January 4th
2009
10:01 AM
My mom was put on Levaquin for 3 days to follow up on a Colitis diagnosis. She began hallucinating, hearing voices, can't sleep, loss of balance, among other things. We suspect it's Levaquin and took her off yesterday.....how long until she gets back to normal? She seems to be getting worse even though she is off it now.
-- By jikajobe | Reply | (3) replies | Private Message me
January 4th
2009
7:16 AM
Jan. 4th, 2009
4:35 am
I have been on wellbutrin 150 for several month's now and I have extreme dry mouth, sometime's unable to swallow without taking a drink. Itching, strong urine odor, hand's shake badly when drinking and sometime's eating, headache's, dizziness, lightheaded, balance is bad, nausea, depression seem's to be returning, weight gain, short term memory, leg cramp's bad enough that I have to get out of bed and walk them off, burning spot's on my lower leg's. Including the wellbutrin 150, I take about 27 or 28 pill's a day and it seem's like every time I go the doctor they add more pill's. I now also have nighttime incontinence and barely make it to the bathroom in time, but still have leakage or worse going to the bathroom, having trouble getting to sleep and if I get awakened it sometime's take's 2 or 3 hour's to get back to sleep.
--By floridapeach / Reply / Private Message Me
December 26th
2008
1:56 AM
Femcom Fe has been the wurst I am going on my 2nd week
today I experience vagina dryness this is the wurst thing that can happened to a woman,
and ever since i got on the pill I been in bad mood, constipated stomach pain, back pain, really crazy
I am getting off this pill and will let you know how it goes from here
I have always had a very high sex drive and Femcom totally mess me up :( I am so depress right now I have cry the whole day
your reply is appreciated ladies,
December 13th
2008
9:48 AM
I have been asked about my Wellbutrin experience by another member and want to post my answer to the group in case it is helpful to others. I originally posted some of this information earlier in the year. Here is my answer.......
It is the most difficult drug reaction I have ever faced but slowly the hair started growing back. It may not be quite as it was before (I have always had fine thin hair but I did have hair!!!) but it is so much better than when I finally realized what was happening to me while I was on the meds. The top of my head and temples had thinned alarmingly. I have been off of Wellbutrin since March 2008 and the regrowth started within a few months time. It is a slow process but at least you can feel hopeful when it begins.
Be sure to take the Biotin available from health food stores and shampoo and condition with Nioxin products and use the foam treatment every day no matter how tiresome it seems. I went with the starter kit. See description for products at http://www.folica.com/brands/nioxin_183.html
And to help you right now, I can offer this advice. While I was waiting for the regrowth, I used a hairpiece which helped to heal my spirit a little faster. There is also a scalp make-up product called ShaBo that helps to disguise bald spots amazingly well and Bonnie, the inventor, will personally work with you to get just the right color. Check the website for more information.
http://www.shabocosmetics.com/
Best of luck and yes it will get better!
-- By susannnah | Reply | (1) replies | Private Message me
December 12th
2008
9:49 PM
My brother passed away at 56 of a stroke. So after having my blood tests done, everything was high, cholesterol, CR Protein....doctor put me on 20mg of Lipitor....the very first day, I had severe muscle weakness in my upper thighs, back of my calves, pain in my knees, pain in my wrists, pain in my fingers. What a nightmare. I tried it for two more days, called the doctor told him, he said reduce the dose in half........not a chance, I told him I believe in quality of life, not quantity of life. I'd rather be dead, then live like that.......and yet the doctor didn't tell me to get off of Lipitor!!!
-- By denise2444 | Reply | (4) replies | Private Message me
December 10th
2008
9:45 AM
Well, Im so happy I read all these postings because I have been going crazy trying to figure out why I have gained so much weight and been so tired! I had my Mirena put in in early September, and I haven't had too much problem with bleeding after the first month, but the weight gain, tiredness, and acne has been terrible! My doctor said that she had talked with some reps. from Mirena and they assured her that the weight gain was NOT from Mirena, but I think thats a load of crap! I think Im going to make an appointment to speak with my doctor about taking this thing out!
