December 11th
2008
10:58 PM
I have been on Remeron for 3months, and have went from 125 lbs. to 144 lbs. I want to eat all the time, especially at night. I always feel hungry. I also feel like my legs are swollen, and they ache when I walk on the treadmill, trying to exercise and quit gaining. The depression is better, and I sleep very well, but I am going to really get depressed about my sudden weight gain. Never was this big, except at 9 months pregnant. I am stopping this drug. I also have numbness in my right hand. I don't know what that is from. Last of all, I am more forgetful, and a little OCD now about things.
-- By asmall39 | Reply | Private Message me
December 9th
2008
11:28 AM
I posted serveral weeks ago about taking my 5 1/2 yr old off singulair. He has done great as far as the asthma, no problems what so ever. The main reason I took him off was due to his behavior. Very moody, hyper, aggitates easily and so on. Well, after the 2nd week, he was like a NEW child...very calm and behaving in school. Well, he has pretty much regressed back to the behavior before taking him off this med. He has now been off of it for 5 weeks. His teacher asked me last week, if I had to put him back on this med, because he was getting back to his old ways.
He is currently going the an evaluation for ADHD. I have stuggled with the fact that my son may suffer from this and have tried almost everything to avoid medicating him...I was really hoping this was the culprit to his behavior..He had been on singulair for over 4yrs...Is it just going to take longer to see the full effect of NO SINGULAIR???
November 22th
2008
9:45 PM
My son is 3 and has been on Singulair since around springtime (I think... I've lost count). Anyway, during this summer we noticed his behavior had just gone straight to hell. At first I was attributing it to the wonderful world of the three year old, but it was just getting ridiculous. He was having countless meltdowns, screaming bloody murder (I mean SCREAMING to the point of going hoarse), hitting, punching, slamming, banging, crying hysterically for ridiculous reasons, yelling out during the night, and showing OCD behaviors. I was fearing that he might have ADHD/OCD until my husband stumbled upon this website. I remember hearing stories about teenagers having horrible side effects from singulair, but didn't think it was affecting my son at 3. As I read the entries on this website I felt like they were talking about my son.
I am taking him off of it to see what happens, but now I'm nervous that his asthma will flare. He's had quite a few asthma episodes since the fall allergy season has started. I suppose he'll need to go for awhile to get everything out of his system to see if the behavior changes, and then I hope to find a new preventative. We have Pulmicort and Xopenex and an inhaler ready!
*UPDATE* Well, it hasn't quite been two weeks since I've taken James off of Singulair and - I am not kidding you - his behavior improved the FIRST day. I want anyone who reads this to know that I am not an "alarmist", I DON'T freak out over everything I read, I do a lot of research (kind of obsessive myself :), so please understand that I am not one to usually write things like this...I mean, I pushed my allergist to give it to him in the first place! There are plenty of kids out there that are fine on Singulair, but some are not. I didn't make the connection to the Singulair since the average three year old is irrational and unpredictable anyway, but I KNEW something wasn't right. It wasn't just tantrums and whatever, his overall personality had done a 180. In the last two weeks my son has returned. He still, of course, has three year old moments, but he is back to the caring, loving, curious, excited, social, happy kid I had last year. One of the worst things we were seeing two weeks ago was bedtime behavior. BAD OCD behaviors - everything in his room had to be PERFECT. The curtains couldn't have a peek of light shining through, there could be nothing on the floor, everything had to be in order. He would obsess about things (creatures) coming into his room, when we would say goodnight and close the door he would scream and cry like someone was stabbing him and was petrified. The FIRST night that we stopped the Singulair he laid his head on his pillow, said goodnight and went to sleep. Please keep an eye out for personality changes in your kids.
*November update* it's been almost two months since we took James off Singulair and we haven't seen ONE BIT of the horrible behavior that we had w/ the Singulair! Normal "three-year-old moments", but no return of the "devil child", no OCD, nighttime freak-outs, violence, or any of it.
October 5th
2008
3:42 PM
My son is on the 15mg patch. He is developing OCD type behaviors-right now it is an obsession with his fingernails-always picking at them, getting dirt out from underneath them, even when there is none. We have tried adderall and this. I think I am going to try something natural. Any suggestions? He also won't eat or drink all day so we need to go a different route.
