this on YAZ and I hold them responsible. I SAY CLASS ACTION LAW SUIT....just have to find a firm with big enough BALLS to do it!!!
-- By moose19 | Reply | (5) replies | Private Message me