December 27th
2008
5:14 PM
Was diagnosed with a bacterial stomach infection Dec 17 and given a prescription for 5 days of Levaquin 750. It immediately cleared up my fever and diarrhea within 24 hours. My appetite started to come back, but after the 3rd dose, i started to feel worse. No fever or diarrhea, but instead I was very weak and constantly hungry. At first I thought this was just from not having eaten for 4+ days due to the infection, but no matter what i tried to eat (i had no appetite) I felt very weak, and would sweat a lot. Finally on Dec 24 went back to the doctor, and found out I had very low blood sugar from the Levaquin. It registered a 46 (below 70 is a problem). Doctor told me to just force myself to eat. Christmas morning, woke up with severe shakes, and thought I was going into shock. I ate a bunch of sugar and we went off to the ER. Luckily bloodwork was all normal, but the ER Doc basically said I hadn't eaten enough and was starving myself. He admitted the Levaquin can cause the loss of appetite (along with many other bad things) so he gave me medicine for the nausea so I could eat. Its now the 27th and I'm starting to eat more and feel back to normal. I'll NEVER take Levaquin again.
-- By jeff94ag | Reply | Private Message me
December 19th
2008
9:11 AM
The second day after I started to take Lotrel 5/20 my blood pressure lowered considerably (good news) The bad news was about 45 after taking
Lotrel I felt a gradual tightening in my lower neck that traveled up and increased in intesity until it felt like someone was tightening a noose around my neck! I could not inhale ANY air. Nothing. For about 30 seconds I struggled managed to croak air OUT not IN and say "anaphlactic shock 911" to my son. Just before I thought I was going to pass out I was able to get air in and gradually breath. I have never been so frightened in my life.
December 8th
2008
12:54 AM
WOW! My jaw is on the floor. I have been taking Simvastatin for 4 years! At around that time I started feeling ill. I ended up in the infection clinic. There they did 6 spinal taps since they could not understand why I had this major headache, and stablike pains.
I was hospitalized for 2 weeks and during the last 4 years I have been in and out of hospitals and doctors.
After they found 'nothing' they told me that I might have LUPUS/RA. So they started me on drugs to treat reumatism. I was on 2000mg per day! Complained and said that the meds where not working and I needed help and someone to listen to what I was saying. Then one of the many doctors I had was telling me to shut up and go see a psychiatrist. That got to me and so I started writing letters. I got a 'new' doctor and he said odd. Told me he was only interested in my joints. After the second time w him he passed away and so I met a fresh doctor, on that was right out of med school.
She looked at me and said...*You cant go on living like this, this is no life.* she sent me to the hospital for 2 weeks so that I could get the right treatment. There they realized that I have no sings of reumatisum but rather a connection w Simvastatin.
They right away told me to stop taking all the reumatisum medication and they will now focus on removing Simvastatin.
I am blown away.... I was so sick, so may hours lost from work, family and friends. I almost left my husband because I felt like I was just 'there' not ever being able to do things. I was so sick all the time.
Wow is the only word I have in my head right now- I am in a shock.
December 5th
2008
4:16 AM
Wow this page has helped me so much! I really thought I had lost my mind! I started these pills 2 months ago. I'm not sexually active but have very severe periods due to an ovarian disease. My OBGYN thought birth control would be the best choice. At first everything was great the cramps(which lasted 3 weeks out of the month for me) were gone! my mood did change. I've always been a very happy person and all at once I was this mean crazed person! I couldn't think about anything without feeling mad or angry or just wanting to cry. Then last week I got my first period after taking the pill I was in shock because I didn't even know it was coming. 4 days long I was so happy. I was off my period Wednesday and awoke Thanksgiving morning with the worst pain I've ever felt in my entire life. I went to the ER and they thought it was my gallbladder I've been having tests done all week. Well Sunday I got my period again!!! It's so much more intense then I've ever had in my entire life! It's now day 5 of my second period in 2 weeks and I was talking with my grandmother when she suggested maybe the whole problem was my BC. I read the little info pack the pills come with and was in complete shock. I decided to look up side effects and am so glad I did. I'm calling my doctor first thing tomorrow so maybe finally something can be done. Since I started this pill I've lost my appetite and been tired and bitchy nonstop! But with not eating I've gained weight! It's horrible!! SOMETHING HAS TO BE DONE! Good luck to everyone else whose coming off of the pill or just started it!
-- By jmp18 | Reply | (1) replies | Private Message me
December 4th
2008
9:21 AM
my 4 year old daughter suddenly went in a coma.she has one change in her life that was using singulair.MRI was normal but EEG was abnormal.İn our family history there is no epilepsy.we stop using it and now all the things are ok.Today we are going to have EEG again.I wonder how will be the results.Reading all this made me shock.We were nearly loosing our baby.