-- By b2bmommy | Reply | (5) replies | Private Message me
October 1th
2008
6:20 PM
I have a 4yr old boy who has been on singulair for 5 months. Before he began singulair he was the most happy, kind, gentle, loving boy. We had an awesome close relationship. I enjoyed just sitting there watching him play. I could not wait for him to learn something new, but EVERYTHING has changed now. I took him off of singulair on Sept 19, 2008 after accidentally running into this site while looking up children and OCD. Thank God I did. It has been 12 days since I found this and took him off. I couldn't type then because I was to upset. My son who never had ANY mental problems or anxiety is now completely riddled with it. Instead of playing all day care free like 4yr old are supposed to do, my son spends his days now clinging to me in fear that I may leave or go into a room without him and he will not be there to open the door. He obsessively has to open every door now. He spends his days getting upset at the smallest things. He now gets mad at everything I say, or I don't say it right. Our relationship is not the same now, and I am devastated. Before Singulair he slept through the night every night. Now he wakes up every couple of hours to go to the bathroom and say "are you still there mom?" ok "I love you" "Don't let the bed bugs bite" I have to answer "I love you to" and "you either" If anything different is said he will go nuts, and he will obsessively say this over and over and over again. This is not my son. He is a totally different person. I am so very scared that this poison has permanently ruined him. I mean he is so young and his brain is developing. It has been developing with this poison in it, that has ruined him. It has been 12 days and he is still doing the same ocd stuff. He still seems really agitated. His muscles hurt, his tummy hurts, his eyes hurt, his ankles hurt, and he has diarrhea. My beautiful boy is now mentally and physically SICK because of singulair. I feel really bad to, because I did not know at first that the singulair was causing this and I was always getting on to him for his behavior and putting him in his room. At pre-school a couple of days after first giving singulair to him he started crying ALL DAY at school, and I made him stay there because I thought it was just because he had gotten a new teacher and he needed to get used to her. I feel terrible!! Does anyone know if the ocd will go away or has he now learned the behavior?
-- By piercesmom | Reply | (5) replies | Private Message me
September 28th
2008
6:05 PM
Our boy is 3 1/2 years he has been taking Singulair for several months, but just in the last few weeks he has had a total mood change, obsession on many items, cleaning, separation anxiety, not eating, angry, cant not sleep, Dr. has taken him off, it has been only a week and he is still having some bad effects.
-- By carolynjustin | Reply | (3) replies | Private Message me
September 18th
2008
12:10 PM
II have had ibs diarrhea for the last 8 years (so practically the whole of my 20's) and it has been so bad for the last 6 years that I have hardly been able to carry on living a normal life. I suffered panic, anxiety, really violent mood swings, obsessive compulsive disorder and felt petrified about going anywhere. I stopped taking it in December 2007 and my diarrhea gradually improved week by week. I felt within 2 days like a cloud had been lifted and my moods felt so much better. The diarrhea has really improved and I have now been 2 months without a single episode, after 10 years of it everyday. I have spoken to a specialist at the hospital about the pill causing diarrhea and he had never heard of it.
I am also really angry that this was not even listed as a side effect of this pill. Please if anyone out there if suffering with ibs d and can't work out what is going on - please try stopping this dreadful pill. My temper is better and the ocd that came out of nowhere has gone. I have been through hell with this pill and if it wasn't for reading an article on the internet about Yasmin, I wouldn't have stopped taking it. I have absolutely no doubt in my mind that Yasmin caused me to suffer diarrhea every day. I will never ever take another contraceptive pill in my life and from now on I don't care if i have period pain. 'm just so glad to be rid of it.
-- By claire30 | Reply | Private Message me
September 3th
2008
1:46 PM
My son has been taking Singular for a few years for mild asthma and recently in the past few months all of the sudden he has been having a hard time falling asleep,anxiety at bedtime taking hours to get to sleep with me having to stay in the room. We took him to his pediatrician who ran blood tests and referred me to a sleep specialist who suggested he may have OCD or Anxiety. I just thought it was just something that would pass after 4 months it still has not passed. I am removing him from Singular TODAY. After all these visits with these doctors who knew he was on the medication and never said anything to me about possible side effects . I cant believe it took an article my husband saw in the paper for this to come to my attention.