-- By lize3 | Reply | (2) replies | Private Message me
December 8th
2008
1:51 PM
I just wanted to comment to all of you asthma sufferers. I grew up with bronchitis and my brother with asthma. We were always getting sick while young, about every 6 weeks. My nephew inherited asthma from my brother, and he had it very bad, was always getting sick, needing oxygen, etc. While in his teens, someone told him to start playing an instrument like the trumpet or trombone which really exercises your lungs. He started taking lessons in school and it didn't take very long at all to notice a remarkable difference. His other siblings would even get sick and he wouldn't! The exercise, being natural, is a far better and healthy prevention, and makes your lungs stronger. I can't believe doctors don't spread this amazingly helpful advice around. I'm VERY sure they must have heard this before. Wouldn't news like that spread like wildfire through the medical community? But they would probably lose some business!!! So I wanted to help pass it around. I hope it helps some of you!
-- By a123s | Reply | (3) replies | Private Message me
December 7th
2008
11:27 PM
I am a 49 year old male. I had my aortic valve and a part of my aorta replaced 5-1/2 weeks ago. The valve had a congenital defect and it was replaced with an artificial valve. I was able to do aerobic exercise and jog right up until my surgery.
The main problem that I have been experiencing has been numbness and pain in my arms and upper back. This has been present for the last 4 weeks. My right arm has been the worst. Most of my right arm is numb. Muscle strength has dropped in my right arm. Also for the last two weeks, part of my tricep muscle in my right arm does not "fire". I cannot move my arm in some directions. I was referred to a neurologist and he indicated that there is nerve damage. I will be having an EMG this coming week.
I am not taking a lot of medications. I take 100 mg/day of Metoprolo which I have been taking for the last two years. I am taking 5 mg of Coumadin, and I take some fish oil. I also took Amiodarone for ten days after surgery and then discontinued it.
Most of my muscle pain symptoms started 1-1/2 to 2 weeks after surgery (after starting Warfarin), and they have progressively gotten worse. Some symptoms can come and go. Symptoms include:
-Sharp pains in my arms, back, and legs
-Left and right arm aches, sharp pains in forearms when reaching
-Numbness in my right upper arm, left and right forearms, inside of my left leg, fingertips of the right hand, left thumb
-Loss of strength in my right arm. Tricep muscle does not fire (3-1/2 weeks after surgery)
-Skin is sensitive and feels uncomfortable on my arms, back, chest, and stomach
I realize that unexplained aches and pains are probably the norm after a major surgery. The numbness and pain in my arms seems to be out of the ordinary and chronic. The surgical doctors have not been able to offer any explanation, they referred me to the neurologist. Since the surgery went well, I feel that they are pretty much done with me. I feel that I am on my own.
I did try switching from Warfarin to Coumadin to see if that would make any difference. That was about 3 weeks ago and it did not seem to make any difference.
The surgical doctors do not think that the Coumadin could be causing my issues. I have read about rare, but serious Coumadin side effects that include muscle and joint pain, numbness. At this point, I am very concerned that I could lose more use of my right arm. I will be contacting my family doctor this week for advice also.
December 4th
2008
12:43 PM
Anyone coming off of Celexa feel free to email me. I have been off for 4 or 5 days now and I don't have enough time to write down what I am going thru.
Bad dizziness/wavy when I turn my head.. clenching teeth..my right arm is aching.. no idea why or if it has anything to do with this...
moody...feeling I can cry and have.. at almost anytime.. headaches behinf the eyes..
This is hard..not to mention no libido whatsoever...
help?
November 28th
2008
2:29 PM
Someone please reply! Is there a difference between ortho lo and the generic version of it?So can this pill make u lose some weight? Is that common? Also it can make your boobs bigger? IS that common? Wouldn't it be great if I lost 15 pounds and went up a boob size,lol!
Oh,If my insurance won't cover it,how much is it,then?
November 22th
2008
2:12 PM
I was put on Lisinopril 10mg. tabs for borderline elevated blood pressure that became high blood pressure (151/82). I have taken them for a week and have experienced the following problems: sleeplessness, can't focus or remember things, nauseated, slight headache every day, jittery and edgy, depressed, no energy, I go through the day in a fog. The sleeplessness is the worst. I have trouble not only going to sleep, but staying asleep. My eyes fly open and I may as well get up because I am wide awake, but feel exhausted. I am stopping the Lisinopril today! I have read enough here to know I am going to consult with my physician on Monday! I'll try a low salt diet before I EVER take this medicine again!