-- By musculus | Reply | Private Message me
November 21th
2008
3:54 PM
I was prescribed YASMIN about 2 weeks ago now after seeing my GP about low sex drive and depression. It was a shock to me that the doctor decided to change my pill to Yasmin. I was advised to finish my old pack of pills and not take the week break and to just move straight onto the Yasmin. Obviously I followed these instructions thinking things would improve but to my surprise things are still the same if not worse. The very first day I started my first Yasmin pill I suffered from hot flushes and felt sweaty for no reason. I am not a hot person. I also noticed that all I do is yawn all day long which is really weird. My period has not yet stopped since a week and half ago. After asking my sister what her experience was like on Yasmin she said it gave her bad spots and her friend that took it before suffered from severe side affects and did not get on with it at all. Just like to say this has done nothing for my sex drive, if anything its pursponed it even longer! I thought I'd look the side affects up for myself and have read enough to make me think about having the injection. Can't be bothered with pills anymore......at least you don't have to worry about periods with the injection!
-- By k123 | Reply | Private Message me
November 19th
2008
8:07 PM
I had Mirena placed in Sept 2007. I have 2 girls, wasn't ready for more at the time, was horrible with taking the pill (both in remembering to do so and with the side effects). Since Mirena is only a "local" hormone, I thought it would be a great choice for me. This past summer I got online to find out why my periods were so odd... brown, clumpy, really short but frequent... and came across this site as well as a few others. I couldn't believe the stories everyone was sharing! I could easily dismiss all of my symptoms away to something else... constant exhaustion (I have 2 kids under 5 and work full time, maybe my thyroid), anxiety and even a few panic attacks (started a new job), no libido (tired and stressed… How funny to spend so much money on birth control and have no desire for sex!!!), irritable (2 kids), hair loss (didn't even think of that one, but it is true), night sweats (maybe I am just dressed to warmly to go to bed?), unable to lose some weight (gained 5 pounds post insertion now that I think about it) even though I had joined a gym, was working out with a personal trainer and really watching my eating (maybe this is my new weight... I am 35 and my metabolism is supposed to slow down), weird pain/bloating in my lower abdomen (gas??? maybe something I am eating???), the described ‘Fog’… how true! I saw my doctor about 1 ½ months ago and we discussed taking it out. I had my thyroid checked first just to see if that may be the problem. It was, but after putting all of these pieces together I just needed to get this thing out!!! I had it removed one week ago. I felt better immediately. I am sure that was psychological, but who cares! Bled for a week and now it has stopped. Feeling some cramps still, but overall really good, especially emotionally. I asked my doctor about the ‘CRASH’ and she hadn’t heard of such a thing. I am kind of on the fence with this one… just waiting… hoping it won’t happen. If anyone is about 1 week out like me, I would love to hear more from you! I am sure Mirena is good for some, but I am sure it is not good for me. I am happy to be out of the fog.
-- By corit10 | Reply | (2) replies | Private Message me
November 18th
2008
10:52 AM
Omigosh! I can't believe all that I am reading!!! I have had the Mirena since Dec 7, 2005 almost 3 full years. I have been feeling icky for quite some time now. I have had frequent headaches, backaches, acne, memory loss, weight gain, mood swings, and most of all feeling like I live my life in a fog with severe tiredness. I decided to come online and look for side affects to the Mirena and found all of you having alot of the same issues as I am. I never thought all the things I have been experiencing were related to the IUD. I am in shock sitting here reading all of your stories. I am a 36 year old mom with 4 children and decided on the Mirena because I get pregnant very easy and didn't want to have any more kids but also wasn't ready to have my tubes tied. I thank everyone for this very informative and eye opening forum. I am going to make an appointment and have my Mirena taken out for good! I will take the risk of pregnancy over feeling like I have for so long any day!! God Bless you all and good luck to you all.
-- By purplerose | Reply | Private Message me
November 13th
2008
11:58 AM
October 22, 1998 I had resp. failure (with intubation). My new pulmonary doctor put me on Singulair 10 mg once a day, a few weeks after. Within time, I started to have numbing and tingling in my face, arms, and legs. March of 1999 the symptoms worsened and started causing pressure in my face, arms, and legs, and anxiety started to kick in. I was told I had neuropathy and to take mobic. Symptoms getting worse, and went to a rheumatologist in June 1999, and he was suspect of singulair. The doctor thought that what I was experiencing was due to the singulair. He (the rheumatologist) discussed this with the pulmonary doctor and the pulmonary doctor did not believe this to be the case. Not forgetting, in March of 1999, I had a ct of the sinus area, and low and behold 1/3 of the cavity was and probably still is full of polyps.