-- By annt1175 | Reply | Private Message me
September 3th
2008
9:37 AM
I just read an article dated 9/1/08 that stated that the American Lung Association just cleared Singulair as causing depression and suicide. They had researchers study the results from the original test trials because they are supposedly more accurate than after market reports. The article is at ******. I cried when I read this report. My now 8 year old daughter has been on this medication for mild asthma since she was 4. We have thought the stomach aches and tantrums were related to moving to a new town around the time she started taking singulair. But, 3 months ago, she all of a sudden started having depression, ocd about germs, afraid she might hurt herself and then depression and suicidal thoughts. She has been off meds for 8 weeks and still has some problems with thinking she wants to hurt herself and feeling down. She is normally very happy and our family is happy and normal, but dealing with this is difficult. How long does it take to get out of their system?
-- By denisem3 | Reply | (1) replies | Private Message me
June 30th
2008
6:22 AM
Hello all Yasmin Survivors.
I stopped taking Yasmin in July 2005 and three years on I am still re-building my life! I feel this pill and its side-effect stole some of my best years, I am 33.
My main side effects were extreme anxiety, agoraphobia, pounding heart, panic attacks, fear of doing anything (even going 10 minutes away from my own home). I was on it for 12 months and the side-effects started very gradually at about 5-6 months, I barely noticed them creeping up on me. It took me another 6 months of taking it to start to question whether Yasmin could be causing the extreme change in my personality. I think if I hadn't stopped I'd have had a major breakdown. I had lots of weird physical symptoms too including, bloating, passing urine all the time, leg cramps, dizziness, hair loss.
Anyway, all the extreme anxiety and stress caused by Yasmin left me with exhausted adrenal glands - which I'm now trying to re-build. Anyone feeling fatigue, nervousness, anxiety, inability to handle stress in the same way as you used to, PMS several months after stopping Yasmin should look into Adrenal Fatigue as a possible cause of their symptoms. It's hard to treat and can take a long time to recover - but there are lots of things you can do to help your body re-build. Visit ******(doctor Andrew W. website on Adrenal Fatigue) as a start to find out more about the condition and how to find out whether you are suffering from it.
It would be good to hear from more people re-building their lives after the impact of taking Yasmin on this site. Also, is anyone out there trying to put together a class action?
Sarah
May 21th
2008
8:47 PM
I have a three year old son who has severe allergies. He's been taking singulair for 2 years on & off just in the allergy season. He started taking, singulair again in the beginning of April. One morning he woke up and both eyes were really swollen and red, I called his doctor's office and told them i thought he had pink eye, after 2 different drops and no change I brought him into the doctor's to see if it could be his allergies, and they agreed and started him on Zyrtec. I still was not impressed with the results so i brought him back yet again to see if we could see a specialist. Instead they put him on nasonex to try.
In the beginning of March I started to see a change in my usual happy fun loving son. He was scared to sleep in his bed, waking up in the middle of the night from bad dreams, uncontrollable screaming fits that would last up to an hour, saying he wants a Boo Boo. At first we thought it could be jealously over his new brother, or maybe something at his school.
Then i found this website and everything clicked, how scary it must be for a child to have these horrible thoughts and not be able to understand or stop them. What are the people at merck thinking??
Can any one tell me when the symptoms stop. He's been off for a week and we see some improvements. But he still has these fits with almost an OCD tendency to them (mainly when he's overtired), stomach pains, lack of appetite.
May 15th
2008
11:18 AM
One more thing I have noticed is OCD behavior. He is constantly rubbing his index finger and thumb together. At first it was one hand, now it is both hands. This has been going on for about 2 months. When asked why, he says he 'just feels like he has to do it'....