-- By cher90 | Reply | (2) replies | Private Message me
November 21th
2008
12:16 AM
I'm 20 years old, a wife and a mother to a beautiful 1 1/2 old baby boy. I've been on the NR for 4 days now, before that I was on the Depo-Shot for 1 1/2 yrs. I choose to get on the Depo b/c i got pregnant with my son while I was on the pills. So far I've been experiencing REALLY bad breast tenderness, and Swollen nipples along with BAD veins going around my nipples...and I have MORE discharge coming out of my nipples( Even before I got on the NR i had some discharge and milk that never dried up from having my son ) Is this normal???? My chest hurts soooo damn bad that i have to hold my chest and keep my arms from brushing against them. I could understand getting side effects later, but not this soon....maybe I'm just crazy, but this really hurts, and the veins aren't very attractive. Not to mention, I have really bad nausea. If anyone could please reply to me, and let me know if this is normal or not, I would really appreciate it a lot.
-- By lisa08 | Reply | Private Message me
November 19th
2008
10:08 AM
CONSUMERS UNION IS HELPING THE PUBLIC CONTACT THEIR CONGRESSIONAL REPRESENTATIVES REGARDING LEGISLATION TO BAN TV ADVERTISING OF NEW DRUGS. PLEASE PARTICIPATE.
-- By zsmom | Reply | (3) replies | Private Message me
November 14th
2008
11:26 AM
I'm an 81yo Caucasian male who has been taking Lisinopril for two years ago. I have suffered through the aches and pains , dry cough lightheadedness , associated with this drug. When I first took 20mg/day, I tracked my BP as frequently as 20 times per day. Some of my symptoms were a result of my BP dropping down to s practice of medicine, MDs do not always have the time to experiment with each patient, so the patient must do some of the logical investigations independently.
Remember, no one knows your body better than you, and your PCP or Cardio MD only sees you for a short period of time. I have tried five statin drugs and cannot tolerate any of them. Alternate, naturally-occurring substances are available.
November 3th
2008
12:23 PM
I was prescribed levaquin for a skin infection called cellulitis. I was meant to use it for 12 days but i stopped on day 10 because i started feeling a sharp pain in the right side of my chest. I intend to talk to my doctor today about this but I'm sure there won't be any real solutions considering the posts I've been reading on this website. I'm currently at work and just can't concentrate as a result of this chest pain. I can't stretch, I can't swing my right arm, I can't even lift anything heavier than my cellphone with my right arm!!......Pls if there is anyone out there who has a solution to this problem, kindly send me a reply. I feel sorry for everyone on here with this experience with levaquin especially with those who are in a more serious situation than i am. Thanks as I look forward to someone's suggestion.
-- By nibsi4real | Reply | (2) replies | Private Message me
November 2th
2008
4:27 PM
I stumbled onto this website just today looking for information on another drug. Little did I know what I was going to find and so happy I did. I have been taking Zocor for nearly 5 yrs. now. My health has taken a spiral downhill. I too, have been experiencing almost every symptom that has been mentioned. Rt. shoulder pain, hand pain, pain and tingling in hands and feet, leg cramps, muscle weakness, numbness, memory loss, itching, fuzzy headed at time, can't concentrate, and trouble breathing. My doctor has told me my cholesterol is just fine the last two times I've had my checkup, but has never suggested I come off it. I guess I will be calling him tomorrow.