As time went on, symptoms getting worse, and not one bloody doctor could figure out why I was feeling this way. In addition, at times, I was put on steroids for my asthma (not including my inhalers).
Two years ago, my body went into shock, leaving my left side very different than my right side. Affecting: my head, my face, my eye, my ear, my esophogus, my lungs, my arm, my leg.
I have been depressed and anxious not knowing what the heck was going on with me.
Recently ruled out thyroid, and lupus, and possibly ms.
Last weekend, I reviewed the letter from the rheumatologist (dated 1999) and the ct report from March 1999 (regarding the sinus/ polyps) and made copies to present to a pulmonary doctor that I have recently been seeing.
This past Monday the 10th, I had my appt with him. He knew of my situation from the last few visits (in addition, I had met him this past March for a pulmonary rehab program, and thought he seemed to be knowledgeable and compassionate). While waiting for him to enter the exam room, he had read those reports before entering.
The doctor looked at my hands (red as a beet and swollen) and said "You have Churg-Strauss Syndrome, and get off the singulair."
I had done my homework from a few weeks ago, where I looked up untreated polyps.
Untreated polyps, can turn into vasculitis. There are many types of vasculitis, to include Churg-Strauss Syndrome.
I then cross ref CSS and singulair, and low and behold, BINGO!
I have been suffering for ten years, physically and emotionally because of this drug!
There is also recent updates from the fda (fda.gov) regarding singulair, of which most recently includes anxiety and depression.
I suggest before taking singulair, be aware of the side effects. As soon as a side effect comes up, contact your doctor. Also, be aware of existing conditions (like me, sinus problems and asthma) for this could lead to churg-strauss syndrome.
This info is indicated on the actual disclosure (the paper insert that indicates studies, side effects, etc...) not the handout that is given with the drug.
By the way, I am now working with a new rheumatologist in Los Angeles (Cedar-Sinai affiliated) and a new neurologist.
mdklezmer
-- By 1mdklezmer | Reply | (1) replies | Private Message me
November 1th
2008
9:38 PM
Ladies, ladies, ladies...have I got a few stories for YOU!
I will never forgive myself for wasting three months of my otherwise fabulous life using the Nuvaring.
Nuvaring Nightmare #1: The Slingshot Incident
One night, my boyfriend and I were making love in an unusual position when his member slipped out of me. After an awkward pause I turned around and saw a look of shock and confusion on his face, with the Nuvaring sitting on his chest. Apparently the naughty Nuvaring had gone soaring out of my vagina like a slingshot during all the action and had bounced off his face to land on his chest.
BUT WAIT...it gets worse...
Nuvaring Nightmare #2
Boyfriend and I were in the bathroom for a quickie one day with all the lights turned off, when we realized that the floor was strangely slippery...our feet were slipping all over the place. We turned on the lights to find ourselves and most of the bathroom covered in blood! After a few seconds of searching for the source of the blood, we quickly realized that the evil Nuvaring had badly nicked the head of my poor boyfriend's penis. Needless to say, the mood was killed. Worst of all, it took two weeks to heal...and then it happened again on my brand-new mattress. There are still blood stains under my bed. After that, my boyfriend said, "Either you STOP using the Nuvaring or we STOP having sex!!"
My roommates said I was a moody monster for the entire three months that I used the Nuvaring...and I suspect you would be too, if this had happened to you. If you value your sex life, you relationships with others, and your personal safety, DO NOT EVER TRY THE NUVARING!
-- By griff566 | Reply | (1) replies | Private Message me
October 31th
2008
11:22 PM
If you like yourself, DO NOT choose this form of birth control!!!!!! I experienced several side effects almost immediately within my first cycle of this "should be outlawed" drug including a cyst on my ovary that burst (PAINFUL!!!!!), very hormonal PMS and periods (like going through puberty again), heavy bleeding and clotting, swelling like I experienced after delivering my children - yes, even sitting was uncomfortable, painful intercourse, muscle aches, and cramping like afterbirth. Most of these symptoms subsided after I did the math and freed myself of this health hazard. All I have described sound hormone related and logical but wait, there is more . . . while on the NuvaRing, I also developed a tumor in my leg that attached to my bone and required surgery. I was blessed that it was benign but at first was told it was malignant by bone tumor specialists from three leading Manhattan Hospitals! My children were 3 and 1 at the time so you can imagine how I felt! Also, a condition that has not gone away after 1 year and 4 months of no more NuvaRing is chronic sinus problems. These sinus problems first developed when I made the mistake of using this venomous drug. I myself thought there could be no correlation until I went on line and read that other women suffered with sinus issues after using the NuvaRing. I have developed sinusitis that I've had no luck in treating holistically and these severe infections have been resilient to most antibiotics. I've finally faced this sinus issue and have scheduled a CT scan and ENT appointment for next week so I hope I can get to the root of the problem as I am sick of feeling sick! By the way, I'm extremely fit, a very healthy eater, and was in GREAT health before use of the NuvaRing! I'm writing this because I would not wish my experience on anyone and wish I had read comments like this PRIOR to making this poor decision. I so dislike this drug that I have to turn-off the TV when the commercial comes on. Again if you like yourself, DO NOT use the NuvaRing!!!!!!!!!!!!!!!!!!!!!!