-- By parrym | Reply | (3) replies | Private Message me
May 15th
2008
10:29 AM
Wow, I just found this site. The child that had strep especially caught my attention. My daughter, 11, has been diagnosed with PANDAS, which is also a controversial diagnosis. I'm not sure when she went on Singular, but it was a couple of years ago due to allergies. She had bad reactions to anti-histamines. For the past two years we have been dealing with just about every issue posted here. Physical pains, stomach, headaches, joints. urination issues, high cholesterol, but the worst have been the irritability , mood issues, OCD, fears of cutting herself, bad thoughts, suicidal ideation. She was on Zoloft which made things worse, She was hospitalized at her own request. She was placed on Prozac. She's had years of therapy. She would say life is just so hard and she wants to be a normal kid. About a month ago her pediatrician mentioned that there were some reports about Singular and it would be something to watch for and discuss with the psychiatrist, He didn't seem to know much about it. Last week after another suicidal ideation I decided to research the singular issue. I had been attributing everything to the PANDAs. I was so surprised to see the similarities. I took her off of it Friday and have seen some changes already. I hope we see that continued improvement. Thanks to all who have shared stories, it's so helpful. To have hope that you'll get your kid back is great.
-- By judyhk | Reply | (3) replies | Private Message me
May 13th
2008
10:32 AM
My daughter has been off of Singulair for about 6 weeks now and is still having "explosive" reactions to minor issues. My daughter's personality is better - no more dark thoughts, etc, but the anxiety/aggressiveness is still hanging on. Anyone having similar issues? We are also still dealing with the OCD behaviors as well. She is 4 and I really think her brain chemistry is still altered. At what point should I recognize that this new child may be my new reality? I would really appreciate any thoughts from those of you that have been off for more than 6 weeks. Are you back to 100%?
-- By freakedoutmom | Reply | (5) replies | Private Message me
April 22th
2008
11:20 AM
Neurological problems and the effects of Singulair should be investigated. The Chinese researchers demonstrated that the CysLT1 receptor (singulair inhibits this receptor) does exist in the human brain. In the rat brain, they demonstrated that there is a link between this receptor and the astrocyte.
There are many researchers/doctors interested in excitotoxicity and damage to neurons.
http://www.jpands.org/vol9no2/blaylock.pdf
I would like to know how Singulair affects the astrocyte numbers and function. I would also like to know if there is a link between metabolism and the cysLT1 receptors in gastro-intestinal mucosa. Does Singulair affect the metabolic process?
So many parents are complaining of ADD/ADHD symptoms? The paper that I gave you the link correlates the immune response and excitotoxicity. That is very interesting. How many asthma and allergy patients also suffer from potential excitotoxicity? Does Singulair cause it in some patients or just make it worse in some patients? None the less--there is a possible link.
-- By concernedcitizen | Reply | (1) replies | Private Message me
April 17th
2008
3:52 PM
I've never written on a blog in my life, and now that I've just read this, my stomach is doing flip flops and my blood is runnung cold. I have an 11 year old son and a 9 year old daughter. They have both been on singulair for quite a few years. My son has been on ADHD meds now since about a year and a half after starting Singulair because we tried to avoid them. Every few weeks he tells me he has this empty feeling inside him that makes him really sad and he doesn't know what it is. It just feels empty. I'll usually read with him or play a game or walk our dog with him to help him feel better.
As for my daughter, she exhibits all of the symptoms I have read about. She talks about life being terrible( trust me, she has it pretty good), she has been diagnosed with an anxiety disorder, OCD and Tourette Syndrome. Every psychiatric medication we have tried has made her worse. She was always a confident, outgoing little girl, and then she just changed. She's had stomach aches, which the docs always thought were in her head. She gets headaches. She is extremely sensitive, won't let me even brush her hair or touch her. She has extreme mood swings and gets upset over the most miniscule things, then writes about them, even saying she realizes her anger was too much for what the situation was! I will stop Singulair immediately and see what happens. What a miracle it would be if all of their symptoms disappeared.