-- By bellis | Reply | (4) replies | Private Message me
October 31th
2008
7:00 AM
I have been making inquires as to how and if the fda will conduct investigations in to permanent damage left from this drug.Although on taking my son off this drug i saw a 90% improvement,i am still missing the final piece,is it that he lost 3 years to this drug or did it do damage that cannot be fixed,we as parents need to know.The FDA responded to my letter,they said if they see a trend in reports from medwatch,it may prompt an investigation .I am asking all who still have missing pieces to file a report.What has happened is a tragedy,we need to explore ever option for continued success for our childrens future.Good Luck to all,Keep Fighting
-- By flindy | Reply | (3) replies | Private Message me
October 29th
2008
5:54 PM
I am not currently using nuvaring anymore because of a side effect I haven't really found anyone else experiencing. I would like to share my story and if anyone has had the same or similar symptoms please let me know because I am totally bewildered about it. I started using nuvaring after the birth of my daughter in December. I was on the ring for about one to two weeks. At first everything was fine but I started to experience very unique chest pains. The best way I can describe them is they felt like they were in the tissue and flesh in between my skin and my rib cage, and it felt like the area was being squished in a vice, and then my back would start to hurt alot. They first started about once every other day, but then got more frequent to the point when I stopped they were constant. I could not sleep because the only comfortable position was to sit down hunched over with a pillow on my stomach, with my back up against my headboard. My husband brought up the point that it could be the ring, and at that point I was willing to consider anything. I quit using the ring, and the pain stopped, for a little while. But it is still ongoing to this day. Although it only happens about once or twice a month, the pain is no less severe. I am sure it was the nuvaring or the ingredients in it that has triggered this because I have never had this problem before using it. Please if anyone has any advice or ideas, your help would be very much appreciated.
-- By kelliebellie85 | Reply | (6) replies | Private Message me
October 25th
2008
4:43 AM
I'm 45 I had the mirena inserted 5 1/2 years ago for heavy and painful periods that made me acutely anemic. I had the second Mirena 10 months ago. Until i read this site and others like it I thought I was going mad. Only advantage for me has been super light periods. Have had weight gain round stomach, thighs and butt and cannot shift it despite doubling exercise and halving food intake. Have constant headaches and reccurrant sinus infections and memory/concentration problems, water retention nearly all month long and feel depressed most of the time. also oily skin libido is non existent! also joint pains and insomnia. Doctor said it was menopause but tests came back negative. Have an appointment next week to have it removed. A bit anxious about how heavy periods will be as they were pretty awful before but can't handle these side effects. Any one else my age whose had mirena removed how long before periods back to normal?
-- By kiwimumof2 | Reply | (2) replies | Private Message me
October 24th
2008
11:51 AM
How long does it take to be free of the side effects from taking Flomax? After being on 2 Flomax pills daily for over a year, I was still up 3x in the night. I stopped taking Flomax a month ago after reading here the side effects and realizing I suffered from many of them. Trouble sleeping, sinus headaches, almost zero libido etc. Question...when will the libido return?
R. (Ontario)
October 22th
2008
4:57 PM
I am re-posting this from June. I believe that we have many reasons to suspect that Singulair does indeed penetrate the blood brain barrier. I personally believe that under certain unusual conditions that Singulair can cause neurological damage. I tried before to put together a scenario of brain biochemistry that could explain how this can happen. Of course, I am just hypothesizing and all of my ideas will not prove to be totally correct. From the number of postings here regarding neurological symptoms, I believe that there is an answer out there somewhere. Why the FDA is not searching for this answer is a complete mystery to me.
I believe that it is possible that Singulair causes the same biochemical response in the brain that is cited in this study -- thus causing neurological damage.
"Thus, elevated NO production leading to mitochondrial dysfunction, glutamate release, and excitotoxicity may contribute to neuronal death in neurological diseases."
IS SINGULAIR CAUSING THE DEATH OF NERVE CELLS IN SOME PATIENTS? DOES THIS HAPPEN - ALTHOUGH INFREQUENTLY- BECAUSE OF GENETIC OR BIOCHEMICAL FACTORS OR BOTH?
June 12th
2008
2:56 AM
I have stated many times that I am not an expert. I just post what I find. This has been a mind boggling journey for me. This is way over my head but I struggle to read and understand. Finding answers to why children are suffering from neuro-psychiatric side effects is worth the effort.
I have made the following observations.
1. Some quinolines are known to be able to cross the blood brain barrier.
2. Molecules that ionize are known to be more likely to be able to cross cell membranes. So if montelukast ionizes as a result of change in blood pH to sufficient acid conditions, then it could be possible that it does in fact cross the blood brain barrier.