-- By mmandalakis | Reply | (2) replies | Private Message me
October 31th
2008
10:17 AM
No side effects yet - coz I haven't taken it!!! I recently had my blood work done, it had been 2 years slightly elevated cholesterol so, in those 2 years leading up to latest bloodwork, I've eaten oatmeal every morning, taken Flax/Omega 3, B-complex, olive oil for all cooking, I have a glider, 20mins. 5 days wk. but had to watch myself, lost too much weight, I'm only 105lbs now, etc. etc....so, shock and horror my latest results: 232 Total Chol. 157LDL 57HDL-good number really, and best thing, 91 triglycerides, glucose 87 - so I guess some of the above improved some numbers. Dr. suggested a doppler/carotid.....a note received yesterday "some build up" and enclosed prescript. for 40mg. of this poison which seems kind of a high dose to me? So, is he not telling me the extent of "some build up?" what's "some"....I need to find that out first - but I really don't think I'm gonna be taking this stuff - there is so much info out there debunking this cholesterol thing....I'm 58, would there be natural build up in arteries, I mean your plumbing pipes don't stay pristine forever - there's bound to be build up, surely? Or am I kidding myself. Any suggestions out there, people!????
-- By camberwell | Reply | (1) replies | Private Message me
October 24th
2008
8:30 PM
I had my inserted on May 2nd, 2008, wow what a horrible experience. I went into shock & they kept me for over 2 hours (never had kids). I had cramps for 3 days, the first night I so regretted having it inserted. For several weeks afterward I had period like cramps that kept me form doing my daily walk & gym session. I have not gained weight thanks god, my skin feels oilier but manageable. I do wonder if my new acid reflux might be linked to Mirena??? Will give it more time.
-- By marleg2669 | Reply | Private Message me
October 15th
2008
5:16 PM
I CANNOT TELL YOU HOW THANKFUL I AM THAT I HAVE COME ACROSS THIS WEB SITE. UNDERSTAND THAT WE GO THROUGH LIFE WITH MAJOR UPS AND DOWNS AND SOMETIMES WE NEED SOMETHING TO HELP US OUT. BUT AT WHAT COST? EVERYONE IS DIFFERENT. AND PERHAPS WITH FAMILY HISTORY AND WHAT NOT THERE ARE PEOPLE WHO NEED MEDS TO HELP THEM OUT. I FIRST BEGAN TAKING YASMIN ABOUT 4 YEARS AGO. NEVER THOUGHT MUCH OF IT BECAUSE I HAVE BEEN ON BC MOST OF MY LIFE DUE TO BAD PERIODS, WHICH STARTED WHEN I WAS A TEENAGER. UNFORTUNATELY I DID NOT BOTHER TO EXPERIMENT WITH THE FACT THAT AS YOU GET OLDER YOU'RE BODY CHANGES. SO RATHER THAN GET OFF BC I JUST CONTINUED ON WITH IT 1 TO PREVENT PREGNANCY AND 2 IT HELPED THE BAD PERIOD SYMPTOMS AT THAT TIME. OF COURSE YOU READ ABOUT SIDE EFFECTS, BUT THEY GIVE YOU THE "NOT SO BAD" VERSION OF THEM. ALMOST A YEAR AGO I STARTED GETTING HORRIBLE UNBEARABLE MOOD SWINGS, ANXIETY YOU NAME IT. SO I DECIDED TO GO TO THE DRS. TO FIND OUT WAS WRONG BECAUSE I HAD SIMILAR SYMPTOMS TO A THYRIOD PROBLEM, BUT THERE WAS NO PROBLEM BECAUSE MY TONS OF BLOOD WORK I KEPT TAKING CAME BACK FINE. SO THE DR PRESCRIBED WELLBUTRIN AND LEXAPRO. I WAS DESPERATE AND JUST WANTED TO FEEL GOOD AGAIN. THE FIRST COUPLE MONTHS WERE ROUGH BECAUSE OF THE SIDE EFFECTS AND THEN THE MEDS STARTED TO WORK AND EASE EVERYTHING UNTIL RECENTLY. I AM BACK TO SQUARE 1! DON'T WANT TO DO ANYTHING, BASICALLY HAVE ALL THE SYMPTOMS BACK FROM THE SIDE EFFECTS. FROM THE SHAKING TO THE MUSCLE ACHE, MEMORY LOSS, WEIGHT GAIN, THINNING OF THE HAIR(AND IM BLOND AND HAVE FINE HAIR TO BEGIN WITH) WHAT EVERYONE IS AND HAS BEEN FEELING ARE REAL AND NOT JUST STUFF MADE UP IN YOUR HEAD. YOU ARE NOT CRAZY! SO BASICALLY BY JUST TAKING ONE MED LED TO