April 16th
2008
2:21 PM
Well, I'll share my story with you, and feel free to comment or ask any questions. I had been taking Yasmin for about 3 years. For the majority that time, I was in college (UCLA) while my long term boyfriend and family were back in the Bay Area. I was extremely depressed, which I presumed to be because I missed my boyfriend, and school was very difficult, etc. However, I had terrible anxiety, to where whenever I went to class, walked the campus, etc, I would have trouble looking up, for fear of making eye contact with others. To ask a question in class made my heart race. I would get terrible lumps in my throat that I could not get rid of. I used to be really outgoing, friends with everyone. But at UCLA for two years, I barely made new friends (maybe 3-5), blaming it on being too busy with my studies. Pretty extreme anxiety. As a child, I was a gymnast and suffered from OCD at one point, probably due to the anxieties of a very strict, mature schedule at such a young age. I guess I've been anxious in some way or another during my whole life, however I feel it was WAY worse during the course of being on Yasmin. I have also suffered from depression in my life, but the worst times were during high school, and during the past few years while on Yasmin. I am not saying I blame Yasmin for these things, but I definitely think it made them worse. I also have been having terrible mood swings, crying spells (to where I felt like I was going crazy), and not feeling like “myself”. I did take a break from the pill after I broke up with my boyfriend, and felt WONDERUL, woke up in a great mood, ready to take on the day, instead of forcing myself to try to start the day happy (which rarely worked). It has been a CHORE to be happy and grateful for my wonderful life (family, friends, good job, own apt., dog) for the past few years.
I stopped taking Yasmin 3 days ago (Sunday the 13th was my first day off of it) and already feel more normal, balanced and myself. Happy, hopeful, more relaxed. Of course this could be “placebo effects”, but I now myself really well, am very in tune with my emotions, etc., and I definitely feel different. I am not rhuminating either, which was another effect.
Does anyone have a similar story? Thanks! -Cassie
-- By csandino | Reply | Private Message me
April 15th
2008
11:55 PM
It has been 18 days since my 9 year old daughter has taken Singulair. Our daughter had been taking Singulair for approximately 2 years. It was in the last year that we started to notice some behavior changes and mood swings that were so often unprovoked. We were somewhat concerned and thought like so many other parents that it was a phase. Then in December 2007 she came home from school with a tummy ache and had several episodes of vomiting. She seemed better the following day, but we took her to the pediatrician to be sure that this was a virus. The stomach pains continued, and then anxiety attacks began. Over the next month she began to wake up each day with stomach aches and we began more visits to doctors and more testing. She had abdominal X-rays, CT scan, mekel scan, GI consult and endoscopy. All were ok except she did have some small amounts of acid in her stomach. She was treated with Prevacid with really no significant changes. As weeks passed she missed more and more school, she just could not make it through the day. She had intense separation anxiety, and developed OCD about being sick again and vomiting, fears that she may stop breathing; fear of dying and the list goes on. She was refusing to ride the bus to school, and was having more and more panic attacks that would last for hours. We finally took her to a psychiatrist after we had done every test we could possibly do and all were normal. She woke up with the fear and anxiety, and fell asleep each night the same way. The doctor said she had "OCD" which she believes was triggered by the fear from vomiting. "This was the first time she had vomited since she was an infant.” She was treated with Lexapro, and Klonopin. The symptoms worsened over the next few days even with the new medications. After many calls to the doctor we were finally advised to have her admitted to a children’s psychiatric hospital for closer evaluation where higher doses of medications could be administered. She was there for 4 horrible days with slight improvements. Over the next few weeks the medication did begin to help some and she was able to make it through school each day as long as she was able to call me a few times a day for re-assurance. I thank God each day for her wonderful teacher and staff that have helped us through this. They all have known her for 3 years and knew this was just not her character at all and she was truly struggling. She was always known as "Smiley" to everyone because she always wears a grin. We began therapy with a psychologist as well and she has good and bad days. Then we heard the news about Singulair and I began to trace back other issues she had with focusing in 2nd grade and how things just seemed to progress from there. It all happened so gradually that I would never have put two & two together. She is showing improvements every day with personality, mood, attitude, fears, and the "OCD". She told me today that this was the best day ever!! I have made all the Doctor's involved aware of this information and the progress she has made in the last 2 1/2 weeks. Her doctor did cut her meds in half this week as well. Thanks to everyone that has posted their nightmares as well, and we will pray for you and for full recovery for all those that have suffered.
