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50 Side Effects posted for hundreds of thousands

July 2th
2008
5:31 PM

I posted this as a reply in another discussion group, but thought I'd share here too due to the very serious and potentiall deadly side effect (I think may be a result of taking Yasmin):

I suffered a Pulmonary Embolism on 6/4/08 - was not on Yasmin at the time, but had been for about 2 years (was switched about 3 months before my PE). I am 36 years old, otherwise healthy (am very active and have no other underlying risk factors), and have been on other forms of the pill (on & off, but mostly on) since I was 18 - with no side effects. The more I am reading, the more I'm mad about not being appropriately warned! People seem to keep dismissing the risks of this pill. Yes, millions of women are fine on the pill, but from what I'm reading hundreds of thousands are not. PEs are terrifying and potentially deadly. In case anyone needs it, there is a great on-line support group called ***** and there is a PE suport group on there I found last week - they are wonderful people and have saved me from losing my sanity (lots of panic & anxiety). Recovery from PE is a long, painful and bumpy road, and these people are of immense support. Good luck and good health to all!

-- By khurney | Reply | Private Message me

June 16th
2008
11:29 PM

i started taking yaz a couple months ago and developed a blood clot in my lung, a pulmonary embolism. i was hospitalized for a week in may of this year. i have visited many websites to see if other women have developed blood clots due to yaz and i have found a startling number of women that have developed blood clots, and a couple girls who even lost their lives. the side effects of birth control are explained to us before we start taking them, and it is expected that some women will experience the side effects, and this is normal. however, when a disproportionately large number of women start having serious health problems due to yaz, then something is not wrong with us, something is wrong with yaz. i have seen many women express an interest in starting a class action lawsuit and i am trying to do so. i have worked in a personal injury law office for the past 2 years and know an excellent lawyer looking to take on a case of this nature and magnitude. if you or your loved one has developed a blood clot, lost their life, or have developed another serious health problem due to yaz than please email me at ****** with your name and an email address i can reach you at. A class action lawsuit requires a large number of plaintiffs. I have already gotten a few emails but need many more before we can make this happen. please email me... help me and yourself.

-- By apopa | Reply | (4) replies | Private Message me

March 30th
2008
7:35 PM

I can't imagine the FDA getting involved because of only *one* suicide (though the loss of even one life is terrible). The FDA usually turns a blind eye to what pharmaceutical companies do unless there have been enough complaints or enough evidence to convince them that they must step in.

I came to this board in late February--a full two to three weeks prior to the big news story earlier this week--simply looking for a reason for my son's insomnia. There were already over 1000 posts here on the Singulair board, nearly all of which listed the same side effects: fits of rage, depression, insomnia, and suicidal thoughts. I had never dreamed that my son's fits of rage and depression were linked to Singulair--I had assumed it was all part of being 17 and having normal teenage stresses and hormonal surges. He stopped taking the Singulair right then (back in late February), and the difference in him is astounding. He is much more outgoing and talkative; he joins in with family outings and goes places with his friends (before, he wanted to stay home alone in his room). There have been no fits of rage, no more declarations that he hates himself, no more calling himself a loser (I couldn't believe he would call himself a loser--he carries a 3.9 GPA in an academically-challenging private school and was recently accepted to Case Western University), and he is sleeping better. He is just simply BETTER.

If you or your child can take this medication with no side effects, that's wonderful. Please continue to do so. But please remember: millions of people take Singulair. If only 10% develop the serious side effects, that's **hundreds of thousands** of people.

-- By sky42966 | Reply | Private Message me

March 30th
2008
2:50 PM

I like to live my life with facts, not speculation and drama. My child is on Singulair and doing fantastic. I remember the trips to the ER when I did not know if my child would live or die. Of course when I saw this report, it caused me some concern so I did some research on my own. Did you know that suicide is the leading cause of violent death in New York State, the United States and the world? In 2002 in New York State there were 1,292 suicides which exceeded homicides by 32%. The statistics show that 1 in 10 teenagers plans to commit suicide. The National Center for Health reports a 10% suicide rate in kids 15-24 years of age and 4 male suicides for every female suicide. Suicide is the third leading cause of death among those 15-24 years old.