ME TAKING ONE RIGHT AFTER THE OTHER. SO BY THE GRACE OF GOD I STUMBLED ACROSS THIS SITE WHEN I HAD GOOGLED MEDS TO HELP WITH SEVERE MOOD BEHAVIOR. AND THE FIRST THING IT CAME TO WAS THE YASMIN SIGHT AND LET ME TELL YOU I WAS IN SHOCK BECAUSE I COULDN'T BELIEVE WHAT SIDE EFFECTS IT HAD THAT MIMICED ANXIETY, WHICH LED ME AND MY DRS. TO THINK THAT I HAD ANXIETY, WHICH I DON'T THINK IS THE CASE. I BELIEVE THAT ALL THESE PROBLEMS STEMMED FROM THE YASMIN. I THOUGHT THAT I WOULD HAVE TO BE MISERABLE MY WHOLE LIFE. TO SUM IT UP THE SIDE EFFECTS FROM THE PILL HAD MADE MY BODY HAVE SYMPTOMS OF ANXIETY ETC. NEVER HAD ANYTHING LIKE IT BEFORE. SO I HAD CLICKED ON TO WELL BUTRIN AND LEXAPRO BECAUSE I HAVE BEEN TAKING 450 OF THE XL AND UP TO 40 ON THE LEXAPRO...HORRIBLE HORRIBLE HORRIBLE! SO I HAVE TO DECIDED TO STOP EVERYTHING AND SEE WHAT HAPPENS BECAUSE I CANNOT TAKE THIS CRAPY FEELING ANYMORE. MY DAUGHTER, BOYFRIEND, AND FRIENDS HAVE ALL SUFFERED FROM THE SIDE EFFECTS OF THESE MEDICATIONS. THANK GOD I STILL HAVE A CHANCE TO MAKE THINGS RIGHT WITH EVERYONE. EXCUSE MY LANGUAGE, BUT I PUT THE BITCH IN BITCH AND NOT PROUD OF IT BECAUSE THAT'S NOT WHO I AM. HOPEFULLY YOU HAVE READ THROUGH BECAUSE IVE READ EVERY COMMENT ON THIS SITE AND IT HAS DONE ME A WORLD OF GOOD, I FEEL LIKE THEIR IS STILL HOPE TO ACTUALLY WAKE UP ONE MORNING AND NOT FEEL TIRED , HAVE A HEADACHE, NOT BE CONSTIPATED AND THE LIST GOES ON. SO LADIES YOU ARE NOT ALONE, IT IS HAPPENING TO YOU AND HOW YOU CHOOSE TO FIX IT IS ALL UP TO YOU IF IT HELPS THEN STICK WITH IT,BUT IF YOU'RE FED UP AND MISERABLE LIKE ME, RID YOU'RE BODY AND SEE WHAT HAPPENS. I WILL DEFINITELY GIVE AN UPDATE TO WHAT HAPPENS AND IF THE MEDS WERE THE CULPRIT OF MY PROBLEMS.
-- By mombrooke | Reply | (1) replies | Private Message me
October 4th
2008
3:49 PM
My 10 year old daughter has been on Singulair for 5 years- I am in shock of all these postings! I logged on because someone mentioned the possibility of weight gain as a side effect. Has anyone experienced that?
-- By kcrank | Reply | (2) replies | Private Message me
September 16th
2008
12:20 AM
IS THIS SITE AN ANSWER TO OUR PRAYERS?
A little while ago less than two hours, after a very emotional, difficult battle with my daughter, we had yet another heart to heart to try to do better. At the end of our talk WE PRAYED for guidance to know how to help the situation. So I'm here looking for a link to her behavior fron the ADHD medication and I see someone had posted about Singulair side effects. I was floored! I have never thought that Singulair was not a safe drug. No doctor has ever mentioned any negative side effects to me regarding it. The more I'm reading about it the more in shock I am. Have I and her doctors been doing this to my daughter? My 12 1/2 yo daughter has been on Singulair for probably 10 years. She was a 28 week preemie and had severe lung issues so it was a needed medication. Her behavior has worsened the older she has gotten. Because of mostly anger issues and problems in school about a year ago she was started on ADHD medications. We are currently trying to find "the right one" . I feel so awful. Could all her misery have been caused by this little pill that was suppose to help her? Why has her pulmonoligist continued to give it to her although she has not had any serious asthma problems in years? I think I will stop all medications and see what happens. My daughter has also been on amytriptylin for about six months also for severe migraines. What do you think? Should I stop all of them cold turkey or gradually decrease one at a time? I would GREATLY appreciate any advise.