-- By benitez91 | Reply | (2) replies | Private Message me
April 11th
2008
9:49 AM
i am so happy to hear all of these stories of recovery. i discovered my son's singulair side effects in march 2007, after 3 years of use. i can tell you from our experience that the most significant recovery comes within 3 weeks. after the 3 weeks, the more subtle improvements continued to occur for months and months after. without the effects of singulair, they experience life in a whole new way. my son's experiened 3 years of undetected side effects which included: irritability, FEAR, stomach / leg pains, poor appetite, difficulty with focusing / comprehension, restlessness and nightmares. the last 2 months on the 5mg dosage, he also experienced a facial tic, dilated pupils and hallucinations along with an increased in intensity of all the above. i thank god everyday for finding this website and removing my child from singulair.
-- By momof1son | Reply | (1) replies | Private Message me
April 8th
2008
6:50 PM
My son is 8 and he has been on singulair for at least three years, maybe four. When I heard about the side effects a few weeks ago, I stopped his medication right away. I have since learned that it should be tapered off, but won't put him back on to do that. He had so many of the depression, I hate myself, everybody hates me, facial tic, stomach ache symptoms . . . Now he is almost two weeks off of singulair and he is throwing screaming fits, kicking, threatening, uncontrollable for up to two hours and more! Is this a side effect of coming off of the medication? Has anyone else had this experience? Please email me at amy-weaver4@sbcglobal.net - I'd really like to hear if anyone else has experienced these symptoms. Thank you! Amy
-- By ymategan | Reply | (3) replies | Private Message me
April 3th
2008
9:52 AM
Our son was put on several medications 9/07 due to bad asthma and allergies. Since then we saw his behavior begin to go down hill. He would complain of stomaches, not want to go to school, became increasingly more irritable and has mood swings. He was a good student and we have never had a problem with him attending school. Since 9/07 we have taken him to a total of 10 different doctors. Pediatricians, therapist, allergy doctor and three licensed psychiatrists. Everyone said that we were crazy when we suggested that this behavior was linked to the medication. The psychiatrist diagnosed him with anxiety disorder along with school phobia. This has been a nightmare. I finally took him to an acupuncture doctor as a last resort because the doctors wanted us to put him on Prozac for the anxiety. Our family doctor has even suggested he is Bipolar! The acupuncture doctor has recommended a diet change and some treatments with her so that we can remove him from all his medications. I am so glad that I listened to my instincts and did not put him on the Prozac. I was so upset when this story aired about the Singulair. We have been trying to get the doctors to listen to us since 9/07 about the possible link. They still deny the connection and advised us to not remove him from the medicine. But for once I am going to handle things my way and we have already seen a difference in his behavior. We will keep our fingers crossed and hope for the best. My heart goes out to everyone that has had similiar experiences. These doctors should listen to the parents instead of assuming we are all trying to blame behavior problems on medication.
-- By swaldron | Reply | (4) replies | Private Message me
March 31th
2008
3:48 PM
Some of these stories read like a diary of our life.our son went from a reasonably confident, happy, somewhat easy going 10/11 year old to a now 16 year old with no confidence, somewhat paranoid, dealing with depression and tremors so bad that he could not hold his pencil to draw a straight line in drafting. He often says he hates his life, can't see any hope for the future and feels he is a failure- he is an honors student with a nearly perfect 4.0 average, yet he is never sure it is enough.
some of it we put down to being a teenager, who had inherited hubby's fathers shaky hands. some we figured came from my dad and his troubles with ocd and depression. i have worried, cried, prayed, ranted and begged for things to be different for him.
what changed at 10/11 years of age? he started taking Singulair. at first a low dose but about 3 years ago the doctor uped the dose to full strength, the symptoms also escalated - however he had entered the teenage years and changes they go through.
the allergist last year,put him on Pulmicort and at that point did not need the Singulair but through a misunderstanding we kept giving it to him. hubby is a pharmacist and questioned it, he has never been wild about Singulair because he says it opens you up to infections.
which may answer a secondary question of why he has had more cases of bronchitis and has had 3 bouts with pneumonia, more since the dosage was raised.
i have to wonder if the history of depression in our family made our son more open to the symptoms and side effects of the Singulair. the suicide part of it really scares me as my uncle and aunt both committed suicide, we didn't need any push in that direction. we have talked extensively about it and he assures me he does not consider it an option.
i know some kids take it no problem, but this recent set of reports, and the fact that the FDA has changed the warning labels 4 times in a year, causes me to take notice for him
please pray that we can see some improvement as he is now off of the Singulair. I stopped mine last year due to recurring ear infections. now i am especially glad i did. i have felt very hopeful today that this may be an answer to prayer. two days off and he had a good day today.