3. We know that there are cysLT1 receptors in the brain.
4. We know that researchers believe that montelukast may bind at the arginine of the cysLT1 receptor.
5. We know that arginine contains four nitrogens. And montelukast contains one.
6. We don't know what happens to those nitrogens. Are those nitrogens converted to nitric oxide?
7. We do know what macrophages create nitric oxide as I posted.
8. We do know that if something cause excessive nitric oxide to build in the brain that there would be damage to the neurons.
Some people may remember when I got stuck at the astrocytes, the cysLT1 receptors and glutamate. I keep looking for research reports that may shed more light on this.
Titre du document / Document title
Nitric oxide causes glutamate release from brain synaptosomes
Auteur(s) / Author(s)
MCNAUGHT K. S. P. (1) ; BROWN G. C. (1) ;
Affiliation(s) du ou des auteurs / Author(s) Affiliation(s)
(1) Department of Biochemistry, University of Cambridge, Cambridge, ROYAUME-UNI
Résumé / Abstract
We determined the ability of pathological levels of nitric oxide (NO) to cause glutamate release from isolated rat brain nerve terminals using a fluorometric assay. It was found that NO (0.7 and 2 μM) produced (4 and 10 nmol/mg of synaptosomal protein) Ca2+-independent glutamate release from synaptosomes (after 1 min of exposure). Spermine/NO complex (spermine NONOate; a slow NO donor) and potassium cyanide (an inhibitor of cytochrome oxidase) also caused Ca2+-independent glutamate release. Preincubation of synaptosomes with 5 μM 1H- oxadiazole quinoxalin-1-one (an inhibitor of soluble guanylyl cyclase) had no effect on NO-induced Ca2+-independent glutamate release. Ca2+-independent glutamate release produced by NO was greater in a low-oxygen medium. NO, spermine NONOate, and potassium cyanide inhibited synaptosomal respiration with a similar order of potency with respect to their ability to cause glutamate release. Because NO has been shown previously to inhibit reversibly cytochrome oxidase in competition with oxygen, our findings in this study suggest that NO (and cyanide) causes glutamate release following inhibition of mitochondrial respiration at the level of cytochrome oxidase. Thus, elevated NO production leading to mitochondrial dysfunction, glutamate release, and excitotoxicty may contribute to neuronal death in neurological diseases.
Revue / Journal Title
Journal of neurochemistry ISSN 0022-3042 CODEN JONRA9
Source / Source
1998, vol. 70, no4, pp. 1541-1546 (29 ref.)
INIST-CNRS, Cote INIST : 4037, 35400007527188.0230
-- By concernedcitizen | Reply | (6) replies | Private Message me
October 22th
2008
7:51 AM
Is this normal, I have been on Doxycycline for 5 days for a urinary tract infection and from day one i had a sore throat with swollen glands, extreme anxiety and feeling pretty ill, yes it has helped my infection a lot but I have now developed very bad pains in my chest like extreme indigestion and finding it hard to swallow anything, even water, without it hurting??
Im thinking about talking to the Doctor Im feeling pretty rough at the moment and not too sure whether this is normal or not!!
-- By mikeystan01 | Reply | (3) replies | Private Message me
October 20th
2008
5:22 PM
okay ladies, I'm not sure what you all are experiencing since I'm not a doctor. But I will tell you that a huge amount of your symptoms can either be age related or post baby related. I have four children ages 15, 6, 5, 3.
The beginning stages of the Mirena granted are not pretty and can last for months. I was having a terrible time with my periods and was out of commission for the first three days of every cycle each month. I have had my Mirena for almost 2 years now and am going on 41. I had to wait it out for about 6 months before seeing any huge improvements. I will tell you this, over eating and NOT eating a healthy diet of fruits and veggies will aggravate bloating and mood swings. You could have these with or without the IUD. I never lost my hair unless I was 3-6 months post partum.