Thank you
August 31th
2008
9:08 PM
Hi, my name is Hannah and I am a senior in college. At the age of 19, I was diagnosed with epilepsy. I was a sophmore in college at the time, had a job, and was a completely HEALTHY girl. I have been living with the disease for two year now, and my doctors still can't come up with the cause for my seizures. Recently my sister called me to ask if I had received the gardasil shot, because on CNN talk radio that people were starting to think that the garasil shot might be linked to paralysis,seizures, and even death. I immediately called my OBGYN to ask the dates in which I had received my shots. My first dose was given on Oct.17, 2006. I had my first set of seizures on Nov. 24, 2006. WOW...I was in shock. I feel like I now have an answer for the cause of my illness. I talked to my Neurologist about this and he said we will have to wait until more research is done. I am convinced that Gardasil was the reason for my epilepsy. I am so sad to think that other girls are going in to receive a vaccine that is suppose to help their lives, and instead they could have crippling side effects that never go away. I can no longer drive, I had to choose between school and a job, and now I have to plan my day around taking my medicine. All because a drug company wanted to make some money before their completely researched their product.
-- By hks610 | Reply | Private Message me
August 28th
2008
12:42 AM
I have been on Remeron for last month, the first week was wonderful. I fell asleep for 12hrs the first night. The following nights of the first week were great, I slept like I hadn't in years. The third week it started to all crash down on me. I couldn't sleep, my legs felt like I had bugs crawling all over me, I kept my poor husband up all night, getting up and down, kicking and turning all night. I then started realizing I was angry over nothing. My mother is very sick and will not get better (one of the reason I started Remeron in the first place) and I am noticing I am irritated if she needs something or just calls to say hello. I don't want to talk to anyone, not my friends, husband or even my children. My son is a diabetic and I told my doctor if I took any medicine it couldn't just knock me out, I had to be coherent enough to take care of his needs. The medicine didn't bother me the first couple weeks. The third week, I would forget how much insulin to give him, and that is a scary feeling if you gave your son the right amount of medicine. I would think after I gave him his medicine, did I give him the right amount or am I going to make him go into shock. I also have gained weight, I have never liked sweets and that is all I think about. I go to dr. this week, hopefully she will find a new med that won't make me forget everything, want to be such a hag to everyone, and help with those crazy leg tingles. I was on 15 mgs to start out on, I even took an extra one the other night because of the leg tingles, and it made it worse. So I took an over the counter sleep aid and I finally fell asleep at 4:00 in morning. I am so glad I found the site, I thought I was losing my mind. Thank You to all of you, you have helped me tremendously.
-- By wpaytongirl34 | Reply | Private Message me
August 22th
2008
5:16 PM
This is an evil drug, far more dangerous than most illegal drugs. It ruined my life. I wish I had never been put on it. It was the first drug I, a teenager, was put on, having just been diagnosed with my disease.
I hadn't tried other drugs or other treatments; medical guidelines, I know now, say not to use this drug unless the disease is both severe and other treatments have failed. Well, I hadn't tried other treatments yet, so I shouldn't have been put on this drug. And yet the doctor I was assigned, Dr. Anne Sullivan at the University of Iowa's hospital, thought I needed to be on it, told me it was safe, that it didn't have any side effects, and that I would be completely healthy again in a few weeks.
If I had been told about the side effects, as doctors are supposed to do, according to both legal and medical standards, if my doctor had honestly answered my questions about side effects, I never would've taken it. And I'd advise others to never take this terrible drug. I would rather die than take this drug again.
It did nothing for my disease, but it did give me quite a few side effects, some which, according to the doctors I've subsequently went to, are permanent and long-lasting and there's nothing you can do about them; they're just permanent.
People don't talk about the psychological effects of steroids, but they should; they're serious. And, no, they don't just go away when you stop taking the drug. If the drug makes you bipolar, you're not just going to just go back to being you're regular self. Bipolar disorder, depression, anxiety, these things don't just go away on their own.
I had no problem with mental illness before taking this drug, and yet I'm still severely depressed to this day, part of that, perhaps, is from what the drug did to me, that is, the physical side effects, but part of, I suspect, is just that it changed my personality, like it changed my brain chemistry.