So now we have 1 child in New York that has committed suicide that just happened to be on Singulair, and it is Singulairs fault? Show me the proof. All I see is one distraught mom who is trying to find blame for her son’s tragic death. Is there only half the story being told, a trend I have noticed in journalism these days. Let’s face it, life happens. I am NOT on Singulair and I have had melt downs, thrown things across the room, been depressed over things, cried, and even for the past week have been having some crazy dreams. I remember as a child putting notes on my room door telling my parents how much I hated them. I remember as a teenager thinking my life would be better if I were dead. I remember my child being cranky and fussy before she was on Singulair, gee maybe she was teething. The term “terrible twos” has been around a lot longer that Singulair. Let’s face it, we have turned into a society of people who always want something to blame. I think it is time people start taking responsibility for themselves and accept the fact that sometimes life just happens. Take accountability for your own lives, and stop trying to blame everything and anything.

I also live my life by reading internet blogs with a grain of salt. These blogs are public forums and places where anyone and everyone can post. How do you know that all these posts are real? Remember the day when kids made prank phone calls for fun? Now they have the internet and can post pranks on these blogs. How do you know that a competitor to Singulair is not posting in order to fuel the feeding frenzy? How about a registered sex offender or a felon in prison? There are a lot of “sick” people in the world and yes, they have access to the internet too. If you are hanging on every single one of these posts as being true and real then I feel sorry for you. The internet provides anonymity and it is easy to create a fictitious identity and a fictitious story. That is probably why if you do a search for “internet safety” you get 15,700,000 hits.

Until I see proof, I am not going to take my child off Singulair. The CDC reports that in 2002 there were 1.9 million visits to the ER for asthma and 4,261 asthma deaths. If I did stop my child’s Singulair, and she died in the ER from as asthma attack, whose head does that fall on? The media?

-- By chris555 | Reply | (15) replies | Private Message me

March 28th
2008
9:25 PM

I see posts from people saying that they are not experiencing any negative side effects. That's wonderful--if you or your child can take this medication without any problems, go for it. Yes, the boards for other drugs do list extreme reactions, but if you look around, you won't find many with as many postings as this Singulair board has. I was shocked by how many postings there are here. And yes, this board had over 1000 posts even before the news story broke yesterday. I came here back in late February concerned only about my son's insomnia; only after reading the other posts did I realize that many of the other things I had been concerned (depression, fits of rage, exhaustion) could be linked to this drug.

If it works for you or your child, wonderful. Many people probably won't be affected at all by these negative side effects. But there are millions of people on Singulair. If only 10% have the serious side effects, that would be **hundreds of thousands of people**.

-- By sky42966 | Reply | Private Message me

March 28th
2008
8:38 PM

No side effects here - my 5 year old has been on Singulair since he was 2 1/2 and has showed no strange symptoms outside of those of a normal 5 year old boy. He has asthma and severe allergies - including a nut/peanut allergy. He also takes Zyrtec in the Spring and Summer seasons (heavy allergy time for him). Gets good grades in Kindergarten and has never had emotional/behavioral issues at school or at home. I am shocked to hear that people are having these extreme reactions! Although, it seems that there are always going to be reactions to ANY drug out there - go to any of the boards on any drug and you will find people with extreme reactions. Singulair has saved my sons lungs, and possibly his life.

-- By chicagomomof2 | Reply | (2) replies | Private Message me

February 4th
2007
6:06 PM

I had chronic swelling in the tip of my nose from surgery. Kenalog returned my nose to normal. The side effects these people have all experienced are awful, but they are less than two percent of the population. Thier Dr.s should have told them of the possible side effects so they could have made a more informed decision. I always ASK my Dr. about interactions with other medications and side effects. I kind of think if something is going in my body, its my responsibility to learn everything I can about it. Sorry to those with bad results, but this drug has help hundreds of thousands of people.

-- By lvaanhorne | Reply | Private Message me


 

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