A diet rich in potato chips, bread, meats and cheesy pizza will show on your hair skin and nails. The typical American diet will leave even your special guy moody. As we age the expectation is that we will always feel 18 and I have had to come to grips with how my body ages and how I take care of it. A new baby whether it is your 1st or 4th will cause unwanted fatigue. I still struggle with fatigue because not everyone sleeps thru the night including my hubby so my sleep gets disrupted a lot. There are several things you can do to help your Mirena work for you and not scare you. I NEVER lose my sex drive unless I fail to exercise even a little each week and have fought back with a super charged diet. I'm not perfect at it but boy does it ever help. Sugar has a HUGE impact on your hormones and fatigue level. Limit it. Got to bed as early as you can and avoid late night TV. Don't give your precious zzz's to some silly show that won't help you be a better person any way. Get moving and add a little (or a lot) of weight training to your days- your sex drive will soar and your body will thank you. Pray for wisdom. God will help. Sometimes he uses fatigue to slow me down and focus on what is really important. Granted not everyone can handle an IUD. But if you try a little self care and be patient you might find that it works for you. I had heavy bleeding and at my age the doc said I got it just in time because from 40-50 I could expect more of the same. I am grateful for it because I felt like I was dying every time I had a period. A little fatigue is worth the benefits. Keep in mind that even your little ones get tired. They need naps and they are kids. We need rest in the afternoons too. It's okay to stay off the phone and rest a little if you can. My energy drainers are TV, negative people, talking on the phone too much, eating too much especially when I'm not really hungry, the wrong foods when I do eat, and not getting sleep or exercise. Start small and see if over time it doesn't make a big difference before you throw in the towel. Blessings to all and especially the new mommies.
October 17th
2008
9:49 PM
I have contacted an attorney in Delaware who is willing to pursue a possible class action suit. I explained my side effects from this drug and told him of the countless others that are suffering as well. He said if I was willing to do the "legwork" and gather up names of others who would like to join this suit, perhaps we could get a class action started. If anyone is interested please reply by contacting me at ***** Please be sure to type "Kenalog" as the subject and include your name, email address, and a description of your experience with Kenalog. I will than gather your responses and forward them to the attorney. He will than contact you individually, so please include a contact number. This will take some time. So please be patient, as you know these cases take time. I have spent 15 months trying to get some kind of help from various doctors, to no avail. Someone needs to step up and take responsibility.
Hope to hear from many of you. Thank You
Yasmin (60) Singulair (54) Mirena (23) Lisinopril (21) Levaquin (18) PredniSONE (14) Toprol-XL (12) Lipitor (11) Kenalog (11) NuvaRing (8) Loestrin 24 Fe (7) Advair HFA (7) Gardasil (6) Topamax (5) Simvastatin (5) Femcon FE (4) Wellbutrin (4) Geodon (3) Zocor (3) Doxycycline Hyclate (3) Remicade (3) Lamictal (3) Adderall XR (3) Ortho Tri-Cyclen Lo (3) Lupron (3) Warfarin Sodium (2) Fosamax (2) Synthroid (2) Aviane (2) Levoxyl (2) Advair Diskus (2) Methadose (2) Effexor (2) Flomax (1) Neurobion (1) Concerta (1) Emla Anesthetic Disc (1) Bactrim (1) Roxicet (1) Effexor XR (1) Celexa (1) Coreg (1) Fentanyl (1) Zyrtec (1) Yaz (1) Thyrox (1) Chantix (1) Cortisone Acetate (1) Anafranil (1) Methadone Hydrochloride (1) Depo-Provera Contraceptive (1) Trileptal (1) Eltroxin (1) Papain (1) Erythromycin (1) Avalide (1) Avelox (1) Isoflurane (1) Rocephin IM Convenience Kit (1) Desogen (1) Ditropan XL (1) Gleevec (1) Lantus (1) Paxil (1) Zyprexa (1) Nasonex (1) Diovan (1) Adderall (1) Cardizem (1)
January 7th
2009
12:38 PM
My 20 yr old daughter was given Avelox 400mg to take one per day for 7 days for a sinus infection. Two hours after taking the first pill last night she became very drowsy and extremely nauseous and vomited several times. Her heart was racing and she felt unexplained anxiety as if she was having a panic attack, and couldn't sleep most of the night. Why don't doctors think before giving out medications!? Or at least warn the patient of these side effects which appear to be VERY common!
-- By diane567 | Reply | (2) replies | Private Message me