Go here-******to learn about the psychiatric effects of prednisone.
Excerpts:
"Although a powerful therapeutic option, corticosteroids are associated with serious adverse effects, both physiologic and psychiatric. While the somatic adverse effects of corticosteroid therapy (Table 1) have been extensively researched and widely described, the neuropsychiatric adverse effects have received less attention."
"In our literature review, we found that the potential psychiatric adverse effects of corticosteroids span a symptom spectrum from subtle mood changes to full-blown affective syndromes and frank psychosis."
"The most commonly reported corticosteroid-induced psychiatric disturbances are affective, including mania, depression, or mixed states."
"Cognitive deficits, particularly declarative or verbal memory deficits, have been well documented during both long- and short-term corticosteroid therapy."
"More severe cognitive impairment consistent with delirium or dementia has also been described."
"In a case-control study of 20 patients receiving long-term low-dose corticosteroid therapy (prednisone, 7.5 mg/d for >6 months) and 14 volunteers with similar illnesses who were not receiving corticosteroid therapy, Bolanos et al9 found a 60% lifetime risk of corticosteroid-induced mood or anxiety disorder."
"The corticosteroid dosage is the most important risk factor for the development of psychiatric symptoms."
"Psychiatric disturbances can occur at any point during corticosteroid treatment, including almost immediately after initiation and even after cessation of treatment."
"Corticosteroid-induced psychiatric disturbances are common and include mania, depression, psychotic or mixed affective states, cognitive deficits, and minor psychiatric disturbances (irritability, insomnia, anxiety, labile mood)."
"It is important that clinicians in all specialties become aware of the potential psychiatric adverse effects associated with corticosteroids and explain these effects to their patients."
"Which patients will experience corticosteroid-induced psychiatric disturbances cannot be predicted. Dosage is the most important risk factor for the development of adverse effects, with patients receiving less than 40 mg/d at minimal risk, those taking 40 to 80 mg/d at moderate risk, and patients receiving more than 80 mg/d at high risk. Most patients will develop symptoms during the first week of treatment, and more than 90% will develop symptoms by 6 weeks."
Side effects: mixed bipolar disorder/manic-depression, suicidal ideation, cystic acne, scars on my face, panic attacks, severe anxiety, rage, euphoria, sadness, impulsiveness, confusion, memory loss, hard to concentrate and remember, thin skin, delayed healing ability, bruises, premature aging, rapid heart beat, heart palpitations, high blood pressure, higher cholesterol, thyroid disease, sweating all over, itching all over, joint pain, increased appetite, massive weight gain, stretch marks, hormones out of balance now, dry eyes, so dry my eyelids stick to my eyes, so dry I can't wear contacts any more, permanent red eyes, blurry vision, vision worsened, eye pain, eyes sensitive to light, migraines, and yellow skin.
-- By sofronitsky | Reply | (9) replies | Private Message me
August 13th
2008
8:38 PM
I just wanted everyone to know that I am still here and concerned about everyone who is having side effects from Singulair. Sometime within the next few weeks I am going to post a summary and conclusion about all of the research that I have posted. I hope to come up with a well organized concise statement about why everyone who experiences side effects from Singulair should stop using the drug immediately. Not everyone has an adverse reaction to this drug. For those who do, it is very dangerous to continue this medication even for one more day.
STOP IMMEDIATELY IF YOU SUFFER SIDE EFFECTS FROM SINGULAR. WHEN YOU SUFFER SIDE EFFECTS FROM SINGULAIR, THE REASON IS THAT YOU ARE NOT COMPATIBLE WITH THE DRUG'S GENETIC BASED MODEL.
Singulair targets the CysLT1 receptor, which is a gene. This gene is not the same for everyone. If your doctor does not understand that the mode of action of Singulair has a genetic component, then tell him/her.
-- By concernedcitizen | Reply | (1) replies | Private Message me
August 11th
2008
7:37 PM
ok I posted a few months ago about my experience with this pill. Well Im now back to say it is starting not to work. My period started about 8 days ago and has not stopped but get this I am not taking the brown pills so I should not be getting a period @ all. Go figure. Also my breast which were large before I started this pill is HUGER now I take pictures from the neck up cuz I l look like Im swollen. I am now taking two pills a day to stop the bleeding so we will see but when this pack is gone im off these for good. I have had horrible cramps as if i was not on the pill. I can say the bleeding was considerably light considering I cannot leave out side my house when Im on my period usually. But the reason for me starting the pill was to not have periods at all!!!