-- By momofone | Reply | (1) replies | Private Message me
March 28th
2008
7:43 PM
my 4 year old daughter was taking this medication for 3-4 months and her attitude has turned big time! I have read almost all of the other adds and I can actually say my child is the same way I thought it was the terrible 4 but its not! She tells me and her dad that she hates us it hurts or she wants different parents she is very mean to her little brother and has gained weight to there are problem more I can relate to! As of today she no longer will be taking this medication! I just sit and wonder how and why it is like this!!!
-- By seadie | Reply | (1) replies | Private Message me
March 28th
2008
1:59 PM
I have been crying for almost 24 hours now. I cannot believe what I am reading and hearing about Singulair. My son has been to hell and back again and again. I cannot say for sure the Singulair is the culprit. But after reading all of the other stories on this website, I am convinced it is a strong possibility.
My son is 11 years old. He has severe allergies and asthma. He takes many, many medications for this including Singulair. He as been on Singulair for about 8 years now (my best guess because he has been on it for sooooo long.)
My son was diagnosed with ADHD in pre-school. He has taken many medications for the ADHD, but none have ever done any good at all. We thought some of the medications even made things worse. Now, I'm not so sure.
After exhausting all the ADHD medications, our pediatrician sent my son to a psychiatrist and a counselor. The psychiatrist put him on 2 different antipsychotic medications. Again, neither one did any good and seemed to make matters worse. The psychiatrist sent my son to a psychologist to be tested for Asperger's. For those of you who don't know Asperger's is a high functioning form of autism. The psychologist ruled out Asperger's by diagnosed ADHD and Anxiety Disorder. He did not prescribe any medication.
For some unknown reason, I've only given my son the Singulair off and on for the last year. My son had the best year in school ever. However, his pediatrician was still not satisfied. He sent him to see another psychiatrist at Children's Hospital in Pittsburgh. We were told he is believed to have more than one disability. He is believed to have ADHD, Aspergers, Teurettes and a possible 4th medical problem that has not yet come to light.
We are scheduled to see a neurologist at Children's Hospital on the 15th of April to rule out any medical reasons for his tics. We see the psychiatrist again on the 18th of April.
I am so tormented by this recent news. Has all of these problems been caused from him taking the Singulair for so long? Although he has had his best year in school yet, he still has a lot of problems. Are the side effects of the Singulair permanent.
The other side of the coin is this: It is also very scary to watch my son not be able to breath. Asthma can also be life threatening. What is a parent supposed to do.
Also, I now don't know whether to keep these appointments that are coming up. I hate so much to put him through more. He has endured enough doctors and tests to last him a lifetime. However, what if it is not the Singulair and there is help out there for him that I am not aware of.
Please if anyone else has had a similar experiences e-mail me. I would love to hear from you.
God Bless everyone who has been through this kind of hell.
-- By foxhlam | Reply | (4) replies | Private Message me
Singulair (22) Yasmin (4) Rilutek (1) Vistaril (1) Lamictal (1) Daytrana (1) Remeron (1)
January 7th
2009
1:43 PM
My son who is 5 years old was on Singulair for 5months. He turned into a total different child. He developed extreme OCD, anxiety, excessive crying, scared at night, and irritability. After researching I found out it was the Singulair causing his symptoms, so I immediately took him off. After just a couple of days his mood lightened. It took a few weeks for the anxiety and OCD to go away, but it did thank God! Although, the main debilitating symptoms went away he still after 5 months is irritable and takes offense to anything and everything. It is like every time I talk to him I say something wrong and it annoys him or makes him mad. Our relationship is completely different now. It is like we are not as close. This was not my son before Singulair. I am heart broken. I read peoples post and most say after taking their children off Singulair all the symptoms went away and their children are back to normal. I feel there is 20% still missing after 5months of being off Singulair. My son is not 100%. I am beginning to feel like he may never be 100%. I feel like it causes some permanent damage. Does anyone else feel the same? Or have a similar situation? Or have still experienced recovery past 5months? I would love to hear your story. THANKS!!
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