-- By kelligirl | Reply | (6) replies | Private Message me
August 4th
2008
5:40 AM
Yasmin is a steroid so when coming off it you can suffer all the same symptoms as someone stopping a steroid drug... and by the way, when people are taken off steroids it's done in a controlled way - they cut down on them very slowly by reducing the dosage. It's a real shock to the body to just stop a steroid. This could explain why a lot of us feel so terrible when we stop taking it. I know I had a real increase in severity of symptoms followed by months and months of exhaustion and fatigue.
-- By saraheharrison | Reply | (5) replies | Private Message me
July 30th
2008
2:46 PM
I'm 39 years old with two very healthy children. That said, I got my Mirena because I was having prolonged extremely heavy periods and my regular doctor thought it was the cause of the extreme chronic anemia that I suffer from. My serum ferritin count (amount of iron stored int eh body) was 2 the lowest point of normal serum ferritin is 10-12. My ob/gyn disagreed as did I. There is something else wrong we've just not found it yet.
The Mirena helped with the bleeding to a point. I still have a period for weeks at a time but not so badly that I have to change pads and tampons by the hour, ony two or three times a day now. Turns out that my period apparently wasn't the cause of the anemia because it hasn't gotten any better.
My hair is much thinner, I've lost 40 pounds. I'm tired a lot with memory loss. Ready for a shock? I'm 5ft8 and I weigh 225 and 92/63 is my at work on my feet all day blood pressure. I don't attribute any of that to Mirena, maybe I should. I think Mirena might have prolonged if not saved my life.
However, it has been steadily losing its effectiveness I think because of my age and fluctuating hormonal levels and because my body was so starved for hormones before it was inserted that maybe it was just used up faster...I don't really know. What I do know is in the past 3 or 4 months is that I started having cramps, bleeding more heavily and even longer and my sex drive started either completely failing me or going the direct opposite and being way on out there (not that the hubby minds all that much)
I'm going to have it removed next Friday. I might have it replaced. I might not.
-- By rua | Reply | (1) replies | Private Message me
July 29th
2008
10:51 PM
Unbelievable... I took a Kenalog shot in March for spring allergies, and have had continuous bleeding ever since, went to my OBGYN, he said it would not have been the Kenalog shot that caused this.. and he scheduled me for a hysterectomy because we couldn't get the bleeding to stop... i'm still bleeding, however I have canceled the procedure. I'm sorry that so many people are suffering from this, and the Doctors keep telling us it isn't causing all these horrible side effects. I hope mine passes soon, cause all this bleeding is about to get me down... but I don't want to have a hysterectomy for just no reason........ GOOD LUCK TO US ALL!!!!
-- By herron01 | Reply | (2) replies | Private Message me
Singulair (20) Mirena (13) NuvaRing (5) Wellbutrin (4) Lisinopril (4) Loestrin 24 Fe (3) PredniSONE (2) Simvastatin (2) Zyrtec (2) Yasmin (2) Budeprion (1) Remeron (1) Lotrel (1) Fluorescein (1) MD-Gastroview (1) Kenalog (1) Klonopin (1) Advair HFA (1) Levaquin (1) Flomax (1) Seroquel (1) Synthroid (1) Omnicef (1) Gardasil (1) Advair Diskus (1)
January 2th
2009
1:57 PM
I have PCOS, and was experiencing dysplasia of the endometrium. After some search, a doctor recommended the Mirena. This was November of 2008. The installation should have been a clue of things to come. I have never had children, and had a tipped uterus, and as a result they had to use the clamps that look like needle nose pliers to grab my cervix, and after 45 minutes of stuffing, got it in. It was excruciating. I was working out 6 days a week, 2 1/2 hours a day, and eating South Beach Phase 2- and had lost 80 lbs and had maintained for 1 year. I asked if it would in any way cause weight gain, and was told it would not. Within the first month my diet/exercise regimen failed, and despite working out 7 days a week and resuming Phase 1, I was gaining 10 lbs a month- which my Doctor would not discuss with me except to dismiss it. To make a long story short, after life threatening edema and bleeding 22 or 23 days straight and with my now discovered sensitivity to progesterone, I required a total abdominal hysterectomy to remove an enlarged, boggy, and fibroid riddled uterus. I am doing 200% better now, and I am sure there are some women the Mirena works well for, but I was not one of them, and I feel the Mirena actually endangered my life (that and the arrogant doctor who inserted it and told me to be patient. I had it in from 11/2005 to 7/2007- is that time enough?) Please, please,please. If something does not feel right, do not NO for an answer. I did not want children so I was okay with losing the ability to bear children, but having a TAH at 38 is a life change that most younger women would not want. Would I have had to have it anyway? Perhaps. But I could have been in a position to be navigator in my care rather than reactive as I was forced to be.
-- By terricat | Reply | (2) replies | Private Message me